Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 I felt very fortunate that my PCP gave me script for a benzo called librium after I got out of detox. I had only been able to cope with a cpap because of the sedating effects of alcohol. I do realize that the correct protocol would have been for her to say no. But she kept me on it for 30 days. It really helped me sleep. I think librium is the best there is to make you really drowsy, and sleep restful and deep. I will always miss it. The doc trusts me with a bottle (20) of ativan. I have taken. Only one since the refill 6 months ago. The one great thing about my liver doc is that he wants the patient to not suffer, and is very practicle about medicines and weighing the risks against the possible benefits. I did get that form, to amend me record. Bobby aka RWE Sent via BlackBerry from T-Mobile well well well To: livercirrhosissupport Date: Friday, September 26, 2008, 12:40 PM ok got the letter madder than hell!!!! in a nut shell they think my husband is a drug addict,how dare him, yup i am mad and he will be fired!!! states quote...urine drug screen is positive for benzodiazepine metabolites,opiate metablites and acetaminophen. he also goes on to say,he should avoid the use of any sudating medications and use of asprin and nsaids?.acetaminophen up to 2000mg daily should be safe.non-narcotic means of his chronic discomfort should be emphasized.he has been counseled to avoid operating a motor vehicle,climbing ladders and other potentially dangerous activity if his alertness is impaired. huh no he didnt!!!say the sleen tip is not palpale,the liver edge is palpable.pupils are poorly reactive,spider angiomata are noted,the sclerae are anicteric,there is trace edema.i will have to look all this up when i get back with the babies.his conclusion,should he be successful with abstinece from ILLICIT DRUGS for more than 6 months[as verified by random testing] then reconsiderationfor antiviral therapy will be appropraite. given the probable duration of infection,liver histology,gender, genotype 1a,meld score 7,viral load,his chance for achieving sustained responce from available antiviral therapy will be -40%,lastely he says since he has cirrhosis and chronic hep. c a program of surveillance for hepatocellar carcinoma[isnt that cancer?]is reccomended,also should be vaccinated against hep. a and b, where as he has markers for both a and b viruses. ok alot i know,but i dont think this guy wants to treat him till hes of all meds.? what do you all think of this, maybe i shouldnt put all this on here but hey ,i need ya alls opions and your experiences, to figure out, do we need to find another more reasonable dr.??? or is this guy correct.he also wrote he counseled us regarding him to be abstinent from alcohol tobacco and illicit drugs,they understand that his candidacy for antiviral therapy and for future liver transplant are dependant upon this... no he didnt he was told no,no,and no to all three of those questions, doesnt he remember HE let me tape the whole appointment!!!! i have the whole thing on tape, he never cCOUNSELED us on crap!! anyways gotta hit the road, any thoughts from my peeps?? love barby ------------------------------------ Group Email: livercirrhosissupport web address: http://groups.yahoo.com/group/livercirrhosissupport/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Dear Diane how awesome you are. I thought about Barbys situation and was trying to wrap my mind around all the information. What you told her was just the right words to hear. Dear Barby please know that every day is a new day. Rejoice in it and what you have today. With the Lords guidance and good people like Diane you will find the answers and peace. Love well well well ok got the letter madder than hell!!!! in a nut shell they think my husband is a drug addict,how dare him, yup i am mad and he will be fired!!! states quote...urine drug screen is positive for benzodiazepine metabolites, opiate metablites and acetaminophen. he also goes on to say,he should avoid the use of any sudating medications and use of asprin and nsaids?.acetaminoph en up to 2000mg daily should be safe.non-narcotic means of his chronic discomfort should be emphasized.he has been counseled to avoid operating a motor vehicle,climbing ladders and other potentially dangerous activity if his alertness is impaired. huh no he didnt!!!say the sleen tip is not palpale,the liver edge is palpable.pupils are poorly reactive,spider angiomata are noted,the sclerae are anicteric,there is trace edema.i will have to look all this up when i get back with the babies.his conclusion,should he be successful with abstinece from ILLICIT DRUGS for more than 6 months[as verified by random testing] then reconsiderationfor antiviral therapy will be appropraite. given the probable duration of infection,liver histology,gender, genotype 1a,meld score 7,viral load,his chance for achieving sustained responce from available antiviral therapy will be -40%,lastely he says since he has cirrhosis and chronic hep. c a program of surveillance for hepatocellar carcinoma[isnt that cancer?]is reccomended, also should be vaccinated against hep. a and b, where as he has markers for both a and b viruses. ok alot i