Re: noelle-Rochester-back in cast #5

[Guest guest]

Great news! Merry Christmas to ya'll!

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> Subject: noelle-Rochester-back in cast #5

> To: infantile_scoliosis

> Date: Wednesday, December 17, 2008, 6:21 PM

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> Hello everyone!

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> We just returned from Noelle's 5th cast from Rochester several hours

ago....  She is doing very well!  Both supine and standing x-rays were

taken at her office visit.  Our casting doc reviewed the standing

x-ray with us as opposed to the supine.  Her curve is now at 16

degrees with a minimal compensatory curve.  There has been more

improvement in the spinal rotation and symmetry of her rib cage.  Her

spine is much closer to the midline in comparison to the x-ray taken

at our last visit.  you can't even detect a rib hump any longer from

her front view.  I can see it still a bit from the back, but overall

her back and her skin look fantastic!!! !!  While I don't have

measurements of her supine x-ray yet, to my eye, it has to be about 12

degrees.... maybe less!  The OR timed everything perfectly with

minimal distress to Noelle....  The child specialist came in with toys

and played

> with us until we left for the OR and the nurses got me just as they

woke her so there was minimal crying/stress to Noelle.....  Which

makes it so much easier for us!!!!  Our doc also asked permission to

enroll Noelle in a long-term study, which we agreed to

enthusiastically in hopes that it will help children with IS and their

caregivers in the future.....   We are so pleased with her

progress....  It's an amazing gift, especially this time of year!!! 

Thanks for letting me share!  Steph   

>

[Guest guest]

Hi Steph

Thats really great for you and Noelle and a great gift for Christmas. She must be close to brace time did your doc tell you at what point you can move to a brace.

Have a great holiday at least you can rest easy over the holidays have a great Christmas.

Darrell

noelle-Rochester-back in cast #5

Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!!!! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph

[Guest guest]

Thank you!!!!

From: Kauffunger <slguerra710@ yahoo.com>Subject: [infantile_scoliosi s] noelle-Rochester- back in cast #5To: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 17, 2008, 7:21 PM

Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!! !! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played

with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph

[Guest guest]

Thank you!!! Merry Christmas!!!! Steph

From: Kauffunger <slguerra710@ yahoo.com>Subject: [infantile_scoliosi s] noelle-Rochester- back in cast #5To: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 17, 2008, 6:21 PM

Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!! !! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played

with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph

[Guest guest]

Thank you!!!! Merry Christmas to you as well!!!! Steph

Subject: Re: noelle-Rochester-back in cast #5To: infantile_scoliosis Date: Thursday, December 18, 2008, 6:54 PM

Great news! Merry Christmas to ya'll!> From: Kauffunger <slguerra710@ ...>> Subject: [infantile_scoliosi s] noelle-Rochester- back in cast #5> To: infantile_scoliosis @yahoogroups. com> Date: Wednesday,

December 17, 2008, 6:21 PM> > > > > > > > > > > > Hello everyone!> > We just returned from Noelle's 5th cast from Rochester several hoursago.... She is doing very well! Both supine and standing x-rays weretaken at her office visit. Our casting doc reviewed the standingx-ray with us as opposed to the supine. Her curve is now at 16degrees with a minimal compensatory curve. There has been moreimprovement in the spinal rotation and symmetry of her rib cage. Herspine is much closer to the midline in comparison to the x-ray takenat our last visit. you can't even detect a rib hump any longer fromher front view. I can see it still a bit from the back, but overallher back and her skin look fantastic!!! !! While I don't havemeasurements of her supine x-ray yet, to

my eye, it has to be about 12degrees.... maybe less! The OR timed everything perfectly withminimal distress to Noelle.... The child specialist came in with toysand played> with us until we left for the OR and the nurses got me just as theywoke her so there was minimal crying/stress to Noelle..... Whichmakes it so much easier for us!!!! Our doc also asked permission toenroll Noelle in a long-term study, which we agreed toenthusiastically in hopes that it will help children with IS and theircaregivers in the future..... We are so pleased with herprogress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph >

[Guest guest]

Thanks Darrell! Noelle's doc would like her to be under 10 degrees before we start bracing... He cautioned me against thinking that would be our next visist... lol He knows me by now! I know she could hit a wall and not improve through a few casts before we get more correction. For now, I'm just enjoying the moment! Merry Christmas! Hope everything is well with you and Dylan (Pooh, of course) and your family!!! Steph

Subject: Re: noelle-Rochester-back in cast #5To: infantile_scoliosis Date: Friday, December 19, 2008, 2:56 AM

Hi Steph

Thats really great for you and Noelle and a great gift for Christmas. She must be close to brace time did your doc tell you at what point you can move to a brace.

Have a great holiday at least you can rest easy over the holidays have a great Christmas.

Darrell

[infantile_scoliosi s] noelle-Rochester- back in cast #5

Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!! !! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played

with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph

[Guest guest]

That is such wonderful news! What a great Christmas present.

To: infantile_scoliosis Sent: Wednesday, December 17, 2008 7:21:55 PMSubject: noelle-Rochester-back in cast #5

Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!! !! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played

with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph

[Guest guest]

Thank you! We feel truly fortunate! Merry Christmas! Steph

Subject: Re: noelle-Rochester-back in cast #5To: infantile_scoliosis Date: Friday, December 19, 2008, 2:55 PM

That is such wonderful news! What a great Christmas present.

From: Kauffunger <slguerra710@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Wednesday, December 17, 2008 7:21:55 PMSubject: [infantile_scoliosi s] noelle-Rochester- back in cast #5

Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!! !! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played

with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph