Re:Chiarians and Tetracyclines

[Guest guest]

I was given a tetracycline back in the late 1960's

early 1970's for acne. I took it for a about 3 years.

It helped the acne but I was found to have

psuedotumor cerebri in 1989 after many years of

headaches. I was also losing my vision due to the

fact that I also developed hydrocephalus (it was not

known at the time that I also had a chairi II.

We need to really research the drugs that doctors want

to prescribe to us. I also had been prescribe DHE for

headaches. I would inject myself with DHE for over a

year. It did not help the headaches but I have

developed Raynauds. It is a side effect from the DHE.

Just my 2 cents worth.

Debi

Posted by: " chrysanthemumsr4me "

chrysanthemumsr4me@... chrysanthemumsr4me

Sat May 10, 2008 4:33 pm (PDT)

Just thought I should pass along this info to fellow

Chiarians. Our

son, who has Chiari, was placed on Minocycline for

acne. He began to

have increased headaches when he was placed on this

medication.

Because his acne improved, the physician decided to

double the dose

of the Minocycline. We were told there was no

relationship between

the headaches and the medication. From that point of

the dosage

increase, our son spiraled downward neurologically.

His symptoms

consisted of continuous moderate headache, balance

problems, major

confusion, possible seizure activity (petit mal), and

nausea with dry

heaves. His confusion became quite significant. He

told us that he

felt like he " was in a dream and could not get out " .

He also said he

felt like he " was going in and out of anesthesia " .

Then he began to

walk like a drunk. His neurologist could not see him,

so he was seen

by the pediatrician who diagnosed him with pseudotumor

cerebri. We

were told by the pediatrician that Chiarians should

not be placed on

Tetracycline medications. Minocycline is in the

Tetracycline

family. One of the side effects of this medication is

pseudotumor

Cerebri which consists of increased intracranial

pressure. Once the

medication was stopped, our son began to improve. I

would suspect

that any medication which has pseudotumor cerebri as a

side effect

should be avoided by Chiarians. The pediatrician also

told us that

extra supplementation of vitamin A can also produce

pseudotumor

Cerebri in Chiarians.

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[Guest guest]

Does anyone have experience with the potent drug Accutane used for severe acne?

It is Vitamin A based and now I wonder if it increases intercranial pressure

also. Many years ago, I was on it for a short while and I had a very bad

reaction to it. Confusion, foggy head, dizziness, fainting, severe headaches

etc. I stopped taking it and after a few weeks, started to feel better. The

dermatologist was very adamant that I was not " sick " because of the Accutane but

I knew better. My daughter is the one with TCS, and Chiari problems but I am

beginning to think that I may have compression issues as well though not as life

altering. I also hear a lot of swooshing in my ears lately.

Theresa

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