know,but i dont think this guy wants to treat him till hes of all meds.? what do you all think of this, maybe i shouldnt put all this on here but hey ,i need ya alls opions and your experiences, to figure out, do we need to find another more reasonable dr.??? or is this guy correct.he also wrote he counseled us regarding him to be abstinent from alcohol tobacco and illicit drugs,they understand that his candidacy for antiviral therapy and for future liver transplant are dependant upon this... no he didnt he was told no,no,and no to all three of those questions, doesnt he remember HE let me tape the whole appointment! !!! i have the whole thing on tape, he never cCOUNSELED us on crap!! anyways gotta hit the road, any thoughts from my peeps?? love barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 sigh....I'm always soo amazed at what Doctors write compared to what they actually TELL their patients. Maybe they need to be patients more often themselves and listen to what we are being told, have their life depend upon it. Praying for you and bobby. Pamela well well well ok got the letter madder than hell!!!! in a nut shell they think my husband is a drug addict,how dare him, yup i am mad and he will be fired!!! states quote...urine drug screen is positive for benzodiazepine metabolites,opiate metablites and acetaminophen. he also goes on to say,he should avoid the use of any sudating medications and use of asprin and nsaids?.acetaminophen up to 2000mg daily should be safe.non-narcotic means of his chronic discomfort should be emphasized.he has been counseled to avoid operating a motor vehicle,climbing ladders and other potentially dangerous activity if his alertness is impaired. huh no he didnt!!!say the sleen tip is not palpale,the liver edge is palpable.pupils are poorly reactive,spider angiomata are noted,the sclerae are anicteric,there is trace edema.i will have to look all this up when i get back with the babies.his conclusion,should he be successful with abstinece from ILLICIT DRUGS for more than 6 months[as verified by random testing] then reconsiderationfor antiviral therapy will be appropraite. given the probable duration of infection,liver histology,gender, genotype 1a,meld score 7,viral load,his chance for achieving sustained responce from available antiviral therapy will be -40%,lastely he says since he has cirrhosis and chronic hep. c a program of surveillance for hepatocellar carcinoma[isnt that cancer?]is reccomended,also should be vaccinated against hep. a and b, where as he has markers for both a and b viruses. ok alot i know,but i dont think this guy wants to treat him till hes of all meds.? what do you all think of this, maybe i shouldnt put all this on here but hey ,i need ya alls opions and your experiences, to figure out, do we need to find another more reasonable dr.??? or is this guy correct.he also wrote he counseled us regarding him to be abstinent from alcohol tobacco and illicit drugs,they understand that his candidacy for antiviral therapy and for future liver transplant are dependant upon this... no he didnt he was told no,no,and no to all three of those questions, doesnt he remember HE let me tape the whole appointment!!!! i have the whole thing on tape, he never cCOUNSELED us on crap!! anyways gotta hit the road, any thoughts from my peeps?? love barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Barby, What type of doctor is your husband seeing? Is he being seen by a hepatologist? If not can you be referred? The hospital should have a patient advocate. You may want to talk to them about getting the word illicit removed from the medical record. Being that they were prescribed. Or, even go back and challenge the doctor and insist they remove that word. MaC pinkmeetsblue wrote: ok got the letter madder than hell!!!! in a nut shell they think my husband is a drug addict,how dare him, yup i am mad and he will be fired!!! states quote...urine drug screen is positive for benzodiazepine metabolites,opiate metablites and acetaminophen. he also goes on to say,he should avoid the use of any sudating medications and use of asprin and nsaids?.acetaminophen up to 2000mg daily should be safe.non-narcotic means of his chronic discomfort should be emphasized.he has been counseled to avoid operating a motor vehicle,climbing ladders and other potentially dangerous activity if his alertness is impaired. huh no he didnt!!!say the sleen tip is not palpale,the liver edge is palpable.pupils are poorly reactive,spider angiomata are noted,the sclerae are anicteric,there is trace edema.i will have to look all this up when i get back with the babies.his conclusion,should he be successful with abstinece from ILLICIT DRUGS for more than 6 months[as verified by random testing] then reconsiderationfor antiviral therapy will be appropraite. given the probable duration of infection,liver histology,gender, genotype 1a,meld score 7,viral load,his chance for achieving sustained responce from available antiviral therapy will be -40%,lastely he says since he has cirrhosis and chronic hep. c a program of surveillance for hepatocellar carcinoma[isnt that cancer?]is reccomended,also should be vaccinated against hep. a and b, where as he has markers for both a and b viruses. ok