Upcoming visit with neurosurgeon

[Guest guest]

Hello all. My grandson had his cervical MRI done yesterday and we are

scheduled to see the neurologist next Wednesday and the neurosurgeon

on Thursday.

I thought this might be a good time to get suggestions

about what to ask each of them or what to listen for in what they tell

us.

One thing that my daughter mentioned was that the radiologist who

performed the MRI said that it was possible that the syringomylia was

actually " debris " left over from when he was forming rather than a

syrinx. I hadn't read about that anywhere, so I am not sure what to

make of it.

I am going to try to take some legitimate research

documentation that the size is not necessarily an accurate predictor

of symptoms in case they say it is too small to be causing problems.

I also plan to ask how the CM can be termed " asymptomatic " when there

is already a syringomylia, because if I am understanding what I have

read correctly the syringomylia forms due to obstructed flow which

indicates there is already a problem. Anyway, any suggestions to help

us prepare for the visits would be appreciated. Thanks all.