Re: New Member

[Guest guest]

Hello Kaydo

I have a 10 year old daughter also who will be going to junior high school in

September too. Immaturity is also an issue for her. We are located in New

York (Long Island). Where are you from?

ann (Mom to mds 10 yrs old)

[Guest guest]

In a message dated 5/24/2004 5:38:06 PM Eastern Standard Time,

kaydo@... writes:

We are located in Asheville, NC.How do you help with her immaturity

and making friends?

Hi Kaydo:

I don't think I've been very successful in helping at all in this

area. It seems that as she gets older the gap between herself and other girls

her age widens. Whenever I see her acting in a way that seems too young for

her age I will quietly go over to her and tell her to stop. Lately I've been

trying to encourage her to act more grown up, but how can you teach someone to

act more immature if they just aren't at that level of development?

Even though is going to be 11 years old in September she will still

play with Barbie dolls sometimes or her Barbie telephone. I find myself

telling her that these things are for younger kids, not that I mind her playing

with them, but I don't want other kids to make fun of her if they found out she

still does this.

has been breaking my heart lately by telling me that the kids in

school make fun of her. I told her to try not to let these girls see that this

upsets her (I know how she acts when she gets made or upset, usually stamping

her feet or really letting her temper show, or crying). I've also seen girls

in her dance classes teasing her. This makes me just want to isolate her from

other kids which I know I can't do. The sad part is that she wants friends

in the worst way. She has one girl in her class that she is friendly with and

they call each other on the phone. I think I may have to invite her over to

our house so they can spend some time together.

If likes to use the computer maybe she would like to e-mail .

loves to e-mail people and since they are the same age maybe they

could beocme internet buddies. Let me know if would be interested.

Anyway, if anyone has any suggestions on helping our girls mature into young

ladies please let me know.

ann (mom to , 10 years old mds)

[Guest guest]

I just had to add my comment about maturity...Mark is almost 18 and still

watches cartoons. We've discussed this and try to limit him, but that's where

he's at...doesn't help to make friends when your interests are so different, but

not much we can do to change that! Sharon Kaye

[Guest guest]

Hi-- just stay on the board to read about alternatives to miralax or

other things you can try to help reduce the amount of miralax she

needs. Reading older messages on the board itself can be helpful too!

RE: The stuttering-- please don't feel like you 'caused' it or

anything! Homeopathic remedies can help with decreasing stuttering,

too, but you would need to find a trained homeopath to help with that.

W

[Guest guest]

Miralax probably will not soften what is already down there

and 'hard'... it will keep the newer food you are digesting, soft,

so that it will come through softer. But so will a lot of fiber

products and water, too! So it is up to you to use what you feel

comfortable using, but just know that the miralax label states about

two weeks worth of use, so keep that in mind. If you find over time

that you are having to use more and more miralax to get the same

initial results, then something is not right. So keep that in

mind. But most people are able to use miralax and not see any overt

problems. Also another thing to keep in mind is that we had a

member post not long ago about kidney pain and miralax...his doc did

not think it was from the miralax but nonetheless advised him to

break up his dose to two smaller amounts per day, and his kidney

pain did go away...so to me, if I absolutely had to use it, I would

also consider breaking up the dose into two smaller doses so as to

minimize any strain that it might be putting on the kidneys to clear

it out. I would also use the smallest amount possible, too. And I

would definitely begin trying some of the over the counter fiber

products... Uncle Sam Cereal... there's another cereal that is a

good one for fiber, too but I can't remember the name... keep liquid

intake UP. I just posted about a soluble acacia gum fiber so it

will hold water in the stool. The link is there--click on it and

read it all the way through...I like how the woman posts about how

to NOT have success...i.e. not starting slowly and in small amounts,

etc. I think that happens to a lot of people, myself included.

Anyway, check our Links section on this board because I've listed a

variety of things that can help constipation there, and also the

Files section, too.

Celery... my dh was recently having a lot of loose stool and I was

thinking, OH GREAT...now he's got something wrong with him like IBS

or something! But what it was--it was celery! I had been buying

some organic celery to cut into pieces for him to pack in his lunch

with peanut butter on them. He had been eating them daily for

several weeks and lo and behold, it loosened up his stool quite a

bit! I have read this before on an autism board too--the mom swore

celery fixed her child's constipation issues. I tried to get my dd

to eat celery but it is a losing battle at this age, but you might

give it a go and see what happens! Again, note that he was eating

it daily for a couple of weeks before it had the looser stool

effect, so just keep that in mind. Fixing constipation isn't a

sprint, it's a marathon unfortunately.

