Wow what a joke!

[Guest guest]

This is not a positive post.**Warning*** Im needing to vent about

this bad! OVER 2 weeks ago I started with blackouts, headaches leaks

and fever ...not at random..pretty much often.. AGAIN! this time I

took advice and went to the OLD NS. He said oh yes its a leak we need

MRI right away to see where to go from there I ll see you next week!

I went for the tests...and was told there were no orders sent from

the NS to complete them! I called him...NOTHING ..no call back... 2

days later again I called NO call back ! Yesterday I had the mother

headaache where ya wanna curl up in a ball and roll down a hill into

oncoming traffic. So I called his voice service and said a few things

that were very un like me...very harsh and very not so Christian. I

sure felt worse afterwards but atleast I got a call back this

morning! His assistant said she had no clue I was leaking or having

the problems!( UMMM READ MY CHART!!! PLEASE) She scheduled me for the

29th!!!! not until the 29th of this month for the MRI and then the

31st to see the NS! they want me to catch the fluid but everytime it

drips when I relaize it has happened I have a crusty scabs not fluid.

I feel like a sugar maple...Im setting here waiting for this sap to

leak so I can capture it! WHAT!??? It gets in my hair what...am I

supposed to do... wring my hair out? ANd to boot the NS says he

doesnt like pills because they mask symptoms...well without the

topomax I pretty much set and squeeze my head! SOOOO he wants me to

go to a local nuerologist who incidently gave me the topomax on the

diganosis of MIGRAINES because he isnt comfortable with ACM and he

looked right at my MRIS and DIDNT SEE A 9nmm herniation!!! Not the

man I want giving me meds! Im in a town full of idiots! no Drs to be

found...I dont do pain pills but at this point if I dont get

something Im seriously liable to run screaming through the

neighborhood into traffic! Arent these the people who took an oath

to help us??? Why is it that i know whats going on and I cant get

anyone to help me? Healthy people dont have seizures and leak brain

juice! Are these doctors from an alternate galaxy? I know I should be

concerned I know I can get an infection and I know (to quote my

NS) " leaks are no good " SO why are they waiting when at the visti it

was a " stat " situation and then when they messed up and forgot to

call the local hospital with my orders it was no longer such a big

deal...I feel like they are so confused they are waiting for me to

keel over so they dont have to admit they know nothing! I FEEL Like

a " STAT " case. Yesterdays headache and back pain made me cry and I am

not a cryer at all. The pressure was so intense My eyes are blood

shot even! ARRGHHHHHH!!! this is the only place I know I am not

alone! i know someone (sadly probably many) have had this happen! It

should be illegal to just treat a person like this! If I were a dog

they'd have put me down by now. I HATE THIS SICKNESS and I hate

feeling trapped!

[Guest guest]

Hi: I think if I were you, I would get myself to the ER.

I agree this is not something to mess around with. You probably need a blood

patch. This idiot is jerking you around and IMHO, you need help now.

I hope you are better soon!

Wendi in PA

ACM 7.5mm B4 TCS, 2.4mm now.

TCS @ TCI on 1/3/08

[Guest guest]

I know what you are going through...oh so well. I had a botched surgery and

horrible problems since. I am left deformed from the chiari surgery due to

no call back + proper follow up by the surgeon....and lies. This man was

supposed to be " THE BEST " ???!!! My internal organs and bones are so messed up

due to nerve damage and infection from my surgery. Keep fighting...no one

else, including the doctor, understands and unless your issues are taken care

of

immediately...you may be left suffering and deformed like me. I still fight

to get help 1 year later. No doctor wants to touch me due to the damage

this doctor did.

God bless you all...I have all of this group in my prayers