Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Tina, I'm sorry to say it may be time for him to go to the hospital or call hospice and have them come to the home. MaC Tina wrote: My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 MaC, I agree.....and I'm scared. Mom says he tole her that if he wasn't going to get better, that he would rather go to sleep and not wake up. My heart is breaking. t _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of MaC Sent: Tuesday, November 18, 2008 9:14 PM To: livercirrhosissupport Subject: Re: Update and advice Tina, I'm sorry to say it may be time for him to go to the hospital or call hospice and have them come to the home. MaC Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> wrote: My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Oh, Tina I am so sorry. Will your Mom at least call hospice to help make him more comfortable and help bring her relief also? You are in my thoughts and prayers, MaC Tina wrote: MaC, I agree.....and I'm scared. Mom says he tole her that if he wasn't going to get better, that he would rather go to sleep and not wake up. My heart is breaking. t _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of MaC Sent: Tuesday, November 18, 2008 9:14 PM To: livercirrhosissupport Subject: Re: Update and advice Tina, I'm sorry to say it may be time for him to go to the hospital or call hospice and have them come to the home. MaC Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> wrote: My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I did, Tina. I am sorry to say that it is exactly how Ardis acted in her last weeks. I managed to extend her time by calling 911 and getting her into the hospital, but in my heart I knew it was against her will. They made arrangements for her to go into a skilled nursing facility and because of the around the clock care, and attention to detail about her meds, she managed another two months. I do believe that if I had not called 911, she would have died within 2 or 3 days. I don't regret the decision, though. I think it all happened for a reason. Home is not the place for a liver diseaser to be when they die. There are some here who will disagree with me, thats ok, and then there are some who might take alarm at me saying that, but there is NO way we could have done " it " here in my home, there is no way I could have done as well as the hospice did, and the reason I am saying this, is that inpatient in a hospice is my final wish, and for that reason. It was hard to do it right, keep her clean, and warm and comfortable. Dying hurts, from my experience with it, and they did such a good job of keeping the pain to a minimum. Good luck, and God bless you, though. Love, Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Tuesday, November 18, 2008 12:18:05 PM Subject: Update and advice My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 " The descions are hard to make. A person wants them with us as long as possible but when do you let them go. When we went to ER in Oct. they asked if I wanted to inabate him and put him on a ventilator as they knew he wouldn't be making it otherwise. I said yes, then the Dr said " you know this is a hard decision but the next decision will be harder if he doesn't come around and breathe on his own then I would have to decide how long to leave him on it & when to take him off the ventilator " . That really scared me. He was on it for 4 days and finally they took it off and he was breathing again on his own with oxygen. I know the time will come in the future to make some decisions on what is best for him again. Don't want to think about it. ________________________________ To: livercirrhosissupport Sent: Tuesday, November 18, 2008 9:02:28 PM Subject: Re: Update and advice I did, Tina. I am sorry to say that it is exactly how Ardis acted in her last weeks. I managed to extend her time by calling 911 and getting her into the hospital, but in my heart I knew it was against her will. They made arrangements for her to go into a skilled nursing facility and because of the around the clock care, and attention to detail about her meds, she managed another two months. I do believe that if I had not called 911, she would have died within 2 or 3 days. I don't regret the decision, though. I think it all happened for a reason. Home is not the place for a liver diseaser to be when they die. There are some here who will disagree with me, thats ok, and then there are some who might take alarm at me saying that, but there is NO way we could have done " it " here in my home, there is no way I could have done as well as the hospice did, and the reason I am saying this, is that inpatient in a hospice is my final wish, and for that reason. It was hard to do it right, keep her clean, and warm and comfortable. Dying hurts, from my experience with it, and they did such a good job of keeping the pain to a minimum. Good luck, and God bless you, though. Love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Tina <beadin_beagle@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Tuesday, November 18, 2008 12:18:05 PM Subject: Update and advice My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 she just called 911...he's in the ambulance....I'll keep you posted _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of Bob Aragon Sent: Tuesday, November 18, 2008 10:02 PM To: livercirrhosissupport Subject: Re: Update and advice I did, Tina. I am sorry to say that it is exactly how Ardis