Question

[Guest guest]

Hello

I haven't posted in ages but lurk in the background from time to time.

Once again I am experiencing escerbated (sp) problems. It is extremely

difficult to walk. My legs and feet are in such pain. At times I must

walk tip toed or on the outsides of my feet or simply shuffle. My cane

seems to be of little assistance. The feeling is more than pins and

needles, it is terrible pain. While this goes on my thinking is worse

than usual unable to correctly get out what I want to say or type or

write correctly.

Does anyone else experience this? I am sure it is due to Chiari.

[Guest guest]

Nona, you should call 911 now. Why wait? it will take them 6 hours before anyone

really takes a look at him any way. It is worth it. If it was Sharon, I would

gather my things, and I would call. I went through this with Ardis, and every

time they came, she was admitted, and they said she was bleeding, and it was

good that we called them. She was always better after they brought her

hematicrit back up. He may be stubborn, but if there is a fire man in your

living room, he might get the picture of how much he means to you. I'm only

giving this advise based on my personal experience. Ardis didn't want me to call

the 911, I had promised her that I would just let her die. I could never go

through with it. I am glad I did, because she got to die in peace, with CNN on

the TV and the Moodyblues on the CD player, veins full of soothing morphine,

beer on her lips, Mister frog (Jaques Peppin) in her arms, me holding her hand,

in a warm beautiful hospice, not a

noisy ER room, or the ICU, or her apartment alone. We were able to plan her

death, and it went off without a hitch, not many people get that opportunity.

Good luck, God bless you Nona. Hope everything turns out OK. Ill say an extra

prayer for stubborn hubby, Love, Bobby aka RWE.

Re: Question

No problem-sometimes hard to convey our actual meaning in an email.

My husband is the most stubborn person I have ever met! I have planted the

seeds for him to think about this evening-that usually helps.

I will certainly keep an eye on him tonight. His sleeping patterns are not the

greatest so I'm not sure he will sleep alot tonight.

Thanks for listening and for your advice.

Nona

Hi,

I usually post once every 6 months it seems! I read all the posts and have

learned so much from all.

My husband is in stage 4 cirrhosis. I so understand all that the caregivers go

through. It's not an easy responsibility for us but one we do because we love

our spouse.

My husband has seemed to be declining over the last few weeks. He told me

tonight that his throat(for about the last week) feels like it is closing at

times. He looks horrible tonight-at least to me. Is this something that might be

related to the cirrhosis-something related to his esophagus.

Just worried about him more than usual tonight.

Nona