Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 I got a call from the transplant coordinator today to tell me I will be getting a letter that states I am now on the list and my MELD score, which is 20. I let her leave a message because I was in the bathroom throwing up again, and when I called back, her machine came on so I left a message about going to the ER and why. She always said to let her know when I go to the ER. Penny > > I would get in touch with your regular doctor right away and if he is > not there, speak to his nurse. Any blood showing up from vomiting > needs attention right away. The constant vomiting can throw off your > electrolyte balance very easily and also cause you to become dehydrated. > This alone can cause you to be tired and run down. The doctor needs a > records of when you throw up. I would write it down so he can see how > often it occurs and mark when you see the blood. > > As far as this doctor is concerned, I would ask your doctor what doctor > does he suggest you contact when he is not there. I would also fill > him in on the fact that this doctor seems annoyed by it all. Doctors > take over for each other all the time, when they are in with their > group and they should not be making the patient uncomfortable because > of it. It is true that it takes the doctor longer to evaluate a > patient cause they have to go through their medical records and see > what is happening with them before they see you...it is almost like > having a new patient and it takes alot more effort on their part to be > sure of things than someone who sees you regularly and knows your case. > > I am thrilled that you are now on the transplant list and will be > watched much better than you were before. Usually, those on the list > have a special person they can contact whenever they have a problem. > But, that depends on where you are located on the list and if they > consider you a greater risk. > > Best wishes to you....I hope they can also get this Iron tablet thing > worked out for you, too. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Penny - what works for me to stop diarrhea more often than not is to drink hot/warm jello. Just mix it in hot water as you would mix cool aid in cold. I don't believe you can warm it up after it gets cold, so you will either want to cool some for later, or drink it all asap. Jan H On Feb 1, 2008 2:50 PM, abijann <no_reply > wrote: > It sounds like they are watching you really closely. Sometimes, rice > will help slow down diarrhea and so will applesauce, Did they give > you any mask to wear when you are out in public? > > Everything now may seem like you are on thin ice...but it should get > better with time. When we first left the transplant team and was > turned back over to the other doctors, that felt very strange to us. > It was like we lost the security we once had, an in essence...we did. > I hope you continue to do better and that this cold is starting to > go away now. You have different instructions than we had, any > temperature 100 degree F or over was an immediate admission to the > hospital. I'm so glad you are closer to the hospital and don't > have so far to travel. > > Please keep us posted on your progress. We will keep you in our > prayers. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
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