Update - My appt. with Dr. Rosner

[Guest guest]

Hi Everyone,

I had the absolute pleasure of having a neuro. consultation with Dr. Rosner

last week.

In my years of trying to find answers, I have met with both local and out of

state Chiari 'specialists/experts' and, have finally found someone who

really is not only a chiari expert, but is also incredibly human. I did not

detect an ounce of the " God Complex " . He doesn't let his extensive

knowledge, experience and ability to help SO 'the needy' (smile) get to his

head. I can't say that about ANY of the neurosurgeon's I've dealt with.

He also surrounds himself with staff members who are also incredibly

knowledgable, kind, funny and ... patient. :-)

I was referred out to a cardiologist (tilt table test) and a hematologist

(my bleeding disorder). Again, I was blown away by their knowledge and

expertise in their fields. Dr. (cardiologist) knew WAY more than the

average joe about Chiari. I'd be willing to bet my life on his knowing a

lot more about it's impacts/implications than the neurosurgeon who initially

did my chiari decompression. The Hematologist knew of Chiari but, more

importantly for my needs, he fully understood the specifics/implications of

my particular bleeding disorder (which isn't exactly one of the cut/dry

ones).

I honestly felt like I was in the twighlight zone while there. Even the

hospital staff was incredible.

I failed the tilt table test. WOW what an 'intriguing' test. LOL.

I had a completely different and more detailed set of MRIs done than I have

ever had done. Talk about thorough!!!! Dr. Rosner found things that my

doctors should have found even on their text book MRI requests.

He pointed out quite a few interesting little tidbits on the MRI's. Kinda

makes me want to ask the local docs what they heck they were thinking about

when they viewed my scans! Grrrr.

CSF Flow Study - again, he picked up things that local docs didn't; like,

um, some inadequate flow of csf - the main reason that my local docs had me

do CSF Flow study's. What part of flow problems didn't they understand

while looking at the films????????????

CT scan - again - he saw stuff that should have been caught before.

Neck Xrays - I've never had xrays of my neck done this way before. But, even

so, my docs should have seen the Klippel-feil (fusion of my c2-c3).

After my appointments with Dr. Rosner, I don't know whether to laugh, cry or

beat the living day lights out of some of the local docs who supported (ha!)

me during the last SIX years.

I will be eternally grateful to Dr. Rosner, his staff and other specialists

that he brings on board as needed.

I can not emphasize enough to the folks out there that Dr. Rosner is an

exceptional Doctor, an expert in his field and a wonderful human being.

His website (with a contact form – on the FAQ page is www.mjrosner.com