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Hi . I'm Bobby, welcome to the group. I also have cirrhosis from

alcoholism. I'm not sure what TX is, but I would be glad to let you know

anything that I know. I am also curious what alternative meds you take. I take

an acid reducer, lactulose, and pain meds. I have medium chronic encephalopathy.

I wish you good luck and we are here for you. I have a blog at

http://billybobswildride.blogspot.com/

and feel free to email me anytime at robertwalkingeagle@...

Hello

Hi everyone. My name is and I live in Zhills Fl, I have

Cirrhosis

and the plan is for me to go on TX next week. I was wondering if anyone

else has tried this ? I am 47 yrs old and have been taking alternative

meds for awhile now and I felt better. Does anyone have any

suggestions ? I am going to Lifelink in Tampa it is the only

hepotolgist in Tampa any help would be appreciated Thanks

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tx = treatment

, do you have hepatitis C?

Colleen

Bob Aragon wrote:

Hi . I'm Bobby, welcome to the group. I also have cirrhosis from

alcoholism. I'm not sure what TX is, but I would be glad to let you know

anything that I know. I am also curious what alternative meds you take. I take

an acid reducer, lactulose, and pain meds. I have medium chronic encephalopathy.

I wish you good luck and we are here for you. I have a blog at

http://billybobswildride.blogspot.com/

and feel free to email me anytime at robertwalkingeagle@...

Hello

Hi everyone. My name is and I live in Zhills Fl, I have Cirrhosis

and the plan is for me to go on TX next week. I was wondering if anyone

else has tried this ? I am 47 yrs old and have been taking alternative

meds for awhile now and I felt better. Does anyone have any

suggestions ? I am going to Lifelink in Tampa it is the only

hepotolgist in Tampa any help would be appreciated Thanks

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, I'll be starting tx at the end of October.

Colleen

fuzzyoyo wrote:

Hi everyone. My name is and I live in Zhills Fl, I have Cirrhosis

and the plan is for me to go on TX next week. I was wondering if anyone

else has tried this ? I am 47 yrs old and have been taking alternative

meds for awhile now and I felt better. Does anyone have any

suggestions ? I am going to Lifelink in Tampa it is the only

hepotolgist in Tampa any help would be appreciated Thanks

Link to comment
Share on other sites

  • 1 month later...

Do they look yellow? How can I tell if my aunt is getting it?

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> > > Hi, Elsy. I am so sorry about your aunt. Do you know the cause

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> > her cirrhosis? I am Bobby a 43 year old man with the same thing.

> Mine

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> > is from alcohol abuse. I am a recovering alcoholic. I hope the

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> > doctors can get your aunt on the transplant list as soon as

> possible.

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> > Good luck, and you came to the right place if nothing more than

to

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> > learn more about this disease, not to mention all the really

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> > > Cirrhosis. Doctor's have told her that her disease is level 4.

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> bad

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> >

> > > ____________ _________ _________ _________ _________ __

> >

> >

> >

> > >

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HERE IS A BLIP I FOUND ON A SITE AND PASTED HERE..

Other nail conditions can indicate disease. For example, yellow or

green discoloration in your nails may result from a respiratory

condition, such as chronic bronchitis, or from swelling of your hands

(lymphedema). Indentations that run across your nails, called Beau's

lines, appear when growth at the area under your cuticle is

interrupted. This might occur because of an injury or severe illness,

such as a heart attack

SO FAR I HAVENT SEEN ANYTHING ABOUT LIVER DISEASE INDICATED, BUT DID

A VERY SHORT SEARCH AS I HAVE TO GO OUT NOW.. IF YOU LOOK AT HER

NAILS YOU CANT MISS IT.. DEBRA

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > Hi, Elsy. I am so sorry about your aunt. Do you know the

cause

> of

> > >

> > >

> > >

> > > her cirrhosis? I am Bobby a 43 year old man with the same

thing.

> > Mine

> > >

> > >

> > >

> > > is from alcohol abuse. I am a recovering alcoholic. I hope the

> > >

> > >

> > >

> > > doctors can get your aunt on the transplant list as soon as

> > possible.

> > >

> > >

> > >

> > > Good luck, and you came to the right place if nothing more than

> to

> > >

> > >

> > >

> > > learn more about this disease, not to mention all the really

> > >

> > >

> > >

> > > wonderful friends you will find here.

> > >

> > >

> > >

> > > > Hello

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > My name is Elsy and my aunt was diagnosed a little over

> > >

> > >

> > >

> > > a year ago with

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > Cirrhosis. Doctor's have told her that her disease is level

4.

