Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Hiya Don't worry about this. Its probably Dad's way of coping with his worry. Need to tell him though that you are doing your best to help your son. If he's too stuck in his feelings, just turn to this board where people understand what you're going through. Al this is very, very, tiring. Its so hard dealing with all the things you have to do. Poor old Stephanos. He's feeling lousy. Poor old you too, and well done for finding this board and doing your homework and fighting the battle. When Stephanos has gone to bed, switch off get your feet up and try to relax. That's good for Stephanos because you'll be better fixed to help him the next day. Tiredness is a killer. Stay strong and keep the faith, Eileen x > > Hi there, i couldnt think where else to let off steam, i > dont want to offend anyone but neither am i saying fathers > dont have there ups and downs, but, > why do we get bogged down with blame for most things . > My son Stephanos is having quite a bad time really due to > candida and Oxalic acid. Have test kits to send to Genoa[ > spelt wrong ] so have stopped all supplement really until > the weekend. Anyway when dad is around and Stephanos get > agressive or screams , i try to calm him down and he will > ask > - whats wrong? > -Its his problem u know,[ i say] > He will look at me puzzled, and i will say > -Oxalic acid and candida... > He answers me back in an ironic way > -since when have you been a doctor and stop putting names to > his problems. With all these names you have used i shall be > waiting another 10 years for the child to improve..... > > I do my best like all parents do, sometimes though it can > get just a touch too much especially when your partner isnt > understanding enough. So the lesson for today is one should > try to support each other in these times. > Point here is no -one is to blame and we should move on with > what we have , by pointing fingers and expressing negativley > it doesnt help anyone. > Thanks > [Could be i am just too sensitive at the moment] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Oh and P.S. You've been a " Doctor Mom " who's had to educate the rest of yourself like the rest of us on here, when you found out that the mainstream haven't got a clue. Good on ya! XX > > Hi there, i couldnt think where else to let off steam, i > dont want to offend anyone but neither am i saying fathers > dont have there ups and downs, but, > why do we get bogged down with blame for most things . > My son Stephanos is having quite a bad time really due to > candida and Oxalic acid. Have test kits to send to Genoa[ > spelt wrong ] so have stopped all supplement really until > the weekend. Anyway when dad is around and Stephanos get > agressive or screams , i try to calm him down and he will > ask > - whats wrong? > -Its his problem u know,[ i say] > He will look at me puzzled, and i will say > -Oxalic acid and candida... > He answers me back in an ironic way > -since when have you been a doctor and stop putting names to > his problems. With all these names you have used i shall be > waiting another 10 years for the child to improve..... > > I do my best like all parents do, sometimes though it can > get just a touch too much especially when your partner isnt > understanding enough. So the lesson for today is one should > try to support each other in these times. > Point here is no -one is to blame and we should move on with > what we have , by pointing fingers and expressing negativley > it doesnt help anyone. > Thanks > [Could be i am just too sensitive at the moment] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 not much help but huge sympathy. Some people find it hard to see someone in a new role - in your case, expert in autism as it relates to your son. I have an uncle. He had asked me about Tom and mercury poisoning and I thought he was interested, he certainly knows enough about heavy metals to know that it can be serious. Well, I saw him at a family dinner about a year ago and he again asked after Tom and when I told him his major problem was lead he actually laughed and said " Oh, now it's the LEAD " and encouraged other guests to laugh along. as if I'd once been a huge fan of one band and switched to another. So - yes people let you down but I'm sure your DH wants the best and is confused by your new role and the huge amount of information that you're both having to come to terms with. meanwhile I am sure my uncle will soon unlodge the steak knife from his shoulder LOL Steph x > > Hi there, i couldnt think where else to let off steam, i > dont want to offend anyone but neither am i saying fathers > dont have there ups and downs, but, > why do we get bogged down with blame for most things . > My son Stephanos is having quite a bad time really due to > candida and Oxalic acid. Have test kits to send to Genoa[ > spelt wrong ] so have stopped all supplement really until > the weekend. Anyway when dad is around and Stephanos get > agressive or screams , i try to calm him down and he will > ask > - whats wrong? > -Its his problem u know,[ i say] > He will look at me puzzled, and i will say > -Oxalic acid and candida... > He answers me back in an ironic way > -since when have you been a doctor and stop putting names to > his problems. With all these names you have used i shall be > waiting another 10 years for the child to improve..... > > I do my best like all parents