Re: - Anger management - predisone

[Guest guest]

Kathleen, you Thanksgiving story sounds VERY INTERESTING>>>>>

Cheryl Burton ncicheryl@...

Re: - Anger management - predisone

Thanks guys! It's very hard to go through and I wish I had this group when I was going through it too! Hope today is better Madeline! :-) You're in my thoughts! I told my hubby about my post to you and he pretended to cringe and say "yes ma'am! whatever you say, ma'am!" One day I'll have to share my Thanksgiving dinner on massive steroids story with you! Kathleen>> > > > > Thank you, Kathleen -> > another fantastic post of insight and advice!> > > > > (Madeline, you are getting some A+ advice from people here!!!)> > > > > > Hope you are feeling well today.> > >

Alana

[Guest guest]

There are so many thanks to give here. I am feeling much better and

more stable today (at least for the moment). I really don't think

that this has anything to do with female hormones. From all my

research and Kathleen and the doctor and others here it seems to be

the Prednisone as I am on an extremely high doseage. I have also been

fighting insomnia in a big way. However because the dosage is so high

I have to break it up. I take half around 5 am and the other with

dinner. That way by bedtime the Ambien and Xanax have half a chance

to give me at least a few hours sleep. I really think most of my

issue this past week has had to do with that cold. They tend to make

you feel crappier anyway. I think it was just enough to push me

emotionally over the edge. I just took my last antibiotic pill and

the cold seems to be gone. Also, crazy as this sounds having a

screaming match with was a bit cathartic. It seems to have

helped. I haven't talked to about joining a group, although I

think I will. I will probably ask him to join this group to at least

read all of the posts. Maybe that will help him understand a bit

more. I know he has done a lot of research on his own, but I used to

think that I understood or at least had empathy for people with

chronic problems. I had no clue about the daily challenges especially

for people with breathing problems. I know I have been getting some

very excellent advice. I love you all. You are so valuable to me.

You have no idea how glad I am to have found this group.

Madeline

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> >

> > Thank you, Kathleen -

> >

> > another fantastic post of insight and advice!

> >

> >

> >

> >

> > (Madeline, you are getting some A+ advice from people here!!!)

> >

> >

> >

> >

> >

> > Hope you are feeling well today.

> >

> >

> > Alana

>

[Guest guest]

Cheryl, EMAIL ME OFF THE LIST NOW!

Terry I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teddy Bear's Early Learning ProgramEstablished August of 1992

From: asthma [mailto:asthma ] On Behalf Of Cheryl BurtonSent: Monday, September 15, 2008 11:24 AMTo: asthma Subject: Re: Re: - Anger management - predisone

I am at that point now that I cannot handle all that is going on in my life. I spent the weekend crying and praying. I have a God Box that I put pieces of paper that I write on in. This way God can handle them for me. But in HIS time, not mine.

Cheryl Burton ncicheryl@...