> > >

> > >

> > >

> > > Can

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > anyone please explain to me how bad level 4 is? Everytime I

> ask a

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > doctor to explain to me how bad is level 4, they just say

it's

> > bad

> > >

> > >

> > >

> > > and

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > that she needs a liver transplant.

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > > >

> > >

> > >

> > >

> > > > #ygrp-mkp{

> > >

> > >

> > >

> > > > border:1px solid #d8d8d8;font- family:Arial; margin:14px

> > >

> > >

> > >

> > > 0px;padding: 0px 14px;}

> > >

> > >

> > >

> > > > #ygrp-mkp hr{

> > >

> > >

> > >

> > > > border:1px solid #d8d8d8;}

> > >

> > >

> > >

> > > > #ygrp-mkp #hd{

> > >

> > >

> > >

> > > > color:#628c2a; font-size: 85%;font- weight:bold; line-

> > >

> > >

> > >

> > > height:122%; margin:10px 0px;}

> > >

> > >

> > >

> > > > #ygrp-mkp #ads{

> > >

> > >

> > >

> > > > margin-bottom: 10px;}

> > >

> > >

> > >

> > > > #ygrp-mkp .ad{

> > >

> > >

> > >

> > > > padding:0 0;}

> > >

> > >

> > >

> > > > #ygrp-mkp .ad a{

> > >

> > >

> > >

> > > > color:#0000ff; text-decoration: none;}

> > >

> > >

> > >

> > > > -->

> > >

> > >

> > >

> > > >

> > >

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> > >

> > > >

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> > > >

> > >

> > >

> > >

> > > >

> > >

> > > >

> > >

> > >

> > >

> > > > #ygrp-sponsor #ygrp-lc{

> > >

> > >

> > >

> > > > font-family: Arial;}

> > >

> > >

> > >

> > > > #ygrp-sponsor #ygrp-lc #hd{

> > >

> > >

> > >

> > > > margin:10px 0px;font-weight: bold;font- size:78%; line-

height:

> > 122%;}

> > >

> > >

> > >

> > > > #ygrp-sponsor #ygrp-lc .ad{

> > >

> > >

> > >

> > > > margin-bottom: 10px;padding: 0 0;}

> > >

> > >

> > >

> > > > -->

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > > >

> > >

> > >

> > >

> > > > #ygrp-mlmsg {font-size:13px; font-family: arial, helvetica,

> > clean,

> > >

> > >

> > >

> > > sans-serif;}

> > >

> > >

> > >

> > > > #ygrp-mlmsg table {font-size:inherit; font:100% ;}

> > >

> > >

> > >

> > > > #ygrp-mlmsg select, input, textarea {font:99% arial,

> helvetica,

> > >

> > >

> > >

> > > clean, sans-serif;}

> > >

> > >

> > >

> > > > #ygrp-mlmsg pre, code {font:115% monospace;}

> > >

> > >

> > >

> > > > #ygrp-mlmsg * {line-height: 1.22em;}

> > >

> > >

> > >

> > > > #ygrp-text{

> > >

> > >

> > >

> > > > font-family: Georgia;

> > >

> > >

> > >

> > > > }

> > >

> > >

> > >

> > > > #ygrp-text p{

> > >

> > >

> > >

> > > > margin:0 0 1em 0;}

> > >

> > >

> > >

> > > > #ygrp-tpmsgs{

> > >

> > >

> > >

> > > > font-family: Arial;

> > >

> > >

> > >

> > > > clear:both;}

> > >

> > >

> > >

> > > > #ygrp-vitnav{

> > >

> > >

> > >

> > > > padding-top: 10px;font- family:Verdana; font-size:

77%;margin:

> 0;}

> > >

> > >

> > >

> > > > #ygrp-vitnav a{

> > >

> > >

> > >

> > > > padding:0 1px;}

> > >

> > >

> > >

> > > > #ygrp-actbar{

> > >

> > >

> > >

> > > > clear:both;margin: 25px 0;white-space: nowrap;color:

#666;text-

> > >

> > >

> > >

> > > align:right; }

> > >

> > >

> > >

> > > > #ygrp-actbar .left{

> > >

> > >

> > >

> > > > float:left;white- space:nowrap; }

> > >

> > >

> > >

> > > > .bld{font-weight: bold;}

> > >

> > >

> > >

> > > > #ygrp-grft{

> > >

> > >

> > >

> > > > font-family: Verdana;font- size:77%; padding:15px 0;}

> > >

> > >

> > >

> > > > #ygrp-ft{

> > >

> > >

> > >

> > > > font-family: verdana;font- size:77%; border-top: 1px solid

> #666;

