Re:

[Guest guest]

Hi graham.

I would love to go too. While passing through New Mexico I picked up a book

called " medicnal plants of the mountain west " . a good book and a refreshing

change from the usual format of constituents, actions, uses. I got the

impression that he knows from experience what he is talking about.

Dean

deanpmoriarty@...

>

> Dear Fans

> I feel I must attend these talks too. BUT who is he ????

> yours in ignorance Janine

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.300 / Virus Database: 266.5.0 - Release Date: 25/02/2005

>

>

>

[Guest guest]

When Daddy has paracentesis (every 2 weeks) they never offer a local to numb

him. I do not understand that. The last 2 times he has gone, they were out of

the 1 liter glass bottles, and had to do it by hand using a HUGE syringe. He was

in a lot of pain after (I would imagine so, huh?). He gets albumin and FFP

(fresh frozen plasma) afterwards, and they always make him sign a consent form.

His blood clotting factor is just awful. They have never tested the fluid that

they obtain. So far so good as far as infections go. He says that he feels so

much better after he has it done, he doesn't care that it hurts during. They

typically get between 9-12 liters every 2 weeks.

He's still smoking by the way. Ugh. He told me that if his lung tests were bad,

he's jumping back on the party bus and going out happy. So, I am wondering now,

since his liver is pretty much gone, if he drank now, would he die almost

immediately? Any ideas? He drank every day until Sept. 6. His liver failure was

very quick.

Thanks,

Bobbi

During a paracentesis, they usually use a local medication like

Lidocaine to numb the area. They have to watch his blood pressure

closely during this time period as it can start to fall very

easily. They may administer the protein " albumin " to him if they

take alot of fluid. This helps to stop it from building up in

the abdomen again fast and help keep his body in balance. They

don't always do this. When they open any part of the abdominal

cavity...infections can happen very easily...if the doctor wants

him to take antibiotics as a precaution, that is a good thing. They

will test this fluid, they take, to see if it contain certain types

of cells, blood, infections, etc.

Here is a site that explains some of the clinical aspects of this

procedure.

http://note3. blogspot. com/2004/ 02/paracentesis- procedure- guide.html

I definitely would try to get a supplemental insurance for him if

possible. He might be eligible for Medicaid if your income is

in poverty level.

Being non compliant with his doctors now and not taking his

medication appropriately, could jeopardize him ever having a liver

transplant. During the evaluation process, they check patients

to see if they are willing to do what it takes to follow the

doctors instructions, take the medications appropriately afterwards,

and be compliant in all things like testing, etc. They will

not want to place him on the transplant list if they think the

organ he receives will fail because of what he does.

Since you have a medical background, feel free to add what you

know to what we post. We are mostly all learners here about

everything that goes on. We bounce things off each other as

far as our knowledge goes. I've even corrected the things I

have posted when we find something new. For example:

It used to be that no one could have a transplant if they

were not free from drinking alcohol for at least six months.

Then Mac posted an article, where they are considering this

an a case by case determination now; exceptions are being made.

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[Guest guest]

All of this hits very close to home for me. This is the reason for me to belong

to this group. When you go through something like this alone, well it kind of

breaks you down. I never thought I would have to understand what you said about

the ulcer. But I do, unfortunately. For those who are not familiar with this ,

http://www.emedicine.com/med/topic2709.htm

it is when a persons skin starts to break down from pressure on the skin because

they aren't not on their feet enough, like when some one is busy dying. Dying

can be hard work, kind of like giving birth. I've never given birth before, but

I've witnessed it, and I witnessed my loved one Ardis trying hard to die, but

certain parts of her weren't ready to go. I told her that it is like being born

in reverse. She understood that this was why I wanted every thing to be just so,

and that was why I was obsessive about her well being. She also developed one of

these pressure sores right on the sacrum. We tried very hard to keep that sore

at bay, and because she had some one checking it constantly (me) she was

fortunate that it shrunk in size considerably by the time of her death. I still

cannot believe that she is gone. There is still a part of me who cares

considerably less about things here and now in her absence. Thankfully for me

the majority of me is

enjoying every minute and every cup of starbucks while I can. And I really

enjoy all of you too. I would have not healed from my ordeal nearly half as much

as I have thanks to this group. I thought I was done for for sure, that the

ordeal of her dying had done me in. But now I know different. my prayers are

with the family of . Good night... Love, Bobby

long life, old age, everything good-Apache prayer

RE:

I spoke briefly with earlier this evening. They have finally moved them

into a larger hospice room and their accomodations are much better now.

and all the children were at the hospital together.

's agitation continues to worsen. They started him on Haldol today. He

is responding better to it, but they haven't gotten the dosing schedule

perfected yet. He has now developed 3 decubitus ulcers to add to his pain and

discomfort. Nothing has changed for the better and is being realistic in

that she doesn't expect it to.

Please continue to pray for her, and the children.

Love and hugs......

Diane

[Guest guest]

Diane,

I'm praying for and . It is so very difficult, these last days.

My mom also had decubitus ulcers. I felt so terrible, like something I had or

hadn't done caused them. The home health nurse explained how it is nearly

impossible to keep from getting them in the last days especially. I'm so sorry

we have to go through these things.

I know God cares and sees it all!

Praying!

Pamela

RE:

I spoke briefly with earlier this evening. They have finally moved them

into a larger hospice room and their accomodations are much better now.

and all the children were at the hospital together.

's agitation continues to worsen. They started him on Haldol today.

He is responding better to it, but they haven't gotten the dosing schedule

perfected yet. He has now developed 3 decubitus ulcers to add to his pain and

discomfort. Nothing has changed for the better and is being realistic in

that she doesn't expect it to.

Please continue to pray for her, and the children.

Love and hugs......

Diane

[Guest guest]

MaC,

I will be sure to tell her when I next speak to her.  I know she appreciates

your concern and your prayers.

Hugs.............

Diane

Re: RE:

Diane,

Please pass along to her my prayers. I truly pray for relief for her and her

husband and their children. I know how hard it is to handle the burden she is

feeling. Please let her know she's not alone.

All my love to ,

MaC

diane chandler <dianechandler@ att.net> wrote: I spoke briefly with

earlier this evening. They have finally moved them into a larger hospice room

and their accomodations are much better now. and all the children were at

the hospital together.

's agitation continues to worsen. They started him on Haldol today. He is

responding better to it, but they haven't gotten the dosing schedule perfected

yet. He has now developed 3 decubitus ulcers to add to his pain and discomfort.

