Re: proprioceptive activities

[Guest guest]

Does your school not have a specific OT room with proper equipment?

You mentioned it is ASD specific so it should - I became a governor to

obtain this as our school used to be MLD is now 70% ASD so some

practices need updating. also has poor temp control but restricts

stripping to the home environment and is no longer tactile defensive

after all our " squishy " games. Our OT is from NZ so is more up to date

than most UK OTs.

>

> >>>The report says home visit and classroom observation, I can't

recall her coming here (spooky) , it says the assessments she

completed were Reisman and Hanshu?1992 and Green 2000. Says things

like insists on large personal space because he doesn;t like

unexpected touch due to tactile defensiveness. (the carer) said

probably because he was severely bitten in class 9 times in 3 weeks

last year! Who the hell likes unexpected touch anyways? Says he has to

have layered clothing at school to provide deep pressure however,

strips at home because he hates feelign of clothes. Does that not

sound contradictory? He used to strip everywhere, in seconds, now he

only does it at home and I think thats a habit not tactile

defensiveness and he has poor temperature control due to his toxicity

- its better since chelation but not gone. i think she is only in

school (employed there) for 2 days per week so probably only does

assessments and then passes the buck?

>

> Mandi x

>

> PS do you mean she didn't even work with him on in OT room to do the

> assessment? If this is the case, then probably bloody useless (IMHO).

>

>

>

>

>

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[Guest guest]

>>Nope but each classroom has a quiet room, not much bigger than an average bathroom though......

Mandi x

Does your school not have a specific OT room with proper equipment?

Re: proprioceptive activities

Does your school not have a specific OT room with proper equipment?

You mentioned it is ASD specific so it should - I became a governor to

obtain this as our school used to be MLD is now 70% ASD so some

practices need updating. also has poor temp control but restricts

stripping to the home environment and is no longer tactile defensive

after all our "squishy" games. Our OT is from NZ so is more up to date

than most UK OTs.

>

> >>>The report says home visit and classroom observation, I can't

recall her coming here (spooky) , it says the assessments she

completed were Reisman and Hanshu?1992 and Green 2000. Says things

like insists on large personal space because he doesn;t like

unexpected touch due to tactile defensiveness. (the carer) said

probably because he was severely bitten in class 9 times in 3 weeks

last year! Who the hell likes unexpected touch anyways? Says he has to

have layered clothing at school to provide deep pressure however,

strips at home because he hates feelign of clothes. Does that not

sound contradictory? He used to strip everywhere, in seconds, now he

only does it at home and I think thats a habit not tactile

defensiveness and he has poor temperature control due to his toxicity

- its better since chelation but not gone. i think she is only in

school (employed there) for 2 days per week so probably only does

assessments and then passes the buck?

>

> Mandi x

>

> PS do you mean she didn't even work with him on in OT room to do the

> assessment? If this is the case, then probably bloody useless (IMHO).

>

>

>

>

>

> __________________________________________________________

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[Guest guest]

Time for some serious fundraising and a building programme.

Margaret

> >

> > >>>The report says home visit and classroom observation, I can't

> recall her coming here (spooky) , it says the assessments she

> completed were Reisman and Hanshu?1992 and Green 2000. Says things

> like insists on large personal space because he doesn;t like

> unexpected touch due to tactile defensiveness. (the carer) said

> probably because he was severely bitten in class 9 times in 3 weeks

> last year! Who the hell likes unexpected touch anyways? Says he has

to

> have layered clothing at school to provide deep pressure however,

> strips at home because he hates feelign of clothes. Does that not

> sound contradictory? He used to strip everywhere, in seconds, now he

> only does it at home and I think thats a habit not tactile

> defensiveness and he has poor temperature control due to his

toxicity

> - its better since chelation but not gone. i think she is only in

> school (employed there) for 2 days per week so probably only does

> assessments and then passes the buck?

> >

> > Mandi x

> >

> > PS do you mean she didn't even work with him on in OT room to do

the

> > assessment? If this is the case, then probably bloody useless

(IMHO).

> >

> >

> >

> >

> >

> > __________________________________________________________

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> today.

> >

>

>

>

>

>

>

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[Guest guest]

>>Its been done to death - £5Mil for school, just finished the pool, that was another 1.25 mil, meanwhile the Friends sit on £80K, its run by a load of old trouts who only ever spend the interest.....sigh

Mandi x

Time for some serious fundraising and a building programme.

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[Guest guest]

You really only need a large classroom with a high roof - the main

piece of equipment is an iron frame with various things hanging off

it(£5k) - the weighted vests can be made by any one with a sowing

machine, the rest of the equipment is not so expensive but does need

renewing over time. It bothers me when something as mainstream as OT

is not catered for in ASD schools. Well done getting a pool tho' OTs

often recommend that as well....

>

> >>Its been done to death - £5Mil for school, just finished the

pool, that was another 1.25 mil, meanwhile the Friends sit on £80K,

its run by a load of old trouts who only ever spend the interest.....sigh

>

> Mandi x

>

> Time for some serious fundraising and a building programme.

>

>

>

>

>

>

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[Guest guest]

This gets up my nose...talk about dangling a carrot...The health

Executive funded a SI 3 day training here last year. I went...best

training ever to be told on the last day there were no facilities or

OTs to treat our children..Despicable

Only for Cian's teacher and the school he would n't be getting his OT

assessment followed up either...and the HSE seem to do these

assessments when school is about to close!

Aileen

>

> >> All I have id the report and nothing about equipment or

anything. Never been off the computer, just the damn internet, its

working now its gone 2.00am, typical but I must go to bed, away to

London for 3.5 days of all sorts with my oldest boys including Kylie

at the O2, lots of supps to sort out for Sam's carer, go to bed woman

and stop wittering!

>

> Mandi x

>

> Mandy Cian had a full OT assessment about a month ago and the

school

> has bought all the recommended equipment for him..order went in

last

> weeK! Did you get assessment and equipment to carry it all out?

>

> ..are you back on your computer again?

>

>

>

>

>

>

______________________________________________________________________

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[Guest guest]

havent had OT for a year now, dont miss it. For us, it was a load of

old cobblers. The OT was not sensory integratoin trained and kept

going on about the Bobath method which does NOT apply to us at all.

WE get plenty of " OT " going to the park, out on the trampoline and

via body brushing, ball bouncing etc. Seems the more my boy uses his

body (especially in the summer) the better he uses his body. he can

now run like the wind, where before he would always fall.

Autism-Biomedical-Europe , " stepbystep67 "

wrote:

>

> This gets up my nose...talk about dangling a carrot...The health

> Executive funded a SI 3 day training here last year. I went...best

> training ever to be told on the last day there were no facilities

or

> OTs to treat our children..Despicable

>

> Only for Cian's teacher and the school he would n't be getting his

OT

> assessment followed up either...and the HSE seem to do these

> assessments when school is about to close!

>

> Aileen

>

>

>

> >

> > >> All I have id the report and nothing about equipment or

> anything. Never been off the computer, just the damn internet, its

> working now its gone 2.00am, typical but I must go to bed, away to

> London for 3.5 days of all sorts with my oldest boys including

Kylie

> at the O2, lots of supps to sort out for Sam's carer, go to bed

woman

> and stop wittering!

> >

> > Mandi x

> >

> > Mandy Cian had a full OT assessment about a month ago and the

> school

> > has bought all the recommended equipment for him..order went in

> last

> > weeK! Did you get assessment and equipment to carry it all out?

> >

> > ..are you back on your computer again?

> >

> >

> >

> >

> >

> >

>

______________________________________________________________________

> __

> > AOL Email goes Mobile! You can now read your AOL Emails whilst on

> the move. Sign up for a free AOL Email account with unlimited

storage

> today.

> >

>

[Guest guest]

I agree with both of you but there are parents who would like to

avail of proper SI services and all OTs do is talk about it. What is

the point of endless time wasting assessments if they have nothing to

deliver? They still get paid and stick a document in a file

somewhere, proof that you received services when in actual fact you

received nothing but travel expenses and unnecessary anxt.

