going to tci first apt sept 4 & 5

[Guest guest]

Well I just wanted to keep everyone updated on me. My first apointment

at TCI is rapidly approching and I'm so happy and scared at the same

time. I know sounds nuts huh but thats how I feel. We are getting all

the insurance stuff squared away and hotels, cars, and apointments ect

all lined up. My memory on the other hand is doing really really bad.

I sobbed yesterday and told my husband that he deserved someone a lot

better then me because I am not even able to care for myself or

remember anything. He of course calmed me down and explained that I'm

just sick and that he knows that I would take care of him if the roles

were reversed. I can't believe how hard this is on everyone around

me. My husband has to take care of me. My daughter who has to help me

remember where I'm going when I'm driving and how to get there. My mom

who helps me with extra money when my medical bills get to high and

moral suport via phone. I know that I am putting a lot of hope into

tci because it is all I have. I dont know what the outcome is going to

be and that scares me. How does everyone else deal with the life

robing side of chiari.