W

>

> Hey everyone... i just joined because whenever im going thru a

weird

> health problem i tend to research EVERYTHING about it...well

anyhow i

> was wondering if there was any advice..i been reading through

posts

> but i dont wanna do TOO much to myself while undergoing treatment

> with miralax should i le it do its own job?.

>

[Guest guest]

Hi V,

It sounds like you may be somewhat impacted with old

fecal matter. If that is the case you will need to do

a clean out before you will start passing normal BMs

again. Miralax helps to soften the stool, but some

kind of stimulant laxitive can help move it out

faster.

My daughter used Miralax and Exlax for her initial

clean out. Now when I suspect she is getting backed

up again I just give her an Exlax and that's usually

enough to get her to push out any old fecal matter.

If it doesn't she gets an enema. My daughter has

chronic constiaption though so she uses some regimin

of stool softeners daily (IE magnesium

supplementation, as many fluids as I can get into her,

and a high fiber diet).

Assuming you don't have a bad reaction, I really

wouldn't worry about using Miralax once a year or on a

very occassional basis, but that's just me. My

concerns had to do with the possible effects of giving

this medication to my developing child (who it was not

approved/intended for) over a long period of time

(which it was also not approved/intended for). You

could try other remedies like Milk of Magnesia coupled

with Exlax or an enema if necessary.

HTH,

, whose daughter did not have any negative

reactions while on Miralax.

--- v wrote:

> Hey everyone... i just joined because whenever im

> going thru a weird

> health problem i tend to research EVERYTHING about

> it...well anyhow i

> was wondering if there was any advice..i been

> reading through posts

> but i dont wanna do TOO much to myself while

> undergoing treatment

> with miralax should i le it do its own job?.

>

> basically i get constipated at least once a year and

> my bowel moves

> almost every other day. i eat well. im a 22 yr old

> female. anyhow i

> recently became constipated this time it REALLY

> REALLY hurt! my butt

> was sore for a whole day i couldnt lie on my back i

> had to lay on my

> stomach. when that went away it seemed to be gone

> for good. i can

> FEEL bowel movements but i just cant pass

> them...everytime i get

> close it just seems like too much. to top it off

> there had been blood

> on my tissue bright red so im thinking internal

> hemorrhoids.

>

> i dont like the idea of blood comeing out of my anus

> so i went to the

> doctor while putting myself on all liquids til i

> could see him. he

> said possibly hemorroids but they'll go away and not

> to worry about

> it while i try to push stool out. i said it was very

> painful and

> quite frankly i think my fear of passing it through

> is scaring me

> into a deeper situation. anyhow he prescribed

> miralax and said it

> just works on the stool and will soften it so i wont

> have to strain.

> i see there are alotta bad posts about the effects

> of miralax and im

> just wondering if it DOES work for occasional

> constipation. other

> posts here seem to be from people with greater

> health dangers risks

> and diseases or chronic conditions. i figgure if it

> can help all

> those with geater health risks it should help me

> right?

>

> so i dont know what im looking for....i guess some

> sort of

> reassurance that this will work once and for all. i

> had tried a

> suppository at first onset of constipation it worked

> for a bit but i

> could still feel more inside but i couldnt get it

> through so thats

> when i quit and became sore the next morning.

>

> will it soften whats already trying to come out? or

> will i have to

> force it out?

>

>

>

>

>

>

>

[Guest guest]

Yeah, Jan. I look in the mirror and wonder who that LOL is? There’s a very

young person inside, one with lots to do and make and see. I call myself

“ready” ‘cause I’ve had a good life, but not ready just yet to not be in

charge.

Do you have “gaslighters” in your circle? I hope not, ‘cause I do. Some of

my ideas (recycling, organic gardening, permaculture, reducing “footprint on

the earth,” and political interests seem just too far out and they say I’m

“crazy,” and waste too much time at “that crap.” But these are interests

I’ve always had but just now can give my attention and actions. Here’s an

example: I have less than a grocery bag of garbage for about 6 months

because I have a compost pit and an organic shredder that helps me build my

soil. I’m not a “mall-crawler,” don’t have a TV, don’t need to be

“entertained,” and I enjoy life more than anybody I know!

Being one of those “bleeding heart liberals” doesn’t help here in Alabama,

either! That’s their expression, not mine!