Aileen

> > > >

> > > > >> All I have id the report and nothing about equipment or

> > > anything. Never been off the computer, just the damn internet,

its

> > > working now its gone 2.00am, typical but I must go to bed, away

to

> > > London for 3.5 days of all sorts with my oldest boys including

> > Kylie

> > > at the O2, lots of supps to sort out for Sam's carer, go to bed

> > woman

> > > and stop wittering!

> > > >

> > > > Mandi x

> > > >

> > > > Mandy Cian had a full OT assessment about a month ago and the

> > > school

> > > > has bought all the recommended equipment for him..order went

in

> > > last

> > > > weeK! Did you get assessment and equipment to carry it all

out?

> > > >

> > > > ..are you back on your computer again?

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > __________________________________________________________

> > > __

> > > > AOL Email goes Mobile! You can now read your AOL Emails

whilst on

> > > the move. Sign up for a free AOL Email account with unlimited

> > storage

> > > today.

> > > >

> > >

> >

> >

>

[Guest guest]

Diet is also a major factor here. Going GFCF is

what sorted out some big issues like temperature. would strip

off all the time, even in mid winter before the diet. He didn't feel

pain at all, couldn't be toilet trained, would sit in freezing cold

bath water etc., This was all overcome with diet. So I figure a lot

of this sensory integration can be tackled from the inside out.

stepbystep67 wrote:

I agree with both of you but there are parents who would like to

avail of proper SI services and all OTs do is talk about it. What is

the point of endless time wasting assessments if they have nothing to

deliver? They still get paid and stick a document in a file

somewhere, proof that you received services when in actual fact you

received nothing but travel expenses and unnecessary anxt.

Aileen

> > > >

> > > > >> All I have id the report and nothing about

equipment or

> > > anything. Never been off the computer, just the damn

internet,

its

> > > working now its gone 2.00am, typical but I must go to

bed, away

to

> > > London for 3.5 days of all sorts with my oldest boys

including

> > Kylie

> > > at the O2, lots of supps to sort out for Sam's carer, go

to bed

> > woman

> > > and stop wittering!

> > > >

> > > > Mandi x

> > > >

> > > > Mandy Cian had a full OT assessment about a month

ago and the

> > > school

> > > > has bought all the recommended equipment for

him..order went

in

> > > last

> > > > weeK! Did you get assessment and equipment to carry

it all

out?

> > > >

> > > > ..are you back on your computer again?

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > __________________________________________________________

> > > __

> > > > AOL Email goes Mobile! You can now read your AOL

Emails

whilst on

> > > the move. Sign up for a free AOL Email account with

unlimited

> > storage

> > > today.

> > > >

> > >

> >

> >

>

[Guest guest]

The trick is to get OT qualifications specified in the statement -

problem is the UK is way behind other nations on this and only have a

SI network so getting an Australian, South African, New Zealander has

been the only option locally. A good OT has brought a lot to the table

for us, the first one was pretty poor but the rest have been

great.'s sensory issues were subtle but largely sorted it was

other stuff like muscle tone and motor skills which were being

overlooked so yes exercise is key. The KEY difference we have found is

honesty - the OTs from the southern hemisphere are honest about the

level of need (and whether they could support or not) while the home

grown ones either through ignorance or conspiracy were not. This is a

big allegation but locally a number of families have encountered this.

This kind of institutional discrimination is rife for relatively

mainstream treatments in our PCT so getting the kind of bio med issues

discussed here are a long way off (but I still think there has to be

pressure exercised locally and nationally before we get a step change

in thinking.)

Tackling this individually through the statement is one way - another

is to use the Equality Impact Assessments EIAs on the PCTs policies or

to lobby, writing to MPs etc.

Anyhow that's my little rant over...

> > > > >

> > > > > >> All I have id the report and nothing about equipment or

> > > > anything. Never been off the computer, just the damn internet,

> its

> > > > working now its gone 2.00am, typical but I must go to bed, away

> to

> > > > London for 3.5 days of all sorts with my oldest boys including

> > > Kylie

> > > > at the O2, lots of supps to sort out for Sam's carer, go to bed

> > > woman

> > > > and stop wittering!

