Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Elongation Derotation Flexion There is an article on EDF in the Files section. And, no worries, SLC does EDF with the correct frame. They just havent changed the terminology on their casting literature, yet....Well, they may have by now.......I havent been there in a few months. If I lived in SLC, I would have loved to meet up with all of you on the 29th. Maybe next time. HRH > quick question: What does EDF stand for? ~krista > > > > > > Subject: Re: Re: Update on jonas, got appointment on > 1/21/09 with Dr Rubery, got a question.. > To: infantile_scoliosis > Date: Tuesday, December 30, 2008, 9:19 PM > > > > > > > Thanks a lot Will for posting the differences between Risser & EDF > casting. There is such difference. I wish I could take credit for that > well written piece, but I cant. The bulk of this paragraph was written by > G. (the founder of SKA-Scoliosis Kids Australia)I edited/added > only a few sentences... .While the majority of ISOP's site is mine, there > are a few pieces that were written by other experienced parents. For > example, the majority of the VEPTR Parent Handbook was written by Shellie > (Moriah's mum) and I just havent had the time to update the site and give > her credit. Thank goodness Shellie understands how busy I am...Please > give me a little more time, Shell. There is just so much work to be done > in the arena of scoliosis in children.... ...ISOP is blessed to have solid > participation and help from other parents and I couldnt continue running > this organization without dedication from people who are living in this > situation. (Especially, right now, when I'm not feeling so well). There > are people on this group that ISOP considers founding members(you know who > you are) and ISOP couldnt go on without this help....It really does take a > village and ISOP & the children are so grateful to you all. > On another note, I got absolutely no answers at my doc appt. today. I > have not lost hope and am even more determined to get the appropriate help > for myself. This has gone on far too long and I refuse to accept western > medicines band aid approach to my situation. I am making an appt. w/ a > homeopath that specializes in hormone disorders and will let you know what > I find out. More ineffective synthetic meds are not the solution. My > goal is to feel good, so I can continue being a good mum and productive > member of society..... More bandaids will prevent that from happening... I > will not be working from the office, but can always be reached by cell > should someone need to speak to me. If I dont answer, please leave a msg, > so I can return the call. > Welcome new members! You have found a great group of people that > understand scoliosis in children, so please ask questions. Most members > on CAST have educated themselves so well on scoliosis in children, and > have so much experience, that you may just find some answers or a path to > acquiring deserved answers that you and your baby need. > Hang in there, dear friends. > HRH > >> >>> >>> > >>> >>> > Hello everyone, >>> >>> > Just got off the phone w/Kim at Dr Rubery's office in Rochester. He >>> >>> > has an appointment for 1/21/09 to be seen an if all goes well, will >>> be >>> >>> > casted on 1/22/09. My question to everyone is they said theres a >>> >>> > chance he may not qualify because of his age (he will be 2 on >>> >>> > 1/12/09). Was wondering if anyone else here had the 1st casting done >>> >>> > at this age or older. My family and I are all praying that he'll >>> >>> > qualify, and would appreciate anyone else's prayers on this. Would >>> >>> > really appreciate any feedback on 1st casting regarding age and any >>> >>> > other qualifying factors. Thanks in advance and may god bless all our >>> >>> > precious children here in this group and all children in the world. >>> >>> > >>> >>> > Will >>> >>> > >>> >>> Hi Will, >>> >>> I'm very new to this group, but my 5 year old son began casting when he >>> was almost 4. >>> >>> We adopted him from Ukraine at age 3 and he already had very >>> progressive >>> curves. He >> is >>> >>> under the care of an excellent ortho surgeon in Albany, NY. I have to >>> say that really the >>> >>> casting has been pretty ineffective. The surgeon basically said that >>> casting was just to >> buy >>> >>> us some time until Jordan is big enough for the growing rod surgery. >>> We're not liking >> the >>> >>> idea of surgery and are researching all our options. We're hoping to >>> meet some parents >>> >>> on this site who've been through the growing rod surgery, so we can >>> learn more about >> it. >>> >>> Hope this helps. >>> >>> >>> >> >> >> >> > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Thank you. Likewise. Yes, I am aware that they do that type of casting per Mike Pond. He explained things well. They think that you are wonderful there! You take care of yourself! ~Krista>>> From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>> Subject: Re: [infantile_scoliosi s] Re: Update on jonas, got appointment on> 1/21/09 with Dr Rubery, got a question..