> > >

> > >

> > >

> > > > padding:5px 0;

> > >

> > >

> > >

> > > > }

> > >

> > >

> > >

> > > > #ygrp-mlmsg #logo{

> > >

> > >

> > >

> > > > padding-bottom: 10px;}

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > #ygrp-vital{

> > >

> > >

> > >

> > > > background-color: #e0ecee;margin- bottom:20px; padding:2px 0

> 8px

> > 8px;}

> > >

> > >

> > >

> > > > #ygrp-vital #vithd{

> > >

> > >

> > >

> > > > font-size:77% ;font-family: Verdana;font- weight:bold;

> > color:#333; text-

> > >

> > >

> > >

> > > transform:uppercase ;}

> > >

> > >

> > >

> > > > #ygrp-vital ul{

> > >

> > >

> > >

> > > > padding:0;margin: 2px 0;}

> > >

> > >

> > >

> > > > #ygrp-vital ul li{

> > >

> > >

> > >

> > > > list-style-type: none;clear: both;border: 1px solid #e0ecee;

> > >

> > >

> > >

> > > > }

> > >

> > >

> > >

> > > > #ygrp-vital ul li .ct{

> > >

> > >

> > >

> > > > font-weight: bold;color: #ff7900;float: right;width: 2em;text-

> > >

> > >

> > >

> > > align:right; padding-right: .5em;}

> > >

> > >

> > >

> > > > #ygrp-vital ul li .cat{

> > >

> > >

> > >

> > > > font-weight: bold;}

> > >

> > >

> > >

> > > > #ygrp-vital a{

> > >

> > >

> > >

> > > > text-decoration: none;}

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > #ygrp-vital a:hover{

> > >

> > >

> > >

> > > > text-decoration: underline; }

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > #ygrp-sponsor #hd{

> > >

> > >

> > >

> > > > color:#999;font- size:77%; }

> > >

> > >

> > >

> > > > #ygrp-sponsor #ov{

> > >

> > >

> > >

> > > > padding:6px 13px;background- color:#e0ecee; margin-bottom:

> 20px;}

> > >

> > >

> > >

> > > > #ygrp-sponsor #ov ul{

> > >

> > >

> > >

> > > > padding:0 0 0 8px;margin:0; }

> > >

> > >

> > >

> > > > #ygrp-sponsor #ov li{

> > >

> > >

> > >

> > > > list-style-type: square;padding: 6px 0;font-size: 77%;}

> > >

> > >

> > >

> > > > #ygrp-sponsor #ov li a{

> > >

> > >

> > >

> > > > text-decoration: none;font- size:130% ;}

> > >

> > >

> > >

> > > > #ygrp-sponsor #nc{

> > >

> > >

> > >

> > > > background-color: #eee;margin- bottom:20px; padding:0 8px;}

> > >

> > >

> > >

> > > > #ygrp-sponsor .ad{

> > >

> > >

> > >

> > > > padding:8px 0;}

> > >

> > >

> > >

> > > > #ygrp-sponsor .ad #hd1{

> > >

> > >

> > >

> > > > font-family: Arial;font- weight:bold; color:#628c2a; font-

> > >

> > >

> > >

> > > size:100%;line- height:122% ;}

> > >

> > >

> > >

> > > > #ygrp-sponsor .ad a{

> > >

> > >

> > >

> > > > text-decoration: none;}

> > >

> > >

> > >

> > > > #ygrp-sponsor .ad a:hover{

> > >

> > >

> > >

> > > > text-decoration: underline; }

> > >

> > >

> > >

> > > > #ygrp-sponsor .ad p{

> > >

> > >

> > >

> > > > margin:0;}

> > >

> > >

> > >

> > > > o{font-size: 0;}

> > >

> > >

> > >

> > > > .MsoNormal{

> > >

> > >

> > >

> > > > margin:0 0 0 0;}

> > >

> > >

> > >

> > > > #ygrp-text tt{

> > >

> > >

> > >

> > > > font-size:120% ;}

> > >

> > >

> > >

> > > > blockquote{margin: 0 0 0 4px;}

> > >

> > >

> > >

> > > > .replbq{margin: 4;}

> > >

> > >

> > >

> > > > -->

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > >

> > >

> > >

> > >

> > > > ____________ _________ _________ _________ _________ __

> > >

> > >

> > >

> > > >

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Hello Elsy,

I have HepC and Cirrhosis. My doc says its stage 3. My HepC was diagnosed in

96. Within the year I was declared early cirrhosis. I'm pretty much

compensated cirrhosis now. I've done 2 rounds of the Chemo combination

that's a standard treatment for HCV without clearing the virus for more than

a few weeks.