Nothing has changed for the better and is being realistic in that she

doesn't expect it to.

Please continue to pray for her, and the children.

Love and hugs......

Diane

[Guest guest]

Pass on my best wishes if you would. Somehow I deleted the original post leaving

me no address or post to reply to. TIA

I spoke briefly with

earlier this evening. They have finally moved them into a larger hospice room

and their accomodations are much better now. and all the children were at

the hospital together.

's agitation continues to worsen. They started him on Haldol today.

He is responding better to it, but they haven't gotten the dosing schedule

perfected yet. He has now developed 3 decubitus ulcers to add to his pain and

discomfort. Nothing has changed for the better and is being realistic in

that she doesn't expect it to.

Please continue to pray for her, and the children.

Love and hugs......

Diane

[Guest guest]

many prayers hugs and well wishes are sent to nancy richard and their

children!!! how are you holding up diane?? all my love barby I spoke briefly with

> earlier this evening. They have finally moved them into a larger

hospice room

> and their accomodations are much better now. and all the

children were at

> the hospital together.

>

> 's agitation continues to worsen. They started him on Haldol

today.

> He is responding better to it, but they haven't gotten the dosing

schedule

> perfected yet. He has now developed 3 decubitus ulcers to add to

his pain and

> discomfort. Nothing has changed for the better and is being

realistic in

> that she doesn't expect it to.

>

> Please continue to pray for her, and the children.

>

> Love and hugs......

>

> Diane

>

>

[Guest guest]

Consider it done, Little Eagle.  I know appreciates your concern.

Hugs......

Diane

Re: RE:

Pass on my best wishes if you would. Somehow I deleted the original post leaving

me no address or post to reply to. TIA

I spoke briefly with

earlier this evening. They have finally moved them into a larger hospice room

and their accomodations are much better now. and all the children were at

the hospital together.

's agitation continues to worsen. They started him on Haldol today.

He is responding better to it, but they haven't gotten the dosing schedule

perfected yet. He has now developed 3 decubitus ulcers to add to his pain and

discomfort. Nothing has changed for the better and is being realistic in

that she doesn't expect it to.

Please continue to pray for her, and the children.

Love and hugs......

Diane

[Guest guest]

Hi Barby,

I will be sure to let know about your prayers and well wishes.  I am doing

fairly well.  It's been raining here for the past couple days and that seems to

make the Fibro worse, but I'm better than I could be, so no complaints.  How is

Bobby Glen?  Is the new pain medication working well?  And how about you, are

you doing better?  Has the initial shock and panic calmed down yet?  I hope so

Barby.  Stress can kill you sweetie.

Hugs............

Diane

Re: RE:

many prayers hugs and well wishes are sent to nancy richard and their

children!!! how are you holding up diane?? all my love barby I spoke briefly with

> earlier this evening. They have finally moved them into a larger

hospice room

> and their accomodations are much better now. and all the

children were at

> the hospital together.

>

> 's agitation continues to worsen. They started him on Haldol

today.

> He is responding better to it, but they haven't gotten the dosing

schedule

> perfected yet. He has now developed 3 decubitus ulcers to add to

his pain and

> discomfort. Nothing has changed for the better and is being

realistic in

> that she doesn't expect it to.

>

> Please continue to pray for her, and the children.

>

> Love and hugs......

>

> Diane

>

>

[Guest guest]

hi girly, yes i too am ok cant complain does no good lol.yes i think

the original shock has subsided and know i feel as if i am in limbo,

staring straight ahead wide eyed and waiting for the shoe to drop.

the kids think i am getting depressed but i dont think so i just

feel...nothing right now,just feel like its all a dream, i know i

will come around to acceptance soon so i am just processing i guess.

they havent removed bobby glen from his meds. weening him now, hes

not happy for sure i know hes worried, sunday had said he was just

gonna let what ever happens happen, i didnt respond to it i know its

the situation talking and not him.we are waiting for hep. dr. to call

with his recomendations, but i know they will just call with an appt.

date ,its seems to be the routine lol.its been raining here too ,gosh

we needed it!!but makes the old body snap crackle and pop teehee.plus

makes everything seem dreary,ahhh maybe i am alittle depressed

feeling, but it will pass when i decide to stop feeling sorry for

myself and bobby glenn and just decide to live what ever life throws

us. i love you my friend barby..ps i dont know what i would do if it

wasnt for you and my peeps teehee I spoke briefly

with

>

> > earlier this evening. They have finally moved them into a larger

> hospice room

> > and their accomodations are much better now. and all the

> children were at

> > the hospital together.

> >

> > 's agitation continues to worsen. They started him on

Haldol

> today.

> > He is responding better to it, but they haven't gotten the dosing

> schedule

> > perfected yet. He has now developed 3 decubitus ulcers to add to

> his pain and

> > discomfort. Nothing has changed for the better and is being

> realistic in

> > that she doesn't expect it to.

> >

> > Please continue to pray for her, and the children.

> >

> > Love and hugs......

> >

> > Diane

> >

> >

[Guest guest]

Barby - I understand about dates and certain times of the year being rough.

My father died on June 21, was buried on my bday June 25, my mother had a

heart attack on July 25. It isn't an easy time of the year for me.

btw, I would be happy to give you some of my chest. Would you like the

saggy part or the part before that? Jan H

On Fri, Oct 10, 2008 at 7:17 AM, pinkmeetsblue

wrote:

> oh jan honey ,you did buck me up lol,i am sorry you have so much on

> your plate wow!!! thats one of the things that i love about this

> group ,just when you start to let your own plate make you feel

> helpless you talk to someone with such strengthn and zest for life

> that it snaps you back to I CAN DO THIS!!i need to take your advise

> and get out of this house more often,i have been turning into a

> hermit lol.i take my dogs out but only go into town when i really

> have to.i like having the grandbabies because it forces me to be

> normal.i havent left the house since monday ,i dont know why ,i just

> feel safer here lately.i think the thyroid crap started it and bobby

> glenn being sick just sinched it for me.but i do know i cant stay

> home forever lol, but when i go to town i get there do my erands then

> go welllllllll what now, i hate shopping everybodies at work or not

> home,i should go do some volunteer work or find a fullfilly part time

> job but then i just think to heck with it i am going home.so here i

> am lol lol thank goddness for the computor and the babies, lol

> lollol.ok now i am venting and it sounds crazy, here i am mostly

> healthy and stuck in the mudd,and others are so sick and find away to

> keep going huh,food for thought barby!!! i think alot of it is this

> month of oct. it usually makes me go into a limbo state then i snap

> back, something about when the season changes my sister says lol.i

> think mostly its the month my little sister had her 35th

> birthday ,was very unhappy and ready to leave her husband who was

> abusing her,she called me from texas one day crying and asked me to

> come help her leave him and find her own place. i had just had a new

> grandbaby and was currently keeping 3 of them 5 days a week and i

> told her " suzy honey i can't just up and leave without giving the

> kids some notice " i really thought her and denny had just had a big

> fight and it would pass as it had for several yrs. we'd get her out

> and she'd go back. then came the phone call less than a week later,

> barby they have taken suzy to the hospital shes unresponsive,huh

> unresponsive ,so i called all three hosp. in the kilgore area, our

> mother and baby sister was in route, kathy and i were here calling

> ahhh found the right hosp. yes shes there ,how is she ,mam we cant

> say, kathy yelling ,me crying mam please our mother is on her way

> from shreveport, we cant reach her please just tell me is she ok.