> > > > >

> > > > > Mandi x

> > > > >

> > > > > Mandy Cian had a full OT assessment about a month ago and the

> > > > school

> > > > > has bought all the recommended equipment for him..order went

> in

> > > > last

> > > > > weeK! Did you get assessment and equipment to carry it all

> out?

> > > > >

> > > > > ..are you back on your computer again?

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > > __________________________________________________________

> > > > __

> > > > > AOL Email goes Mobile! You can now read your AOL Emails

> whilst on

> > > > the move. Sign up for a free AOL Email account with unlimited

> > > storage

> > > > today.

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

This is because you won't get it on the NHS. The only route is to

find a real specialist, who will be private and who will be expert in

reading and understanding the child.It is possible to get OT in the

Statement but it cost quite a bit to do this and took ages. It might

be more appropriate and no more expensive to pay for it also Caudwell

might fund it as it's an intervention...

Margaret

Some names that comes to mind: Jane Horwood, Jane Abdullah, there is

also a practice in Guildford. Find an expert, not just someone who

has done a couple of courses.

> > > > >

> > > > > >> All I have id the report and nothing about equipment or

> > > > anything. Never been off the computer, just the damn

internet,

> its

> > > > working now its gone 2.00am, typical but I must go to bed,

away

> to

> > > > London for 3.5 days of all sorts with my oldest boys including

> > > Kylie

> > > > at the O2, lots of supps to sort out for Sam's carer, go to

bed

> > > woman

> > > > and stop wittering!

> > > > >

> > > > > Mandi x

> > > > >

> > > > > Mandy Cian had a full OT assessment about a month ago and

the

> > > > school

> > > > > has bought all the recommended equipment for him..order

went

> in

> > > > last

> > > > > weeK! Did you get assessment and equipment to carry it all

> out?

> > > > >

> > > > > ..are you back on your computer again?

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > > __________________________________________________________

> > > > __

> > > > > AOL Email goes Mobile! You can now read your AOL Emails

> whilst on

> > > > the move. Sign up for a free AOL Email account with unlimited

> > > storage

> > > > today.

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

Even children in the lowest 2% are not likely to be offered OT, least not in my neck of the woods.

We had to win OT at tribunal, Jane Abdullah report which was the only thing to be granted and it was in it's entirety as her report was so professional and County had no one to argue against it.

Vicky

[Guest guest]

> > > > > >

> > > > > > >> All I have id the report and nothing about equipment or

> > > > > anything. Never been off the computer, just the damn

> internet,

> > its

> > > > > working now its gone 2.00am, typical but I must go to bed,

> away

> > to

> > > > > London for 3.5 days of all sorts with my oldest boys including

> > > > Kylie

> > > > > at the O2, lots of supps to sort out for Sam's carer, go to

> bed

> > > > woman

> > > > > and stop wittering!

> > > > > >

> > > > > > Mandi x

> > > > > >

> > > > > > Mandy Cian had a full OT assessment about a month ago and

> the

> > > > > school

> > > > > > has bought all the recommended equipment for him..order

> went

> > in

> > > > > last

> > > > > > weeK! Did you get assessment and equipment to carry it all

> > out?

> > > > > >

> > > > > > ..are you back on your computer again?

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > __________________________________________________________

> > > > > __

> > > > > > AOL Email goes Mobile! You can now read your AOL Emails

> > whilst on

> > > > > the move. Sign up for a free AOL Email account with unlimited

> > > > storage

> > > > > today.

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Hello

We are lined up to go to Tribunal for our son. The LEA are arguing against us on ABA,SLT and OT. We are well covered on the first two but not OT. We think our son has a number of sensory issues - he is autistic. Do you have full contact details fro Jane Abdullah or even better do you know any OT expert in sensory evaluations etc nearer where we live (Yorkshire ) ?

Any pointers very gratefully recieved - the early exchanges with the NHS OT and SLT are very discouraging

Andy

Subject: Re: Re: proprioceptive activitiesTo: Autism-Biomedical-Europe Date: Tuesday, July 29, 2008, 4:00 PM

Even children in the lowest 2% are not likely to be offered OT, least not in my neck of the woods.