acted in her last weeks. I managed to extend her time by calling 911 and getting her into the hospital, but in my heart I knew it was against her will. They made arrangements for her to go into a skilled nursing facility and because of the around the clock care, and attention to detail about her meds, she managed another two months. I do believe that if I had not called 911, she would have died within 2 or 3 days. I don't regret the decision, though. I think it all happened for a reason. Home is not the place for a liver diseaser to be when they die. There are some here who will disagree with me, thats ok, and then there are some who might take alarm at me saying that, but there is NO way we could have done " it " here in my home, there is no way I could have done as well as the hospice did, and the reason I am saying this, is that inpatient in a hospice is my final wish, and for that reason. It was hard to do it right, keep her clean, and warm and comfortable. Dying hurts, from my experience with it, and they did such a good job of keeping the pain to a minimum. Good luck, and God bless you, though. Love, Bobby long life, old age, everything good-Apache prayer ________________________________ From: Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt Sent: Tuesday, November 18, 2008 12:18:05 PM Subject: Update and advice My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 my prayers are with you and your loved one. ________________________________ To: livercirrhosissupport Sent: Tuesday, November 18, 2008 9:19:57 PM Subject: RE: Update and advice she just called 911...he's in the ambulance... .I'll keep you posted _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of Bob Aragon Sent: Tuesday, November 18, 2008 10:02 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Update and advice I did, Tina. I am sorry to say that it is exactly how Ardis acted in her last weeks. I managed to extend her time by calling 911 and getting her into the hospital, but in my heart I knew it was against her will. They made arrangements for her to go into a skilled nursing facility and because of the around the clock care, and attention to detail about her meds, she managed another two months. I do believe that if I had not called 911, she would have died within 2 or 3 days. I don't regret the decision, though. I think it all happened for a reason. Home is not the place for a liver diseaser to be when they die. There are some here who will disagree with me, thats ok, and then there are some who might take alarm at me saying that, but there is NO way we could have done " it " here in my home, there is no way I could have done as well as the hospice did, and the reason I am saying this, is that inpatient in a hospice is my final wish, and for that reason. It was hard to do it right, keep her clean, and warm and comfortable. Dying hurts, from my experience with it, and they did such a good job of keeping the pain to a minimum. Good luck, and God bless you, though. Love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Tuesday, November 18, 2008 12:18:05 PM Subject: Update and advice My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 My thoughts and prayers are with you and your family also. > > my prayers are with you and your loved one. > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Tuesday, November 18, 2008 9:19:57 PM > Subject: RE: Update and advice > > > she just called 911...he's in the ambulance... .I'll keep you posted > > _____ > > From: livercirrhosissuppo rtyahoogroups (DOT) com > [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of Bob Aragon > Sent: Tuesday, November 18, 2008 10:02 PM > To: livercirrhosissuppo rtyahoogroups (DOT) com > Subject: Re: Update and advice > > I did, Tina. I am sorry to say that it is exactly how Ardis acted in her > last weeks. I managed to extend her time by calling 911 and getting her into > the hospital, but in my heart I knew it was against her will. They made > arrangements for her to go into a skilled nursing facility and because of > the around the clock care, and attention to detail about her meds, she > managed another two months. I do believe that if I had not called 911, she > would have died within 2 or 3 days. I don't regret the decision, though. I > think it all happened for a reason. Home is not the place for a liver > diseaser to be when they die. There are some here who will disagree with me, > thats ok, and then there are some who might take alarm at me saying that, > but there is NO way we could have done " it " here in my home, there is no way > I could have done as well as the hospice did, and the reason I am saying > this, is that inpatient in a hospice is my final wish, and for that > reason. It was hard to do it right, keep her clean, and warm and > comfortable. Dying hurts, from my experience with it, and they did such a > good job of keeping the pain to a minimum. Good luck, and God bless you, > though. Love, Bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> > To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> > rtyahoogroups (DOT) com > Sent: Tuesday, November 18, 2008 12:18:05 PM > Subject: Update and advice > > My mom says that my step-dad has pretty much stopped eating since Saturday > and has been in bed all day and night....I just got the e-mail below and > I'm worried b/c he's not taking his heart medications and such. Anyone go > through this sort of experience? > > Tina > > " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. > > That's