> then a quite meek voice said,mam i am sorry we done everything we

> could..............the silence the screams the disblieve, the seering

> pain,the oh my god mommy ,mam our mother is coming there please

> please help her,the trip to mommas house i dont remember much ,we

> didnt have the clothes we need ,i packed something i thought,i

> remember the clouds big white and fluffy looking.i remeember suzys

> voice in the back of my head saying " i am ok barby i am ok " i cant

> here her voice anymore its been 4 yrs. i could hear her before she

> crossed over, now shes an angel and sends me pennies butterfliesand

> playes with my radio and tv lol.she had a heart attack at 35, she had

> to leave her babies here,i should have went and helped her, i should

> have went, but i didnt,so it stays with me and if anyone calls me and

> says can you come help me i go now emediatlly.so oct. has been a

> rough month ever since for me.it will pass nov. will come and all

> will be ok.that pain of our last phone call will always haunt me,but

> i know she ok and we will be together again, i have lost 2 siblings

> my suzy and my brother wayne when he was 13,hed be bobbys age now.i

> hate death but its a part of life, i have been with bobby so long, i

> try to put his illness out of my mind but i cant its here its

> real,but i want to die first.i dont want that seering pain ripping

> thru my sole ,so i turn back to my faith and try to remain still. ok

> hope i havent deoressed everyone lol, i just needed to get that off

> my chest ,and trust me i dont have much chest left lol lol lol.rest

> in peace old suzy q and tig, at least till i get there then we will

> kick heaven up a notch teehee love barby I spoke briefly

> > > with

> > > >

> > > > > earlier this evening. They have finally moved them into a

> larger

> > > > hospice room

> > > > > and their accomodations are much better now. and all the

> > > > children were at

> > > > > the hospital together.

> > > > >

> > > > > 's agitation continues to worsen. They started him on

> > > Haldol

> > > > today.

> > > > > He is responding better to it, but they haven't gotten the

> dosing

> > > > schedule

> > > > > perfected yet. He has now developed 3 decubitus ulcers to add

> to

> > > > his pain and

> > > > > discomfort. Nothing has changed for the better and is

> being

> > > > realistic in

> > > > > that she doesn't expect it to.

> > > > >

> > > > > Please continue to pray for her, and the children.

> > > > >

> > > > > Love and hugs......

> > > > >

> > > > > Diane

> > > > >

> > > > >

[Guest guest]

hi jan my bd is june 25th...my brother that died was also buried on my bd . what

a coincidence. a friend told me that the pain of grief always hurts and will

forever but in time it will hurt less often.

sandy

Re: RE:

Barby - I understand about dates and certain times of the year being rough.

My father died on June 21, was buried on my bday June 25, my mother had a

heart attack on July 25. It isn't an easy time of the year for me.

btw, I would be happy to give you some of my chest. Would you like the

saggy part or the part before that? Jan H

On Fri, Oct 10, 2008 at 7:17 AM, pinkmeetsblue

<itsabnbthing@ bellsouth. net>wrote:

> oh jan honey ,you did buck me up lol,i am sorry you have so much on

> your plate wow!!! thats one of the things that i love about this

> group ,just when you start to let your own plate make you feel

> helpless you talk to someone with such strengthn and zest for life

> that it snaps you back to I CAN DO THIS!!i need to take your advise

> and get out of this house more often,i have been turning into a

> hermit lol.i take my dogs out but only go into town when i really

> have to.i like having the grandbabies because it forces me to be

> normal.i havent left the house since monday ,i dont know why ,i just

> feel safer here lately.i think the thyroid crap started it and bobby

> glenn being sick just sinched it for me.but i do know i cant stay

> home forever lol, but when i go to town i get there do my erands then

> go welllllllll what now, i hate shopping everybodies at work or not

> home,i should go do some volunteer work or find a fullfilly part time

> job but then i just think to heck with it i am going home.so here i

> am lol lol thank goddness for the computor and the babies, lol

> lollol.ok now i am venting and it sounds crazy, here i am mostly

> healthy and stuck in the mudd,and others are so sick and find away to

> keep going huh,food for thought barby!!! i think alot of it is this

> month of oct. it usually makes me go into a limbo state then i snap

> back, something about when the season changes my sister says lol.i

> think mostly its the month my little sister had her 35th

> birthday ,was very unhappy and ready to leave her husband who was

> abusing her,she called me from texas one day crying and asked me to

> come help her leave him and find her own place. i had just had a new

> grandbaby and was currently keeping 3 of them 5 days a week and i

> told her " suzy honey i can't just up and leave without giving the

> kids some notice " i really thought her and denny had just had a big

> fight and it would pass as it had for several yrs. we'd get her out

> and she'd go back. then came the phone call less than a week later,

> barby they have taken suzy to the hospital shes unresponsive, huh

> unresponsive ,so i called all three hosp. in the kilgore area, our

> mother and baby sister was in route, kathy and i were here calling

> ahhh found the right hosp. yes shes there ,how is she ,mam we cant

> say, kathy yelling ,me crying mam please our mother is on her way

> from shreveport, we cant reach her please just tell me is she ok.

