Re: Hello

[Guest guest]

I'm glad to hear that your doing so well. It's about time things are looking up for you.

Take care.

Lt Vic

[Guest guest]

Hi Kathy,

I'm so happy to hear your doing so well!!!!! Although I totally

understand your hesitation (I'm sort of going through the same thing

with my recovery) I think you should be happy and excited, live the

good moments to their fullest when ever you can!

This is great news Kathy, it's very likely as you heal you will feel

even better than you do now.

Take care and don't do to much to soon.

>Hello to Everyone!

>

>Hi and welcome to all the new members and all the " old " names. I wanted to

>introduce myself quickly...

>

>I'm Kathy and I just had my third (and last) untethering on the eighth of

>this month (last Monday.) Hard to believe I did it again (third time in

>four years.)

>

>This time (saying while knocking on wood) really seemed to be the clincher.

>The cord was twisted 180 degrees and tethered, then twisted upward and

>tethered again near this same spot (does that make sense?) For those that

>don't know...I was pretty stable until I was rear-ended in March at a high

>speed. My nsg said given how taught and messed up things were in there it's

>no wonder that the impact caused me the problems it did.

>

>Although it's only been a week and I really shouldn't say this yet (I want

>to shout it from rooftops), I feel great!!! I have the surgical pain that

>we all have/expect and am on double the meds I was before surgery, but I

>have yet to have one of my old pains that started after the accident!! I am

>trying so hard to remain calm about this, but it's hard...:-) (Even my

>bladder isn't leaking!!!!..hheheheheheheheee.)

>

>Just wanted to pop in and say hi, give some history and tell everyone my

>exciting, albeit too soon news.

>

>Kathy

>

>

>

[Guest guest]

Lyncia,

Good wishes & warm thoughts

--j

>

> Hi!

>  

> I found out in May that my liver has failed and I am in the second

stage of cirrhosis.  A few weeks ago, they now have discovered a dark

mass on my right kidney.  I get the results tomorrow from the Kidney

doctor and then find out on the 27th if they will present me to the

transplant board here in Texas.

>  

> I am trying to adjust to being moved from my Tampa home to my son's

home in Texas and losing my independence.  They are not letting me

drive and I can't be home alone......sounds like that could be a

movie.

>  

> Lyncia

>

>

>

>

>

[Guest guest]

Hi Lyncia and welcome to the group! I know you're dealing with a lot

of changes right now and are probably feeling overwhelmed. I just

want you to know that I will be saying a special prayer for you today

as you get your test results and will be waiting to hear what you

found. Try not to get too upset, it may turn out to be something

simple. My own Dad had a mass on his kidney, but we just learned

last week that it wasn't anything to worry about, just a large cyst

that is common among some people his age. It is not interferring

with his kidney function and therefore won't be adressed at this

point. I will be praying that your results will be as reassuring as

was ours. God bless!

Love and hugs.........

Diane C. from TN

>

> Hi!

>  

> I found out in May that my liver has failed and I am in the second

stage of cirrhosis.  A few weeks ago, they now have discovered a dark

mass on my right kidney.  I get the results tomorrow from the Kidney

doctor and then find out on the 27th if they will present me to the

transplant board here in Texas.

>  

> I am trying to adjust to being moved from my Tampa home to my son's

home in Texas and losing my independence.  They are not letting me

drive and I can't be home alone......sounds like that could be a

movie.

>  

> Lyncia

>

>

>

>

>

[Guest guest]

Hi, Jackie. My name is Bobby aka RWE which stands for robertwalkingeagle. I am

so so sorry to hear about you and your liver. Wow, I would be SO pissed. I mean,

I kind of am, because I never knew I was an alcoholic, seriously, I thought that

alcoholics were drunk all the time, and got the shakes, and drank for breakfast,

etc. I worked hard every day, only drank beer, after work, at HOME. Well, I have

end stage liver diease. I have terrible pain, and I am on morphine. You had

your gallbladder out and now you have end stage liver disease. I am here if you

want to vent, and this group is great, we are glad to have you as a friend. I'm

really sorry. I just came home from dinner and a movie with friends, my wife and

I haven't been out for ONE YEAR. Can you believe that? And I saw your post, and

I am so sad. I am going to say a prayer for you right now, because it's all I

can do. Love, Bobby, aka RWE.

Sent via BlackBerry from T-Mobile

Hello

Hi 

  I am Jackie and I have stage 4 end stage liver disease. I was diagnosed

in Sept 07 after being put in the hospital for the worst pain I had ever had

before.the sharp and stabbing  pain was under my left rib cage and under my

right rib area was a cramming like pain. I was in the hospital for 17 days going

though every blood test out there, CAT and MRI and xrays of my whole body.

Everything was coming back okay except some of my liver test were alittle off.

So they did a liver biopsy and WOW I not only have stage 4 liver disease but I

also have only 20% of my liver working. The other 80% is cirrhosis they say. 

    I am in shock now!! HOW can this be true?? I never smoked, I never did

drugs;I have no tattoos I have no Hep A B C my gallbladder is out no problems

there. SO HOW can this be right I ask?? Well in Jan 07 I had abdomal surgrey and

it went  sour Doctor error..Well anyways I was in alot of pain and Morphine was

not working for me. So they started me on VicodinES every 6 hours and gave me

shots of TORADOL(anti-inflamatory) every 8 hours  for 16 days. I was pain free

but Toradol shots are not to be given for more then 5 days because they kill the

liver. So now I know how I got it. I had been telling the doctor I feel tierd

and nausa and bad pains in my stomach and cant sleep at night but sleepy in the

daytime. they said that it was me healing from my surgrey still. Well I now have

a Doctor following me for a transplant one day at the U of Mich and I have the

greatest husband and cargiver and my rock of support to help me thru all this I

could

not make it with out him..

   Sorry for such a long story but now you all know about me and I look forward

reading and learning from you too

...

God bless all of you

Jackie

[Guest guest]

Hi Jackie and welcome to the group. I am so sorry to hear about your

illness and even more so since it seems to have been brought on by

error on the part of your healthcare provider.

I don't have ESLD, but I am the caregiver for my husband, age 54, who

has it. I know you will find the support and answers to some of your

questions here. This group has been a God-send for me. Just to know

there are others out there going through what we're going through and

who are so willing to share has been such a great blessing to me.

Please know that you and your husband are in my prayers daily and be

sure to keep us updated regarding the status of your transplant

listing. God bless!

Love and hugs............

Diane C. from TN

>

> Hi 

>   I am Jackie and I have stage 4 end stage liver disease. I was

diagnosed in Sept 07 after being put in the hospital for the worst

pain I had ever had before.the sharp and stabbing  pain was under my

left rib cage and under my right rib area was a cramming like pain. I

was in the hospital for 17 days going though every blood test out

there, CAT and MRI and xrays of my whole body. Everything was coming

back okay except some of my liver test were alittle off. So they did

a liver biopsy and WOW I not only have stage 4 liver disease but I

also have only 20% of my liver working. The other 80% is cirrhosis

they say. 

>     I am in shock now!! HOW can this be true?? I never smoked, I

never did drugs;I have no tattoos I have no Hep A B C my gallbladder

is out no problems there. SO HOW can this be right I ask?? Well in

Jan 07 I had abdomal surgrey and it went  sour Doctor error..Well

anyways I was in alot of pain and Morphine was not working for me. So

they started me on VicodinES every 6 hours and gave me shots of

TORADOL(anti-inflamatory) every 8 hours  for 16 days. I was pain free

but Toradol shots are not to be given for more then 5 days because

they kill the liver. So now I know how I got it. I had been telling

the doctor I feel tierd and nausa and bad pains in my stomach and

cant sleep at night but sleepy in the daytime. they said that it was

me healing from my surgrey still. Well I now have a Doctor following

me for a transplant one day at the U of Mich and I have the greatest

husband and cargiver and my rock of support to help me thru all this

I could

> not make it with out him..

>    Sorry for such a long story but now you all know about me and I

look forward reading and learning from you too

> ..

> God bless all of you

> Jackie

>

>

>

>

>

>