what are my odds?

[Guest guest]

Hello everyone its been almost 9 months since my last post. I have an

appointment scheduled for the 28th of this month at TCI. My question

for all of you is this, what are my chances of going to NY and being

told " were not sure whats wrong with you " this has been what Ive

gotten used to hearing from doctors and specialist the past 3 yrs.

How well does TCI screen people before they travel all the way to NY?

This trip is very expensive and not the most exciting thing to do

when youve never been there and you dont feel well. I'm sure all of

you who have been to TCI can relate. What worries me the most is not

recieving a diagnosis after 3 yrs of searching. I feel like I have

nothing left in me to keep searching for an answer if this trip

doesnt provide some. The biggest difference between my symptoms and

all of yours that I have read is the location of the headache and or

pressure. I never have any pain or pressure at the base of the skull

or my neck. My problem is a mixture of dull pain and pressure

directly on top of my head, like something is pushing down on my

brain. My ears pop all the time, I have pressure in my face-

especially when I bend forward or any slight pressure around my neck,

and I have not been able to exercise in 3 yrs whenever I exert myself

I can feel that ugly sensation of pain and pressure build and spread

over my head and I will be in extreme pain for several days or weeks

depending on how hard I exercise? If any of this applies to anyone or

you can relate to what Im saying please let me know. It would be nice

to find even ONE person who has the pain and pressure in the area I

described because up till now I still question the diagnosis (not at

TCI) I recieved a year ago. Is chiari really whats going on with me?.

Your thoughts are always very much appreciated.

thanks, wade