Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 Hi everyone, I would like some advice please. We are currently going through the statementing process - identification of learning needs with Dan before he starts school next sept. It takes at least six months! Anyway the good side is that so far everyone is saying that he will go to mainstream school and that his progress is within the normal range. Great but this means he will have no additional support in or out of class. Have any of your kids been in this position and how did they cope? Also if they started off doing okay did they gradually slip back? My concern is that he is not being given support because it costs rather than that he will do fine without it. Any advice would be welcome. A second question is do any of your kids have eczema? Dan has suddenly developed peeling and dry skin on his fingers and toes, all our doctor says is to put aqueous cream on it. This helps a bit but has not cleared it up. Any ideas? Thanks a million and Dan (nearly four) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 In a message dated 11/25/02 11:11:18 AM Eastern Standard Time, CS.Maguire@... writes: << this means he will have no additional support in or out of class. Have any of your kids been in this position and how did they cope? Also if they started off doing okay did they gradually slip back? >> Hi : My daughter has been in regular education classes since she was in kindergarten (she is now in the fourth grade). In Kindergarten and first grade she received speech and language services on a very limited basis. In second grade she was monitored, which meant she wasn't getting any services, just the speech pathologist would check in with the teacher to see if there were any problems. Since she had no difficulty with academics in the classroom was declassified (not something I agreed with) and has not received any form of support. All I can tell you is that she has done very well in keeping up academically. Her reading and comprehension is at grade level and her math skills are on the low end of average. There are areas where she has definite weaknesses, mainly with making inferences and using critical thinking skills. While her computation skills in math are good, she does have difficulty with problem solving. Even though I see weaknesses my school district will not give her services. All I can tell you is that I monitor her school work very closely. I help her with whatever she has difficulty with, mainly math and studying for tests. I have very close communication with her teacher so that if difficulties arise we can work on them together. Social skills have been more of a problem for than academics. Each year the level of what is expected academically is raised and so far she has been able to keep up. I do always feel like I'm waiting for the other shoe to drop and the day will come where she will fall far behind, but hopefully we will catch her as soon as she starts to slip. It's very hard for me to take this approach, I would rather prevent her falling behind rather than wait for it to happen and then play catch-up. I understand your concerns, but with careful monitoring and extra support at home I'm sure Dan will do fine and if the day comes where he needs help I'm sure you'll get him the support he needs. also has eczema, which is starting to flare up. Try to limit the amount of time Dan spends in the bath and use lots of moisturizers. If it gets really bad the pediatrician can give you a prescription for hydrocortisone cream. Sorry this was so long. ann (Mom to , mds 9 years old and seriously into Harry Potter) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 Hi , went through the statement process took 26 weeks, and was given 15 hours support in main stream school, and help at lunch time. If Dan has a statement they have to give him the support he needs in school, eg personal hygiene, social skills etc, They won't let him struggle alone, Usually the first term children are assessed to what there needs are, and what topics extra help is needed, I work in school and (statemented) children have one to one and work in small groups, To help with there social skills ,numeracy, literacy, topic,role play, etc, He'll be fine when he starts school, Everything will run smoothly school and parents work closely together as a team !!! Try evening primrose oil( capsule broken open) on eczema it worked for katie cleared it all up. Best wishes Judy mum to ( 10 mds) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 , My daughter Kira is now 7 last Friday and she is in mainstream primary school. Kira has had a statement for a couple of years now, and is doing rather well at school, her statement only allows for 1 1/2 day per day However, the school where Kira is pays for the rest of the day out of it's own budget we have a excellent relationship with the head, teachers and the rest of the school. We started with the speech therapists, paediatric consultants, and physiotherapist. The only way to guarantee the best care is to have the backing of them all. It was mainly from the consultants we got the main assistance as they contacted other departments, however most of this was in the pipe line only when they thought that Kira had Autistic tendencies. Autism seems to be more recognised in the schools these days compared to MDS. And we only found out about this when Kira was just about to turn five, five years of specialists trying to figure this all out. It can be down to financing, and down to lack of knowledge. Kira can have eczema from time to time, however with the cream this does clear up. Hope I have been able to provide some info. Best Regards Rob (Father) to Kira 7 Re: school support Hi everyone, I would like some advice please. We are currently going through the statementing process - identification of learning needs with Dan before he starts school next sept. It takes at least six months! Anyway the good side is that so far everyone is saying that he will go to mainstream school and that his progress is within the normal range. Great but this means he will have no additional support in or out of class. Have any of your kids been in this position and how did they cope? Also if they started off doing okay did they gradually slip back? My concern is that he is not being given support because it costs rather than that he will do fine without it. Any advice would be welcome. A second question is do any of your kids have eczema? Dan has suddenly developed peeling and dry skin on his fingers and toes, all our doctor says is to put aqueous cream on it. This helps a bit but has not cleared it up. Any ideas? Thanks a million and Dan (nearly four) Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com ************************************************* MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus ************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 , Both my daughters have had eczema their whole lives. My older daughter uses Vanicream and my younger daughter uses Aquaphor - both over the counter. Load up with cream at night and then put socks or cotton gloves on to sleep. Cream right away after a bath before the skin dries. Robathol bath oil is great to use in the bath, but we don't use any soap if we can help it. I use a detergent that doesn't have any dyes or perfumes and I never use fabric softener. Both kids take Zyrtec antihistimine for the itching, which can be just a horrible thing to deal with. There are lots of medicated (mostly steroid) creams, we just kept trying them until we found something that worked. Good luck, Sue (Norah 14 and 9 MDS & ADHD) Quote Link to comment Share on other sites More sharing options...
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