Re: Re: Update on jonas, got appointment on 1/21/09 with Dr Rubery, got a question..

[Guest guest]

Hi ,Are you seeing a Mehta trained doctor? Hyatt, the founder of ISOP, wrote the following post. This explains the difference between the old type of Risser casting and EDF casting.I am sending this because is currently suffering with migraines and might not get a chance to respond to you post for awhile. Here is her message:Welcome to CAST! May I recommend that you learn the differences between

Risser casting and EDF (elongation, derotation, flexion) casting.

Scoliosis is a 3-dimensional problem that should be corrected on all 3

planes. The EDF casting method has the ability to elongate the spine

through traction, derotate the spine/pelvis, and to improve lordosis and

over all body shape/alignment.

EDF differs from Risser casting. EDF casts are over the shoulder, with a

large mushroom opening on the front to allow for proper chest expansion.

On the back, there is a small cutout on the concavity of the curve, not

going past the midline. It was found that the spine became more aligned

with this cutout than without and that it helped correct rotation. Early

treatment w/ EDF is generally over a period of 9-12 months depending on

age and childs specific situation... .When the child's Cobb angle is under

10 deg, they are removed from their series of EDF plaster casts and placed

into a removable brace. Early treatment EDF does not alternate with

bracing as Risser plaster casting can. It is a solid block of casts to

decrease the childs curvature(s) , gently, slowly & permanently. .... The

biggest difference is the aim of treatment- which is cure,opposed to

containment. Dr's Cotrel & Morel developed the EDF technique years ago in

France and found that using one of these techniques in isolation has it's

own drawbacks, yet using all three simultaneously potentialises the

advantages of each.(Elongation, Derotation, Flexion). Please read related

articles in the Files section of this group and feel free to ask this

group any questions that you may have.

Welcome.

HRHSubject: Re: Update on jonas, got appointment on 1/21/09 with Dr Rubery, got a question..To: infantile_scoliosis Date: Monday, December 29, 2008, 4:36 PM

>

> Hello everyone,

> Just got off the phone w/Kim at Dr Rubery's office in Rochester. He

> has an appointment for 1/21/09 to be seen an if all goes well, will be

> casted on 1/22/09. My question to everyone is they said theres a

> chance he may not qualify because of his age (he will be 2 on

> 1/12/09). Was wondering if anyone else here had the 1st casting done

> at this age or older. My family and I are all praying that he'll

> qualify, and would appreciate anyone else's prayers on this. Would

> really appreciate any feedback on 1st casting regarding age and any

> other qualifying factors. Thanks in advance and may god bless all our

> precious children here in this group and all children in the world.

>

> Will

>

Hi Will,

I'm very new to this group, but my 5 year old son began casting when he was almost 4.

We adopted him from Ukraine at age 3 and he already had very progressive curves. He is

under the care of an excellent ortho surgeon in Albany, NY. I have to say that really the

casting has been pretty ineffective. The surgeon basically said that casting was just to buy

us some time until Jordan is big enough for the growing rod surgery. We're not liking the

idea of surgery and are researching all our options. We're hoping to meet some parents

on this site who've been through the growing rod surgery, so we can learn more about it.

Hope this helps.

[Guest guest]

Was the ortho surgeon you've been seeing's name Dr

Karl ? Because if so, we have seen him as well, and

have personally come to the decision that surgically

the VEPTR method done at Shriners in Philly seemed

more advantageous than Dr Karl's method, although we

are no experts by any means. I suggest you research

this and ask other's here their opinion.

--- wsflach77 wrote:

>

> >

> > Hello everyone,

> > Just got off the phone w/Kim at Dr Rubery's office

> in Rochester. He

> > has an appointment for 1/21/09 to be seen an if

> all goes well, will be

> > casted on 1/22/09. My question to everyone is they

> said theres a

> > chance he may not qualify because of his age (he

> will be 2 on

> > 1/12/09). Was wondering if anyone else here had

> the 1st casting done

> > at this age or older. My family and I are all

> praying that he'll

> > qualify, and would appreciate anyone else's

> prayers on this. Would

> > really appreciate any feedback on 1st casting

> regarding age and any

> > other qualifying factors. Thanks in advance and

> may god bless all our

> > precious children here in this group and all

> children in the world.

> >

> > Will

> >

> Hi Will,

> I'm very new to this group, but my 5 year old son

> began casting when he was almost 4.

