Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Yes, Bobbi. I think it is a sign, but you need to press the doctor for a direct answer to that question. When my loved one was this far along, she was very ill. Sometimes they will not want to upset you, and you will get sugar coated information. If you want to know the truth, you need to get that. Sleep disturbance is a hallmark sign of porto systemic encephalopathy. I have it all the time. Are the doctors aware of it? Are they giving him lactulose yet? The doctors should know that he is having sleep disturbances because sometimes if encephalopathy is treated aggressively and early, it can be improved with medication. Not allways but sometimes. I am speaking only about my own experience, and in no way am I giving you medical advice other than to advise you to ask the doctor. My Daddy It's a good day. We found out today that he was approved for SSI Disability. So now he has Medicaid, and can see a doctor. He had paracentesis yesterday at the hospital, and they got 9 liters. He can breathe and sleep again. How many liters can be drained from his abdomen safely? He has a standing appointment every 2 weeks. He swells back usually within 3 days of the procedure. Is this an indicator of how advanced his disease is? The last paracentesis they drained 12 liters.... I was wondering why sleep patterns are all screwy? Any ideas? Thanks! Bobbi ------------ --------- --------- --- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Well, now we can finally see a dr. when he gets his insurance (Medicaid) coverage. He was referred to a specialist by his regular M.D. (whom he he's not seen in months; the dr. said there is no need to come back, he really can't do anything else since he's a regular dr.). The specialist refused to see him because he did not have $175 to pay him the day of the appt. So, his regular M.D. prescribed lactulose, lasix, and aldactone. He has a prescription for hydracodone for pain. I am trying to understand why he needs the diueretics. They are not doing any good.... I agree with the sugar coating thing, I know my Daddy is VERY sick, I would love a straght answer. Maybe now at a specialst we can get it. Thanks Bob, you are doing a great thing here.... Bob Aragon wrote: Yes, Bobbi. I think it is a sign, but you need to press the doctor for a direct answer to that question. When my loved one was this far along, she was very ill. Sometimes they will not want to upset you, and you will get sugar coated information. If you want to know the truth, you need to get that. Sleep disturbance is a hallmark sign of porto systemic encephalopathy. I have it all the time. Are the doctors aware of it? Are they giving him lactulose yet? The doctors should know that he is having sleep disturbances because sometimes if encephalopathy is treated aggressively and early, it can be improved with medication. Not allways but sometimes. I am speaking only about my own experience, and in no way am I giving you medical advice other than to advise you to ask the doctor. My Daddy It's a good day. We found out today that he was approved for SSI Disability. So now he has Medicaid, and can see a doctor. He had paracentesis yesterday at the hospital, and they got 9 liters. He can breathe and sleep again. How many liters can be drained from his abdomen safely? He has a standing appointment every 2 weeks. He swells back usually within 3 days of the procedure. Is this an indicator of how advanced his disease is? The last paracentesis they drained 12 liters.... I was wondering why sleep patterns are all screwy? Any ideas? Thanks! Bobbi ------------ --------- --------- --- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Please be aware that your dad doesnt have to further damage his sick liver with hydrocodone if it is called vicodin. If you get a sympathetic doctor with some chutzpah, they can prescribe something without the tylenlol. Make sure to ask. As I told Dave earlier to day, the ONLY reason the tylenol is in the drug is to purposely make it poison because there is no maximum dose of a pure opiate. One person might have relief at 5 mg and another might require 100 mg. Ardis was in horrible pain in the hospice, and thank God they don't give one damn about the DEA in there, and it took 35 mg of pure liquid morphine to get her comfortable when we had her transfered. There are very few ER s in the country that would give a person a dose that high. In fact I think it's impossible. My Daddy It's a good day. We found out today that he was approved for SSI Disability. So now he has Medicaid, and can see a doctor. He had paracentesis yesterday at the hospital, and they got 9 liters. He can breathe and sleep again. How many liters can be drained from his abdomen safely? He has a standing appointment every 2 weeks. He swells back usually within 3 days of the procedure. Is this an indicator of how advanced his disease is? The last paracentesis they drained 12 liters.... I was wondering why sleep patterns are all screwy? Any ideas? Thanks! Bobbi ------------ --------- --------- --- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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