wierd symptom

[Guest guest]

I am not sure what this means but when I lie on my back it feels like

the fluid in my head is throbbing. That is the best way to explain

it. Unfortunately I can't sleep on my left side as it makes me dizzy

and can't hear out of my left ear so when I sleep on my right side I

can't hear the alarm clock so I am afraid I will oversleep so I am not

sleeping much right now. Any suggestions? Anyone ever experience this

and if so what was it. I am thinking increased pressure due to syrnix

or other blockage. Have a phone call into the doctor but they take

FOREVER to get back to you. Ready to go to er but because I am on pain

meds they treat me like an addict.

Console

ACM 1 22 mm herniation

Decompression 2/04

now have syrnix

[Guest guest]

Dear Friends,

I have the fluid throbbing in the head feeling due to high pressure

problems. Even though I have a VP shunt, if I fall asleep for a few

hours but if not laying with my head elevated high enough, the spinal

fluid tends to pool on top of my head and it starts to throb. It is

always in perfect pace with the heartbeat. Every time your heart beats,

spinal fluid is circulated throughout your body. So, I will awaken when

I feel that throbbing, I generally have a headache and my ear will have

the pounding noise. I have to sit up for a long while (which is

difficult to do when my head is throbbing) and let the fluid gradually

drain out of my skull. It may take a few hours for the fluid to leave

and for that throbbing to stop. Once, the fluid is out, my ear noises

stop and so does the throbbing. The headache lingers though all day

because once all those areas in my head has been weighed down, it seems

to take a while to recover.

I have only one jugular vein that drains, the other is clogged for some

unknown reason but the occluded vein is the cause of my Pseudotumor

Cerebri. On the MRI's I used to have before decompression and shunts,

the top of my brain was always very, very white. They said that was all

that excess spinal fluid just sitting on top without a normal drainage

pathway.

When I was seeing all the doctors for so many years, I would ask them

if only having one jugular vein was causing some of my symptoms. They

all either said no it was not causing anything because you have another

one that works...or they would say yes it is causing a problem due to

extra bloodflow in the one working vein. They never ever thought about

the spinal fluid being blocked. But in either case, they all said that

nothing could be done for me and I just had to become used to it.

I am beyond lucky that they were incorrect.

Dana