Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Monday, November 17, 2008 9:44:50 PM Subject: Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe wrote: Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Monday, November 17, 2008 9:44:50 PM Subject: Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. ____________ _________ _________ __ From: abijann <no_reply@yahoogroup s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 9:44:50 PM Subject: Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible.. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information.. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Bonnie, It sounds like you've already been through a lot. Your husband has a lot of problems that could affect his eyes. Diabetes and heart disease can both affect the eyes. So, I would say you do need to call his doctor. I don't want to sound discouraging, but it does sound as if your husband's condition is entering a new stage. I am praying for you Bonnie and for your dear husband. Hugs......... Diane ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 10:26:51 PM Subject: Re: Bonnie They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 9:44:50 PM Subject: Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible.. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Yes, we have. Seems like it has all come on so fast but I'm sure it has been going on for a long time before we knew it . He was working full time even with the ascites getting so bad up until the day he passed out in Oct. We were aware of the heart problem and he has quadruple bypass 3 years ago. I know too that it can't go anywhere but down from here but you always hope for a better day each day. The Dr told me in the hospital this may be the best I will see him. But he has improved quite abit since then as he could just get out of bed and walk about 6 ft is all at the end of the 2 weeks. Now he can get around by himself so he has gained some strength back. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:01:46 PM Subject: Re: Bonnie Bonnie, It sounds like you've already been through a lot. Your husband has a lot of problems that could affect his eyes. Diabetes and heart disease can both affect the eyes. So, I would say you do need to call his doctor. I don't want to sound discouraging, but it does sound as if your husband's condition is entering a new stage. I am praying for you Bonnie and for your dear husband. Hugs........ . Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:26:51 PM Subject: Re: Bonnie They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant.. We are just going day by day. Hoping for some improvement so he will feel better. ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 9:44:50 PM Subject: Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible.. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information.. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 I know what you mean. My husband was told in Oct., 2007 that he had 6 months at the outside. Well, that's been 13 months now and he's still holding on. He's much sicker, but he's still here with me, thank the Lord. This is a cruel disease and leaves family with so much uncertainty. Please feel free to post anytime with questions or just to vent. We're all in the same boat here just trying to lend support and comfort to each other till we reach the other side. You are in my prayers. Hugs......... Diane ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:10:32 PM Subject: Re: Bonnie Yes, we have. Seems like it has all come on so fast but I'm sure it has been going on for a long time before we knew it . He was working full time even with the ascites getting so bad up until the day he passed out in Oct. We were aware of the heart problem and he has quadruple bypass 3 years ago. I know too that it can't go anywhere but down from here but you always hope for a better day each day. The Dr told me in the hospital this may be the best I will see him. But he has improved quite abit since then as he could just get out of bed and walk about 6 ft is all at the end of the 2 weeks. Now he can get around by himself so he has gained some strength back. ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:01:46 PM Subject: Re: Bonnie Bonnie, It sounds like you've already been through a lot. Your husband has a lot of problems that could affect his eyes. Diabetes and heart disease can both affect the eyes. So, I would say you do need to call his doctor. I don't want to sound discouraging, but it does sound as if your husband's condition is entering a new stage. I am praying for you Bonnie and for your dear husband. Hugs........ . Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:26:51 PM Subject: Re: Bonnie They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant.. We are just going day by day. Hoping for some improvement so he will feel better. ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 9:44:50 PM Subject: Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible.. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 yes, they did the endoscopy in the hospital and they did find varices so they told me to watch for it and to take him to ER right away if he should bleed from them. At the Drs they have acouple pages of lab tests on him. His sodium was low, Bilirubin was some elevated at 1.6, alk was 237, the urine urobilinogen was 3 which they said was high. All the others look like they are in the normal range. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Did they tell you what to look for if the varices do bleed? Sometimes there are very little warning signs. One would be abdominal pain and trouble swallowing though. Have you taken his temperature? Is it normal range? If it gets real low, that is a cause for alarm. MaC Bonnie Luebbe wrote: yes, they did the endoscopy in the hospital and they did find varices so they told me to watch for it and to take him to ER right away if he should bleed from them. At the Drs they have acouple pages of lab tests on him. His sodium was low, Bilirubin was some elevated at 1.6, alk was 237, the urine urobilinogen was 3 which they said was high. All the others look like they are in the normal range. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 I see on the other page of lab tests his MCV was high at 103, MCH was 35 which is alittle high, RDW was 15.8 which is alittle high, Newtrophil was 76.7 which is just above the normal level, and the Lymphocyte was low at 12.5 and the Urine specifcic gravity was 1.014 which is low. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Do you see a BUN reading or Creatinine? Bonnie Luebbe wrote: I see on the other page of lab tests his MCV was high at 103, MCH was 35 which is alittle high, RDW was 15.8 which is alittle high, Newtrophil was 76.7 which is just above the normal level, and the Lymphocyte was low at 12.5 and the Urine specifcic gravity was 1.014 which is low. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Thanks for the support. I've learned so much going through all of this but then it seems have alot of questions yet. I don't think the Drs really know as each person is different on how their bodies react to it. One day I think he looks worse and the next better. Just get my hopes up some and then realize I shouldn't. Up and down!!emotions run high! ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:16:11 PM Subject: Re: Bonnie I know what you mean. My husband was told in Oct., 2007 that he had 6 months at the outside. Well, that's been 13 months now and he's still holding on. He's much sicker, but he's still here with me, thank the Lord. This is a cruel disease and leaves family with so much uncertainty. Please feel free to post anytime with questions or just to vent. We're all in the same boat here just trying to lend support and comfort to each other till we reach the other side. You are in my prayers. Hugs........ . Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:10:32 PM Subject: Re: Bonnie Yes, we have. Seems like it has all come on so fast but I'm sure it has been going on for a long time before we knew it . He was working full time even with the ascites getting so bad up until the day he passed out in Oct. We were aware of the heart problem and he has quadruple bypass 3 years ago. I know too that it can't go anywhere but down from here but you always hope for a better day each day. The Dr told me in the hospital this may be the best I will see him. But he has improved quite abit since then as he could just get out of bed and walk about 6 ft is all at the end of the 2 weeks. Now he can get around by himself so he has gained some strength back. ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:01:46 PM Subject: Re: Bonnie Bonnie, It sounds like you've already been through a lot. Your husband has a lot of problems that could affect his eyes. Diabetes and heart disease can both affect the eyes. So, I would say you do need to call his doctor. I don't want to sound discouraging, but it does sound as if your husband's condition is entering a new stage. I am praying for you Bonnie and for your dear husband. Hugs........ . Diane ____________ _________ _________ __ From: Bonnie Luebbe <blouleyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:26:51 PM Subject: Re: Bonnie They did a glucose test and it was 98. They said he wasn't diabetic yet anyway.. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant... We are just going day by day. Hoping for some improvement so he will feel better. ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 9:44:50 PM Subject: Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible.. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 They just said he may vomit some blood or it could pass out his bowels. Really didn't tell me other signs to watch for on it. I haven't taken his temp.. that's a good idea. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:26:47 PM Subject: Re: Bonnie Did they tell you what to look for if the varices do bleed? Sometimes there are very little warning signs. One would be abdominal pain and trouble swallowing though. Have you taken his temperature? Is it normal range? If it gets real low, that is a cause for alarm. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: yes, they did the endoscopy in the hospital and they did find varices so they told me to watch for it and to take him to ER right away if he should bleed from them. At the Drs they have acouple pages of lab tests on him. His sodium was low, Bilirubin was some elevated at 1.6, alk was 237, the urine urobilinogen was 3 which they said was high. All the others look like they are in the normal range. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Bonnie, I don't want to be alarming, but did the doctors give a reason for using propoxyphene vs something a bit more liver friendly? http://en.wikipedia.org/wiki/Dextropropoxyphene http://www.usdoj.gov/dea/concern/d.html#2 MaC Bonnie Luebbe wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information.. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 At the Dr office last friday I see the creatinine was .8, the BUN 14. when they took them in the hospital his creatinine was 5 when we went in and dismissed it was 2.5. don't have the bun reading in the hospital . in the hospital his ast ws 1315 when entering and 209 when he left. now it is down to 29. and his alt was 104 and 109 when he left hospital and that is also down to 29 now. They didn't give us any other lab test results when we left the hospital. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:28:19 PM Subject: Re: Bonnie Do you see a BUN reading or Creatinine? Bonnie Luebbe <blouleyahoo (DOT) com> wrote: I see on the other page of lab tests his MCV was high at 103, MCH was 35 which is alittle high, RDW was 15.8 which is alittle high, Newtrophil was 76.7 which is just above the normal level, and the Lymphocyte was low at 12.5 and the Urine specifcic gravity was 1.014 which is low. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Ok, my spidey sense just went off! Did they even tell you what the vomit or stools would like? Did they say that most bleeds go unnoticed and are a leading cause of death in cirrhotic patients with bleeding varices? Varices are a life threatening problem and sometimes leave no signs. Having blood looking stools or tarry looking stools is a warning sign of bleeding in the lower intestine. Coffee ground looking vomit is associated with blood in the upper digestive tract/stomach. 911 should be called if you see this. MaC Bonnie Luebbe wrote: They just said he may vomit some blood or it could pass out his bowels. Really didn't tell me other signs to watch for on it. I haven't taken his temp.. that's a good idea. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:26:47 PM Subject: Re: Bonnie Did they tell you what to look for if the varices do bleed? Sometimes there are very little warning signs. One would be abdominal pain and trouble swallowing though. Have you taken his temperature? Is it normal range? If it gets real low, that is a cause for alarm. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: yes, they did the endoscopy in the hospital and they did find varices so they told me to watch for it and to take him to ER right away if he should bleed from them. At the Drs they have acouple pages of lab tests on him. His sodium was low, Bilirubin was some elevated at 1.6, alk was 237, the urine urobilinogen was 3 which they said was high. All the others look like they are in the normal range. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 No, they just gave him this. Thats scary to read those sites! The crazy thing is the Dr. knew he was drinking alcohol since he's doctored with him and yet he prescribed tylenol for his pain(always thought he had aches and pains). Now the Dr in the hospital said the tylenol along with the alcohol would damage his liver even more! ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:41:14 PM Subject: Re: Bonnie Bonnie, I don't want to be alarming, but did the doctors give a reason for using propoxyphene vs something a bit more liver friendly? http://en.wikipedia .org/wiki/ Dextropropoxyphe ne http://www.usdoj. gov/dea/concern/ d.html#2 MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) . com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing.. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Thanks for telling me. No they just said to watch for blood from the mouth or stools. I wouldn't have known to watch for that part. I'll have to really observe. and I'll tell him too when he has his stools to watch for it as I don't see those usually. They just said if I said it to get to the hospital right away. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:47:37 PM Subject: Re: Bonnie Ok, my spidey sense just went off! Did they even tell you what the vomit or stools would like? Did they say that most bleeds go unnoticed and are a leading cause of death in cirrhotic patients with bleeding varices? Varices are a life threatening problem and sometimes leave no signs. Having blood looking stools or tarry looking stools is a warning sign of bleeding in the lower intestine. Coffee ground looking vomit is associated with blood in the upper digestive tract/stomach. 911 should be called if you see this. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They just said he may vomit some blood or it could pass out his bowels. Really didn't tell me other signs to watch for on it. I haven't taken his temp.. that's a good idea. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:26:47 PM Subject: Re: Bonnie Did they tell you what to look for if the varices do bleed? Sometimes there are very little warning signs. One would be abdominal pain and trouble swallowing though. Have you taken his temperature? Is it normal range? If it gets real low, that is a cause for alarm. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: yes, they did the endoscopy in the hospital and they did find varices so they told me to watch for it and to take him to ER right away if he should bleed from them. At the Drs they have acouple pages of lab tests on him. His sodium was low, Bilirubin was some elevated at 1.6, alk was 237, the urine urobilinogen was 3 which they said was high. All the others look like they are in the normal range. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened.. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Bonnie, I am not a doctor, but I read a lot and my wife passed from this disease so I've experienced it but my thoughts or opinions cannot replace that of your doctor. Ok? His liver enzymes according to these tests may be good news or be the result of the liver shrinking in size. Sometimes, liver tests will look normal after the liver loses mass. MaC Bonnie Luebbe wrote: At the Dr office last friday I see the creatinine was .8, the BUN 14. when they took them in the hospital his creatinine was 5 when we went in and dismissed it was 2.5. don't have the bun reading in the hospital . in the hospital his ast ws 1315 when entering and 209 when he left. now it is down to 29. and his alt was 104 and 109 when he left hospital and that is also down to 29 now. They didn't give us any other lab test results when we left the hospital. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:28:19 PM Subject: Re: Bonnie Do you see a BUN reading or Creatinine? Bonnie Luebbe <blouleyahoo (DOT) com> wrote: I see on the other page of lab tests his MCV was high at 103, MCH was 35 which is alittle high, RDW was 15.8 which is alittle high, Newtrophil was 76.7 which is just above the normal level, and the Lymphocyte was low at 12.5 and the Urine specifcic gravity was 1.014 which is low. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Did they say if they " banded " the varices, since they found them? Banding is a procedure that helps prevent them from bleeding. May not stop them, but helps. If they did not, keep documentation regarding this. MaC Bonnie Luebbe wrote: Thanks for telling me. No they just said to watch for blood from the mouth or stools. I wouldn't have known to watch for that part. I'll have to really observe. and I'll tell him too when he has his stools to watch for it as I don't see those usually. They just said if I said it to get to the hospital right away. ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:47:37 PM Subject: Re: Bonnie Ok, my spidey sense just went off! Did they even tell you what the vomit or stools would like? Did they say that most bleeds go unnoticed and are a leading cause of death in cirrhotic patients with bleeding varices? Varices are a life threatening problem and sometimes leave no signs. Having blood looking stools or tarry looking stools is a warning sign of bleeding in the lower intestine. Coffee ground looking vomit is associated with blood in the upper digestive tract/stomach. 911 should be called if you see this. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They just said he may vomit some blood or it could pass out his bowels. Really didn't tell me other signs to watch for on it. I haven't taken his temp.. that's a good idea. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:26:47 PM Subject: Re: Bonnie Did they tell you what to look for if the varices do bleed? Sometimes there are very little warning signs. One would be abdominal pain and trouble swallowing though. Have you taken his temperature? Is it normal range? If it gets real low, that is a cause for alarm. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: yes, they did the endoscopy in the hospital and they did find varices so they told me to watch for it and to take him to ER right away if he should bleed from them. At the Drs they have acouple pages of lab tests on him. His sodium was low, Bilirubin was some elevated at 1.6, alk was 237, the urine urobilinogen was 3 which they said was high. All the others look like they are in the normal range. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened.. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Bonnie, this is very important, but who are they? If it wasn't a hepatologist at a transplant hospital, you might not have gotten geed info. I have no reason to doubt your doctor, except all the people Here I know who didn't get a transplant who could have. Only a transplant surgeon can make the call for sure. LOve. BObby Sent via BlackBerry from T-Mobile Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 When my husband's varices started to bleed, he would just have a little blood in his mouth in the mornings. He thought it was just his gums bleeding or something. I kept telling him it was too much blood and too dard for that. He ended up in the hospital for other reasons and I told the doctor about the bleeding. He immediately sent my husband to the GI lab and performed an endoscopy on him. He found numerous bleeds and banded several (sorry, don't remember exact number) vessels. Watch for the presence of ANY blood in his mouth, especially if it is dark blood as opposed to fresh looking red blood. Hugs........... Diane ________________________________ To: livercirrhosissupport Sent: Monday, November 17, 2008 11:52:27 PM Subject: Re: Bonnie Thanks for telling me. No they just said to watch for blood from the mouth or stools. I wouldn't have known to watch for that part. I'll have to really observe. and I'll tell him too when he has his stools to watch for it as I don't see those usually. They just said if I said it to get to the hospital right away. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:47:37 PM Subject: Re: Bonnie Ok, my spidey sense just went off! Did they even tell you what the vomit or stools would like? Did they say that most bleeds go unnoticed and are a leading cause of death in cirrhotic patients with bleeding varices? Varices are a life threatening problem and sometimes leave no signs. Having blood looking stools or tarry looking stools is a warning sign of bleeding in the lower intestine. Coffee ground looking vomit is associated with blood in the upper digestive tract/stomach. 911 should be called if you see this. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They just said he may vomit some blood or it could pass out his bowels. Really didn't tell me other signs to watch for on it. I haven't taken his temp.. that's a good idea. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:26:47 PM Subject: Re: Bonnie Did they tell you what to look for if the varices do bleed? Sometimes there are very little warning signs. One would be abdominal pain and trouble swallowing though. Have you taken his temperature? Is it normal range? If it gets real low, that is a cause for alarm. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: yes, they did the endoscopy in the hospital and they did find varices so they told me to watch for it and to take him to ER right away if he should bleed from them. At the Drs they have acouple pages of lab tests on him. His sodium was low, Bilirubin was some elevated at 1.6, alk was 237, the urine urobilinogen was 3 which they said was high. All the others look like they are in the normal range. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 11:14:40 PM Subject: Re: Bonnie They did an endoscopy? Did they find varices? On his visit, did they do any lab tests? Do you know which ones? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: he was in this last Friday and he told the Dr about his pain and he gave him propoxyphene to take for it. They put the probe down into his esophagus to check it out before he left the hospital and said he may have trouble with that and bleed from it and to watch for that . So far that hasn't happened.. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:37:31 PM Subject: Re: Bonnie When was the last time he has seen a doctor? I am worried about the statement, stomach/back pain with trouble swallowing. MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: They did a glucose test and it was 98. They said he wasn't diabetic yet anyway. He quit drinking alcohol in April when he had the ascites so bad and in the hospital. They told him at that time he had cirrhosis. They didn't tap him then though and sent him home with duretics. They didn't help and kept getting worse. In Oct. he passed out at home. When he was admitted to ER they said he had liver failure and severe renal failure and his kidneys had shut down. They didn't expect him to make it through the night. After being in the hospital for 2 weeks his kidneys started to function again. T They drained off 7 liters of fluid and took more off with duretics. He lost 66 lbs from Oct until now! He's not eating much, pretty weak, sleeps alot, complains of his stomach & back hurting, and has trouble swallowing sometimes. He also has congestive heart failure. they said beings his other organs were in such bad shape he wouldn't qualify for a transplant as they didn't think he could make it through the surgery. ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 10:11:29 PM Subject: Re: Bonnie Bonnie, I was doing some reading and being that Cirrhosis can cause diabetic problems and even diabetes you may want to ask the doctors if they have done a glucose test for diabetes. Diabetes can cause eye problems. My wife was given a referral to an eye doctor to actually rule out diabetes when she was being treated for her cirrhosis. It's unfortunate to hear your husband was told he was not a candidate. Was he told this by a transplant hospital/team or transplant doctor? Did they give a reason? MaC Bonnie Luebbe <blouleyahoo (DOT) com> wrote: Thanks for the information. . I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I have diabeltes and do blood monitoring 4 times a day with it and also visit the correct doctors when needed. In July I had a vessel that was bleeding causing me to se a dark circle and the special.....forfot what they called him. It was casused from too high sugar that the liver was not processing. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Thanks for the information. I told him to lay there for awhile and to get up slowly. In the morning I'll ask him if he it was that way again. If so going to call the Dr. He was just in for a check up last friday and did all the labs. They have told him he is not a candidate for a transplant. We are just going day by day. Hoping for some improvement so he will feel better. ____________ _________ _________ __ From: abijann <no_reply@yahoogroup s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, November 17, 2008 9:44:50 PM Subject: Bonnie It may be coming from his encephalopathy or it could be a number of other things also. It could be the sugar level in his blood, his blood pressure dropping down, or becoming dehydrated, and there are others. The doctor needs to know this is happening as soon as possible. It could be vertigo also. When he wakes in the morning, he should lie in bed with his eyes close for just a minute before rising. When he goes to get up, he should put his legs out over the side and just sit there for a little bit before trying to get up. Some people have a problem with getting up too fast and the blood pressure dropping down because of it. He should not try to get up if he feels dizzy in anyway. No one here can tell you for sure what is going on. I have vertigo. This is where the room feels like it is spinning around and at times I cannot focus. I do this above and I also put warm wet washcloth soaks on my eyes to relax the muscle of my eyes. I wet a washcloth with very warm water and then place it over my closed eyes and the steam help to relax the muscle in the eye. You could try this and see if it helps him also. Quote Link to comment Share on other sites More sharing options...
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