> We adopted him from Ukraine at age 3 and he already

> had very progressive curves. He is

> under the care of an excellent ortho surgeon in

> Albany, NY. I have to say that really the

> casting has been pretty ineffective. The surgeon

> basically said that casting was just to buy

> us some time until Jordan is big enough for the

> growing rod surgery. We're not liking the

> idea of surgery and are researching all our options.

> We're hoping to meet some parents

> on this site who've been through the growing rod

> surgery, so we can learn more about it.

> Hope this helps.

>

>

>

[Guest guest]

Hi ,There is a list on the website that has a table of doctors "trained in early intervention" ie. EDF casting. Here is a link: http://health.groups.yahoo.com/group/infantile_scoliosis/database?method=reportRows & tbl=4 If the link doesn't work go to the CAST website click on "Database", and it is there under 'Tables". I know your child is older, but you might want to phone one of these doctors close to you and see if they will review your child's medical information. I know that some older children have been casted, perhaps those parents will chime in with their results.Has your child had an MRI? Do you know if the scoliosis is idiopathic or congential?LizSubject: Re: Update on jonas, got appointment on 1/21/09 with Dr Rubery, got a question..To: infantile_scoliosis Date: Tuesday, December 30, 2008, 4:12 AM

> > >

> > > Hello everyone,

> > > Just got off the phone w/Kim at Dr Rubery's office

> > in Rochester. He

> > > has an appointment for 1/21/09 to be seen an if

> > all goes well, will be

> > > casted on 1/22/09. My question to everyone is they

> > said theres a

> > > chance he may not qualify because of his age (he

> > will be 2 on

> > > 1/12/09). Was wondering if anyone else here had

> > the 1st casting done

> > > at this age or older. My family and I are all

> > praying that he'll

> > > qualify, and would appreciate anyone else's

> > prayers on this. Would

> > > really appreciate any feedback on 1st casting

> > regarding age and any

> > > other qualifying factors. Thanks in advance and

> > may god bless all our

> > > precious children here in this group and all

> > children in the world.

> > >

> > > Will

> > >

> > Hi Will,

> > I'm very new to this group, but my 5 year old son

> > began casting when he was almost 4.

> > We adopted him from Ukraine at age 3 and he already

> > had very progressive curves. He is

> > under the care of an excellent ortho surgeon in

> > Albany, NY. I have to say that really the

> > casting has been pretty ineffective. The surgeon

> > basically said that casting was just to buy

> > us some time until Jordan is big enough for the

> > growing rod surgery. We're not liking the

> > idea of surgery and are researching all our options.

> > We're hoping to meet some parents

> > on this site who've been through the growing rod

> > surgery, so we can learn more about it.

> > Hope this helps.

> >

> >

> >

>

[Guest guest]

Thanks a lot Will for posting the differences between Risser & EDF

casting. There is such difference. I wish I could take credit for that

well written piece, but I cant. The bulk of this paragraph was written by

G. (the founder of SKA-Scoliosis Kids Australia)I edited/added

only a few sentences....While the majority of ISOP's site is mine, there

are a few pieces that were written by other experienced parents. For

example, the majority of the VEPTR Parent Handbook was written by Shellie

(Moriah's mum) and I just havent had the time to update the site and give

her credit. Thank goodness Shellie understands how busy I am...Please

give me a little more time, Shell. There is just so much work to be done

in the arena of scoliosis in children.......ISOP is blessed to have solid

participation and help from other parents and I couldnt continue running

this organization without dedication from people who are living in this

situation. (Especially, right now, when I'm not feeling so well). There

are people on this group that ISOP considers founding members(you know who

you are) and ISOP couldnt go on without this help....It really does take a

village and ISOP & the children are so grateful to you all.

On another note, I got absolutely no answers at my doc appt. today. I

have not lost hope and am even more determined to get the appropriate help

for myself. This has gone on far too long and I refuse to accept western

medicines band aid approach to my situation. I am making an appt. w/ a

homeopath that specializes in hormone disorders and will let you know what

I find out. More ineffective synthetic meds are not the solution. My

goal is to feel good, so I can continue being a good mum and productive

member of society.....More bandaids will prevent that from happening...I

will not be working from the office, but can always be reached by cell

should someone need to speak to me. If I dont answer, please leave a msg,

so I can return the call.

Welcome new members! You have found a great group of people that

understand scoliosis in children, so please ask questions. Most members

on CAST have educated themselves so well on scoliosis in children, and

have so much experience, that you may just find some answers or a path to

acquiring deserved answers that you and your baby need.

