Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 This is from Congresswoman Mc 's newsletter: Push for More Information for Parents Today, as you can see, my son Cole is a healthy, rambunctious boy who celebrated his first birthday in April. My husband and I are always amazed at the joy he brings to our life. However, when we first learned Cole had Down syndrome, the news was shocking. The doctors gathered us in a room and gave us a long list of the medical and physical challenges Cole might face. That is why in September I stood on the floor of the House of Representatives and asked my colleagues to support a bill that would help parents get accurate and up-to-date information when there is a diagnosis prenatally or postnatally of a genetic disorder or abnormality. You can watch my speech here.The Prenatally and Postnatally Diagnosed Conditions Awareness Act (S. 1810): Provides for the establishment of a resource telephone hotline, a web site, and the expansion of information clearinghouses in disabilities; Provides for the expansion and development of national and local parent support programs; Establishes a national registry of parents willing to adopt children with these disabilities; Establishes awareness and education programs for health care providers who give parents the results of these tests. The House passed the bill by a voice vote and it now awaits the President’s signature. Quote Link to comment Share on other sites More sharing options...
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