I'm now being referred to a local Hepatologist treatment center for

consideration for current trials for other treatments.

Your aunt needs to be seeing at least a gastroenterologist with HCV and

liver care experience or focus. If she is, or is seeing a Hepatologist, that

is the best source of information on her condition.

Is your aunt depending on you for care? What is your situation in her care?

If she is, and you are her primary care giver you may be able to attend

doctor appointments with her to help ask relevant questions and keep track

of the information given. In my experience that's where things most often

break down.

Sally

Re: Hello

My aunt had Hep C, by the time she found out she had hep C it was too

late to give her any treatment for it. The doctor's said it was too

late for any treatment and that it had converted to Cirrhosis. She

had her first appt at USC. They did some blood work and she also has

her next appt in Nov. I have no idea what to expect on that day.

How long ago where you diagnosed with Cirrhosis? What symptoms are

you having?

>

> Hi, Elsy. I am so sorry about your aunt. Do you know the cause of

her cirrhosis? I am Bobby a 43 year old man with the same thing. Mine

is from alcohol abuse. I am a recovering alcoholic. I hope the

doctors can get your aunt on the transplant list as soon as possible.

Good luck, and you came to the right place if nothing more than to

learn more about this disease, not to mention all the really

wonderful friends you will find here.

> Hello

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> My name is Elsy and my aunt was diagnosed a little over

a year ago with

>

> Cirrhosis. Doctor's have told her that her disease is level 4.

Can

>

> anyone please explain to me how bad level 4 is? Everytime I ask a

>

> doctor to explain to me how bad is level 4, they just say it's bad

and

>

> that she needs a liver transplant.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> <!--

>

> #ygrp-mkp{

> border:1px solid #d8d8d8;font-family:Arial;margin:14px

0px;padding:0px 14px;}

> #ygrp-mkp hr{

> border:1px solid #d8d8d8;}

> #ygrp-mkp #hd{

> color:#628c2a;font-size:85%;font-weight:bold;line-

height:122%;margin:10px 0px;}

> #ygrp-mkp #ads{

> margin-bottom:10px;}

> #ygrp-mkp .ad{

> padding:0 0;}

> #ygrp-mkp .ad a{

> color:#0000ff;text-decoration:none;}

> -->

>

>

>

> <!--

>

> #ygrp-sponsor #ygrp-lc{

> font-family:Arial;}

> #ygrp-sponsor #ygrp-lc #hd{

> margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;}

> #ygrp-sponsor #ygrp-lc .ad{

> margin-bottom:10px;padding:0 0;}

> -->

>

>

>

> <!--

>

> #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

sans-serif;}

> #ygrp-mlmsg table {font-size:inherit;font:100%;}

> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

clean, sans-serif;}

> #ygrp-mlmsg pre, code {font:115% monospace;}

> #ygrp-mlmsg * {line-height:1.22em;}

> #ygrp-text{

> font-family:Georgia;

> }

> #ygrp-text p{

> margin:0 0 1em 0;}

> #ygrp-tpmsgs{

> font-family:Arial;

> clear:both;}

> #ygrp-vitnav{

> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> #ygrp-vitnav a{

> padding:0 1px;}

> #ygrp-actbar{

> clear:both;margin:25px 0;white-space:nowrap;color:#666;text-

align:right;}

> #ygrp-actbar .left{

> float:left;white-space:nowrap;}

> .bld{font-weight:bold;}

> #ygrp-grft{

> font-family:Verdana;font-size:77%;padding:15px 0;}

> #ygrp-ft{

> font-family:verdana;font-size:77%;border-top:1px solid #666;

> padding:5px 0; }

> #ygrp-mlmsg #logo{

> padding-bottom:10px;}

>

> #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0

> 8px 8px;} #ygrp-vital #vithd{

> font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-

transform:uppercase;}

> #ygrp-vital ul{

> padding:0;margin:2px 0;}

> #ygrp-vital ul li{

> list-style-type:none;clear:both;border:1px solid #e0ecee;

