just being heard- vague question-

[Guest guest]

i feel the need to ask for some feedback- get some broader type of

reality check here- as to progression of TC and CCI , crainal

settling, POTS and EDS.

I have noticed each week of the last month more and more numbness-

over my whole body. there are only a few places i can feel pain-

underneath several layers of skin- pinched. now my hands are acting

more crippled on and off and my walking is taking a steep decline-

feet turning

inwards, ect- almost can't walk if i sit too long. can't be without a

brace for very long or up on my feet for very long- + vomiting-

nothing my doctor has tried is helping. my last paraylsis episode was

worse than the ones i used to have regularly-

i guess i want to ask how far you guys think you can decline before

things are permanent. or something like that. or maybe where this

brief scenario falls in the spectrum of decline with your experiences-

sorry to be vague,

maybe i just need to be heard. (wink)

thanks!

wishing you all a rainbow

prism