> then a quite meek voice said,mam i am sorry we done everything we

> could....... .......the silence the screams the disblieve, the seering

> pain,the oh my god mommy ,mam our mother is coming there please

> please help her,the trip to mommas house i dont remember much ,we

> didnt have the clothes we need ,i packed something i thought,i

> remember the clouds big white and fluffy looking.i remeember suzys

> voice in the back of my head saying " i am ok barby i am ok " i cant

> here her voice anymore its been 4 yrs. i could hear her before she

> crossed over, now shes an angel and sends me pennies butterfliesand

> playes with my radio and tv lol.she had a heart attack at 35, she had

> to leave her babies here,i should have went and helped her, i should

> have went, but i didnt,so it stays with me and if anyone calls me and

> says can you come help me i go now emediatlly.so oct. has been a

> rough month ever since for me.it will pass nov. will come and all

> will be ok.that pain of our last phone call will always haunt me,but

> i know she ok and we will be together again, i have lost 2 siblings

> my suzy and my brother wayne when he was 13,hed be bobbys age now.i

> hate death but its a part of life, i have been with bobby so long, i

> try to put his illness out of my mind but i cant its here its

> real,but i want to die first.i dont want that seering pain ripping

> thru my sole ,so i turn back to my faith and try to remain still. ok

> hope i havent deoressed everyone lol, i just needed to get that off

> my chest ,and trust me i dont have much chest left lol lol lol.rest

> in peace old suzy q and tig, at least till i get there then we will

> kick heaven up a notch teehee love barby I spoke briefly

> > > with

> > > >

> > > > > earlier this evening. They have finally moved them into a

> larger

> > > > hospice room

> > > > > and their accomodations are much better now. and all the

> > > > children were at

> > > > > the hospital together.

> > > > >

> > > > > 's agitation continues to worsen. They started him on

> > > Haldol

> > > > today.

> > > > > He is responding better to it, but they haven't gotten the

> dosing

> > > > schedule

> > > > > perfected yet. He has now developed 3 decubitus ulcers to add

> to

> > > > his pain and

> > > > > discomfort. Nothing has changed for the better and is

> being

> > > > realistic in

> > > > > that she doesn't expect it to.

> > > > >

> > > > > Please continue to pray for her, and the children.

> > > > >

> > > > > Love and hugs......

> > > > >

> > > > > Diane

> > > > >

> > > > >

[Guest guest]

morning sandy girl teehee, i wasnt concerned over your post ,i

appreciated it love!! i just felt awful if i had hurt anyone with my

misery wallering lol. you are sweet for being caring enough to even

care babe luve you barby I spoke

> briefly

> > > > with

> > > > >

> > > > > > earlier this evening. They have finally moved them into a

> > larger

> > > > > hospice room

> > > > > > and their accomodations are much better now. and

all

> the

> > > > > children were at

> > > > > > the hospital together.

> > > > > >

> > > > > > 's agitation continues to worsen. They started him

on

> > > > Haldol

> > > > > today.

> > > > > > He is responding better to it, but they haven't gotten

the

> > dosing

> > > > > schedule

> > > > > > perfected yet. He has now developed 3 decubitus ulcers to

> add

> > to

> > > > > his pain and

> > > > > > discomfort. Nothing has changed for the better and

is

> > being

> > > > > realistic in

> > > > > > that she doesn't expect it to.

> > > > > >

> > > > > > Please continue to pray for her, and the children.

> > > > > >

> > > > > > Love and hugs......

> > > > > >

> > > > > > Diane

> > > > > >

> > > > > >

[Guest guest]

ah jan you are such a sharing gal, lets see i will take the other

part of your chest...what the heck i will take anything you have to

give lol lol lol,currently my breasts are on my dresser lol lol, if

not for the wonder bra, it would be a wonder if i had a teetee at

all, ahhhhhhhhh ,i know men more info than you needed lol lol lol ---

In livercirrhosissupport , " Jan Holman "

wrote:

>

> Barby - I understand about dates and certain times of the year

being rough.

> My father died on June 21, was buried on my bday June 25, my mother

had a

> heart attack on July 25. It isn't an easy time of the year for me.

> btw, I would be happy to give you some of my chest. Would you like

the

> saggy part or the part before that? Jan H

>

> On Fri, Oct 10, 2008 at 7:17 AM, pinkmeetsblue

> wrote:

>

> > oh jan honey ,you did buck me up lol,i am sorry you have so

much on

> > your plate wow!!! thats one of the things that i love about this

> > group ,just when you start to let your own plate make you feel

> > helpless you talk to someone with such strengthn and zest for life

> > that it snaps you back to I CAN DO THIS!!i need to take your

advise

> > and get out of this house more often,i have been turning into a

> > hermit lol.i take my dogs out but only go into town when i really

> > have to.i like having the grandbabies because it forces me to be

> > normal.i havent left the house since monday ,i dont know why ,i

just

> > feel safer here lately.i think the thyroid crap started it and

bobby

> > glenn being sick just sinched it for me.but i do know i cant stay

> > home forever lol, but when i go to town i get there do my erands

then

> > go welllllllll what now, i hate shopping everybodies at work or

not

> > home,i should go do some volunteer work or find a fullfilly part

time

> > job but then i just think to heck with it i am going home.so here

i

> > am lol lol thank goddness for the computor and the babies, lol

> > lollol.ok now i am venting and it sounds crazy, here i am mostly

> > healthy and stuck in the mudd,and others are so sick and find

away to

> > keep going huh,food for thought barby!!! i think alot of it is

this

> > month of oct. it usually makes me go into a limbo state then i

snap

> > back, something about when the season changes my sister says lol.i

> > think mostly its the month my little sister had her 35th

> > birthday ,was very unhappy and ready to leave her husband who was

> > abusing her,she called me from texas one day crying and asked me

to

> > come help her leave him and find her own place. i had just had a

new

> > grandbaby and was currently keeping 3 of them 5 days a week and i

> > told her " suzy honey i can't just up and leave without giving the

> > kids some notice " i really thought her and denny had just had a

big

> > fight and it would pass as it had for several yrs. we'd get her

out

> > and she'd go back. then came the phone call less than a week

later,

> > barby they have taken suzy to the hospital shes unresponsive,huh

> > unresponsive ,so i called all three hosp. in the kilgore area, our

> > mother and baby sister was in route, kathy and i were here calling

> > ahhh found the right hosp. yes shes there ,how is she ,mam we cant

> > say, kathy yelling ,me crying mam please our mother is on her way

> > from shreveport, we cant reach her please just tell me is she ok.