> }

> #ygrp-vital ul li .ct{

> font-weight:bold;color:#ff7900;float:right;width:2em;text-

align:right;padding-right:.5em;}

> #ygrp-vital ul li .cat{

> font-weight:bold;}

> #ygrp-vital a{

> text-decoration:none;}

>

> #ygrp-vital a:hover{

> text-decoration:underline;}

>

> #ygrp-sponsor #hd{

> color:#999;font-size:77%;}

> #ygrp-sponsor #ov{

> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> #ygrp-sponsor #ov ul{

> padding:0 0 0 8px;margin:0;}

> #ygrp-sponsor #ov li{

> list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov

> li a{ text-decoration:none;font-size:130%;}

> #ygrp-sponsor #nc{

> background-color:#eee;margin-bottom:20px;padding:0 8px;}

> #ygrp-sponsor .ad{

> padding:8px 0;}

> #ygrp-sponsor .ad #hd1{

> font-family:Arial;font-weight:bold;color:#628c2a;font-

size:100%;line-height:122%;}

> #ygrp-sponsor .ad a{

> text-decoration:none;}

> #ygrp-sponsor .ad a:hover{

> text-decoration:underline;}

> #ygrp-sponsor .ad p{

> margin:0;}

> o{font-size:0;}

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> #ygrp-text tt{

> font-size:120%;}

> blockquote{margin:0 0 0 4px;}

> .replbq{margin:4;}

> -->

>

>

>

>

>

>

>

> __________________________________________________

>

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<< Bright red palms with white spots.>> There's another thing I have. I was

told it was " poor circulation. "

Does this show up with other ailments?

The decline in our standard of living may not be a sign of economic failure;

rather, it may be part of the cure for our economic ills. -- Hawken in

The Next Economy

Re: Hello

Well. I had a lot of symptoms at first that i completely ignored. I will get

to them, but first I started to have right upper quad pain last June 17th. I

had played drums in a country band down at a LO DO sports bar for an after

the Rockies base ball game performance and I tied one on pretty good, and

the next morning, I start having pain. The pain felt as if I had run too

fast, and got a cramp, or like a brick had been stuffed up in there. The

doctor sent me for an ultrasound, and it was excrusciating for the tech to

roll the wand around on that area. Then by September, I started to have left

upper quad pain, and this was even worse, and covers a bigger area. Then I

was admitted to the hospital with severe chest pain. No fun. treadmill test.

oooh. I had a slight jaundice appearance in the cunjunctiva of my eyes, but

not the whites. I had elevated ast and alt and GGT, as well as elevated

bilirubin, and ammonia, and low BUN and abnormal BUN/CREAT

ratio. I brought the labs to my doctors attention, but she was convinced i

had gallbladder disease. While taking out the gallbladder, the surgeon noted

" macronodular cirrhosis " and took a biopsy. If any folks out there are

having a biopsy,PLEASE ask, no DEMAND a needle biopsy. A wedge biopsy has a

lot of fibrosis in it as a rule. The small signs I ignored were bleeding

issues. I had been having hard to control nose bleeds, as well as severely

bleeding hemorrhoids for two years. Rumply fingernails, as well as a ghostly

white appearance. Bright red palms with white spots. I have also had mental

confusion, visual disturbances, nausea (ooooh) weakness, shortness of

breath, headaches, dizziness, and sleep disturbance, (day / night reversal).

Hello

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> My name is Elsy and my aunt was diagnosed a little over

a year ago with

>

> Cirrhosis. Doctor's have told her that her disease is level 4.

Can

>

> anyone please explain to me how bad level 4 is? Everytime I ask a

>

> doctor to explain to me how bad is level 4, they just say it's bad

and

>

> that she needs a liver transplant.

>

>

>

>

>

>

>

>

>

>

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Mine are mostly thumb-nails. VERY deep crossways valleys. Other fingernails

just aren't quite smooth. YFMV. Your Fingernails May Vary.

The decline in our standard of living may not be a sign of economic failure;

rather, it may be part of the cure for our economic ills. -- Hawken in

The Next Economy

Re: Hello

What do rumply fingernails look like? Are there ridges on them?