I was never what you’d call “beautiful,” so didn’t have to mourn over losing

that. I say the Good Lord needs little red hens as much as He needs

butterflies. I suffer fools gladly, much too much for my own good, and

sometimes that takes up too much of my time. Right now the big physical drag

is my granddaughter who lives with me and thinks working means no other

chores. Doesn’t pick up after herself, wipe spills, etc. I’ve got to get

tough about that.

“I cannot and will not cut my conscience to fit this year’s fashions.” -

Lillian Hellman

- - - - -

Re: new member

Posted by: " Jan Holman " janholman@... arizonablackhat

Date: Wed Oct 17, 2007 4:16 pm ((PDT))

Bob - I didn't say I would give up, just that I want to get as old as I can

before it does me in. And that getting older isn't going to make my

unhappy. Don't mind it at all any more. Just constantly amazed that the

calendar says I am 64 when my mind, the part that isn't in a fog, would

still like to go out and play volleyball in my heels

Jan H

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.488 / Virus Database: 269.14.13/1075 - Release Date: 10/17/2007

9:38 AM

[Guest guest]

I want to answer your question about medications, Dan. Definately Tylenol and

any pain reliever that has tylenol , like percoset, darvocet, vicodin, etc. The

tylonel is added for political reasons, not medical ones. It is specifically

added to make the tylenol hepatoxoc, and there for not usable in the large

amounts that natural opioids can be used in. NSAID's like ibuprofin, celebrex,

aleive, motrin, these are all not good for the liver. One anti biotic in

particular can be hepatoxic, and cause fulminant hepatic failure, and that is

rifampin, or rifampicin. It is sometimes prescribed for itching, but they will

tell you to watch for yellowing of the eyes as that would be a sign to stop

taking the drug, and make funeral arrangements.

Re: New member

Dear Pamela,

First, I'm sorry to hear of your Mom's passing. I've lost both my parents, and,

like you, took care of my Dad for the last year of his life. It was very

rewarding, but I miss him. My Mom is gone 30 years, and I still think of her

and miss her every day.

In reading your note to Rosy, I noticed you said that your Mom had fatty liver

30 years ago. My best friend was just diagnosed with this (non-alcohol

related), and I'm trying to help with how he should proceed. He is 34 years old

and in otherwise good health, save needing to lose about 50 pounds.

What I'm wondering is whether your mother made life lifestyle changes when she

learned of the condition, or did it progress because she didn't make the

necessary changes? I'm really worried about , and want him to do what's

best for his body.

The other issue you mention that concerns me is medication. is about to

start strong antibiotics for 2 weeks for H. Pylori (a bacteria in his digestive

system). The doctor said this wouldn't effect the liver. What medications WILL

effect the liver if not antibiotics?

Finally, I want to say to Rosy that I'm sorry about what your Mom is going

through. I know firsthand how hard that is for we adult kids of the parents we

love. Make sure you take care of yourself and keep your body and your mind

healthy. I didn't always do this when I was taking care of Dad, and the stress

took its toll. Be as much of a friend to yourself as you are to your Mom!

One thing that you said really struck me. That your mother has lupus. 's

mother had lupus and died from it at age 42. I sure hope not, but I'm wondering

if may have it and it is effecting his liver. Is this something they

would test for when they know you have fatty liver?

Thanks Pamela and Rosie for sharing. God bless you and yours.

Best,

Dan

------------ --------- --------- ---

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Thanks for the good info, Bob. I'm going to go on drugs.com to see if I can

determine whether PrevPac is safe for the liver.

Best to you,

Dan

Bob Aragon wrote: I want

to answer your question about medications, Dan. Definately Tylenol and any pain

reliever that has tylenol , like percoset, darvocet, vicodin, etc. The tylonel

is added for political reasons, not medical ones. It is specifically added to

make the tylenol hepatoxoc, and there for not usable in the large amounts that

natural opioids can be used in. NSAID's like ibuprofin, celebrex, aleive,

motrin, these are all not good for the liver. One anti biotic in particular can

be hepatoxic, and cause fulminant hepatic failure, and that is rifampin, or

rifampicin. It is sometimes prescribed for itching, but they will tell you to

watch for yellowing of the eyes as that would be a sign to stop taking the drug,

and make funeral arrangements.

Re: New member

Dear Pamela,

First, I'm sorry to hear of your Mom's passing. I've lost both my parents,

and, like you, took care of my Dad for the last year of his life. It was very

rewarding, but I miss him. My Mom is gone 30 years, and I still think of her

and miss her every day.