alot i know,but i dont think this guy wants to treat him till hes of all meds.? what do you all think of this, maybe i shouldnt put all this on here but hey ,i need ya alls opions and your experiences, to figure out, do we need to find another more reasonable dr.??? or is this guy correct.he also wrote he counseled us regarding him to be abstinent from alcohol tobacco and illicit drugs,they understand that his candidacy for antiviral therapy and for future liver transplant are dependant upon this... no he didnt he was told no,no,and no to all three of those questions, doesnt he remember HE let me tape the whole appointment!!!! i have the whole thing on tape, he never cCOUNSELED us on crap!! anyways gotta hit the road, any thoughts from my peeps?? love barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 yes mac we have a hep dr. here and this dr. from vandy was a hep .dr. too,i agree there nothing that warrents the word illicit being used except this mans vocabulary i guess.it could hurt us more than he knows i think and it will be addressed soon,thanks barby ok got the letter madder than hell!!!! in a nut shell they think my > husband is a drug addict,how dare him, yup i am mad and he will be > fired!!! states quote...urine drug screen is positive for > benzodiazepine metabolites,opiate metablites and acetaminophen. he > also goes on to say,he should avoid the use of any sudating > medications and use of asprin and nsaids?.acetaminophen up to 2000mg > daily should be safe.non-narcotic means of his chronic discomfort > should be emphasized.he has been counseled to avoid operating a motor > vehicle,climbing ladders and other potentially dangerous activity if > his alertness is impaired. huh no he didnt!!!say the sleen tip is not > palpale,the liver edge is palpable.pupils are poorly reactive,spider > angiomata are noted,the sclerae are anicteric,there is trace edema.i > will have to look all this up when i get back with the babies.his > conclusion,should he be successful with abstinece from ILLICIT DRUGS > for more than 6 months[as verified by random testing] then > reconsiderationfor antiviral therapy will be appropraite. given the > probable duration of infection,liver histology,gender, genotype > 1a,meld score 7,viral load,his chance for achieving sustained > responce from available antiviral therapy will be -40%,lastely he > says since he has cirrhosis and chronic hep. c a program of > surveillance for hepatocellar carcinoma[isnt that cancer?]is > reccomended,also should be vaccinated against hep. a and b, where as > he has markers for both a and b viruses. ok alot i know,but i dont > think this guy wants to treat him till hes of all meds.? what do you > all think of this, maybe i shouldnt put all this on here but hey ,i > need ya alls opions and your experiences, to figure out, do we need > to find another more reasonable dr.??? or is this guy correct.he also > wrote he counseled us regarding him to be abstinent from alcohol > tobacco and illicit drugs,they understand that his candidacy for > antiviral therapy and for future liver transplant are dependant upon > this... no he didnt he was told no,no,and no to all three of those > questions, doesnt he remember HE let me tape the whole appointment!!!! > i have the whole thing on tape, he never cCOUNSELED us on crap!! > anyways gotta hit the road, any thoughts from my peeps?? love barby > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Well, It definitely sounds like you need another doctor who has more of your best interest at heart. I would ask to be referred to another doctor, especially if you feel this one isn't going the extra mile for you. You know what I mean? It almost sounds like he was saying, " well, you got these drugs in your system. Can't do anything. See you in six months, that is if you can stop taking them. " Almost as if he has already labeled you. When you go back to him to discuss this letter, you may want to also think about approaching him in a way that makes him want to help you. Like, " Hey, my husband was prescribed this, and this on these dates for pain. What do we do since you feel this is noncompliant? " Even give the doctors names who did the prescriptions. It may be better if this one doctor does the prescribing. Ask the doctor to put you on a road map for success. Ask, " what type of treatment can you offer that would give us the best chance of success? " You may want to ask some of the nurses their thoughts of who is the best hepatologist in the hospital? Some hospitals have pictures of award winners on the wall. Is your doctor on there? Be persistent and remember the squeaky wheel gets the oil. MaC pinkmeetsblue wrote: yes mac we have a hep dr. here and this dr. from vandy was a hep .dr. too,i agree there nothing that warrents the word illicit being used except this mans vocabulary i guess.it could hurt us more than he knows i think and it will be addressed soon,thanks barby ok got the letter madder than hell!!!! in a nut shell they think my > husband is a drug addict,how dare him, yup i am mad and he will be > fired!!! states quote...urine drug screen is positive for > benzodiazepine metabolites,opiate metablites and acetaminophen. he > also goes on to say,he should avoid the