Guest guest Posted November 13, 2008 Report Posted November 13, 2008 Hi everyone,I have been in the group for a few months now and have gotten great insight on priorities lately,I am wondering about the time frame and what exactly I am going to be dealing with in the near future as far as even getting on a transplant list. I have been sober for 8 months now and my G.I. Dr. has refered me to a specialist that is with the transplant team.I live an hour & 1/2 from the hospital (Cleveland Clinic) how long does it take to get on a list? will I have to go give blood weekly or how often? I do know I am in stage 4 (esld) I nearly died last year from varices and didn't know that an alcoholic could get on a list,I have had Hep C since the 80's and just took the " feel sorry for me " route.I now have a goal but it could very well be too late,and have noone to blame exept for myself.If anyone can give me the facts on the process of all this I am greatful.I know this is gonna take alot of patience and I have read about how some of you literally have to hand deliver paperwork,insurance forms,fax's,ect.ect. to get things done,for instance thay told me fri. that it would take 2 weeks for my records to be transfered to my new specialist for them to even schedule an appointment for me,ARGH! Patience isn't my best virtue.......(oh,I am past the Infuron stage) I will have to go through that or do I? God willing I do get a transplant.That is all very confusing to me .Thank you for reading and god bless everyone! Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.