> > then a quite meek voice said,mam i am sorry we done everything we

> > could..............the silence the screams the disblieve, the

seering

> > pain,the oh my god mommy ,mam our mother is coming there please

> > please help her,the trip to mommas house i dont remember much ,we

> > didnt have the clothes we need ,i packed something i thought,i

> > remember the clouds big white and fluffy looking.i remeember suzys

> > voice in the back of my head saying " i am ok barby i am ok " i cant

> > here her voice anymore its been 4 yrs. i could hear her before she

> > crossed over, now shes an angel and sends me pennies

butterfliesand

> > playes with my radio and tv lol.she had a heart attack at 35, she

had

> > to leave her babies here,i should have went and helped her, i

should

> > have went, but i didnt,so it stays with me and if anyone calls me

and

> > says can you come help me i go now emediatlly.so oct. has been a

> > rough month ever since for me.it will pass nov. will come and all

> > will be ok.that pain of our last phone call will always haunt

me,but

> > i know she ok and we will be together again, i have lost 2

siblings

> > my suzy and my brother wayne when he was 13,hed be bobbys age

now.i

> > hate death but its a part of life, i have been with bobby so

long, i

> > try to put his illness out of my mind but i cant its here its

> > real,but i want to die first.i dont want that seering pain ripping

> > thru my sole ,so i turn back to my faith and try to remain still.

ok

> > hope i havent deoressed everyone lol, i just needed to get that

off

> > my chest ,and trust me i dont have much chest left lol lol

lol.rest

> > in peace old suzy q and tig, at least till i get there then we

will

> > kick heaven up a notch teehee love barby I spoke

briefly

> > > > with

> > > > >

> > > > > > earlier this evening. They have finally moved them into a

> > larger

> > > > > hospice room

> > > > > > and their accomodations are much better now. and

all the

> > > > > children were at

> > > > > > the hospital together.

> > > > > >

> > > > > > 's agitation continues to worsen. They started him

on

> > > > Haldol

> > > > > today.

> > > > > > He is responding better to it, but they haven't gotten the

> > dosing

> > > > > schedule

> > > > > > perfected yet. He has now developed 3 decubitus ulcers to

add

> > to

> > > > > his pain and

> > > > > > discomfort. Nothing has changed for the better and

is

> > being

> > > > > realistic in

> > > > > > that she doesn't expect it to.

> > > > > >

> > > > > > Please continue to pray for her, and the children.

> > > > > >

> > > > > > Love and hugs......

> > > > > >

> > > > > > Diane

> > > > > >

> > > > > >

[Guest guest]

Hello all, I talked to this afternoon.  's pain and agitation are

continuing to be almost uncontrollable.  They are now giving him Haldol,

Abilify, Oxycontin, Morphine and one other that I cannot remember the name of. 

Even with large does of all these, he still is severely agitated and and gets

very little sleep.  says the worst time is from about 4 a.m. till Noon

everyday.  

They had a really bad experience with a nurse on this past Wednesday that has

really upset .  She was almost at the point of acceptance of the fact that

she had done the right thing for and was giving him the opportunity to

die with dignity and as much peace as possible.  The episode with the nurse

completely undid all she had worked so hard to accomplish both for and

for her own peace of mind.

All of 's senses are now extremely heightened.  Slight noises and mere

brushes against his skin can cause him extreme pain and agitation, as does noise

and light.  On Wednesday, a male nurse and a female CNA came in to give

his bath.  After a bit, he became very agitated and restless and was crying in

pain.  told the nurse it was time to end the bath because couldn't

take anymore.  The nurse proceeded to completely ignore and speak to

, telling him he had to have this bath because he stunk and his skin was

rotting!  Whether this is true or not, I don't know.  However, I do know this

was completely inappropriate behavior in the nurse.

became upset and began crying, which upset even farther.  The CNA

had begun to cry because she felt so bad for and .  Things

escalated until reached the end of her rope and began shouting to the

nurse to leave the room.  At this point, an RN walked in to find out what was

wrong.  After hearing what had happened, she sent the male nurse from the room

and told him never to return.  Now , , the CNA and the RN are upset

and crying. 

The RN and CNA left the room and the RN went to report the incident to the

D.O.N.  When had collected herself a bit and emerged from the bathroom,

the RN, CNA, D.O.N. and a Patient Advocate were waiting in the room to speak to

her.  After hearing the details of the incident, all involved are now upset and

crying.  As to what will happen with the male nurse, I don't know, other than he

has been given direct orders never to set foot in 's room again.

To add to 's stress, Hopice care is allotted in 14 day increments by

insurance carriers.  This coming Wednesday will be day 14 for .  If he is

not actively in the dying process, meaning he is expected to die within 12-24

hours, he will have to be discharged either back to their home or to a nursing

home.  So, 's options are not good ones no matter what she chooses.  

I'm sorry for the length of the email, but I felt sure you all would want to

know as much as possible about what is going on.  I hope to talk to again

either tonight or tomorrow.  She is running on nothing but stress-released

adrenaline and our prayers; so please keep praying. 

It's hard to understand why the Lord would allow this to go on as it is, but I

know He has a plan and a purpose for all He allows.  It's so easy to think we

know what's right and best in any given situation, yet we only see a glimpse of

the whole picture.  I know your hearts are as heavy as is mine for and for

her family.  May the Lord grant that our burden will make hers seem lighter.

Love and hugs..........

Diane

[Guest guest]

Diane,

I'm curious if they still giving Lactulose for the severe

encephalopathy?

MaC

diane chandler wrote: Hello

all, I talked to this afternoon. 's pain and agitation are

continuing to be almost uncontrollable. They are now giving him Haldol,

Abilify, Oxycontin, Morphine and one other that I cannot remember the name of.

Even with large does of all these, he still is severely agitated and and gets

very little sleep. says the worst time is from about 4 a.m. till Noon

everyday.

They had a really bad experience with a nurse on this past Wednesday that has

really upset . She was almost at the point of acceptance of the fact that

she had done the right thing for and was giving him the opportunity to

die with dignity and as much peace as possible. The episode with the nurse

completely undid all she had worked so hard to accomplish both for and

for her own peace of mind.

All of 's senses are now extremely heightened. Slight noises and mere

brushes against his skin can cause him extreme pain and agitation, as does noise

and light. On Wednesday, a male nurse and a female CNA came in to give

his bath. After a bit, he became very agitated and restless and was crying in

pain. told the nurse it was time to end the bath because couldn't

take anymore. The nurse proceeded to completely ignore and speak to

, telling him he had to have this bath because he stunk and his skin was

rotting! Whether this is true or not, I don't know. However, I do know this

was completely inappropriate behavior in the nurse.

became upset and began crying, which upset even farther. The CNA

had begun to cry because she felt so bad for and . Things

escalated until reached the end of her rope and began shouting to the

nurse to leave the room. At this point, an RN walked in to find out what was

wrong. After hearing what had happened, she sent the male nurse from the room

and told him never to return. Now , , the CNA and the RN are upset

and crying.