We had to win OT at tribunal, Jane Abdullah report which was the only thing to be granted and it was in it's entirety as her report was so professional and County had no one to argue against it.

Vicky

[Guest guest]

Although based in Ireland this seems to be the main professional

networking site for OTs wanting to train in SI. You could email them

to ask about a private OT in your area who is trained.

HTH

Sensory Integration Network

26 Leopardstown Grove

Blackrock

Dublin

Ireland

info@...

>

>

> Subject: Re: Re: proprioceptive activities

> To: Autism-Biomedical-Europe

> Date: Tuesday, July 29, 2008, 4:00 PM

>

>

>

>

>

>

>

> Even children in the lowest 2% are not likely to be offered OT,

least not in my neck of the woods.

> We had to win OT at tribunal, Jane Abdullah report which was the

only thing to be granted and it was in it's entirety as her report was

so professional and County had no one to argue against it.

> Vicky

>

[Guest guest]

sorry addy is info @ sensoryintegration.org.uk without the spaces..

> >

> > From: MaddiganV@ <MaddiganV@>

> > Subject: Re: Re: proprioceptive activities

> > To: Autism-Biomedical-Europe

> > Date: Tuesday, July 29, 2008, 4:00 PM

> >

> >

> >

> >

> >

> >

> >

> > Even children in the lowest 2% are not likely to be offered OT,

> least not in my neck of the woods.

> > We had to win OT at tribunal, Jane Abdullah report which was the

> only thing to be granted and it was in it's entirety as her report was

> so professional and County had no one to argue against it.

> > Vicky

> >

>

[Guest guest]

-hi

we see an ot in yorkshire and we are from birmingham she is really

good this is her

websitehttp://www.therapyinpraxis.co.uk/html/contact_us__.html

we are also going to tirbual lea refusing to fund ot and slt!!

good luck

lindsey

-- In Autism-Biomedical-Europe , Regan

wrote:

>

> Hello

> We are lined up to go to Tribunal for our son. The LEA are arguing

against us on ABA,SLT and OT. We are well covered on the first two

but not OT. We think our son has a number of sensory issues - he is

autistic. Do you have full contact details fro Jane Abdullah or even

better do you know any OT expert in sensory evaluations etc nearer

where we live (Yorkshire ) ?

> Any pointers very gratefully recieved - the early exchanges with

the NHS OT and SLT are very discouraging

> Andy

>

>

>

>

> Subject: Re: Re: proprioceptive

activities

> To: Autism-Biomedical-Europe

> Date: Tuesday, July 29, 2008, 4:00 PM

>

>

>

>

>

>

>

> Even children in the lowest 2% are not likely to be offered OT,

least not in my neck of the woods.

> We had to win OT at tribunal, Jane Abdullah report which was the

only thing to be granted and it was in it's entirety as her report

was so professional and County had no one to argue against it.

> Vicky

>

[Guest guest]

Apparently the OT that did Sam's assessment has just left the school, hmmmmmmmm, so close to end of term and when she was supposed to be at parents evening last week but cried off sick, all sounds a bit suss to me

Mandi x

Re: Re: proprioceptive activities

Even children in the lowest 2% are not likely to be offered OT, least not in my neck of the woods.

We had to win OT at tribunal, Jane Abdullah report which was the only thing to be granted and it was in it's entirety as her report was so professional and County had no one to argue against it.

Vicky

AOL Email goes Mobile! You can now read your AOL Emails whilst on the move. Sign up for a free AOL Email account with unlimited storage today.

[Guest guest]

www.atlastraining.ie

> >

> > From: MaddiganV@ <MaddiganV@>

> > Subject: Re: Re: proprioceptive

activities

> > To: Autism-Biomedical-Europe

> > Date: Tuesday, July 29, 2008, 4:00 PM

> >

> >

> >

> >

> >

> >

> >

> > Even children in the lowest 2% are not likely to be offered OT,

> least not in my neck of the woods.

> > We had to win OT at tribunal, Jane Abdullah report which was the

> only thing to be granted and it was in it's entirety as her report

was

> so professional and County had no one to argue against it.

> > Vicky

> >

>