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Video EEG

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Hello everyone,

I am sitting in the hospital with my daughter as I write this. She is

getting a video EEG to see what the symptoms are related to she is

having. This is our issue: she was diagnosed with 5mm chiari by TCI.

She is now being told that all of the problems she is having, I say

are related to her Chiari. They are telling me that no one with this

herniation would have these symptoms.

My herniation was only 7mm and I had all of the same problems my

daughter is experiencing. My daughter is getting more and more upset

by what is going on and I am hoping someone can give us some answers.

We are required to do all of these things due to the fact that I am

in the process of being told I am going to go to jail and have a fine

do to her missing school. Even though this is all medical related. I

need help on this and I need it fast. I hope someone out there can

help my daughter and also help in what this test is going to show.

We are to the point that we want to leave tomorrow after the NS comes

in. We feel this is a waste of time and they want us here for 3 days.

I have never heard of this when checking for epilesy. My sister has

that and has never had this long of a test. Please help!

Ryea

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