The RN and CNA left the room and the RN went to report the incident to the

D.O.N. When had collected herself a bit and emerged from the bathroom,

the RN, CNA, D.O.N. and a Patient Advocate were waiting in the room to speak to

her. After hearing the details of the incident, all involved are now upset and

crying. As to what will happen with the male nurse, I don't know, other than he

has been given direct orders never to set foot in 's room again.

To add to 's stress, Hopice care is allotted in 14 day increments by

insurance carriers. This coming Wednesday will be day 14 for . If he is

not actively in the dying process, meaning he is expected to die within 12-24

hours, he will have to be discharged either back to their home or to a nursing

home. So, 's options are not good ones no matter what she chooses.

I'm sorry for the length of the email, but I felt sure you all would want to

know as much as possible about what is going on. I hope to talk to again

either tonight or tomorrow. She is running on nothing but stress-released

adrenaline and our prayers; so please keep praying.

It's hard to understand why the Lord would allow this to go on as it is, but I

know He has a plan and a purpose for all He allows. It's so easy to think we

know what's right and best in any given situation, yet we only see a glimpse of

the whole picture. I know your hearts are as heavy as is mine for and for

her family. May the Lord grant that our burden will make hers seem lighter.

Love and hugs..........

Diane

[Guest guest]

Yes, MaC, I believe they are.  The other drug I couldn't remember was Ativan.

Diane

Re: RE:

Diane,

I'm curious if they still giving Lactulose for the severe

encephalopathy?

MaC

diane chandler <dianechandler@ att.net> wrote: Hello all, I talked to this

afternoon. 's pain and agitation are continuing to be almost

uncontrollable. They are now giving him Haldol, Abilify, Oxycontin, Morphine and

one other that I cannot remember the name of. Even with large does of all these,

he still is severely agitated and and gets very little sleep. says the

worst time is from about 4 a.m. till Noon everyday.

They had a really bad experience with a nurse on this past Wednesday that has

really upset . She was almost at the point of acceptance of the fact that

she had done the right thing for and was giving him the opportunity to

die with dignity and as much peace as possible. The episode with the nurse

completely undid all she had worked so hard to accomplish both for and

for her own peace of mind.

All of 's senses are now extremely heightened. Slight noises and mere

brushes against his skin can cause him extreme pain and agitation, as does noise

and light. On Wednesday, a male nurse and a female CNA came in to give

his bath. After a bit, he became very agitated and restless and was crying in

pain. told the nurse it was time to end the bath because couldn't

take anymore. The nurse proceeded to completely ignore and speak to

, telling him he had to have this bath because he stunk and his skin was

rotting! Whether this is true or not, I don't know. However, I do know this was

completely inappropriate behavior in the nurse.

became upset and began crying, which upset even farther. The CNA

had begun to cry because she felt so bad for and . Things escalated

until reached the end of her rope and began shouting to the nurse to leave

the room. At this point, an RN walked in to find out what was wrong. After

hearing what had happened, she sent the male nurse from the room and told him

never to return. Now , , the CNA and the RN are upset and crying.

The RN and CNA left the room and the RN went to report the incident to the

D.O.N. When had collected herself a bit and emerged from the bathroom, the

RN, CNA, D.O.N. and a Patient Advocate were waiting in the room to speak to her.

After hearing the details of the incident, all involved are now upset and

crying. As to what will happen with the male nurse, I don't know, other than he

has been given direct orders never to set foot in 's room again.

To add to 's stress, Hopice care is allotted in 14 day increments by

insurance carriers. This coming Wednesday will be day 14 for . If he is

not actively in the dying process, meaning he is expected to die within 12-24

hours, he will have to be discharged either back to their home or to a nursing

home. So, 's options are not good ones no matter what she chooses.

I'm sorry for the length of the email, but I felt sure you all would want to

know as much as possible about what is going on. I hope to talk to again

either tonight or tomorrow. She is running on nothing but stress-released

adrenaline and our prayers; so please keep praying.

It's hard to understand why the Lord would allow this to go on as it is, but I

know He has a plan and a purpose for all He allows. It's so easy to think we

know what's right and best in any given situation, yet we only see a glimpse of

the whole picture. I know your hearts are as heavy as is mine for and for

her family. May the Lord grant that our burden will make hers seem lighter.

Love and hugs........ ..

Diane

[Guest guest]

Diane,

Thank-you so much for updating. I've been heavy hearted for & !

I had the same thought as MaC about the lactulose? I also wonder why they

can't get him out of pain? I thought the morphine would do that.

I'm so sorry, what a difficult time. I too don't understand God's plan when

someone is suffering so, I just don't get it.

Praying.

Pamela

RE:

Hello all, I talked to this afternoon. 's pain and agitation are

continuing to be almost uncontrollable. They are now giving him Haldol,

Abilify, Oxycontin, Morphine and one other that I cannot remember the name of.

Even with large does of all these, he still is severely agitated and and gets

very little sleep. says the worst time is from about 4 a.m. till Noon

everyday.

They had a really bad experience with a nurse on this past Wednesday that has

really upset . She was almost at the point of acceptance of the fact that

she had done the right thing for and was giving him the opportunity to

die with dignity and as much peace as possible. The episode with the nurse

completely undid all she had worked so hard to accomplish both for and

for her own peace of mind.

All of 's senses are now extremely heightened. Slight noises and mere

brushes against his skin can cause him extreme pain and agitation, as does noise

and light. On Wednesday, a male nurse and a female CNA came in to give

his bath. After a bit, he became very agitated and restless and was crying in

pain. told the nurse it was time to end the bath because couldn't

take anymore. The nurse proceeded to completely ignore and speak to

, telling him he had to have this bath because he stunk and his skin was

rotting! Whether this is true or not, I don't know. However, I do know this

was completely inappropriate behavior in the nurse.

became upset and began crying, which upset even farther. The

CNA had begun to cry because she felt so bad for and . Things

escalated until reached the end of her rope and began shouting to the

nurse to leave the room. At this point, an RN walked in to find out what was

wrong. After hearing what had happened, she sent the male nurse from the room

and told him never to return. Now , , the CNA and the RN are upset

and crying.

The RN and CNA left the room and the RN went to report the incident to the

D.O.N. When had collected herself a bit and emerged from the bathroom,

the RN, CNA, D.O.N. and a Patient Advocate were waiting in the room to speak to

her. After hearing the details of the incident, all involved are now upset and

crying. As to what will happen with the male nurse, I don't know, other than he

has been given direct orders never to set foot in 's room again.