> To: infantile_scoliosis @yahoogroups. com> Date: Tuesday, December 30, 2008, 9:19 PM>>>>>>> Thanks a lot Will for posting the differences between Risser & EDF> casting. There is such difference. I wish I could take credit for that> well written piece, but I cant. The bulk of this paragraph was written by> G. (the founder of SKA-Scoliosis Kids Australia)I edited/added> only a few sentences... .While the majority of ISOP's site is mine, there> are a few pieces that were written by other experienced parents. For> example, the majority of the VEPTR Parent Handbook was written by Shellie> (Moriah's mum) and I just havent had the time to update the site and give> her credit. Thank goodness Shellie understands how busy I am...Please> give me a little more time, Shell. There is just so much work to be done> in the arena of scoliosis in children.... ...ISOP is blessed to have solid> participation and help from other parents and I couldnt continue running> this organization without dedication from people who are living in this> situation. (Especially, right now, when I'm not feeling so well). There> are people on this group that ISOP considers founding members(you know who> you are) and ISOP couldnt go on without this help....It really does take a> village and ISOP & the children are so grateful to you all.> On another note, I got absolutely no answers at my doc appt. today. I> have not lost hope and am even more determined to get the appropriate help> for myself. This has gone on far too long and I refuse to accept western> medicines band aid approach to my situation. I am making an appt. w/ a> homeopath that specializes in hormone disorders and will let you know what> I find out. More ineffective synthetic meds are not the solution. My> goal is to feel good, so I can continue being a good mum and productive> member of society..... More bandaids will prevent that from happening... I> will not be working from the office, but can always be reached by cell> should someone need to speak to me. If I dont answer, please leave a msg,> so I can return the call.> Welcome new members! You have found a great group of people that> understand scoliosis in children, so please ask questions. Most members> on CAST have educated themselves so well on scoliosis in children, and> have so much experience, that you may just find some answers or a path to> acquiring deserved answers that you and your baby need.> Hang in there, dear friends.> HRH>>> >>>>>> >>>>>>> > Hello everyone,>>>>>> > Just got off the phone w/Kim at Dr Rubery's office in Rochester. He>>>>>> > has an appointment for 1/21/09 to be seen an if all goes well, will>>> be>>>>>> > casted on 1/22/09. My question to everyone is they said theres a>>>>>> > chance he may not qualify because of his age (he will be 2 on>>>>>> > 1/12/09). Was wondering if anyone else here had the 1st casting done>>>>>> > at this age or older. My family and I are all praying that he'll>>>>>> > qualify, and would appreciate anyone else's prayers on this. Would>>>>>> > really appreciate any feedback on 1st casting regarding age and any>>>>>> > other qualifying factors. Thanks in advance and may god bless all our>>>>>> > precious children here in this group and all children in the world.>>>>>> >>>>>>> > Will>>>>>> >>>>>>> Hi Will,>>>>>> I'm very new to this group, but my 5 year old son began casting when he>>> was almost 4.>>>>>> We adopted him from Ukraine at age 3 and he already had very>>> progressive>>> curves. He>> is>>>>>> under the care of an excellent ortho surgeon in Albany, NY. I have to>>> say that really the>>>>>> casting has been pretty ineffective. The surgeon basically said that>>> casting was just to>> buy>>>>>> us some time until Jordan is big enough for the growing rod surgery.>>> We're not liking>> the>>>>>> idea of surgery and are researching all our options. We're hoping to>>> meet some parents>>>>>> on this site who've been through the growing rod surgery, so we can>>> learn more about>> it.>>>>>> Hope this helps.>>>>>> >>>>>>>>>>>>>>>>>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
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