do, sometimes though it can > get just a touch too much especially when your partner isnt > understanding enough. So the lesson for today is one should > try to support each other in these times. > Point here is no -one is to blame and we should move on with > what we have , by pointing fingers and expressing negativley > it doesnt help anyone. > Thanks > [Could be i am just too sensitive at the moment] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Today my Mum spent ages telling me she'd seen a tv programme on autism which showed adults with autism and broken hearted mums and she said things like they would have had more chance if I'd been their mum. Almost in the same breath i told her that i had reduced Tom's dose of DMSA and she replied 'Well you do tend to just make things up as you go along with Tom' I can't get inside her head except to say that she can see I'm doing the right thing but she can't quite believe it and she is scared to death that I have taken his treatment into my own hands. This is all reasonable but when it happens it saps away at my much needed energy and confidence. I think we can all relate to your situation and it is very very tough. Sara x > > > > Hi there, i couldnt think where else to let off steam, i > > dont want to offend anyone but neither am i saying fathers > > dont have there ups and downs, but, > > why do we get bogged down with blame for most things . > > My son Stephanos is having quite a bad time really due to > > candida and Oxalic acid. Have test kits to send to Genoa[ > > spelt wrong ] so have stopped all supplement really until > > the weekend. Anyway when dad is around and Stephanos get > > agressive or screams , i try to calm him down and he will > > ask > > - whats wrong? > > -Its his problem u know,[ i say] > > He will look at me puzzled, and i will say > > -Oxalic acid and candida... > > He answers me back in an ironic way > > -since when have you been a doctor and stop putting names to > > his problems. With all these names you have used i shall be > > waiting another 10 years for the child to improve..... > > > > I do my best like all parents do, sometimes though it can > > get just a touch too much especially when your partner isnt > > understanding enough. So the lesson for today is one should > > try to support each other in these times. > > Point here is no -one is to blame and we should move on with > > what we have , by pointing fingers and expressing negativley > > it doesnt help anyone. > > Thanks > > [Could be i am just too sensitive at the moment] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 I can only repeat what others have said. You're doing the very best for your son, and no-one can take that away from you. You can look at yourself proudly in the mirror every morning with that knowledge. My wife and I have found it very hard to do biomed with our son. I can only imagine how much more difficult if would be if we did not support each other with it. As I think you can tell from the replies, there are many people on this list who have enormous sympathy with you. Remember to look after yourself. From time to time, and when they day's work is done, just tell everyone else to go away. It's the least you deserve. > Hi there, i couldnt think where else to let off steam, i > dont want to offend anyone but neither am i saying fathers > dont have there ups and downs, but, > why do we get bogged down with blame for most things . > My son Stephanos is having quite a bad time really due to > candida and Oxalic acid. Have test kits to send to Genoa[ > spelt wrong ] so have stopped all supplement really until > the weekend. Anyway when dad is around and Stephanos get > agressive or screams , i try to calm him down and he will > ask > - whats wrong? > -Its his problem u know,[ i say] > He will look at me puzzled, and i will say > -Oxalic acid and candida... > He answers me back in an ironic way > -since when have you been a doctor and stop putting names to > his problems. With all these names you have used i shall be > waiting another 10 years for the child to improve..... > > I do my best like all parents do, sometimes though it can > get just a touch too much especially when your partner isnt > understanding enough. So the lesson for today is one should > try to support each other in these times. > Point here is no -one is to blame and we should move on with > what we have , by pointing fingers and expressing negativley > it doesnt help anyone. > Thanks > [Could be i am just too sensitive at the moment] > > > > > > > ------------------------------------ > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Hi Could it be that DH is prob supportive but a bit scared that he isnt in control of his boy and at a bit of a loss. McCarthys new book is called Warrior Mom ! sounds like us lot really dosn't it. Great name You are doing great, it is hard to stop the supplements, I know some people (like me) do not stop them all when I do testing, as I cant stand any regression, I get really upset! But thats my choice. keep being a strong mum, bio med is tough, we have been doing it for two years so far. My husband Mark has a blog for and Autism info, take a look, your DH may like it too, great video of doing the Maze at leeds Castle in 3 mins! http://somethingbeginningwitha.blogspot.com/ Lara Quote Link to comment Share on other sites More sharing options...
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