To add to 's stress, Hopice care is allotted in 14 day increments by

insurance carriers. This coming Wednesday will be day 14 for . If he is

not actively in the dying process, meaning he is expected to die within 12-24

hours, he will have to be discharged either back to their home or to a nursing

home. So, 's options are not good ones no matter what she chooses.

I'm sorry for the length of the email, but I felt sure you all would want to

know as much as possible about what is going on. I hope to talk to again

either tonight or tomorrow. She is running on nothing but stress-released

adrenaline and our prayers; so please keep praying.

It's hard to understand why the Lord would allow this to go on as it is, but I

know He has a plan and a purpose for all He allows. It's so easy to think we

know what's right and best in any given situation, yet we only see a glimpse of

the whole picture. I know your hearts are as heavy as is mine for and for

her family. May the Lord grant that our burden will make hers seem lighter.

Love and hugs..........

Diane

[Guest guest]

Thanks Diane,

I was asking, because I wonder if it's the encephalopathy that is causing much

of the problems. I'm surprised that the insurance is only giving 14 days for

hospice. That's upsetting. Especially when they say if he's not in the " dying

process " he has to leave in 48 hrs. How horrible. It can take days or weeks!

This upsets even me and I can only imagine how feels!

As always, and more than ever, she is in my prayers.

MaC

diane chandler wrote: Yes,

MaC, I believe they are. The other drug I couldn't remember was Ativan.

Diane

Re: RE:

Diane,

I'm curious if they still giving Lactulose for the severe

encephalopathy?

MaC

diane chandler <dianechandler@ att.net> wrote: Hello all, I talked to this

afternoon. 's pain and agitation are continuing to be almost

uncontrollable. They are now giving him Haldol, Abilify, Oxycontin, Morphine and

one other that I cannot remember the name of. Even with large does of all these,

he still is severely agitated and and gets very little sleep. says the

worst time is from about 4 a.m. till Noon everyday.

They had a really bad experience with a nurse on this past Wednesday that has

really upset . She was almost at the point of acceptance of the fact that

she had done the right thing for and was giving him the opportunity to

die with dignity and as much peace as possible. The episode with the nurse

completely undid all she had worked so hard to accomplish both for and

for her own peace of mind.

All of 's senses are now extremely heightened. Slight noises and mere

brushes against his skin can cause him extreme pain and agitation, as does noise

and light. On Wednesday, a male nurse and a female CNA came in to give

his bath. After a bit, he became very agitated and restless and was crying in

pain. told the nurse it was time to end the bath because couldn't

take anymore. The nurse proceeded to completely ignore and speak to

, telling him he had to have this bath because he stunk and his skin was

rotting! Whether this is true or not, I don't know. However, I do know this was

completely inappropriate behavior in the nurse.

became upset and began crying, which upset even farther. The CNA

had begun to cry because she felt so bad for and . Things escalated

until reached the end of her rope and began shouting to the nurse to leave

the room. At this point, an RN walked in to find out what was wrong. After

hearing what had happened, she sent the male nurse from the room and told him

never to return. Now , , the CNA and the RN are upset and crying.

The RN and CNA left the room and the RN went to report the incident to the

D.O.N. When had collected herself a bit and emerged from the bathroom, the

RN, CNA, D.O.N. and a Patient Advocate were waiting in the room to speak to her.

After hearing the details of the incident, all involved are now upset and

crying. As to what will happen with the male nurse, I don't know, other than he

has been given direct orders never to set foot in 's room again.

To add to 's stress, Hopice care is allotted in 14 day increments by

insurance carriers. This coming Wednesday will be day 14 for . If he is

not actively in the dying process, meaning he is expected to die within 12-24

hours, he will have to be discharged either back to their home or to a nursing

home. So, 's options are not good ones no matter what she chooses.

I'm sorry for the length of the email, but I felt sure you all would want to

know as much as possible about what is going on. I hope to talk to again

either tonight or tomorrow. She is running on nothing but stress-released

adrenaline and our prayers; so please keep praying.

It's hard to understand why the Lord would allow this to go on as it is, but I

know He has a plan and a purpose for all He allows. It's so easy to think we

know what's right and best in any given situation, yet we only see a glimpse of

the whole picture. I know your hearts are as heavy as is mine for and for

her family. May the Lord grant that our burden will make hers seem lighter.

Love and hugs........ ..

Diane

[Guest guest]

This all sounds like a nightmare. I experienced a similar thing when Ardis was

admitted to the Collier hospice out here in Wheatridge Colo. They initially told

me thnat she would have to make good progress toward dying or have to go back

into a nursing home. I was so worried, I did a lot of pacing over that dilemma.

The thing is that she accelerated so fast that midway into the second day, I

asked in tears to one of our\sweetest nurses there how she was doing in that

regard, and she took me into the room, and showed me evidence that Ardis was

very busy dying, and not to worry, I wouldnt have to move her, that she was well

on her way. I was anguished because my runins with the A-holes of the world were

in the nursing home she had just been moved from. They did a fair job of taking

cre of her with her special challenges, but on the last day I had similar

experiences to and 's. I am uterly shoked that was treated

like this because in my

experience with hospice is that they will execute you or anyone mistreating a

patient, they have rules about what you can and shoule not say and do, thier

whole goal is to pamper and make the exerience a pleasant as possible. I am

going to post a separate post regarding what I know about hospice. Thanks for

the update Diane. love Bobby

long life, old age, everything good-Apache prayer

RE:

Hello all, I talked to this afternoon. 's pain and agitation are

continuing to be almost uncontrollable. They are now giving him Haldol,

Abilify, Oxycontin, Morphine and one other that I cannot remember the name of.

Even with large does of all these, he still is severely agitated and and gets

very little sleep. says the worst time is from about 4 a.m. till Noon

everyday.

They had a really bad experience with a nurse on this past Wednesday that has

really upset . She was almost at the point of acceptance of the fact that

she had done the right thing for and was giving him the opportunity to

die with dignity and as much peace as possible. The episode with the nurse

completely undid all she had worked so hard to accomplish both for and

for her own peace of mind.