Hang in there, dear friends.

HRH

>

>>

>> >

>>

>> > Hello everyone,

>>

>> > Just got off the phone w/Kim at Dr Rubery's office in Rochester. He

>>

>> > has an appointment for 1/21/09 to be seen an if all goes well, will be

>>

>> > casted on 1/22/09. My question to everyone is they said theres a

>>

>> > chance he may not qualify because of his age (he will be 2 on

>>

>> > 1/12/09). Was wondering if anyone else here had the 1st casting done

>>

>> > at this age or older. My family and I are all praying that he'll

>>

>> > qualify, and would appreciate anyone else's prayers on this. Would

>>

>> > really appreciate any feedback on 1st casting regarding age and any

>>

>> > other qualifying factors. Thanks in advance and may god bless all our

>>

>> > precious children here in this group and all children in the world.

>>

>> >

>>

>> > Will

>>

>> >

>>

>> Hi Will,

>>

>> I'm very new to this group, but my 5 year old son began casting when he

>> was almost 4.

>>

>> We adopted him from Ukraine at age 3 and he already had very progressive

>> curves. He

> is

>>

>> under the care of an excellent ortho surgeon in Albany, NY. I have to

>> say that really the

>>

>> casting has been pretty ineffective. The surgeon basically said that

>> casting was just to

> buy

>>

>> us some time until Jordan is big enough for the growing rod surgery.

>> We're not liking

> the

>>

>> idea of surgery and are researching all our options. We're hoping to

>> meet some parents

>>

>> on this site who've been through the growing rod surgery, so we can

>> learn more about

> it.

>>

>> Hope this helps.

>>

>>

>>

>

>

>

>

[Guest guest]

quick question: What does EDF stand for? ~krista

Subject: Re: Re: Update on jonas, got appointment on 1/21/09 with Dr Rubery, got a question..To: infantile_scoliosis Date: Tuesday, December 30, 2008, 9:19 PM

Thanks a lot Will for posting the differences between Risser & EDFcasting. There is such difference. I wish I could take credit for thatwell written piece, but I cant. The bulk of this paragraph was written by G. (the founder of SKA-Scoliosis Kids Australia)I edited/addedonly a few sentences... .While the majority of ISOP's site is mine, thereare a few pieces that were written by other experienced parents. Forexample, the majority of the VEPTR Parent Handbook was written by Shellie(Moriah's mum) and I just havent had the time to update the site and giveher credit. Thank goodness Shellie understands how busy I am...Pleasegive me a little more time, Shell. There is just so much work to be donein the arena of scoliosis in children.... ...ISOP is blessed to have solidparticipation and help from other parents and I couldnt continue runningthis organization without dedication from people who are

living in thissituation. (Especially, right now, when I'm not feeling so well). Thereare people on this group that ISOP considers founding members(you know whoyou are) and ISOP couldnt go on without this help....It really does take avillage and ISOP & the children are so grateful to you all.On another note, I got absolutely no answers at my doc appt. today. Ihave not lost hope and am even more determined to get the appropriate helpfor myself. This has gone on far too long and I refuse to accept westernmedicines band aid approach to my situation. I am making an appt. w/ ahomeopath that specializes in hormone disorders and will let you know whatI find out. More ineffective synthetic meds are not the solution. Mygoal is to feel good, so I can continue being a good mum and productivemember of society..... More bandaids will prevent that from happening... Iwill not be working from the office, but can

always be reached by cellshould someone need to speak to me. If I dont answer, please leave a msg,so I can return the call.Welcome new members! You have found a great group of people thatunderstand scoliosis in children, so please ask questions. Most memberson CAST have educated themselves so well on scoliosis in children, andhave so much experience, that you may just find some answers or a path toacquiring deserved answers that you and your baby need.Hang in there, dear friends.HRH> >>>> >>>>> > Hello everyone,>>>> > Just got off the phone w/Kim at Dr Rubery's office in Rochester. He>>>> > has an appointment for 1/21/09 to be seen an if all goes well, will be>>>> > casted on 1/22/09. My question to everyone is they said theres a>>>> > chance he may not qualify because of his age (he will be 2 on>>>> > 1/12/09). Was wondering if anyone else here had the 1st casting done>>>> > at this age or older. My family and I are all praying that he'll>>>> > qualify, and would appreciate

