Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Hi everyone,I have been in the group for a few months now and have gotten great insight on priorities lately,I am wondering about the time frame and what exactly I am going to be dealing with in the near future as far as even getting on a transplant list. I have been sober for 8 months now and my G.I. Dr. has refered me to a specialist that is with the transplant team.I live an hour & 1/2 from the hospital (Cleveland Clinic) how long does it take to get on a list? will I have to go give blood weekly or how often? I do know I am in stage 4 (esld) I nearly died last year from varices and didn't know that an alcoholic could get on a list,I have had Hep C since the 80's and just took the " feel sorry for me " route.I now have a goal but it could very well be too late,and have noone to blame exept for myself.If anyone can give me the facts on the process of all this I am greatful.I know this is gonna take alot of patience and I have read about how some of you literally have to hand deliver paperwork,insurance forms,fax's,ect.ect. to get things done,for instance thay told me fri. that it would take 2 weeks for my records to be transfered to my new specialist for them to even schedule an appointment for me,ARGH! Patience isn't my best virtue.......(oh,I am past the Infuron stage) I will have to go through that or do I? God willing I do get a transplant.That is all very confusing to me .Thank you for reading and god bless everyone! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.