What are my odds?

[Guest guest]

Wade and anyone going to TCI:

This is a valid question and one I had when I was waiting for my appt

at TCI. They look at your films and your forms b4 agreeing to see you.

They would not waste their valuable time unless they think they could

help you. You will get answers there and some course of treatment.

All of us are different with this insane condition. We all have it to

a different degree and all of our treatment varies. They are the best

and because of that are so busy, they can't afford to waste their time

seeing someone they can't help.

Please put your worries aside and get ready for your trip and the help

you have been waiting for.

Wendi in PA

ACM 5.5mm

TC

TCS @ TCI on 1/3/08

[Guest guest]

Wade asked:

Hello everyone its been almost 9 months since my last post. I have an

appointment scheduled for the 28th of this month at TCI. My question for all

of you is this, what are my chances of going to NY and being told " were not

sure whats wrong with you " this has been what Ive gotten used to hearing

from doctors and specialist the past 3 yrs.

How well does TCI screen people before they travel all the way to NY?

This trip is very expensive and not the most exciting thing to do when youve

never been there and you dont feel well. I'm sure all of you who have been

to TCI can relate. What worries me the most is not recieving a diagnosis

after 3 yrs of searching. I feel like I have nothing left in me to keep

searching for an answer if this trip doesnt provide some. The biggest

difference between my symptoms and all of yours that I have read is the

location of the headache and or pressure. I never have any pain or pressure

at the base of the skull or my neck. My problem is a mixture of dull pain

and pressure directly on top of my head, like something is pushing down on

my brain. My ears pop all the time, I have pressure in my face- especially

when I bend forward or any slight pressure around my neck, and I have not

been able to exercise in 3 yrs whenever I exert myself I can feel that ugly

sensation of pain and pressure build and spread over my head and I will be

in extreme pain for several days or weeks depending on how hard I exercise?

If any of this applies to anyone or you can relate to what Im saying please

let me know. It would be nice to find even ONE person who has the pain and

pressure in the area I described because up till now I still question the

diagnosis (not at

TCI) I recieved a year ago. Is chiari really whats going on with me?.

Your thoughts are always very much appreciated.

Rich from TCI took the time to answer this difficult question, than you

Rich.

Rich's response:

Wow not an easy one to answer. I mean every patient leaves with a plan be it

surgical or a more conservative non invasive approach, it may not be what

they want to hear; I think that is the concern here. Between the patient

questionnaire, and the pre Tethered Cord Screening we have a pretty good

idea if TCI is the right place to come. We fully realize the journey

logistically, and financially of a trip here. We quite honestly have no

holes in the calendar we need to fill, we are booked till September I

believe. So it might be an injustice to all to schedule patients if there is

a doubt that we can help. Hope it answers the question.

Rich i

TCI Administrator