Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Amy---I to had a tilt table test before surgery and failed it and the doctor said I had POTS or NMH.I guess the test tells different things.You need a spec that knows Chiari.. Lots of luck---Jerry in Carolina--- Chiari and pacemakers > Hello fellow Chiarians, > > I'm wondering if anyone has had experience with > pacemakers. > > After having a positive tilt table test where I > fainted after about 20 mins, my cardiologist has > written to me saying that they could offer me a > pacemaker of the type DDDR (I have no idea what this > acronym means!). He said that on the tilt table, my > heart rate was fast initially but then slowed quite > considerably and my bp dropped which was when I > blacked out. He said that there were no guarantees, > but I could have a pacemaker and then they could > medicate me for tachycardia (I presume he is talking > about beta blockers). > > It all seems a bit drastic to me... I thought they > would offer me medication first. If anyone has any > info or experience I'd love to hear it... especially > anybody who is living with Chiari and has a pacemaker. > I'd particularly like to know if the pacemaker helped > and how it's affected day to day life... I know it > means you can't have an MRI which is inconvenient for > us Chiarians! > > Many thanks in advance, > > Amy (UK) > Quote Link to comment Share on other sites More sharing options...
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