Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable...I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or exist with it? some people have no choice and the choice is not ours to make. I mean no harm and i pray my words were proper i had to vent...some...for my heart does hurt. Do you still care for me:) love in Christ sandra ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 7:21:58 AM Subject: Why why do some people die and other fair ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 ohhh sandy girl of course i still care about you honey!!!! you sound so sad this morning, who said that to you?! that was cruel, people dont live forever with esld, and it does seem to be a cloud luming over us.but nobody should make such a rude comment esp. to a wife of a human being suffering from the hidious disease, i am very upset that someone upset you like that,phoo-ey on them!!!!!you have all of us here and we love you and know how hard it is to keep your spirits up all the time as we all have our days of cloudiness,i am sorry you guys are stuggling with the cramping and tiredness ,bobby glen and i too do that dance alot of the time,he gets so mad that he cant sleep its sad to watch i know.we all suffer but we have each other to lean on thank goodness!i am praying for you guys honey hang in there the clouds will part and the sun will shine soon ,just hang in there honey,much love and hugs barby > > I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable...I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to make. > > I mean no harm and i pray my words were proper i had to vent...some...for my heart does hurt. Do you still care for me:) > > love in Christ sandra > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 and smile ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 8:50:13 AM Subject: Re: Why ohhh sandy girl of course i still care about you honey!!!! you sound so sad this morning, who said that to you?! that was cruel, people dont live forever with esld, and it does seem to be a cloud luming over us.but nobody should make such a rude comment esp. to a wife of a human being suffering from the hidious disease, i am very upset that someone upset you like that,phoo-ey on them!!!!!you have all of us here and we love you and know how hard it is to keep your spirits up all the time as we all have our days of cloudiness,i am sorry you guys are stuggling with the cramping and tiredness ,bobby glen and i too do that dance alot of the time,he gets so mad that he cant sleep its sad to watch i know.we all suffer but we have each other to lean on thank goodness!i am praying for you guys honey hang in there the clouds will part and the sun will shine soon ,just hang in there honey,much love and hugs barby > > I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) > > love in Christ sandra > > > > > ____________ _________ _________ __ > From: sandra <sgonz48@... > > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 yu made me cry ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 8:50:13 AM Subject: Re: Why ohhh sandy girl of course i still care about you honey!!!! you sound so sad this morning, who said that to you?! that was cruel, people dont live forever with esld, and it does seem to be a cloud luming over us.but nobody should make such a rude comment esp. to a wife of a human being suffering from the hidious disease, i am very upset that someone upset you like that,phoo-ey on them!!!!!you have all of us here and we love you and know how hard it is to keep your spirits up all the time as we all have our days of cloudiness,i am sorry you guys are stuggling with the cramping and tiredness ,bobby glen and i too do that dance alot of the time,he gets so mad that he cant sleep its sad to watch i know.we all suffer but we have each other to lean on thank goodness!i am praying for you guys honey hang in there the clouds will part and the sun will shine soon ,just hang in there honey,much love and hugs barby > > I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps....he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) > > love in Christ sandra > > > > > ____________ _________ _________ __ > From: sandra <sgonz48@... > > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 i do not look for death...My husband LIVES every day and we laugh every day and love every day...but it does happen from time to time depending on the circumstance...and yes there is a definite thunder cloud but we carry an umbrella Called Jesus. I am not worried... it is that i have seen lots since i have been here. and as a person who works in the medical field i do see a little too much...my husband does not want to realize any thing and that is OK. Love sandra ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 8:50:13 AM Subject: Re: Why ohhh sandy girl of course i still care about you honey!!!! you sound so sad this morning, who said that to you?! that was cruel, people dont live forever with esld, and it does seem to be a cloud luming over us.but nobody should make such a rude comment esp. to a wife of a human being suffering from the hidious disease, i am very upset that someone upset you like that,phoo-ey on them!!!!!you have all of us here and we love you and know how hard it is to keep your spirits up all the time as we all have our days of cloudiness,i am sorry you guys are stuggling with the cramping and tiredness ,bobby glen and i too do that dance alot of the time,he gets so mad that he cant sleep its sad to watch i know.we all suffer but we have each other to lean on thank goodness!i am praying for you guys honey hang in there the clouds will part and the sun will shine soon ,just hang in there honey,much love and hugs barby > > I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) > > love in Christ sandra > > > > > ____________ _________ _________ __ > From: sandra <sgonz48@... > > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 I dont know why people do this. It is insensitive. It's not that we want to die, but we cant live with our heads buried in the sand either. I have adjusted my thinking to expect death, and thus have a better life as a result. Not one day to waste. love bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 5:47:26 AM Subject: Re: Why I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or exist with it? some people have no choice and the choice is not ours to make. I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) love in Christ sandra ____________ _________ _________ __ From: sandra <sgonz48yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, November 22, 2008 7:21:58 AM Subject: Why why do some people die and other fair ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Hi , I'm sorry someone made such a remark to you. Those people don't know the facts about cirrhosis, or maybe they have heard of people who have it