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Re: Survey About Genital Anesthesia

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This is a very good idea. I too want to warn people of the dangers of serious

long term side effects from these drugs that doctors prescribe to " help " people.

Surely there is someway to inform people.

Also, in addition to this survey, I'd like to know how many males and females

are in this group. Is that information on here somewhere?

>

>

> Dear Vornan,

>

> What I would really like to see with this group is a survey of how many

> people in it have experienced genital anesthesia, for how long, and what

> drugs they think were responsible for it. Do you think there is some

> way we could set this up, and do you think that we could somehow get it

> out to the public?

>

> After writing to some very influential people, including Dr.

> Szasz, Dr. Breggin, and Sharon Begley (journalist who wrote an

> article about antidepressants for Newsweek), I get the feeling that

> there haven't been any studies done specifically on this topic. Or, if

> there are, they are not available to the average individual.

>

> I emailed Sharon in April of 2010. Here is what I said:

>

> " Dear Ms. Begley,

>

> I found your email address in a message posted by one of the members of

> the Yahoo group on persistent sexual side effects of SSRIs. He

> suggested we write to you so you would know how extensive the problem

> is. Well, there are at least two of us in that group who have these

> kind of effects from being forced to take antipsychotics, and then

> discontinuing them. Neither of us could find a support group with a

> specific forum for our kind of loss, so we joined the one for those who

> have taken SSRIs.

>

> I have searched for others who, like me, have become numb from

> neuroleptics, but I have only found a few that have written about it on

> the web. It's a subject that is difficult for many people to talk

> about, and then, if they think you're mentally ill, no one believes you

> anyway. I did find an article in a journal that stated that one of the

> main reasons people don't want to take antipsychotic meds is because of

> the sexual side effects. It's called " Sexual Dysfunction: the Forgotten

> Taboo " (from " Mental Health Nursing " , January 1, 2005)

>

> http://www.encyclopedia.com/doc/1P3-777721421.html

> <http://www.encyclopedia.com/doc/1P3-777721421.html>

>

> (It is now an article you have to pay to see. Fortunately I made a copy

> of it before it became that way.)

>

> I have been off neuroleptics for over 26 yrs, but I am still numb in my

> saddle area. Here is the link to my channel on YouTube. On it I wrote

> my story and posted a video explaining how I know what drug damaged me:

>

> http://www.youtube.com/user/Kay1948

> <http://www.youtube.com/user/Kay1948>

>

> If you do write another article about sexual dysfunction from

> psychiatric drugs, I hope you will consider including information on

> antipsychotics as well. Thank you for your time in pursuing this

> matter.

>

> Sincerely,

> Kay "

>

> Sharon, when emailing back, said:

>

> " Thanks very much, . I have indeed been hearing from readers about

> this issue, and will look into it. The problem so far is that data do

> not exist showing that persistence of these side effects is indeed

> caused by the meds, or if the connection is just a statistical fluke,

> correlational but not causal.Anyway, I will continue to see what I can

> find out. Allbest,

>

> Sharon Begley

>

> Science editor

> Newsweek

> 395 Hudson Street

> New York, NY 10014 "

>

> Ginger Breggin, Dr. Breggin's wife, in emailing back to me, said

> something similar, that they didn't know of any studies on this kind of

> dysfunction. Dr. Szasz encourage me to write a book, even if it never

> gets published. (I had told him that my husband discouraged me from

> writing one, telling me that he doesn't think it would get published or

> read.)

>

> Now that there are nearly 3000 of us on this site, surely there must be

> some effective way we can get the word out to warn people, especially

> the young, and those who are giving them psychiatric drugs, thinking

> they are doing the right thing.

>

> Best regards,

>

> Kay

>

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Hi Ever since taking Lexapro for 2 months and luvox for 1 year my genitals and skin around my body is dull. i have been off these drugs for well over 2 and half years and still have the numbness. To: SSRIsex Sent: Monday, January 9, 2012 10:01:46 AM Subject: Re: Survey About Genital Anesthesia

This is a very good idea. I too want to warn people of the dangers of serious long term side effects from these drugs that doctors prescribe to "help" people. Surely there is someway to inform people.

Also, in addition to this survey, I'd like to know how many males and females are in this group. Is that information on here somewhere?

>

>

> Dear Vornan,

>

> What I would really like to see with this group is a survey of how many

> people in it have experienced genital anesthesia, for how long, and what

> drugs they think were responsible for it. Do you think there is some

> way we could set this up, and do you think that we could somehow get it

> out to the public?

>

> After writing to some very influential people, including Dr.

> Szasz, Dr. Breggin, and Sharon Begley (journalist who wrote an

> article about antidepressants for Newsweek), I get the feeling that

> there haven't been any studies done specifically on this topic. Or, if

> there are, they are not available to the average individual.

>

> I emailed Sharon in April of 2010. Here is what I said:

>

> "Dear Ms. Begley,

>

> I found your email address in a message posted by one of the members of

> the Yahoo group on persistent sexual side effects of SSRIs. He

> suggested we write to you so you would know how extensive the problem

> is. Well, there are at least two of us in that group who have these

> kind of effects from being forced to take antipsychotics, and then

> discontinuing them. Neither of us could find a support group with a

> specific forum for our kind of loss, so we joined the one for those who

> have taken SSRIs.