the first bite of food he has had since early Sat. morn. He hasn't > been out of bedroom since Sat. except I helped him to bathroon a couple > times. He probably hasn't been out of bed for more than total of 20 min. > since Sat. > > Last night I thought he is not going to last until Thanksgiving and I > thought Thansgiving was this Thur. > > He is so shakey and doesn't make a lot of sence when he does say anything. > His eyes were so glassy, hasn't taken his medicine since Sat., says he can't > swallow them. > > I just stay close to bedroom or in there. It is so sad. Love you " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 We are all right here with you Tina. MaC Tina wrote: she just called 911...he's in the ambulance....I'll keep you posted _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of Bob Aragon Sent: Tuesday, November 18, 2008 10:02 PM To: livercirrhosissupport Subject: Re: Update and advice I did, Tina. I am sorry to say that it is exactly how Ardis acted in her last weeks. I managed to extend her time by calling 911 and getting her into the hospital, but in my heart I knew it was against her will. They made arrangements for her to go into a skilled nursing facility and because of the around the clock care, and attention to detail about her meds, she managed another two months. I do believe that if I had not called 911, she would have died within 2 or 3 days. I don't regret the decision, though. I think it all happened for a reason. Home is not the place for a liver diseaser to be when they die. There are some here who will disagree with me, thats ok, and then there are some who might take alarm at me saying that, but there is NO way we could have done " it " here in my home, there is no way I could have done as well as the hospice did, and the reason I am saying this, is that inpatient in a hospice is my final wish, and for that reason. It was hard to do it right, keep her clean, and warm and comfortable. Dying hurts, from my experience with it, and they did such a good job of keeping the pain to a minimum. Good luck, and God bless you, though. Love, Bobby long life, old age, everything good-Apache prayer ________________________________ From: Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt Sent: Tuesday, November 18, 2008 12:18:05 PM Subject: Update and advice My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Tina - medications which don't come in capsules can be crushed and added to food to make them easier to eat. After my carotid artery surgery, I couldn't eat solid foods or take my pills for 6 weeks. I put my meds in jelly, particularly liked strawberry or grape since they have a stronger taste and cover up the taste of the meds. Anything in a capsule should be checked to see if you can take the med out. I know some can't be because they burn the throat. Jan H > My mom says that my step-dad has pretty much stopped eating since > Saturday > and has been in bed all day and night....I just got the e-mail below and > I'm worried b/c he's not taking his heart medications and such. Anyone go > through this sort of experience? > > Tina > > " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. > > That's the first bite of food he has had since early Sat. morn. He hasn't > been out of bedroom since Sat. except I helped him to bathroon a couple > times. He probably hasn't been out of bed for more than total of 20 min. > since Sat. > > Last night I thought he is not going to last until Thanksgiving and I > thought Thansgiving was this Thur. > > He is so shakey and doesn't make a lot of sence when he does say anything. > His eyes were so glassy, hasn't taken his medicine since Sat., says he > can't > swallow them. > > I just stay close to bedroom or in there. It is so sad. Love you " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Tina, my heart aches for you sweetie. It is so hard to give up those we love. My husband has the same attitude about this as does your stepdad. It is so hard to just sit by and let him go without DOING anything. I think in our culture, we are so wired to DO something, anything at all, to avoid death. It is hard for us to accept when someone reaches a point where they are at peace with dying. I just wish I could get the same peace about his dying as he has. I am praying for you sweetheart and for your Mom and your stepdad. I pray the process is quick and as painless as possible for your stepdad. I know that, no matter what happens, it will seem endless for you and the pain will be immeasureable. Love and hugs............ Diane ________________________________ To: livercirrhosissupport Sent: Tuesday, November 18, 2008 8:39:05 PM Subject: RE: Update and advice MaC, I agree.....and I'm scared. Mom says he tole her that if he wasn't going to get better, that he would rather go to sleep and not wake up. My heart is breaking. t _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of MaC Sent: Tuesday, November 18, 2008 9:14 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Update and advice Tina, I'm sorry to say it may be time for him to go to the hospital or call hospice and have them come to the home. MaC Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> wrote: My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Thanks everyone. He has pneumonia and they have admitted him. I'm glad he's there and they have him on IV's. I'm sure they can administer his heart meds intravenously too. I want to go up there but I have my Remicade