In reading your note to Rosy, I noticed you said that your Mom had fatty liver

30 years ago. My best friend was just diagnosed with this (non-alcohol

related), and I'm trying to help with how he should proceed. He is 34 years old

and in otherwise good health, save needing to lose about 50 pounds.

What I'm wondering is whether your mother made life lifestyle changes when she

learned of the condition, or did it progress because she didn't make the

necessary changes? I'm really worried about , and want him to do what's

best for his body.

The other issue you mention that concerns me is medication. is about to

start strong antibiotics for 2 weeks for H. Pylori (a bacteria in his digestive

system). The doctor said this wouldn't effect the liver. What medications WILL

effect the liver if not antibiotics?

Finally, I want to say to Rosy that I'm sorry about what your Mom is going

through. I know firsthand how hard that is for we adult kids of the parents we

love. Make sure you take care of yourself and keep your body and your mind

healthy. I didn't always do this when I was taking care of Dad, and the stress

took its toll. Be as much of a friend to yourself as you are to your Mom!

One thing that you said really struck me. That your mother has lupus. 's

mother had lupus and died from it at age 42. I sure hope not, but I'm wondering

if may have it and it is effecting his liver. Is this something they

would test for when they know you have fatty liver?

Thanks Pamela and Rosie for sharing. God bless you and yours.

Best,

Dan

------------ --------- --------- ---

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Dan,

So sorry to hear about . My understanding is that a healthy life style (no

alcohol/healthy diet/minimal meds/no drugs) can keep fatty liver from turning

into cirrhosis.

To my knowledge my mom didn't make any changes to her diet. Although I do

remember her following the Atkins diet when I was in my teens. She ate a lot of

cheese though and that is high fat, but I'm not sure if any of those changes

were due to the fatty liver diagnosis.

One doctor told my sister that we are genetically predisposed to a fatty liver

and should watch our diets, carbs being the biggy. I read that red meat and

high fatty foods are a biggy since they tax the liver.

I was told some medicines are processed through the liver or kidneys. I haven't

read much, but it doesn't make sense that medicine/foods are processed through

only ONE organ. They are in our body and affect all our parts. So maybe the

better way to say it is, medicines are processed through our bodies and affect

some organs more than others. Example...Metropolol is more taxing on the kidney

that it is the liver and Lipitor is harder on the liver than it is on the

kidney...etc. So, for example, when choosing meds, we might work harder on

diet to avoid the Lipitor if we have liver issues...etc.

I think we have to weigh the importance of taking the meds. Mom took RA drugs

because she didn't know of any other way to have quality of life. If the

antibiotic is necessary and not taking it will do more damage in the long

run...we have to think that through. What if he doesn't take it? What will the

out come possibly be? How much damage will taking the antibiotics do to his

liver in the short run? Or if he has to take it long term?

There is nothing perfect this side of Heaven, we do the best we can in an

imperfect world.

God Bless,

Pamela

Re: New member

Dear Pamela,

First, I'm sorry to hear of your Mom's passing. I've lost both my parents,

and, like you, took care of my Dad for the last year of his life. It was very

rewarding, but I miss him. My Mom is gone 30 years, and I still think of her and

miss her every day.

In reading your note to Rosy, I noticed you said that your Mom had fatty liver

30 years ago. My best friend was just diagnosed with this (non-alcohol related),

and I'm trying to help with how he should proceed. He is 34 years old and in

otherwise good health, save needing to lose about 50 pounds.

What I'm wondering is whether your mother made life lifestyle changes when she

learned of the condition, or did it progress because she didn't make the

necessary changes? I'm really worried about , and want him to do what's

best for his body.

The other issue you mention that concerns me is medication. is about to

start strong antibiotics for 2 weeks for H. Pylori (a bacteria in his digestive

system). The doctor said this wouldn't effect the liver. What medications WILL

effect the liver if not antibiotics?

Finally, I want to say to Rosy that I'm sorry about what your Mom is going

through. I know firsthand how hard that is for we adult kids of the parents we

love. Make sure you take care of yourself and keep your body and your mind

healthy. I didn't always do this when I was taking care of Dad, and the stress

took its toll. Be as much of a friend to yourself as you are to your Mom!

One thing that you said really struck me. That your mother has lupus. 's

mother had lupus and died from it at age 42. I sure hope not, but I'm wondering

if may have it and it is effecting his liver. Is this something they would

test for when they know you have fatty liver?

Thanks Pamela and Rosie for sharing. God bless you and yours.

