Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Hi friends, I've had several requests for the business cards. The cards to not have symptoms. What we have on the back of the card is: CCI was created for those who suffer from Arnold Chiari Malformation and related disorders. Related disorders can include: syringomyelia (SM); basilar invagination (BI); cranio-spinal instability (CSI) intracranial and intraspinal cysts; tumors of the cerebellum, brain stem and spinal cord; spina bifida (SB); hydrocephalus; pseudotumor cerebri (PTC); Ehlers Danlos Syndrome (EDS); and various connective tissue disorders. And possibly some not yet even discovered! Experts will post on the board often, answering questions and explaining new connections. The front of the card is basic link info, and how to join the group and find the website. The reason we didn't include symptoms is because we have a wide range of symptoms depending on the various conditions. If we list all of the various symptoms some doctors would dismiss us as not being accurate and credible. Many of us have gone to our doctor with a list of symptoms just to be told they are not connected. It's best they read what can be related to CM, find the site and read the letters from the doctors that have been willing to assist us with accurate answers. For those that have written me over the past week, I've had Chiari company We went camping over the past 2 days and I was without my computer. I'll catch up ASAP. Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ Quote Link to comment Share on other sites More sharing options...
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