MELD Score: Re:

[Guest guest]

Thanks again. Everybody makes that comment about me being full of

life. I didn't talk or smile all that much for a very, very long

time before my transplant, but now I do all the time. I had an

appointment last week with my primary physician and she hadn't seen

me since before the transplant, and she said she never saw me smile

so much and be so lively in years.

I hope I am an inspiration for others.

Take care.

Penny

> > > Bobbi, this is the one area I do have personal experience. I do

> > have an uncle who has been with ascites from end stage liver

> disease

> > for several years now. He drinks like always, like a fish. Years

> ago

> > he would not stop drunk driving. He would get caught and caught

> over

> > and over. He would drive without a licence. He got caught so many

> > times that they told him finally that if he were caught one more

> > time, they would put him in prison for life. He was caught, and

> > sentenced to life in prison at Canyon City Correctional facility.

> He

> > served a year and was pardoned by the Govenor of Colorado. He

still

> > drinks whisky every day, but he doesnt die. When he does finally

> > die, I will let this group know. My loved one Ardis drank after

she

> > was diagnosed and she had ascites even at that point. People used

> to

> > think she was having a baby. She was diagnosed in 2004, and told

> she

> > would have a 50/50 median survival of 4 years. She died on August

> > 3rd, 2006. I know that

> > > drinking or not the median survival for a cirrhotic with

ascites

> > is <2 years. They use the< to mean less than. God bless you

Bobbi.

> > Love walkingeagle in Denver

> > >

> > > Re:

> > >

> > > When Daddy has paracentesis (every 2 weeks) they never offer a

> > local to numb him. I do not understand that. The last 2 times he

> has

> > gone, they were out of the 1 liter glass bottles, and had to do

it

> > by hand using a HUGE syringe. He was in a lot of pain after (I

> would

> > imagine so, huh?). He gets albumin and FFP (fresh frozen plasma)

> > afterwards, and they always make him sign a consent form. His

blood

> > clotting factor is just awful. They have never tested the fluid

> that

> > they obtain. So far so good as far as infections go. He says that

> he

> > feels so much better after he has it done, he doesn't care that

it

> > hurts during. They typically get between 9-12 liters every 2

weeks.

> > >

> > > He's still smoking by the way. Ugh. He told me that if his lung

> > tests were bad, he's jumping back on the party bus and going out

> > happy. So, I am wondering now, since his liver is pretty much

gone,

> > if he drank now, would he die almost immediately? Any ideas? He

> > drank every day until Sept. 6. His liver failure was very quick.

> > >

> > > T

> > >

> > > ____________ _________ _________ _________ _________ _________ _

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> > >

> > >