Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Hi all My appointment was a HUGE success thanks to my hours and hours of ME research and help from support groups like this one!! Thanks everyone! We made the diagnosis of ME, even though my primary care said that until I see a specialist and the specialist makes it " official " I cant claim it yet for my disability case. But now we know at least! And I did tons of research on all the blood tests that specialists order, and to save time and money, we ordered them all to be done here so when I do go to a specialist, I have all the testing done that he would have ordered anyway. I also will be going to an Endocrinologist to get more testing done as well (like an adrenal stress test and cortisol and adrenal tests that I highly recommend you to get done! Also hormone testing is done at the same time too). That will further save time. I also did lots of research on ME treatment and we discussed what could be done here now before even seeing the specialist. So we changed my meds around and now I am on Provigil and Cymbalta, both of which are used in ME with great results. Is anyone here on these or tried these? I am curious if anyone is on these for ME treatment in this group. Alot can be done if you have a really good primary care doc before you ever even see a specialist, which is great news when you are suffering NOW and need help NOW...you just have to be your own best advocate and learn, learn, learn!!! Blessings Dr. Quote Link to comment Share on other sites More sharing options...
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