treatment this morning and she would rather me get my medication before all of this stress brings on a flare-up of my Crohn's. Much love, Tina _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of Tina Sent: Tuesday, November 18, 2008 10:20 PM To: livercirrhosissupport Subject: RE: Update and advice she just called 911...he's in the ambulance....I'll keep you posted _____ From: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt [mailto:livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt ] On Behalf Of Bob Aragon Sent: Tuesday, November 18, 2008 10:02 PM To: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt Subject: Re: Update and advice I did, Tina. I am sorry to say that it is exactly how Ardis acted in her last weeks. I managed to extend her time by calling 911 and getting her into the hospital, but in my heart I knew it was against her will. They made arrangements for her to go into a skilled nursing facility and because of the around the clock care, and attention to detail about her meds, she managed another two months. I do believe that if I had not called 911, she would have died within 2 or 3 days. I don't regret the decision, though. I think it all happened for a reason. Home is not the place for a liver diseaser to be when they die. There are some here who will disagree with me, thats ok, and then there are some who might take alarm at me saying that, but there is NO way we could have done " it " here in my home, there is no way I could have done as well as the hospice did, and the reason I am saying this, is that inpatient in a hospice is my final wish, and for that reason. It was hard to do it right, keep her clean, and warm and comfortable. Dying hurts, from my experience with it, and they did such a good job of keeping the pain to a minimum. Good luck, and God bless you, though. Love, Bobby long life, old age, everything good-Apache prayer ________________________________ From: Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rtyahoogroups (DOT) <mailto:rt%40yahoogroups.com> com Sent: Tuesday, November 18, 2008 12:18:05 PM Subject: Update and advice My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Hi Tina, I agree with your Mom. Take care of yourself. Your stepdad is in good hands and they are seeing to his needs. The situation may get worse and your Mom will need you then. Skipping your treatment could be devestating to your own health, which would then make things even harder on your Mom. I'm praying for you and for your Mom and stepdad. Take care of yourself so you can help take care of them. Love and hugs.......... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 19, 2008 5:52:02 AM Subject: RE: Update and advice Thanks everyone. He has pneumonia and they have admitted him. I'm glad he's there and they have him on IV's. I'm sure they can administer his heart meds intravenously too. I want to go up there but I have my Remicade treatment this morning and she would rather me get my medication before all of this stress brings on a flare-up of my Crohn's. Much love, Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of Tina Sent: Tuesday, November 18, 2008 10:20 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: RE: Update and advice she just called 911...he's in the ambulance... .I'll keep you posted _____ From: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com [mailto:livercirrho sissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com] On Behalf Of Bob Aragon Sent: Tuesday, November 18, 2008 10:02 PM To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Subject: Re: Update and advice I did, Tina. I am sorry to say that it is exactly how Ardis acted in her last weeks. I managed to extend her time by calling 911 and getting her into the hospital, but in my heart I knew it was against her will. They made arrangements for her to go into a skilled nursing facility and because of the around the clock care, and attention to detail about her meds, she managed another two months. I do believe that if I had not called 911, she would have died within 2 or 3 days. I don't regret the decision, though. I think it all happened for a reason. Home is not the place for a liver diseaser to be when they die. There are some here who will disagree with me, thats ok, and then there are some who might take alarm at me saying that, but there is NO way we could have done " it " here in my home, there is no way I could have done as well as the hospice did, and the reason I am saying this, is that inpatient in a hospice is my final wish, and for that reason. It was hard to do it right, keep her clean, and warm and comfortable. Dying hurts, from my experience with it, and they did such a good job of keeping the pain to a minimum. Good luck, and God bless you, though. Love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) <mailto:rt%40yahoog roups.com> com Sent: Tuesday, November 18, 2008 12:18:05 PM Subject: Update and advice My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 tina ,i am glad she got him to the hospital and he is recieving the care he needs, you take care of yourself, stress is a killer for chrohns i know my daughter has it and also gets remicade infusions,you can go up after, so does the remicade help you back to remission? its the only thing that helps erica when she gets into full blown active state,its a terrable disease to endure i know that sweetie so you take care of yourself,much love barby > > Thanks everyone. He has pneumonia and they have admitted