Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 In a message dated 1/8/01 6:15:38 AM Eastern Standard Time, autism-georgiaegroups writes: , Welcome to the list! I admire and applaud you for plunging into the casein free portion of the diet (with no doctor support, a familiar theme with which most of us can relate). Please don't be afraid to try to remove gluten as well. My son had strong aversions to eating and was very thin (although with a bloated stomach) before beginning the GFCF diet. After beginning the diet, and addressing his yeast problems as well, he began to enjoy food and eat on his own, rather than me forcing it on him. Good luck, Connie Thank you Connie. Your words are very reassuring especially after the horrible doctor appt. I had last Friday. We live on an Army base and we went to see the EFMP director. EFMP stands for Exceptional Family Member Program. It is a special needs label in the military. The EFMP director is our special needs doctor. He told me I shouldn't be experimenting with such things(cf/gf diet) especially since my son doesn't have a label of autism.He also went into saying autism is one of his areas of interest and that he has found that the diet and the vitamin supplementing do nothing for the kids. I couldn't believe what I was hearing,since I have read many good books that say they do work. I just felt so mad how he was putting me down. When I first went in there he told me I needed to educate myself about different things. I got really mad and found this to be a slap in the face. My last 2 and a half years all I have done is educate m! yself and my life has revolved around doing everything I possibly can for Raiden. I told him I am educated and told him some things I have been learning and how I gave my son the CHAT test and he fails each and every one of the items listed. He then went into telling me that I'm not an expert. I know I'm not an expert and that is why I keep coming to thse doctors appt's to try to get some help. But,all they have been doing is wasting my time. WE spent 2 hours there just to hear this doctor talk. He really liked the sound of his voice I think. He didn't ask me any questions,didn't listen to me and didn't even look at my son.Oh,it was just so frustrating. The neurologist we went to see at Medical College of Georgia was also no help and said that Raiden wouldn't need a label until he reached school aged.However,the more and more I have been reading school age is more like 3 years old cause their are a lot of special needs programs that the school system can provide at that age. We are looking at visiting with some other doctors though. One being an austim specialists in St.Louis,Mo. Anyway, thanks for listening and thanks for the encouragement. It really helps a lot. Hugs, Quote Link to comment Share on other sites More sharing options...
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