Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 It's hard to believe this was a week ago! I'm that far behind. I COULD sleep all the time and DO sleep most of the time. There is so much to do and I make the bare minimum. I'm not end-stage, I don't think, and won't get evaluation till next month (two pushbacks of appointment), but am fatigued. No pain, no nausea, but fatigued something awful. I've changed my diet so as not to have much meat. Vegetarian with my granddaughter! I drink hot tea every day -- green or dandelion -- and think that's much better than it was. For over a month I had such pain I could hardly move. Walking, standing, sitting, or lying down was agony. Couldn't bend over, couldn't stand at the sink to wash dishes! Now I don't have pain but am SO tired. I can do everything, but am exhausted. Can't even keep up with e-mail friends! Vote KUCINICH The only candidate who CAN run on his RECORD! The only candidate in favor of liberty for ALL. The only candidate working to make YOUR VOTE COUNT! The only candidate working to STOP the NUKES! sleeping all the time I am wondering why my wife is sleeping all the time. She wakes up at interverals and then falls back asleep. Is it the liver disease that is doing that to her. It seems that we dont get enough answers to the Doctors or even the transplant center. I just dont understand anymore. Is this common with people who has liver disease, Has any of you or your family seeing this or seen it, in your love one.. Its killing me inside to see my wife going through this. She is 40..... Group Email: livercirrhosissupport web address: http://groups.yahoo.com/group/livercirrhosissupport/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 , When I was *really sick*, not that I am not now, I just don't *feel* sick. I was also really, really tired and slept a lot. I felt terrible and stayed in bed quite a bit. Then I would get up and feel pretty good and about 4pm I thought my head was going to hit my desk! I would think it was time to start dinner, etc and all I wanted to do was crawl back in bed... It is a common side effect. Part of what comes with Cirrhosis just like the other symptoms. On keeping up with your e-mail. This worked for me. EVERYONE was calling and e-mailing me trying to get the latest and checking on me. All I was doing was repeating myself. I also run a business. I am a cruise specialist and book cruises for people. My office is at home so I do have flexibility but also am working on growing that business and needless to say there is some paperwork, e-mails and phone calls that have to be made. For my personal friends and family I started my BLOG. I LOVE WHAT MY BLOG HAS DONE FOR ME. It allows me to get my feelings out, share what is happening with me and I can post the latest in Dr's reports, etc. If I don't feel like writing or talking it can wait until I am ready. If I want to do it in the middle of the night, I do.... I spread the word to check my blog and actually won't talk about my health if someone calls until I ask them......Have you checked the Blog?..... They can catch up there and we can talk about their kids, the dog or whatever....They now understand that I love them and just can't always respond when they call or e-mail. Worked lovely for me and is so, so easy... and they are free. This is one you can try... https://www.blogger.com/start That is just one. It is free. Mine is www.reallife-withus.blogspot.com Just thought that might help you...plus I am also *training* them to go there for when the time comes I am in the hospital or in for transplant...my family can post....then focus on me....everyone gets what they need. New .....:-) > > It's hard to believe this was a week ago! I'm that far behind. > I COULD sleep all the time and DO sleep most of the time. > There is so much to do and I make the bare minimum. I'm not end- stage, I > don't think, and won't get evaluation till next month (two pushbacks of > appointment), but am fatigued. > No pain, no nausea, but fatigued something awful. > I've changed my diet so as not to have much meat. Vegetarian with my > granddaughter! I drink hot tea every day -- green or dandelion -- and think > that's much better than it was. > For over a month I had such pain I could hardly move. Walking, standing, > sitting, or lying down was agony. Couldn't bend over, couldn't stand at the > sink to wash dishes! Now I don't have pain but am SO tired. I can do > everything, but am exhausted. > Can't even keep up with e-mail friends! > > > > Vote KUCINICH > The only candidate who CAN run on his RECORD! > The only candidate in favor of liberty for ALL. > The only candidate working to make YOUR VOTE COUNT! > The only candidate working to STOP the NUKES! > > sleeping all the time > > I am wondering why my wife is sleeping all the time. She wakes up at > interverals and then falls back asleep. Is it the liver disease that > is doing that to her. It seems that we dont get enough answers to the > Doctors or even the transplant center. I just dont understand anymore. > Is this common with people who has liver disease, Has any of you or > your family seeing this or seen it, in your love one.. Its killing me > inside to see my wife going through this. She is 40..... > > > > Group Email: livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > > Quote Link to comment Share on other sites More sharing options...
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