to have surgery or not

[Guest guest]

I am one of the people who decided to live with my Chiari instead of taking

the advise of my neurosurgeon at The Chiari Institute, instead I went to a

pain management center in Houston, Texas and as it progressed I was given

increasing amounts of pain and neurological medications. It did not go away,

it did not improve...I simply adjusted to being able to do less activity and

have more pain and nerve damage.

3 years ago I was given a good possibility of a full recovery with

decompression surgery, but now they tell me because of the longevity of the

condition and the severity of the pain not to expect a full recovery.

Its sad, but had it been my heart I would have jumped at having surgery to

repair it, yet this is my and my spine and all the damaging effects

that Chiari was causing and I continued to delay my surgery! Finally the

Pain has driven me to surgery!.

There are many other symptoms that occur as the condition worsens, I will

not share this on a public post but if anyone whats to know what happened

when I procrastinated about having surgery I will share this information

privately, this will let you know what you are possibly in for should you

delay a needed operation.

I am hoping that my experience will at least discourage someone from waiting

for surgery too long. That way this condition of mine will at least serve to

help someone else. Maybe someone will benefit from my mistake!

age 58, Chiari variant 00mg tonsil, Elers Donlos Syndrome, Cranio Cervical

Instability, scoliosis (2), Degenerative Disk Disease, Degenerative Joint

Disease, osteoporosis, osteoarthritis, Facet Arthritis Fibromyalgia, GERD,

symptoms of Tethered Cord Syndrome.

Surgery scheduled July 2 and July 7.

I hope this Independence Day will be the beginning of being Independent from

Pain!

Stoker sent this to me, please respond to her address:

stokerafishing@...