Colleen

Bob Aragon wrote:

Well. I had a lot of symptoms at first that i completely ignored. I will

get to them, but first I started to have right upper quad pain last June

17th. I had played drums in a country band down at a LO DO sports bar for an

after the Rockies base ball game performance and I tied one on pretty good,

and the next morning, I start having pain. The pain felt as if I had run too

fast, and got a cramp, or like a brick had been stuffed up in there. The

doctor sent me for an ultrasound, and it was excrusciating for the tech to

roll the wand around on that area. Then by September, I started to have left

upper quad pain, and this was even worse, and covers a bigger area. Then I

was admitted to the hospital with severe chest pain. No fun. treadmill test.

oooh. I had a slight jaundice appearance in the cunjunctiva of my eyes, but

not the whites. I had elevated ast and alt and GGT, as well as elevated

bilirubin, and ammonia, and low BUN and abnormal BUN/CREAT

ratio. I brought the labs to my doctors attention, but she was convinced i

had gallbladder disease. While taking out the gallbladder, the surgeon noted

" macronodular cirrhosis " and took a biopsy. If any folks out there are

having a biopsy,PLEASE ask, no DEMAND a needle biopsy. A wedge biopsy has a

lot of fibrosis in it as a rule. The small signs I ignored were bleeding

issues. I had been having hard to control nose bleeds, as well as severely

bleeding hemorrhoids for two years. Rumply fingernails, as well as a ghostly

white appearance. Bright red palms with white spots. I have also had mental

confusion, visual disturbances, nausea (ooooh) weakness, shortness of

breath, headaches, dizziness, and sleep disturbance, (day / night reversal).

Hello

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> My name is Elsy and my aunt was diagnosed a little over

a year ago with

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> Cirrhosis. Doctor's have told her that her disease is level 4.

Can

>

> anyone please explain to me how bad level 4 is? Everytime I ask a

>

> doctor to explain to me how bad is level 4, they just say it's bad

and

>

> that she needs a liver transplant.

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  • 2 months later...

I am constantly being reminded by my hepatologist to hang on to my own liver as

long as I can. Getting a transplant is very risky, and they will do a transplant

when all other avenues have failed.Welcome to the group. I hope everything works

out and your husband can get a transplant either way. Take care. Bobby

Hello

Hello All-I'm new to the group. Here's my story. Three years ago, my

husband was diagnosed with Hep C, he immediatley quit drinking. He

wasn't an alcoholic, but a weekend warrior and he was quite overweight.

He was told that he would most likely develop cirrhosis within 5-20

years. Well, this June, he was diagnosed with cirrhosis, only 2.5 yrs

later. I believe that he already had the cirrhosis when they did the

biopsy 2.5 years ago and the doctor had to go in three times because

the pieces fragmented. Regardless, now he is on disability because at

least 4 days a week he sleeps most of the day and has no energy. His

blood levels are gradually getting worse. We have relatives who are

willing to be tested to see if they can do a live transplant but we are

told that he is not sick enough yet. I understand that there has to be

limits, but I don't understand why they wouldn't want to do major

surgery when someone is still healthy enough to recover quickly. All my

husband wanted to do is be able to retire from the job where he has

already worked for 35 years. Boy can life throw things at you.

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Sorry to hear about your husband. To answer your question, the reason they don't

give liver transplants until it's absolutely necessary is because there aren't

enough livers to go around. There are far more people who need livers than there

are donors.

Colleen

cushte2000 wrote:

Hello All-I'm new to the group. Here's my story. Three years ago, my

husband was diagnosed with Hep C, he immediatley quit drinking. He

wasn't an alcoholic, but a weekend warrior and he was quite overweight.

He was told that he would most likely develop cirrhosis within 5-20

years. Well, this June, he was diagnosed with cirrhosis, only 2.5 yrs

later. I believe that he already had the cirrhosis when they did the

biopsy 2.5 years ago and the doctor had to go in three times because

the pieces fragmented. Regardless, now he is on disability because at

least 4 days a week he sleeps most of the day and has no energy. His

blood levels are gradually getting worse. We have relatives who are

willing to be tested to see if they can do a live transplant but we are

told that he is not sick enough yet. I understand that there has to be

limits, but I don't understand why they wouldn't want to do major

surgery when someone is still healthy enough to recover quickly. All my

husband wanted to do is be able to retire from the job where he has

already worked for 35 years. Boy can life throw things at you.

Group Email: livercirrhosissupport

web address:

http://groups.yahoo.com/group/livercirrhosissupport/

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  • 3 weeks later...

HELLO....I WOULD LIKE ALL E-MAILS TO BE STOPPED FROM THE LIVER CIRRHOSIS SUPPORT

GROUP...MY HUSBAND HAS JUST DIED FROM COMPLICATIONS OF CIRRHOSIS, AND I AM

HORRIBLY DEPRESSED RIGHT NOW. CAN U PLEASE STOP E-MAILS TO MY ADDRESS.

DINAMONKEEWEE@... YOU

---------------------------------

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