and live a long time, but that is not always the case, as we all are very aware of. If we lived forever with cirrhosis, I wouldn't have needed a transplant. I'm sure I wouldn't be here right now if I didn't get a transplant, and you never know how long that will even last for anybody. I, as you know, have Hep C, and have to be treated so my new liver doesn't succomb to cirrhosis as my old liver did, and that is no guarantee. If the treatment doesn't stop the virus, I could be back in the same boat again as I was before the transplant. I'm hoping that I will clear the virus, so that doesn't happen. I know many people who tell me that I had a liver transplant so I have nothing else to worry about, but they are so wrong. A liver transplant does not cure Hepatitis C. The virus can come harder and stronger after a transplant than before, where as it took 25 years to develop cirrhosis and my liver to fail, now after the transplant, the new liver can become cirrhotic in as short as a couple of years if the virus isn't cleared. I understand completely how that made you feel. Everyone should be better educated in this so people don't make assumptions and think they know it all when they don't. Sorry, this just got me going a bit because I have experienced the same type of thing. Of course, we all care about you. I'm sure we all have had to deal with such ignorance at one time or another and understand why you had to vent. Vent all you want. That's why we're all here for each other to vent, right? Take care. Penny > > I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable...I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to make. > > I mean no harm and i pray my words were proper i had to vent...some...for my heart does hurt. Do you still care for me:) > > love in Christ sandra > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Well, I my DH has cirrhosis and I have ended up with an ulcer. My GP saw me yesterday and I am seeing a gastroenterologist Wed. to have the talk before he schedules the endoscopy. Yippee.!! I just give up. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. Subject: Re: Why To: livercirrhosissupport Date: Saturday, November 22, 2008, 7:47 AM I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or exist with it? some people have no choice and the choice is not ours to make. I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) love in Christ sandra ____________ _________ _________ __ From: sandra <sgonz48yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, November 22, 2008 7:21:58 AM Subject: Why why do some people die and other fair ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 WOW! That is the question of the ages! I think all of us wish we had the answer to that question. For me personally, I believe that each of us has a purpose to fulfill while here on this earth. Once we fulfill that purpose, then we move from this earth to our eternal destination. We have no control over how long we will be here, but we do have control over the eternal destination of our souls. Our existence here is our opportunity to prepare for our existence in eternity. That's how I see it. Hugs........... Diane ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 6:21:58 AM Subject: Why why do some people die and other fair ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Absolutely, we still care for you ! Venting is one of the reasons we're all here. We understand when no one else does. The things you have said make so much sense to me. I think we have all probably gone through what you are right now, when someone was insensitive to us or our loved one. Perhaps that person didn't mean to be insensitive, but they were. It hurts us and causes us to have to think of the mortality of this disease. I think this happens with any disease or chronic condition that causes suffering. Those who are suffering or are not dealing with it day in and day out do not, and perhaps cannot, understand. So, please don't feel bad. This is our safe place, no bad feeling allowed! I'm praying for you and your dh. Hugs............. Diane ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 6:47:26 AM Subject: Re: Why I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or exist with it? some people have no choice and the choice is not ours to make. I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) love in Christ sandra ____________ _________ _________ __ From: sandra <sgonz48yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, November 22, 2008 7:21:58 AM Subject: Why why do some people die and other fair ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 We don't look for death either, but we are practical about the whole thing. Maybe that's because my husband made the decision early on that he would not try for a transplant. It was a complicated and difficult decision to make, but it was the only one he felt he could live with. Therefore, we live with the certain knowledge that, unless the Lord performs a miracle and heals him, my husband will die of cirrhosis at some point. He has already out-lived medical predictions. We try to live every day to it's fullest and be thankful for each day we have together. Other than that, we just go on with our lives and try not to dwell on anything negative. Maintaining a positive attitude is so important to anyone's well-being, whether suffering with an horrid disease or not. Hugs........ Diane ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 8:16:25 AM Subject: Re: Why i do not look for death...My husband LIVES every day and we laugh every day and love every day...but it does happen from time to time depending on the circumstance. ..and yes there is a definite thunder cloud but we carry an umbrella Called Jesus. I am not worried... it is that i have seen lots since i have been here. and as a person who works in the medical field i do see a little too much...my husband does not want to realize any thing and that is OK. Love sandra ____________ _________ _________ __ From: pinkmeetsblue <itsabnbthing@ bellsouth. net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, November 22, 2008 8:50:13 AM Subject: Re: Why ohhh sandy girl of course i still care about you honey!!!! you sound so sad this morning, who said that to you?! that was cruel, people dont live forever with esld, and it does seem to be a cloud luming over us.but nobody should make such a rude comment esp. to a wife of a human being suffering from the hidious disease, i am very upset that someone upset you like that,phoo-ey on them!!!!!you have all of us here and we love you and know how hard it is to keep your spirits up all the time as we all have our days of cloudiness,i am sorry you guys are stuggling with the cramping and tiredness ,bobby glen and i too do that dance alot of the time,he gets so mad that he cant sleep its sad to watch i know.we all