Intro

[Guest guest]

Hello everyone.

I joined the group a few weeks ago adn have been lurking. I thought it

was time to introduce myself. My name is Jennfier and I am a 31 year

old mom of 3. We live in a small town in Northeast PA. I was

diagnosed with ACM in 2001, following a car accident. I had

decompression in July 2001 and a revision August 2002. I was diagnosed

with Intercranial Hypertension in 2005. I had a lumbar shunt implanted

in June 2005 and 9 revisions since then. I decided that it was time to

see TCI, so I have send out my records & hope to hear from them with an

appointment soon. At this point, I know that they are my best hope for

any relief.

Thats pretty much it in the really, really abridged version. If anyone

has any questions, feel free to ask away. Nice to meet all of you.

in PA

[Guest guest]

Hi ,

I'm one of the people who didn't know about the link between Hashimoto's and

Graves Eye Disease. I'm going to look it up. What were your first symptoms?

I'm so sorry about your painful eyes. I hope there is something that can help

with that. I'll go look it up.

I don't know if this is just me or what but I often get the sensation that small

tiny flies or fleas are jumping right into my eyes. It happens wherever I am --

at home, at work, inside a store. Anyway, I just went to a new doctor last

week, and she ran new bloodwork and was also going to check for Graves Disease.

Can you have Graves Eye Disease without having Graves Disease?

Diane

>

> Hi,

> My name is . I am 38 and have been hypo for about 10 years. I was not

followed closely, mainly due to lack of medical insurance.

> Ten days ago I was diagnosed with Graves Eye Disease. I was surprised to find

out that people with hypo could get GED, I had thought it was only hyper.

Apparently about 4% of GED cases are hypo...3% being Hashimoto's and 1% being

simply hypo. Interestingly enough, more people (6%) have no thyroid issues at

all and are diagnosed with GED, than people with hypo (both regular and

Hashimoto's).

> I am wondering how many others on here have Hashi's with the eye disease? I am

very upset and frightened about GED. I have been in a lot of eye pain the last 6

weeks. I took one run of steroids (Medrol dose pack) last Monday thru Sat. That

was the best my eyes had looked in weeks. But I can already tell there is

swelling creeping back.

> Is there ANYTHING we can do besides surgery and radiation? I am SO frustrated

by this!

> I am sorry for venting, but I don't know where else to go. Most people I know

have never heard of it, or if they have, they associate it with hyper and have

some sort of block when I tell them hypo, like I am lying or something.

> Also, does GED fare better with Hashi's than with hyper/Graves?

> Thank you in advance!

>

>