Re: ~recurrence of headaches and neck pain post decompression

[Guest guest]

I have a neck pillow. It's shaped like a U, and it fits around my neck. It

keeps my neck warm, and it supports my neck (not stiff like a collar, but enough

so my muscles don't have to work so hard). When I'm sick, I wear it all the

time around the house - while eating, sleeping, sitting, just all the time!

When I leave the house, I am sure to wear a scarf (even in warmer weather,

because just *one* draft and I'm in spasm city.

That's what I do.

Jade

Kathleen wrote: Diane

wrote;

i haven't been around for quite awhile. i had surgery in october, 2006, and

it was pretty uneventful. i was doing fairly well - very few headaches and

not much neck pain - until the 22nd of october (hm...almost exactly 1 year

from my operation; i just noticed that) when i overdid it and experienced a

severe headache with neck pain that lasted well into the next day. since

then, i've had regular chiari- type headaches, and frequent neck pain, the

neck pain esp. when it's cold outside and my muscles tense.

wondering if anyone knows if this will improve and if you might have a

suggestion for the neck pain that comes as a result of the cold. it is

severe, and oftentimes leads to spasms.

Kathleen's experience:

The cold is my neck's worse enemy. It causes my neck muscles to go into

spasm to the point I could scream. Something I've found helpful when I know

I will be outside in the cold are the Therma Care Heat packs, or my TENS

unit. I used to sit through fall sporting events, and between the two they

saved my neck many evenings.

Kathleen

Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed

with craniocervical instability, Ehlers Danlos, and Tethered Cord Syndrome,

surgery for everything but EDS since 1998.

http://chiariconnectioninternational.com/

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[Guest guest]

Try wearing scarves. Either those knitted ones, or those granny kind (silk or

polyester tied or wrapped around neck kind of like in the 1950s). If *any* and

I mean ANY kind of draft hits my neck I'm destroyed. I will have pain aches and

spasms for weeks or months to follow. You will never, ever find me without a

scarf on or nearby. Even in the summer!! Because those air conditioners can do

a number on me too if it hits my neck.

Keep your neck warm or at least at a 'same' temperature most of the time.

At home I wear U shaped pillow (all the time, eating, sleeping, sitting, etc)

when I do get the spasms. This keeps neck warm and helps support it. I don't

wear a collar when I get spasms, because that just makes my neck stiff and when

the collar comes off, I'm in for a bad battle with weak/stiff neck and spasms.

Jade

Diane wrote: hi folks,

i haven't been around for quite awhile. i had surgery in october,

2006, and it was pretty uneventful. i was doing fairly well - very few

headaches and not much neck pain - until the 22nd of october

(hm...almost exactly 1 year from my operation; i just noticed that)

when i overdid it and experienced a severe headache with neck pain that

lasted well into the next day. since then, i've had regular chiari-

type headaches, and frequent neck pain, the neck pain esp. when it's

cold outside and my muscles tense.

wondering if anyone knows if this will improve and if you might have a

suggestion for the neck pain that comes as a result of the cold. it is

severe, and oftentimes leads to spasms.

thanks,

diane

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