Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Thanks everyone, you are all so right. I know I need to take care of myself. My worst fear is that I could end up like when I was first sick where even talking was too strenuous. I mean I have problems with my cfs and fibro now, but whereas now I'm often too tired to prepare food, back then I was often too tired to lift a fork. It was like there was a thick wall between me and the rest of the world, but the wall was just my body. With the wildlife center, the reason I volunteer is that I can't work a paying job. I'm not reliable enough and can't work often enough. I call in sick a lot to this place. Now, though the girl who was in charge of my shift was 'let go', so there aren't enough people, and the animal care directors keep hinting they want me to take over the lead. I keep saying no. Today I did a really bad thing, I propped myself up on b-12, sugary food, and red bull so I could make through a midterm and the shift. I likely failed the midterm, but on the plus side I held an osprey, a hawk, and a great-horned owl. It would be hard to give that up. But now I feel sick and am just praying my brain will stop running in circles long enough for me to get some sleep. I did tell the people at the center that I have to take the next 2 weeks off at least, after that I will take Aylwin's (I think it was Aylwin, sorry if it wasn't) suggestion and just explain that I can only physically handle to work part of a shift, and if they don't like it well, oh well, that's it then. They need to find more people to work Thursday evenings. I have explained to one of the animal care directors about my cfs because I let something slip about injecting myself with b-12, so hopefully she will understand. I'm also not stressing over school tests this term. It may result in much lower grades, but oh well. There was a time I thought this dumb disorder would keep me from graduating high school, so it's a miracle I'm even here at all. It's going to be 8-9 yrs total for me to get my degree (I've been working on it for almost 6), I'm just chipping away at it 2 or 3 classes at a time. The goal is not for me to kill myself to get a degree, it's to do something in the time while I'm trying to get better. Many of my goals in life are probably unrealistic, but I can't give up on them. The oldest person to ever climb Mt. Everest was 71, so I have time. But after I graduate I might take a year and do absolutely nothing, no volunteering, no school, no work, no social life, nothing. A friend of my family was sick for 15 yrs with cfs and he only got better by complete withdrawal from everything. I've sort of done that before, but not completely. " I've begun looking at my cfs situation like the emergency procedure for airplane crashes:Please secure your own oxygen mask before attempting to help others. " I love that. I will have to tell that to my mom. I'm really looking forward to going home this summer. Maybe I'll stay longer than I had planned. And take a break from the b-12 shots. My legs feel so bruised. Sorry this got so long, I didn't mean it to be. -Alia Quote Link to comment Share on other sites More sharing options...
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