Re: Vision upon waking

[Guest guest]

Of mayz176 wrote:

This may seem like a silly question, but do you often have slightly blurred

vision for a couple minutes in the morning after sleeping on that side? For

example, you sleep on your right side, and your right eye is less crisp?

Kathleen's response:

Visual problems have been a symptom of mine since I was in kindergarten.

Between the floaters and the on again off again blurred vision. I can see as

clear as can be one minute, and then can't read a road sign the next.

I used to sew reproductions of antique samplers as a business. I can't meet

deadlines any longer. I can't ever count on my vision being good enough to

see the linen.

As a child I had to change my glasses at least 2x a year. At 51 it is still

yearly. The current script never seems to work.

Check you vision out at various times during the day. I would suggest seeing

a neuro ophthalmologist for a field study and complete exam.

You aren't alone, this is one symptom that I have seen come across the board

often.

Kathleen

Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed

with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome,

surgery for everything but EDS since 1998.

http://chiariconnectioninternational.com/

[Guest guest]

Wow. This has certainly been a problem for me. When my symptoms got so

bad this winter that I could not lie down, I started sleeping upright. After a

few weeks I noticed that my vision was remarkably better. In fact, my

visual acuity had gone from 20/400 to 20/30 !!! Now I don't even bother

wearing my glasses.

If I accidently grab an old pair, I have vertical diplopia because of all the

prisms the lens had in them. My poor opthalmologist is dumb-founded. He

doesn't even charge me to come in for refractions anymore.

Interestingly, my symptoms (headache,nausea,vomiting,numbness,vertical

diplopia,etc) return if I try to recline at all, so for now I am staying

upright.

I had TCS on May 5 and will return to TCI on July 8 for ICT and CCF. I

wonder how this will affect my vision? lol

Debbie

EDS

cranial settling

TCS May 5 at TCI

scheduled for ICT and CCF July 8

syringomyelia

**************

Vote for your city's best dining and nightlife.

City's Best 2008.

(http://citysbest.aol.com?ncid=aolacg00050000000102)

[Guest guest]

Hi Debbie,

I too found within 5 months of my fall that my symptoms weren't as bad during

my afternoon sleep (which I had to have as I wasn't sleeping well at night,

waking every 2-3 hours and needed to catch up). The only thing different with

the sleep I took on an aftrenoon was that I was sleeping sitting up on the

sofa, so from that point on I have been sleeping almost sitting up at nights too

and I'm sure it's delayed the onset rate of some of the symptoms. The only

problem was that invariably my head would fall over and wake me in neck pain, so

eventually I used a horseshoe shaped cushion (to which my friend sewed some

velcro at the front to fasten it and complete the circle) - night-times became

a little more comfortable - JUST!

Barbara