Best,

Dan

---------------------------------

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[Guest guest]

Bobby,

What do you think is the safest pain med available OTC? I'm just talking minor

pain like flu symptoms or headache.

Pamela

Re: New member

Dear Pamela,

First, I'm sorry to hear of your Mom's passing. I've lost both my parents,

and, like you, took care of my Dad for the last year of his life. It was very

rewarding, but I miss him. My Mom is gone 30 years, and I still think of her and

miss her every day.

In reading your note to Rosy, I noticed you said that your Mom had fatty liver

30 years ago. My best friend was just diagnosed with this (non-alcohol related),

and I'm trying to help with how he should proceed. He is 34 years old and in

otherwise good health, save needing to lose about 50 pounds.

What I'm wondering is whether your mother made life lifestyle changes when she

learned of the condition, or did it progress because she didn't make the

necessary changes? I'm really worried about , and want him to do what's

best for his body.

The other issue you mention that concerns me is medication. is about to

start strong antibiotics for 2 weeks for H. Pylori (a bacteria in his digestive

system). The doctor said this wouldn't effect the liver. What medications WILL

effect the liver if not antibiotics?

Finally, I want to say to Rosy that I'm sorry about what your Mom is going

through. I know firsthand how hard that is for we adult kids of the parents we

love. Make sure you take care of yourself and keep your body and your mind

healthy. I didn't always do this when I was taking care of Dad, and the stress

took its toll. Be as much of a friend to yourself as you are to your Mom!

One thing that you said really struck me. That your mother has lupus. 's

mother had lupus and died from it at age 42. I sure hope not, but I'm wondering

if may have it and it is effecting his liver. Is this something they would

test for when they know you have fatty liver?

Thanks Pamela and Rosie for sharing. God bless you and yours.

Best,

Dan

------------ --------- --------- ---

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

,

I have cirrhosis St.4/Alcohol Liver Disease. I can certainly relate to the

ascites and lungs. Two or three times I thought I was having a heart attack. I

didn't have chest pain but I thought I was smothering all the time.

On the tests. I tried it 3 different ways. I drank after diagnosis and my

numbers got worse, not to mention I flatlined very briefly from esophageal

varice bleeding.

I cut back on my drinking and my numbers stayed bad but got no worse.

I quit drinking completly and at about 6 months some numbers started to look a

little better.

It however, has not changed my prognosis, and I still only hear the words

" transplant " in Dr.s conversations. I can only assume that my better numbers are

still bad numbers.

Never give up hope.

wrote:

I was curious about that but I figured you meant let em fly Oh and

I am 21 years old.. They decided to wait awhile after having me to

have any more children..haha no I was a good kid. Thank you guys so

much I know I'll come here often, even if to read the posts. So far

he's actually only been sick for the past month or two. That's why he

was concerned initially because he never gets sick. He started out

with flu-like symptoms, than he got over them, than got them again.

He was having trouble breathing because of the ascites and pushing on

the lungs. He had gained 16 pounds in 17 days. He's also had a few

fevers but so far painwise he's doing pretty well... I had to cease

conversation when he broke the news to me because my little sister

came into the room. So I couldn't ask him too many questions because

he is debating what/how to tell my younger siblings. I'm looking into

information about living organ donors and is it possible to actually

go down points on the meld scale? Also, when you found out, did

people asking you questions bother you? Like I want to ask my dad so

many things but I don't know if he'll be bothered by it or it will be

too much too soon. I've been reading so many articles and checked out

some books from the library that my eyes are spinning. Well, gotta go

get him some sweat pants and thank you all for the warm welcome!

>

> OMG, I did NOT say " let me fly " . How embarrassing. I just meant to

say that if you have any questions , just let em fly. EM, not ME.

OMG. Thats my encephalopathy. I do this backward thing. It is soo

frustrating. B.

>

> New Member

>

> Hi, my name is and my dad just sat me down today and informed

me

> that he has hepatitis C as well as stage 4 cirrhosis. He is a

> hemophiliac, and the doctor believes he contracted hep C from a bad

> blood transfusion in 84, before they tested blood for hep c. He is

at a

> MELD of 16 and on the transplant waiting list. His cirrhosis just

now

> was found because of ascites, he did not know he had hep C until a

few

> months ago. He is devastated because he has had Hep C for 20 years

and

> did not know about it, he feels he would have lived his life a

whole

> lot better. For 20 years he has been an avid drinker, which

obviously

> has helped the deterioration of his liver. He has quit before and

he is

> adamant about quitting again (obviously) but he is as scared as I

am.