>

> I have searched for others who, like me, have become numb from

> neuroleptics, but I have only found a few that have written about it on

> the web. It's a subject that is difficult for many people to talk

> about, and then, if they think you're mentally ill, no one believes you

> anyway. I did find an article in a journal that stated that one of the

> main reasons people don't want to take antipsychotic meds is because of

> the sexual side effects. It's called "Sexual Dysfunction: the Forgotten

> Taboo" (from "Mental Health Nursing", January 1, 2005)

>

> http://www.encyclopedia.com/doc/1P3-777721421.html

> <http://www.encyclopedia.com/doc/1P3-777721421.html>

>

> (It is now an article you have to pay to see. Fortunately I made a copy

> of it before it became that way.)

>

> I have been off neuroleptics for over 26 yrs, but I am still numb in my

> saddle area. Here is the link to my channel on YouTube. On it I wrote

> my story and posted a video explaining how I know what drug damaged me:

>

> http://www.youtube.com/user/Kay1948

> <http://www.youtube.com/user/Kay1948>

>

> If you do write another article about sexual dysfunction from

> psychiatric drugs, I hope you will consider including information on

> antipsychotics as well. Thank you for your time in pursuing this

> matter.

>

> Sincerely,

> Kay"

>

> Sharon, when emailing back, said:

>

> "Thanks very much, . I have indeed been hearing from readers about

> this issue, and will look into it. The problem so far is that data do

> not exist showing that persistence of these side effects is indeed

> caused by the meds, or if the connection is just a statistical fluke,

> correlational but not causal.Anyway, I will continue to see what I can

> find out. Allbest,

>

> Sharon Begley

>

> Science editor

> Newsweek

> 395 Hudson Street

> New York, NY 10014"

>

> Ginger Breggin, Dr. Breggin's wife, in emailing back to me, said

> something similar, that they didn't know of any studies on this kind of

> dysfunction. Dr. Szasz encourage me to write a book, even if it never

> gets published. (I had told him that my husband discouraged me from

> writing one, telling me that he doesn't think it would get published or

> read.)

>

> Now that there are nearly 3000 of us on this site, surely there must be

> some effective way we can get the word out to warn people, especially

> the young, and those who are giving them psychiatric drugs, thinking

> they are doing the right thing.

>

> Best regards,

>

> Kay

>

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  • 2 weeks later...

Genital anesthesia has been described in the literature with SSRIs, but so far

not with antipsychotics. What drug caused you this? If it's an antipsychotic we

need to publish a case study.

Joss

>

>

> Dear Vornan,

>

> What I would really like to see with this group is a survey of how many

> people in it have experienced genital anesthesia, for how long, and what

> drugs they think were responsible for it. Do you think there is some

> way we could set this up, and do you think that we could somehow get it

> out to the public?

>

> After writing to some very influential people, including Dr.

> Szasz, Dr. Breggin, and Sharon Begley (journalist who wrote an

> article about antidepressants for Newsweek), I get the feeling that

> there haven't been any studies done specifically on this topic. Or, if

> there are, they are not available to the average individual.

>

> I emailed Sharon in April of 2010. Here is what I said:

>

> " Dear Ms. Begley,

>

> I found your email address in a message posted by one of the members of

> the Yahoo group on persistent sexual side effects of SSRIs. He

> suggested we write to you so you would know how extensive the problem

> is. Well, there are at least two of us in that group who have these

> kind of effects from being forced to take antipsychotics, and then

> discontinuing them. Neither of us could find a support group with a

> specific forum for our kind of loss, so we joined the one for those who

> have taken SSRIs.

>

> I have searched for others who, like me, have become numb from

> neuroleptics, but I have only found a few that have written about it on

> the web. It's a subject that is difficult for many people to talk

> about, and then, if they think you're mentally ill, no one believes you

> anyway. I did find an article in a journal that stated that one of the

> main reasons people don't want to take antipsychotic meds is because of

> the sexual side effects. It's called " Sexual Dysfunction: the Forgotten

> Taboo " (from " Mental Health Nursing " , January 1, 2005)

>

> http://www.encyclopedia.com/doc/1P3-777721421.html

> <http://www.encyclopedia.com/doc/1P3-777721421.html>

>

> (It is now an article you have to pay to see. Fortunately I made a copy

> of it before it became that way.)

>

> I have been off neuroleptics for over 26 yrs, but I am still numb in my

> saddle area. Here is the link to my channel on YouTube. On it I wrote

> my story and posted a video explaining how I know what drug damaged me:

>

> http://www.youtube.com/user/Kay1948

> <http://www.youtube.com/user/Kay1948>

>

> If you do write another article about sexual dysfunction from

> psychiatric drugs, I hope you will consider including information on

> antipsychotics as well. Thank you for your time in pursuing this

> matter.

>

> Sincerely,

> Kay "

>

> Sharon, when emailing back, said:

>

> " Thanks very much, . I have indeed been hearing from readers about

> this issue, and will look into it. The problem so far is that data do

> not exist showing that persistence of these side effects is indeed

> caused by the meds, or if the connection is just a statistical fluke,

> correlational but not causal.Anyway, I will continue to see what I can

> find out. Allbest,

>

> Sharon Begley

>

> Science editor

> Newsweek

> 395 Hudson Street

> New York, NY 10014 "

>

> Ginger Breggin, Dr. Breggin's wife, in emailing back to me, said

> something similar, that they didn't know of any studies on this kind of

> dysfunction. Dr. Szasz encourage me to write a book, even if it never

> gets published. (I had told him that my husband discouraged me from

> writing one, telling me that he doesn't think it would get published or

> read.)

>

> Now that there are nearly 3000 of us on this site, surely there must be

> some effective way we can get the word out to warn people, especially

> the young, and those who are giving them psychiatric drugs, thinking

> they are doing the right thing.

>

> Best regards,

>

> Kay

>

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