anyone else's prayers on this. Would>>>> > really appreciate any feedback on 1st casting regarding age and any>>>> > other qualifying factors. Thanks in advance and may god bless all our>>>> > precious children here in this group and all children in the world.>>>> >>>>> > Will>>>> >>>>> Hi Will,>>>> I'm very new to this group, but my 5 year old son began casting when he>> was almost 4.>>>> We adopted him from Ukraine at age 3 and he already had very progressive>> curves. He> is>>>> under the care of an excellent ortho surgeon in Albany, NY. I have to>> say that really the>>>> casting has been pretty ineffective. The surgeon basically said that>> casting was just to>

buy>>>> us some time until Jordan is big enough for the growing rod surgery.>> We're not liking> the>>>> idea of surgery and are researching all our options. We're hoping to>> meet some parents>>>> on this site who've been through the growing rod surgery, so we can>> learn more about> it.>>>> Hope this helps.>>>> >>>>>>

[Guest guest]

Hang in there ... I know you'll find the solution to your migraines and start to feel better than ever! Thinking of you, Steph

Subject: Re: Re: Update on jonas, got appointment on 1/21/09 with Dr Rubery, got a question..To: infantile_scoliosis Date: Tuesday, December 30, 2008, 9:19 PM

Thanks a lot Will for posting the differences between Risser & EDFcasting. There is such difference. I wish I could take credit for thatwell written piece, but I cant. The bulk of this paragraph was written by G. (the founder of SKA-Scoliosis Kids Australia)I edited/addedonly a few sentences... .While the majority of ISOP's site is mine, thereare a few pieces that were written by other experienced parents. Forexample, the majority of the VEPTR Parent Handbook was written by Shellie(Moriah's mum) and I just havent had the time to update the site and giveher credit. Thank goodness Shellie understands how busy I am...Pleasegive me a little more time, Shell. There is just so much work to be donein the arena of scoliosis in children.... ...ISOP is blessed to have solidparticipation and help from other parents and I couldnt continue runningthis organization without dedication from people who are

living in thissituation. (Especially, right now, when I'm not feeling so well). Thereare people on this group that ISOP considers founding members(you know whoyou are) and ISOP couldnt go on without this help....It really does take avillage and ISOP & the children are so grateful to you all.On another note, I got absolutely no answers at my doc appt. today. Ihave not lost hope and am even more determined to get the appropriate helpfor myself. This has gone on far too long and I refuse to accept westernmedicines band aid approach to my situation. I am making an appt. w/ ahomeopath that specializes in hormone disorders and will let you know whatI find out. More ineffective synthetic meds are not the solution. Mygoal is to feel good, so I can continue being a good mum and productivemember of society..... More bandaids will prevent that from happening... Iwill not be working from the office, but can

always be reached by cellshould someone need to speak to me. If I dont answer, please leave a msg,so I can return the call.Welcome new members! You have found a great group of people thatunderstand scoliosis in children, so please ask questions. Most memberson CAST have educated themselves so well on scoliosis in children, andhave so much experience, that you may just find some answers or a path toacquiring deserved answers that you and your baby need.Hang in there, dear friends.HRH> >>>> >>>>> > Hello everyone,>>>> > Just got off the phone w/Kim at Dr Rubery's office in Rochester. He>>>> > has an appointment for 1/21/09 to be seen an if all goes well, will be>>>> > casted on 1/22/09. My question to everyone is they said theres a>>>> > chance he may not qualify because of his age (he will be 2 on>>>> > 1/12/09). Was wondering if anyone else here had the 1st casting done>>>> > at this age or older. My family and I are all praying that he'll>>>> > qualify, and would appreciate anyone else's prayers on this. Would>>>> > really appreciate any feedback on 1st casting regarding age and any>>>> > other qualifying factors. Thanks in advance and may god bless all

our>>>> > precious children here in this group and all children in the world.>>>> >>>>> > Will>>>> >>>>> Hi Will,>>>> I'm very new to this group, but my 5 year old son began casting when he>> was almost 4.>>>> We adopted him from Ukraine at age 3 and he already had very progressive>> curves. He> is>>>> under the care of an excellent ortho surgeon in Albany, NY. I have to>> say that really the>>>> casting has been pretty ineffective. The surgeon basically said that>> casting was just to> buy>>>> us some time until Jordan is big enough for the growing rod surgery.>> We're not liking> the>>>> idea of surgery and are researching all our options. We're hoping

to>> meet some parents>>>> on this site who've been through the growing rod surgery, so we can>> learn more about> it.>>>> Hope this helps.>>>> >>>>>>