him. I'm glad > he's there and they have him on IV's. I'm sure they can administer his > heart meds intravenously too. > > I want to go up there but I have my Remicade treatment this morning and she > would rather me get my medication before all of this stress brings on a > flare-up of my Crohn's. > > Much love, > Tina > > _____ > > From: livercirrhosissupport > [mailto:livercirrhosissupport ] On Behalf Of Tina > Sent: Tuesday, November 18, 2008 10:20 PM > To: livercirrhosissupport > Subject: RE: Update and advice > > > > she just called 911...he's in the ambulance....I'll keep you posted > > _____ > > From: livercirrhosissuppo <mailto:livercirrhosissupport% 40yahoogroups.com> > rt > [mailto:livercirrhosissuppo <mailto:livercirrhosissupport% 40yahoogroups.com> > rt ] On Behalf Of Bob Aragon > Sent: Tuesday, November 18, 2008 10:02 PM > To: livercirrhosissuppo <mailto:livercirrhosissupport% 40yahoogroups.com> > rt > Subject: Re: Update and advice > > I did, Tina. I am sorry to say that it is exactly how Ardis acted in her > last weeks. I managed to extend her time by calling 911 and getting her into > the hospital, but in my heart I knew it was against her will. They made > arrangements for her to go into a skilled nursing facility and because of > the around the clock care, and attention to detail about her meds, she > managed another two months. I do believe that if I had not called 911, she > would have died within 2 or 3 days. I don't regret the decision, though. I > think it all happened for a reason. Home is not the place for a liver > diseaser to be when they die. There are some here who will disagree with me, > thats ok, and then there are some who might take alarm at me saying that, > but there is NO way we could have done " it " here in my home, there is no way > I could have done as well as the hospice did, and the reason I am saying > this, is that inpatient in a hospice is my final wish, and for that > reason. It was hard to do it right, keep her clean, and warm and > comfortable. Dying hurts, from my experience with it, and they did such a > good job of keeping the pain to a minimum. Good luck, and God bless you, > though. Love, Bobby > > long life, old age, everything good-Apache prayer > > ________________________________ > From: Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> > To: livercirrhosissuppo <mailto:livercirrhosissupport% 40yahoogroups.com> > rtyahoogroups (DOT) <mailto:rt%40yahoogroups.com> com > Sent: Tuesday, November 18, 2008 12:18:05 PM > Subject: Update and advice > > My mom says that my step-dad has pretty much stopped eating since Saturday > and has been in bed all day and night....I just got the e-mail below and > I'm worried b/c he's not taking his heart medications and such. Anyone go > through this sort of experience? > > Tina > > " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. > > That's the first bite of food he has had since early Sat. morn. He hasn't > been out of bedroom since Sat. except I helped him to bathroon a couple > times. He probably hasn't been out of bed for more than total of 20 min. > since Sat. > > Last night I thought he is not going to last until Thanksgiving and I > thought Thansgiving was this Thur. > > He is so shakey and doesn't make a lot of sence when he does say anything. > His eyes were so glassy, hasn't taken his medicine since Sat., says he can't > swallow them. > > I just stay close to bedroom or in there. It is so sad. Love you " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Thanks for all the encouragement and advice. They found some blood clots in his legs and they are doing a procedure at 2pm today to put in some sort of filters (???). Also said his liver and kidneys were shutting down. I got my Remicade and I'm home to pack and head up to there house. Tina _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of pinkmeetsblue Sent: Wednesday, November 19, 2008 12:14 PM To: livercirrhosissupport Subject: Re: Update and advice tina ,i am glad she got him to the hospital and he is recieving the care he needs, you take care of yourself, stress is a killer for chrohns i know my daughter has it and also gets remicade infusions,you can go up after, so does the remicade help you back to remission? its the only thing that helps erica when she gets into full blown active state,its a terrable disease to endure i know that sweetie so you take care of yourself,much love barby > > Thanks everyone. He has pneumonia and they have admitted him. I'm glad > he's there and they have him on IV's. I'm sure they can administer his > heart meds intravenously too. > > I want to go up there but I have my Remicade treatment this morning and she > would rather me get my medication before all of this stress brings on a > flare-up of my Crohn's. > > Much love, > Tina > > _____ > > From: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt > [mailto:livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt ] On Behalf Of Tina > Sent: Tuesday, November 18, 2008 10:20 PM > To: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt > Subject: RE: Update and advice > > > > she just called 911...he's in the ambulance....I'll keep you posted > > _____ > > From: livercirrhosissuppo <mailto:livercirrhosissupport% 40yahoogroups.com> > rtyahoogroups (DOT) <mailto:rt%40yahoogroups.com> com > [mailto:livercirrhosissuppo <mailto:livercirrhosissupport% 40yahoogroups.com> > rtyahoogroups (DOT) <mailto:rt%40yahoogroups.com> com] On Behalf Of Bob Aragon > Sent: Tuesday, November 18, 2008 10:02 PM > To: livercirrhosissuppo <mailto:livercirrhosissupport% 40yahoogroups.com> > rtyahoogroups (DOT) <mailto:rt%40yahoogroups.com> com > Subject: Re: Update and advice > > I did, Tina. I am sorry to say that it is exactly how Ardis acted in her > last weeks. I managed to extend her time by calling 911 and getting her into > the hospital, but in my heart I knew it was against her will. They made > arrangements for her to go into a skilled nursing facility and because of > the around the clock care, and attention to detail about her meds, she > managed another two months. I do believe that if I had not called 911, she > would have died within 2 or 3 days. I don't regret the decision, though. I > think it all happened for a reason. Home is not the place for a liver > diseaser to be when they die. There are some here who will disagree with me, > thats ok, and then there are some who might take alarm at me saying that, > but there is NO way we could have done " it " here in my home, there is no way > I could have done as well as the hospice did, and the reason I am saying > this, is that inpatient in a hospice is my final wish, and for that > reason. It was hard to do it right, keep her clean, and warm and > comfortable. Dying hurts, from my experience with it, and they did such a > good job of keeping the pain to a minimum. Good luck, and God bless you, > though. Love, Bobby > > long life, old age, everything good-Apache prayer > > ________________________________ > From: Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> > To: livercirrhosissuppo <mailto:livercirrhosissupport% 40yahoogroups.com> > rtyahoogroups (DOT) <mailto:rt%40yahoogroups.com> com > Sent: Tuesday, November 18, 2008 12:18:05 PM > Subject: Update and advice > > My mom says that my step-dad has pretty much stopped eating since Saturday > and has been in bed all day and night....I just got the e-mail below and > I'm worried b/c he's not taking his heart medications and such. Anyone go > through this sort of experience? > > Tina > > " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. > > That's the first bite of food he has had since early Sat. morn. He hasn't > been out of bedroom since Sat. except I helped him to bathroon a couple > times. He probably hasn't been out of bed for more than total of 20 min. > since Sat. > > Last night I thought he is not going to last until Thanksgiving and I > thought Thansgiving was this Thur. > > He is so shakey and doesn't make a lot of sence when he does say anything. > His eyes were so glassy, hasn't taken his medicine since Sat., says he can't > swallow them. > > I just stay close to bedroom or in there. It is so sad. Love you " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Have a safe trip. My prayers go with you. Hugs.......... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 19, 2008 1:14:16 PM Subject: RE: Update and advice Thanks for all the encouragement and advice. They found some blood clots in his legs and they are doing a procedure at 2pm today to put in some sort of filters (???). Also said his liver and kidneys were shutting down. I got my Remicade and I'm home to pack and head up to there house. Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of pinkmeetsblue Sent: Wednesday, November 19, 2008 12:14 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Update and advice tina ,i am glad she got him to the hospital and he is recieving the care he needs, you take care of yourself, stress is a killer for chrohns i know my daughter has it and also gets remicade infusions,you can go up after, so does the remicade help you back to remission? its the only thing that helps erica when she gets into full blown active state,its a terrable disease to endure i know that sweetie so you take care of yourself,much love barby > > Thanks everyone. He has pneumonia and they have admitted him. I'm glad > he's there and they have him on IV's. I'm sure they can administer his > heart meds intravenously too. > > I want to go up there but I have my Remicade treatment this morning and she > would rather me get my medication before all of this stress brings on a > flare-up of my Crohn's. > > Much love, > Tina > > _____ > > From: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com > [mailto:livercirrho sissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com] On Behalf Of Tina > Sent: Tuesday, November 18, 2008 10:20 PM > To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com > Subject: RE: Update and advice > > > > she just called 911...he's in the ambulance... .I'll keep you posted > > _____ > > From: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> > rtyahoogroups (DOT) <mailto:rt%40yahoog roups.com> com > [mailto:livercirrho sissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> > rtyahoogroups (DOT) <mailto:rt%40yahoog roups.com> com] On Behalf Of Bob Aragon > Sent: Tuesday, November 18, 2008 10:02 PM > To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> > rtyahoogroups (DOT) <mailto:rt%40yahoog roups.com> com > Subject: Re: Update and advice > > I did, Tina. I am sorry to say that it is exactly how Ardis acted in her > last weeks. I managed to extend her time by calling 911 and getting her into > the hospital, but in my heart I knew it was against her will. They made > arrangements for her to go into a skilled nursing facility and because of > the around the clock care, and attention to detail about her meds, she > managed another two