Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Arletha My dad had indicated that he would harm himself and that is why the decision was made for us to move him from his apartment. A visiting nurse called me, after I had just left to go get my son from school, telling me that my dad was indicating he would harm himself. My brother and I met at dads, while the nurse stayed with him, and we took him to an adult psychiatric hospital. Dad was still fairly coherent and kind of admitted himself there. We stayed with him through the admitting, and the intake meeting they had. That is when everything changed in life. My dad has also really struggled with anger and rage throughout this disease. I am so very sorry you are going through this, especially the rage. The disease is so very overwhelming and then when they become enraged, they truly are a different person. I know with my dad it seems he grows 28 arms and acts as if he had been lifting weights. The strength is incredible. Please, please take care of yourself. Maybe do a check on medications that Ronnie is on. Combinations of meds. is crutial. What meds. is Ronnie taking now? Maybe this group can help with some choices that would be helpful to Ronnie. Please respond, and let us know if we can help!! You will be in my prayers!! Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Can you get rid of the pistol? A threat is as good as a deed--meaning that if a person threatens then eventually they will do it. I am not generally a gun control advocate BUT you are probably better off without guns in your house just now. > > > This is the second time he has had such a bad time with denial. > Started out today with angry mood now the denial.He already took > his pistol out in country and wanted to end things.Now we try to stay > on top of things. Whats next. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Very well put. I think you have a valid point with the pistol issue. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 In a message dated 4/9/02 10:42:12 PM Central Daylight Time, badluck46124@... writes: > He sweats alot is this something LBD does? I don't recall hearing that it is, Arletha. However recently my husband complains about feeling feverish, but his temp is always normal. The humid air has begun to move into our part of the country, and that coupled with the soft collar may be his cause. I'm glad you asked the question, though. It will be interesting to see the responses. OH MY GOODNESS what a lot of meds Ronnie takes. All from one doctor? He is so young with LBD, too. So, so sorry. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Thank you for caring. Ronnie is 53 .He has had LBD for 3 years.He takes these meds.Celebrex200mg twice daily,Effexor xr 150 mg twice daily, Carb/Levodpa 50/200 2tab twice daily,Reminyl 12mg twice daily,Metformin HCL 500mg 2 twice daily,Aspirin 81mg daily,Magnesuim 100mg 2 twice daily,Vit.E 2000 ui daily,and 1 Clonazepam 1mg daily.He takes Ultram 50mg for pain when he needs it every 6 hours. He has had a lot of pain today.And his headaches are hurting him bad again. well thats enough.Thanks again for writing me.He sweats alot is this something LBD does? Arletha sanclown@... wrote: --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Arletha You mentioned the pain your husband has....my dad is always in a lot of pain also. He takes the same Celebrex and Ultram regularly for the pain. He also sweats most of the time. He has wore shorts most of the winter in the nursing home. I think it has been fairly warm in there, but not warm enough for shorts. There is a service called EMedicine, and I believe EDrug that the meds you mentioned could be looked up at. I have printed out your email and I will try to do some research also. Some of the meds I am unfamiliar with, but do know that different people react differently to the same medication. Does Ronnie have a neurologist he is seeing? Thank you for being so open concerning Ronnie's meds, and hopefully I and/or someone can be helpful. I will continue to have you in my prayers. Sandie Des Mones, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 In a message dated 2002-04-10 8:23:10 AM Eastern Daylight Time, stephanie_brent@... writes: > complaining about being warm And my husband is always cold...go figure. Ev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Arletha and Sandy--Maybe you've stumbled on something interesting. My mother is always too warm and has been all her life. The nursing home is kept warm but the other patient wear sweaters--my mother is wearing summer t-shirts and complaining about being warm. > Arletha > You mentioned the pain your husband has....my dad is always in a lot of > pain also. He takes the same Celebrex and Ultram regularly for the > pain. He also sweats most of the time. He has wore shorts most of the > winter in the nursing home. I think it has been fairly warm in there, > but not warm enough for shorts. There is a service called EMedicine, > and I believe EDrug that the meds you mentioned could be looked up at. > I have printed out your email and I will try to do some research also. > Some of the meds I am unfamiliar with, but do know that different people > react differently to the same medication. Does Ronnie have a > neurologist he is seeing? Thank you for being so open concerning > Ronnie's meds, and hopefully I and/or someone can be helpful. I will > continue to have you in my prayers. > Sandie > Des Mones, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Ev, My Mom is always cold too! Donna A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Wow, this is interesting. Kind of a strange coincidence. Thanks for replying!! Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Ev Isn't it strange, that when we send out information that seems to be common among LBD patients, it always becomes not so common? I had to laugh at your reply. Just when the " warmth " issue began to make sense, your reply was your husband complains about being cold. Thanks for shedding more light on this subject. Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 In a message dated 2002-04-10 2:16:11 PM Eastern Daylight Time, fritter@... writes: > runny nose and her tremor THAT we have in common as well. Ev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Well maybe it is the internal thermostat that is broken > Ev, > My Mom is always cold too! > > Donna > > A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Arletha and Sandy--Maybe you've stumbled on something interesting. My husband runs on the hot side. However, he is prone to suddenly getting so cold his teeth chatter.....even though it's not cold. Mai-Liis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Good comment. Maybe this is common after all.......just dealing with the " internal thermostat " Creative thinking on your part. Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 > Ev > Isn't it strange, that when we send out information that seems to be > common among LBD patients, it always becomes not so common? I had to > laugh at your reply. Just when the " warmth " issue began to make sense, > your reply was your husband complains about being cold. Thanks for > shedding more light on this subject. > Sandie Mom is cold all the time. Even in the heat of the summer last year she said she was cold. She wears sweatshirts and covers up with at least 1 blanket all the time. Says she doesn't want to get out of bed because she's cold. Doesn't want to take a shower because she's cold. Doesn't want to go anywhere because it's too cold. She blames her runny nose and her tremor on being cold. She is still in denial and doesn't or can't comprehend it is all part of LBD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 > Ev > Isn't it strange, that when we send out information that seems to be > common among LBD patients, it always becomes not so common? I had to > laugh at your reply. Just when the " warmth " issue began to make sense, > your reply was your husband complains about being cold. Thanks for > shedding more light on this subject. > Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Wanted to let you know we did an impromptu survey on the runny nose thing and found that it seems to be a very common trait of LBD. I guess I am not sure if it is a side effect to meds, or the actual LBD. It would appear to be the LBD as not all the LO's of this group are on the same medication. Thank you for your reply!! I hope all is going well with you. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 > runny nose and her tremor THAT we have in common as well. Ev Same here! Mai-Liis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Arletha, You said that Ronnie takes 2 50/200 Carb/Levodopa twice daily? Are those CR (controlled release)? Parkinsons medications can aggravate the cognitive difficulties with LBD. It's a fine line we tread between keeping our LOs mobile and keeping their cognitive functioning maximized. 's neurologist recently reduced his Sinemet due to his continued hallucinations. Before was diagnosed with LBD, his former neurologist kept increasing his Parkinsons meds because he felt was " too rigid. " This left almost catatonic. Once we found the right neurologist and got the diagnosis and corrected his medication, did amazingly well for quite a while. I'm not familiar with some of the other meds you listed. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Yes Ronnie takes 2 50/200 Carb/Levodopa ER twice daily for his jerking.He still jerks some when he gets alittle upset. Waldron wrote: Arletha, You said that Ronnie takes 2 50/200 Carb/Levodopa twice daily? Are those CR (controlled release)? Parkinsons medications can aggravate the cognitive difficulties with LBD. It's a fine line we tread between keeping our LOs mobile and keeping their cognitive functioning maximized. 's neurologist recently reduced his Sinemet due to his continued hallucinations. Before was diagnosed with LBD, his former neurologist kept increasing his Parkinsons meds because he felt was " too rigid. " This left almost catatonic. Once we found the right neurologist and got the diagnosis and corrected his medication, did amazingly well for quite a while. I'm not familiar with some of the other meds you listed. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Dad has the runny " nasal faucet " but does not have a tremor. Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Arletha, That's a HUGE dose of Effexor! This is the only med I have personal experience with. And, then Clonazepam on top.......hm....... If my husband were on that many meds, he would be a Zombie. Does Ronnie's doctor know about LBD? Just wondering...... Mai-Liis Re: Ronnie and Denial Thank you for caring. Ronnie is 53 .He has had LBD for 3 years.He takes these meds.Celebrex200mg twice daily,Effexor xr 150 mg twice daily, Carb/Levodpa 50/200 2tab twice daily,Reminyl 12mg twice daily,Metformin HCL 500mg 2 twice daily,Aspirin 81mg daily,Magnesuim 100mg 2 twice daily,Vit.E 2000 ui daily,and 1 Clonazepam 1mg daily.He takes Ultram 50mg for pain when he needs it every 6 hours. He has had a lot of pain today.And his headaches are hurting him bad again. well thats enough.Thanks again for writing me.He sweats alot is this something LBD does? Arletha sanclown@... wrote: --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Yes she does.She has made a lot better than he was when first started seeing her.He wasn't remembering much at all.He was having a lot more trouble with finding his words.At times he would forget how to talk.He was really jerking and shaking.But now we have our good days and our bad ones.We just live one day at a time. The last visit he asked her what he thought about him as far as LBD. She told him if he had anywhere or anything he wanted to go or do he should do it in the next two years.Because he may not be able to enjoy as much?This is one thing I need to know what is going to happen?? I'm lost.He is very head strong and he changes his mind so much.You have to know him to know just what I mean.He takes1-Effexor XR 150 mg twice daliy.But he still has a bad time with depression.But that is were I think he is in denial? He just doesn't want to believe he is ill.He has always beena strong man.He feels he losing control of his life. Guess this is long enough. Arletha Mai-Liis wrote: --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 My husband, also, was in total denial for a while, saying there was nothing wrong with him. I resented this a lot....yet, at the same time thought why should both of us suffer? His friends, also, thought I was imagining things and even I, at times, thought I was crazy. When I found this site and started reading I saw that this was pretty normal for LBD. I must say that I have spent a lot of time in denial myself! Even now, reading what is happening with everyones' LO's......I have trouble picturing us this way....simply because I don't know how I'm going to survive it. Already, though, I have dealt with behaviors which I previously had been certain to not be willing OR able to handle. Arletha, if you keep reading, you will KNOW what to expect. It is true that each patient's disease progresses somewhat differently, but I now see a common thread.....and, unfortunately, I kind of know what is going to happen. Hang in there! Mai-Liis Quote Link to comment Share on other sites More sharing options...
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