> My siblings are 2, 10, and 14. The doctor informed him also that if

he

> does not receive a liver, he has 4 to 6 years to live. I am scared

and

> I want to be there for him and find out as much information as

> possible. I have many questions to ask and hope to learn a lot from

> this group!

>

>

> >

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> ____________ _________ _________ _________ _________ _________ _

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now. http://mobile.

yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

>

>

[Guest guest]

Hannah, here is a link to a friend in Omaha who was flown on a big airforce

hospital plane to Lackland airforce base in San TX last October for a

lifesaving transplant. She is a beautiful mother of two great kids and wife to

one of America's heroes, Master sergeant Dave Vassar. Her liver disease was

sudden, and of unknown causes. She was not over weight, did not drink except for

an ocassional wine cooler or toast at new years, and her liver just failed. She

got a transplant in the nick of time. She is having some rejection problems now,

and it is so scary. Dave says it is not as bad as it seems, but to me, it just

scares me, because her kids are so young and they need their momma.

http://daant.blogspot.com/

New member

Hi all,

I am just now learning about this yahoo group and I am extremely interested in

learning about how this yahoo group does work.

My Father who is 63 years old was rushed to the hospital 5 weeks ago because he

was throwing up blood. I live in Texas and my family live in Rhode Island so you

can imagine how fast I got on the next plane. Well comes to find out that my

Father has cirrhosis of the liver and he has had it for quite sometime and he

did not even know. The first symptom he had was this past Janurary and it was

the swelling of his belly and he ignored it because he has such a fear of

doctors. So, the belly started to go back down quite a bit but then shortly

there after is when my Mom found him on the floor with all the blood he had

thrown up.

So, at the hospital he had to have 6 blood transfusions because he had lost 6

pints of blood. The doctors said it is amazing he is alive today. I know someone

is watching over him!!!! So basically they told him that without a transplant he

will not live. So, we are waiting to meet with the Specialists in Boston to get

him on the list.

Can anyone please tell me if they have any information on what we should expect?

Also, does anyone know anything about the living donor option? I was thinking

that my sister or I could also do that as well for him. Oh also my Dad drank

alcohol but not anymore than the average person and they are saying it most

likely is due to drinking. Don't they have to test the liver with a biopsy to

make that statement true?

I am extremely worried that I a going to lose my Dad. He has never been this

sick before and now I feel that he is dying and it is a nightmare that has come

alive.

Any input would be GREATLY appreciated.

Thank you so much and God Bless.

------------ --------- --------- ---

You rock. That's why Blockbuster' s offering you one month of Blockbuster

Total Access, No Cost.

[Guest guest]

Hi Amy,

Be positive it isn't so heartbreaking, many of us have found ideas of methods to deal better with our problem that we might never have thought of if we hadn't found this site. My personal help has been to eradicate caffeine from my diet, I know when I drink coffee, coke/pepsi or eat chocolate I will suffer more than if I don't, my trigger sounds are so much more dampened when I have rid my body of caffeine and other stimulants and I don't tend to dwell as much on the trigger sounds, I hope you find some ideas that really help

Subject: New memberTo: Soundsensitivity Date: Monday, October 20, 2008, 10:29 AM

__________________________________________________

[Guest guest]

It's good to have you. (hugs) Hopefully you'll find the support you and your

son need here.

= M-F.

----- Original Message -----

> Hi everyone,

>

> I signed on a day a two ago and have just been reading everythin I

> could find here and all over the internet. A few days ago I thought I

> was the only person who suffered like this (and now my teenage son).

> This problem has caused me intnese pain and unhappiness for as long as

> I can remember. As a child I prayed to wake up deaf and blind so I

> would not be bombared with other peoples sounds and visual triggers. I

> always new that this was something beyond my control and hoped one day

> I would be diagnosed with something to explain my behavior. I have to

> say that finding this group and all the people here who can understand

> and relate to me is both comforting and heartbreaking. The

> heartbreaking part is that no one seems to have found any relief.

> What breaks my heart is that my son is now suffering from this too and

> I can't stomach the thought of him going through life suffering,

> isolating, self-medicating, feeling like bad person and being

> misunderstood. So now that the light has been shed on this for me I

> need to make this a mission to get help for my son as well as myself.

> Any and all advice is completely welcomed. I also need to help my

> husband understand as he is a major trigger for both me nd my son.

>

> I am happy that I have all of you to talk to and to hopefully find

> some ansewrs.

>

> Best,

>

> Amy