use of any sudating > medications and use of asprin and nsaids?.acetaminophen up to 2000mg > daily should be safe.non-narcotic means of his chronic discomfort > should be emphasized.he has been counseled to avoid operating a motor > vehicle,climbing ladders and other potentially dangerous activity if > his alertness is impaired. huh no he didnt!!!say the sleen tip is not > palpale,the liver edge is palpable.pupils are poorly reactive,spider > angiomata are noted,the sclerae are anicteric,there is trace edema.i > will have to look all this up when i get back with the babies.his > conclusion,should he be successful with abstinece from ILLICIT DRUGS > for more than 6 months[as verified by random testing] then > reconsiderationfor antiviral therapy will be appropraite. given the > probable duration of infection,liver histology,gender, genotype > 1a,meld score 7,viral load,his chance for achieving sustained > responce from available antiviral therapy will be -40%,lastely he > says since he has cirrhosis and chronic hep. c a program of > surveillance for hepatocellar carcinoma[isnt that cancer?]is > reccomended,also should be vaccinated against hep. a and b, where as > he has markers for both a and b viruses. ok alot i know,but i dont > think this guy wants to treat him till hes of all meds.? what do you > all think of this, maybe i shouldnt put all this on here but hey ,i > need ya alls opions and your experiences, to figure out, do we need > to find another more reasonable dr.??? or is this guy correct.he also > wrote he counseled us regarding him to be abstinent from alcohol > tobacco and illicit drugs,they understand that his candidacy for > antiviral therapy and for future liver transplant are dependant upon > this... no he didnt he was told no,no,and no to all three of those > questions, doesnt he remember HE let me tape the whole appointment!!!! > i have the whole thing on tape, he never cCOUNSELED us on crap!! > anyways gotta hit the road, any thoughts from my peeps?? love barby > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 thank you mac all good poits ,wrote them on my list!!!! its so wierd because we informed him of the meds. even had the bottles with us, they told us to bring all meds,and we did,on the letter its even stated what meds. he was currently taking.i feel like he labeled him and made up his own opinion and its wrong,i thought he was a wonderful man after meeting him for 40 mints. boy was i wrong this time,[ hang onto that it doesnt happen often hahahahahaha]but i will find a way to make him and his opinion go PUFF,and find someone else whos main reason for taking another breath is to help my husband live a long healthy happy life with me!!!!thanks mac,much love barby > ok got the letter madder than hell!!!! in a nut shell they think my > > husband is a drug addict,how dare him, yup i am mad and he will be > > fired!!! states quote...urine drug screen is positive for > > benzodiazepine metabolites,opiate metablites and acetaminophen. he > > also goes on to say,he should avoid the use of any sudating > > medications and use of asprin and nsaids?.acetaminophen up to > 2000mg > > daily should be safe.non-narcotic means of his chronic discomfort > > should be emphasized.he has been counseled to avoid operating a > motor > > vehicle,climbing ladders and other potentially dangerous activity > if > > his alertness is impaired. huh no he didnt!!!say the sleen tip is > not > > palpale,the liver edge is palpable.pupils are poorly > reactive,spider > > angiomata are noted,the sclerae are anicteric,there is trace > edema.i > > will have to look all this up when i get back with the babies.his > > conclusion,should he be successful with abstinece from ILLICIT > DRUGS > > for more than 6 months[as verified by random testing] then > > reconsiderationfor antiviral therapy will be appropraite. given > the > > probable duration of infection,liver histology,gender, genotype > > 1a,meld score 7,viral load,his chance for achieving sustained > > responce from available antiviral therapy will be -40%,lastely he > > says since he has cirrhosis and chronic hep. c a program of > > surveillance for hepatocellar carcinoma[isnt that cancer?]is > > reccomended,also should be vaccinated against hep. a and b, where > as > > he has markers for both a and b viruses. ok alot i know,but i dont > > think this guy wants to treat him till hes of all meds.? what do > you > > all think of this, maybe i shouldnt put all this on here but > hey ,i > > need ya alls opions and your experiences, to figure out, do we > need > > to find another more reasonable dr.??? or is this guy correct.he > also > > wrote he counseled us regarding him to be abstinent from alcohol > > tobacco and illicit drugs,they understand that his candidacy for > > antiviral therapy and for future liver transplant are dependant > upon > > this... no he didnt he was told no,no,and no to all three of those > > questions, doesnt he remember HE let me tape the whole > appointment!!!! > > i have the whole thing on tape, he never cCOUNSELED us on crap!! > > anyways gotta hit the road, any thoughts from my peeps?? love barby > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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