All of 's senses are now extremely heightened. Slight noises and mere

brushes against his skin can cause him extreme pain and agitation, as does noise

and light. On Wednesday, a male nurse and a female CNA came in to give

his bath. After a bit, he became very agitated and restless and was crying in

pain. told the nurse it was time to end the bath because couldn't

take anymore. The nurse proceeded to completely ignore and speak to

, telling him he had to have this bath because he stunk and his skin was

rotting! Whether this is true or not, I don't know. However, I do know this

was completely inappropriate behavior in the nurse.

became upset and began crying, which upset even farther. The CNA

had begun to cry because she felt so bad for and . Things

escalated until reached the end of her rope and began shouting to the

nurse to leave the room. At this point, an RN walked in to find out what was

wrong. After hearing what had happened, she sent the male nurse from the room

and told him never to return. Now , , the CNA and the RN are upset

and crying.

The RN and CNA left the room and the RN went to report the incident to the

D.O.N. When had collected herself a bit and emerged from the bathroom,

the RN, CNA, D.O.N. and a Patient Advocate were waiting in the room to speak to

her. After hearing the details of the incident, all involved are now upset and

crying. As to what will happen with the male nurse, I don't know, other than he

has been given direct orders never to set foot in 's room again.

To add to 's stress, Hopice care is allotted in 14 day increments by

insurance carriers. This coming Wednesday will be day 14 for . If he is

not actively in the dying process, meaning he is expected to die within 12-24

hours, he will have to be discharged either back to their home or to a nursing

home. So, 's options are not good ones no matter what she chooses.

I'm sorry for the length of the email, but I felt sure you all would want to

know as much as possible about what is going on. I hope to talk to again

either tonight or tomorrow. She is running on nothing but stress-released

adrenaline and our prayers; so please keep praying.

It's hard to understand why the Lord would allow this to go on as it is, but I

know He has a plan and a purpose for all He allows. It's so easy to think we

know what's right and best in any given situation, yet we only see a glimpse of

the whole picture. I know your hearts are as heavy as is mine for and for

her family. May the Lord grant that our burden will make hers seem lighter.

Love and hugs........ ..

Diane

[Guest guest]

Hi ,

As far as I am aware, you will need the lactulose until you get your new liver,

if you are approved for the transplant.  As far as what you can do to reassure

your doctor, don't drink.  I don't mean that to sound blunt, but they will in no

way consider you for the transplant list as long as they know your are drinking

and if you fall off the wagon, you be removed from the list, even if you're

already on it.  So, for your own good and for the best chances at getting a new

liver, don't drink. 

Have you had treatment for the Hep C?  If not, they may want you to undergo a

treatment protocol for that before putting you on the list.  However, if your

function is poor enough, they will transplant you first, then do the Hep C

protocol.  Penny, who is a member can tell you more about that.

Talk to your doctor about what foods you should and shouldn't be eating.  Many

doctors will reccomend a very low sodium, low protein diet.  However, you should

not cut those things from your diet without consulting your doctor first.  Only

your doctor knows your personal story and what is best for you.  BTW, my husband

also stays cold all the time.  He covers up to his nose even when I'm

comfortable in shorts and tee shirt around the house.

My prayers are with you.  I wish you the very best of luck with staying dry.  I

know it's a difficult road, but you can do it!  God bless!

Hugs............

Diane C. from TN

Well hello everyone,and I am new to the group and love all of you

already;0) am also on lactulose,and some days aren't so great...I am

going to be going back to my infectious disease Dr. again I hadn't seen

her since 2002,and since I relapsed with my drinking in May she is

going to be very " snooty " with me.I need to know what exactly what I

need to look for in my blood levels,I already know how she is going to

act about getting on a transplant list.I love life and I pray that I

didn't ruin my only chance.I live in a small town in Ohio and I don't

have a big choice of Dr's.I was very nieve about HepC.and still need as

much advice as I can get.How do I know if I have to stay on Lactose? I

have bands on my varices,and I am on lasix because I get swelling (not

to bad) in my ankles,is there food I should stay away from? or I should

learn to love?Will I be alive next year?How do I convince my Dr.that I

will do everyting and anything to at least get on a list.Thank you for

any input that I can get.My prayers go out to everyone.God bless.

Oh also,I freeze most all of the time is that normal?Brrrr. ....

[Guest guest]

Thank you for the advice,I will stay sober,that seems like the easy part,I never

had HepC treatment,back in 2002 when I first checked onto it I was on

antidepressents and in counceling and was told that I wouldn't be a good

candidate for the treatment because it can cause (interfuron) severe

depression,even suicide.I am no longer on them so I will ask.

Subject: Re:

To: livercirrhosissupport

Date: Thursday, October 23, 2008, 5:41 PM

Hi ,

As far as I am aware, you will need the lactulose until you get your new liver,

if you are approved for the transplant.  As far as what you can do to reassure

your doctor, don't drink.  I don't mean that to sound blunt, but they will in no

way consider you for the transplant list as long as they know your are drinking

and if you fall off the wagon, you be removed from the list, even if you're

already on it.  So, for your own good and for the best chances at getting a new

liver, don't drink. 

Have you had treatment for the Hep C?  If not, they may want you to undergo a

treatment protocol for that before putting you on the list.  However, if your

function is poor enough, they will transplant you first, then do the Hep C

protocol.  Penny, who is a member can tell you more about that.

Talk to your doctor about what foods you should and shouldn't be eating.  Many

doctors will reccomend a very low sodium, low protein diet.  However, you should

not cut those things from your diet without consulting your doctor first.  Only

your doctor knows your personal story and what is best for you.  BTW, my husband

also stays cold all the time.  He covers up to his nose even when I'm

comfortable in shorts and tee shirt around the house.

My prayers are with you.  I wish you the very best of luck with staying dry.  I

know it's a difficult road, but you can do it!  God bless!

Hugs........ ....

Diane C. from TN

Well hello everyone,and I am new to the group and love all of you

already;0) am also on lactulose,and some days aren't so great...I am

going to be going back to my infectious disease Dr. again I hadn't seen

her since 2002,and since I relapsed with my drinking in May she is

going to be very " snooty " with me.I need to know what exactly what I

need to look for in my blood levels,I already know how she is going to

act about getting on a transplant list.I love life and I pray that I

didn't ruin my only chance.I live in a small town in Ohio and I don't

have a big choice of Dr's.I was very nieve about HepC.and still need as

much advice as I can get.How do I know if I have to stay on Lactose? I

have bands on my varices,and I am on lasix because I get swelling (not

to bad) in my ankles,is there food I should stay away from? or I should

learn to love?Will I be alive next year?How do I convince my Dr.that I

will do everyting and anything to at least get on a list.Thank you for

any input that I can get.My prayers go out to everyone.God bless.

Oh also,I freeze most all of the time is that normal?Brrrr. ....