months. I do believe that if I had not called 911, she > would have died within 2 or 3 days. I don't regret the decision, though. I > think it all happened for a reason. Home is not the place for a liver > diseaser to be when they die. There are some here who will disagree with me, > thats ok, and then there are some who might take alarm at me saying that, > but there is NO way we could have done " it " here in my home, there is no way > I could have done as well as the hospice did, and the reason I am saying > this, is that inpatient in a hospice is my final wish, and for that > reason. It was hard to do it right, keep her clean, and warm and > comfortable. Dying hurts, from my experience with it, and they did such a > good job of keeping the pain to a minimum. Good luck, and God bless you, > though. Love, Bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> > To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> > rtyahoogroups (DOT) <mailto:rt%40yahoog roups.com> com > Sent: Tuesday, November 18, 2008 12:18:05 PM > Subject: Update and advice > > My mom says that my step-dad has pretty much stopped eating since Saturday > and has been in bed all day and night....I just got the e-mail below and > I'm worried b/c he's not taking his heart medications and such. Anyone go > through this sort of experience? > > Tina > > " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. > > That's the first bite of food he has had since early Sat. morn. He hasn't > been out of bedroom since Sat. except I helped him to bathroon a couple > times. He probably hasn't been out of bed for more than total of 20 min. > since Sat. > > Last night I thought he is not going to last until Thanksgiving and I > thought Thansgiving was this Thur. > > He is so shakey and doesn't make a lot of sence when he does say anything. > His eyes were so glassy, hasn't taken his medicine since Sat., says he can't > swallow them. > > I just stay close to bedroom or in there. It is so sad. Love you " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 You have my hugs and prayers with you! Lyncia  In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: RE: Update and advice To: livercirrhosissupport Date: Wednesday, November 19, 2008, 5:52 AM Thanks everyone. He has pneumonia and they have admitted him. I'm glad he's there and they have him on IV's. I'm sure they can administer his heart meds intravenously too. I want to go up there but I have my Remicade treatment this morning and she would rather me get my medication before all of this stress brings on a flare-up of my Crohn's. Much love, Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of Tina Sent: Tuesday, November 18, 2008 10:20 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: RE: Update and advice she just called 911...he's in the ambulance... .I'll keep you posted _____ From: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com [mailto:livercirrho sissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com] On Behalf Of Bob Aragon Sent: Tuesday, November 18, 2008 10:02 PM To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Subject: Re: Update and advice I did, Tina. I am sorry to say that it is exactly how Ardis acted in her last weeks. I managed to extend her time by calling 911 and getting her into the hospital, but in my heart I knew it was against her will. They made arrangements for her to go into a skilled nursing facility and because of the around the clock care, and attention to detail about her meds, she managed another two months. I do believe that if I had not called 911, she would have died within 2 or 3 days. I don't regret the decision, though. I think it all happened for a reason. Home is not the place for a liver diseaser to be when they die. There are some here who will disagree with me, thats ok, and then there are some who might take alarm at me saying that, but there is NO way we could have done " it " here in my home, there is no way I could have done as well as the hospice did, and the reason I am saying this, is that inpatient in a hospice is my final wish, and for that reason. It was hard to do it right, keep her clean, and warm and comfortable. Dying hurts, from my experience with it, and they did such a good job of keeping the pain to a minimum. Good luck, and God bless you, though. Love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) <mailto:rt%40yahoog roups.com> com Sent: Tuesday, November 18, 2008 12:18:05 PM Subject: Update and advice My mom says that my step-dad has pretty much stopped eating since Saturday and has been in bed all day and night....I just got the e-mail below and I'm worried b/c he's not taking his heart medications and such. Anyone go through this sort of experience? Tina " Ed finally ate 2 or 3 bites of chicken salad and drank a little V8 splash. That's the first bite of food he has had since early Sat. morn. He hasn't been out of bedroom since Sat. except I helped him to bathroon a couple times. He probably hasn't been out of bed for more than total of 20 min. since Sat. Last night I thought he is not going to last until Thanksgiving and I thought Thansgiving was this Thur. He is so shakey and doesn't make a lot of sence when he does say anything. His eyes were so glassy, hasn't taken his medicine since Sat., says he can't swallow them. I just stay close to bedroom or in there. It is so sad. Love you " Quote Link to comment Share on other sites More sharing options...
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