8 year old has not urinated for 48 hours

May 9, 2008

This is crazy! My 8 year old was detethered in 12/06 and

decompressed in 12/07. Not long after her surgery she started having

headaches again but control by ibuprofen. Gradually they got worse

and more frequent and then started the numbness in her hands and

legs. If she sits at the dinner table her legs go numb. Yes I

checked to make sure she is not siting on them. She had been wetting

the bed about 3-4 times a month but now she can not go at all. I

toke her to the peditrician and he did not know what to do but call

TCI and get us an appointment now. It gets better. My 13 year old

has been out of school for 3 months with severe headaches. (dethered

12/07 and Chiari herniation gone after) On Monday night it got real

bad but nights are always worse for my kids. Tuesday she was worse

crying vomiting, weak, and shaking. I was told taking her to a

teaching hospital would be the best. So that is what we did but of

course they treated it as a migraine and guess what the medicine

didn't work. I told them this to begin with but they would just look

at me like I was crazy. They ended up admitting her and having us

waste 2 days in the hospital. They did nothing for her pain except

take the edge off and the neuro that came in put her back on Elavil.

I told the doctor 3 times she had tried it and it does not help. I

ended up telling the doctor that agreed with all that she was saying

just to get out of there. I don't understand when the doctors do not

know what to do why can't they just call TCI. They are not God and

TCI is not either but they do know a lot about this nightmare. Both

of these situations was occuring at the same time. Sorry so long I

needed to vent. If anyone has any relief suggestions in the meantime

I would love to hear them. Oh my 13 year can't lay flat because it

makes the headache worse.

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