Guest guest Posted April 19, 1999 Report Share Posted April 19, 1999 In both medical and psychological literature, the focus on treatment interventions for chronic pain is largely directed at the patient who suffers with the pain. Research time and dollars are devoted to finding the best treatments, medications, and surgical interventions to decrease the pain experience for these special patients. Although suffering daily with pain is certainly a devastating and consuming problem for people with pain, there are other individuals who also suffer with the curse of chronic pain. These people the significant others and loved ones of the patient with chronic pain. Patients with chronic pain often suffer loss of function, employment, and financial security, to name a few. For many, these losses are not experienced alone. The spouses, children, and parents of these patients are also dramatically affected. Loss of function for the person with pain can result in an increased burden for their significant others. Often significant others must increase their responsibilities to maintain the life-style that the family, prior to the onset of chronic pain, was accustomed to. This adds to the multiple roles that many of us already experience. When the person with chronic pain is no longer able to work the same number of hours, or perhaps, even work at all, this adds to a reduction in income that dramatically affects all members of the family. It is not unusual for the significant others of these patients to take on extra employment to subsidize the loss of income. The loss of financial security speaks for itself in terms of its negative impact on all involved. Besides dealing with chronic pain, many of these patients experience guilt, anger, and despair as they notice how their symptoms are a " burden " to their family. While the person suffering with chronic pain often experiences depression, anxiety, and resentment, the significant others of these patients also experience similar symptoms - but for different reasons. Children, in particular, are negatively affected. Their parent with chronic pain is not able to be as readily available. Pain often negatively affects the mood of the patient and that impacts their children. This can lead to developmental and behavioral problems for many children in these families. Often, relationships undergo considerable strain when one of the partners has chronic pain. This can lead to separation and even divorce. The problems for patients with chronic pain far exceed their pain alone! Three areas that need to be addressed when coping with chronic pain and its impact on significant others include first, including the family members in treatment planning. As a patient alerting your physician to concerns you may have about the impact of your pain on your family can be a starting point. Health care providers are accustomed to dealing with the complexities of disease and how it affects all concerned. They should be able to assist with the appropriate intervention/education which can proactively address problems in the future. Secondly, opening lines of communication between yourself and your loved ones can be most helpful. The more they know about what you are experiencing (not just how much pain you are in) the better they will be able to understand your experience. Finally, as the patient, it may be helpful for you to seek out assistance to help you cope more effectively with your frustration, depression, or anxiety. Accepting the hard reality that your life-style (and your family's life-style) may need to undergo considerable adjustments due to the nature of your chronic pain will allow for a more flexible response to the changes that pain brings. Dr. Rita Cowan, Ph.D. is a Psychologist and Registered Nurse who specializes in Health Psychology at The Falls Pain Management Center, Cuyahoga Falls General Hospital. (216) 375-7721. Quote Link to comment Share on other sites More sharing options...
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