Re: - Anger management - predisoneMadeline,Definitely not OT! This is a major problem with lots of steroids. It's also a part of the Cushings which is being caused by the steroids. Youreally can't help or stop yourself. My husband and I went through a reallytough time when I was in the hospital for over a month and going throughthese same things. Here's a couple of things I did to try to help.1. Try like heck to hold my tongue! It seemed to rule me more than Iruled it. I just wanted to lash out at everyone and everything! and if Iwasn't lashing out, I was crying. (never good for asthma)2. Write my husband letters and emails telling him how amazing he isand is being about my health. Tell him what a great job he is doing and toplease disregard any bitter, terrible comments I make, because it reallyisn't how I feel inside, but the steroids talking.3. Try like heck to get on a lower dose of the steroids. I know thatis much easier to say than do, but even a little lower seems to help withthe "roid rage". Possibly talk to the dr about substituting in somehydrocortisone instead of so much prednisone. Your body can tolerate it easier, although it's not as effective.4. Talk to the dr about an antipsychotic or higher dose of Xanax. Thesteroids at such high levels cause Steroid Psychosis. I actually startedseeing things and believing there were people sitting in my room next to meand such. It's not uncommon at all at such high levels. The dr's were moreworried about whether or not the "people" were talking to me too! (Thankgoodness they weren't!)5. Ask for help! Just like you are doing here. I sat my family downand tried to explain to them what was going on and how "crazy" the medicinewas making me feel. I asked them to help me cope with it. I asked them toplease check on me and help with chores I couldn't do. I think I feltbetter just knowing I had told them all how much I loved them and neededthem right then. Maybe ask a relative to come stay with you and your familyfor a few days to help out and give your husband some relief? My mom wouldcome take my youngest two to her house for dinner and she cooked countlessdinners for me. I know how difficult it is to rely on everyone else, but sometimes in ourlives we have to. I try to be there for my family when I'm well and ask thesame of them when I'm not. My heart goes out to you and your family. Itruly have been in your shoes and know it is REALLY not a place to want tobe at the moment. I also believe in the power of prayer and letting go andletting God. I must have told myself that a million times when I was inyour place. Even saying the words now helps me. "Lord, I can't handle thisright now and I'm giving it up to You. I'm placing this in Your hands.It's Yours now. Thank You for taking it from me." I really couldn't handleit all. You HAVE TO focus on your health. If you don't, you won't make itand everyone who loves you needs you to make it!I hope my experience can give you some hope and encouragement. This tooshall pass. It really will. It's just going to take some time and way morepatience than God granted us!KathleenP.S. I still believe my husband is a saint! :-)>> Hi guys - not really sure if this is off topic or not as it does not > directly pertain to my breathing, but here goes. I know thatKathleen> and I have spoken about this a good bit previously, but I am > desparate. Earlier in the week I had a cold, and I believe the cold > was just enough to push me over the edge and let the steroids take > over my moods. For a couple of days I was in the worst moods of my > life. I am generally a very positive and happy person. I tend to > have the attitude that you just deal with whatever life throws your > way. Your attitude is your altitude and all that. Now I understand > that my mood issues are probably completely due to the prednisone(80> mg per day for the foreseeable future), and I can not come off ofthis> doseage. My docs really believe that it is the only thing standing > between me and a ventilator. Also, I have noticed a majorimprovement> in my PFs in general. So the steroids are doing something. Anywaymy> real problem is my anger. This week has been horrible. I will getso> angry over nothing. Especially at DH. And most of the time all heis> trying to do is help me with something. I have been almost acomplete> invalid for the past several months as I have little strength or > stamina and that is really chafing me as well. I tend to be able to > bite my tongue for the most part with the kids, but not with DH.> Anyway I bit his head off and he bit back this time. I do not blame > him, he was completely justified, but we had a major fight. Endedup> with my asthma and oxygen levels being nutty all night and my chest > hurting. No sleep last night at all. I am not going through allthis> for your sympathy. I need some suggestions. I am taking Xanax 3 > times a day, and I is just not doing it. Does anyone know of some > kind of herb (legal) that may help? I am very good withvisualization> techniques and general techniques to stay positive - I use manydaily.> They just don't seem to help when the "roid rage" is in fulleffect.> The worst part is that I know when I am being completely > unreasonable. I know that it is me, but I seem to have absolutelyno> control. I am so afraid that I am going to push DH away (this has > been 4 months of the steroids now), and he deserves the husband and > father of the year award. He told me last night that he doesn'tknow> how much more of this he can stand. I have to find a way to control > this. He is so good about everything. He doesn't deserve my angeror> to be lashed out at. HELP.> > Madeline>------------ --------- --------- ------

[Guest guest]

Hi Cheryl -- I no exactly how you feel I started to go back into recovery mode but I know I can plunge again and it is devastating.

Subject: Re: Re: - Anger management - predisoneTo: asthma Date: Monday, September 15, 2008, 11:44 AM

Thank you. Although this is not the end of the bad times for a long time, I am afraid.

Cheryl Burton ncicherylyahoo (DOT) com

Re: - Anger management - predisone

Sorry to hear you had a bad weekend, hugs and prayers sent your way.> >> > Hi guys - not really sure if this is off topic or not as it does not > > directly pertain to my breathing, but here goes. I know that>

Kathleen> > and I have spoken about this a good bit previously, but I am > > desparate. Earlier in the week I had a cold, and I believe the cold > > was just enough to push me over the edge and let the steroids take > > over my moods. For a couple of days I was in the worst moods of my > > life. I am generally a very positive and happy person. I tend to > > have the attitude that you just deal with whatever life throws your > > way. Your attitude is your altitude and all that. Now I understand > > that my mood issues are probably completely due to the prednisone> (80> > mg per day for the foreseeable future), and I can not come off of> this> > doseage. My docs really believe that it is the only thing standing > > between me and a ventilator. Also, I have noticed a major> improvement> > in my PFs in general. So the

steroids are doing something. Anyway> my> > real problem is my anger. This week has been horrible. I will get> so> > angry over nothing. Especially at DH. And most of the time all he> is> > trying to do is help me with something. I have been almost a> complete> > invalid for the past several months as I have little strength or > > stamina and that is really chafing me as well. I tend to be able to > > bite my tongue for the most part with the kids, but not with DH.> > Anyway I bit his head off and he bit back this time. I do not blame > > him, he was completely justified, but we had a major fight. Ended> up> > with my asthma and oxygen levels being nutty all night and my chest > > hurting. No sleep last night at all. I am not going through all> this> > for your sympathy. I need some suggestions. I am

taking Xanax 3 > > times a day, and I is just not doing it. Does anyone know of some > > kind of herb (legal) that may help? I am very good with> visualization> > techniques and general techniques to stay positive - I use many> daily.> > They just don't seem to help when the "roid rage" is in full> effect.> > The worst part is that I know when I am being completely > > unreasonable. I know that it is me, but I seem to have absolutely> no> > control. I am so afraid that I am going to push DH away (this has > > been 4 months of the steroids now), and he deserves the husband and > > father of the year award. He told me last night that he doesn't> know> > how much more of this he can stand. I have to find a way to control > > this. He is so good about everything. He doesn't deserve my anger> or> >

to be lashed out at. HELP.> > > > Madeline> >> > ------------ --------- --------- ------> >