suffer but we have each other to lean on thank goodness!i am praying for you guys honey hang in there the clouds will part and the sun will shine soon ,just hang in there honey,much love and hugs barby > > I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) > > love in Christ sandra > > > > > ____________ _________ _________ __ > From: sandra <sgonz48@... > > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Oh, Jill, I'm so sorry! Please believe me, I know what you're going through! I was diagnosed with one in Oct. No fun whatsoever! Take care of yourself sweetie. I know the stress is horrid and it's not easy to deal with. I'll be praying for you, your dh and your tummy. Love you sweetie! Hugs............. Diane ________________________________ To: livercirrhosissupport Sent: Saturday, November 22, 2008 8:21:14 PM Subject: Re: Why Well, I my DH has cirrhosis and I have ended up with an ulcer. My GP saw me yesterday and I am seeing a gastroenterologist Wed. to have the talk before he schedules the endoscopy. Yippee.!! I just give up. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. From: sandra <sgonz48yahoo (DOT) com> Subject: Re: Why To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, November 22, 2008, 7:47 AM I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or exist with it? some people have no choice and the choice is not ours to make. I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) love in Christ sandra ____________ _________ _________ __ From: sandra <sgonz48yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, November 22, 2008 7:21:58 AM Subject: Why why do some people die and other fair ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Thanks, Diane......seems alI I do lately is cry. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. From: sandra <sgonz48yahoo (DOT) com> Subject: Re: Why To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, November 22, 2008, 7:47 AM I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or exist with it? some people have no choice and the choice is not ours to make. I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) love in Christ sandra ____________ _________ _________ __ From: sandra <sgonz48yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, November 22, 2008 7:21:58 AM Subject: Why why do some people die and other fair ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 It's okay Jill. Just cry it out. Sometimes that's the only answer. Crying with you sweet pea. Luv ya! Diane ________________________________ To: livercirrhosissupport Sent: Sunday, November 23, 2008 7:54:32 AM Subject: Re: Why Thanks, Diane......seems alI I do lately is cry. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. From: sandra <sgonz48yahoo (DOT) com> Subject: Re: Why To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, November 22, 2008, 7:47 AM I think I know the complicated answer but it was on my heart to ask so I did. Some one " poo pooed " liver disease this week and made a statement to me, " people live forever with cirrhosis " . How many deaths have we seen this past 4 months alone since I been on this site? And I am afraid something has happened to Greg's wife. Why do we do transplants if people can live forever with de-compensated liver disease? My husband was up all night with leg cramps...he gets so very tired and irritable... I told him the other day it seems like I am having to more and more guide him along. He is aware of this and he feels bad. We have not gone thru what Chief and other like him have gone thru..others here suffer much more daily then my husband. Everyone here lives with a thunder cloud looming over head. Never really knowing when it will burst wide open makes one a little un-nerved. I think the question should be, do we live with liver disease or exist with it? some people have no choice and the choice is not ours to make. I mean no harm and i pray my words were proper i had to vent...some. ..for my heart does hurt. Do you still care for me:) love in Christ sandra ____________ _________ _________ __ From: sandra <sgonz48yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, November 22, 2008 7:21:58 AM Subject: Why why do some people die and other fair ok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Bob - I agree with you. I expect death. I say I have up to three years if nothing happens to decrease that time. But, as time goes by, I don't subtract from that three years. A year for now, if I am still living, I will still be saying I have three years. ditto two years. At the present time, I am restricted as to what I can get done. For instance, I can do housework, or I can go to Bible studies and practice to play for church on Dec. 14th. Now, what do you think I have chosen. Worst problem is trying to get my grandson and Ed to get this house cleaned up before Ed's grandson and greatgrandson come to visit the 11th of Dec for about 2 weeks. They won't be sleeping in the house, but in the trailer in the back yard, and he has promised to cook some as he likes to do that. But this house isn't ready for an active four year old. It hasn't really been cleaned since I had my bypass in April. Things just get packed away in boxes or moved around and never get put a way. But, generally, I am not in the hospital at the present time, not feeling as if I might have to go into one soon, so life is pretty good. Jan H On Sat, Nov 22, 2008 at 11:14 AM, Bob Aragon wrote: > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ________________________________ > From: sandra <sgonz48@... <sgonz48%40yahoo.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs.......... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 11:56:09 AM Subject: Re: Why Bob - I agree with you. I expect death. I say I have up to three years if nothing happens to decrease that time. But, as time goes by, I don't subtract from that three years. A year for now, if I am still living, I will still be saying I have three years. ditto two years. At the present time, I am restricted as to what I can get done. For instance, I can do housework, or I can go to Bible studies and practice to play for church on Dec. 14th. Now, what do you think I have chosen. Worst problem is trying to get my grandson and Ed to get this house cleaned up before Ed's grandson and greatgrandson come to visit the 11th of Dec for about 2 weeks. They won't be sleeping in the house, but in the trailer in the back yard, and he has promised to cook some as he likes to do that. But this house isn't ready for an active four year old. It hasn't really been cleaned since I had my bypass in April. Things just get packed away in boxes or moved around and never get put a way. But, generally, I am not in the hospital at the present time, not feeling as if I might have to go into one soon, so life is pretty good. Jan H On Sat, Nov 22, 2008 at 11:14 AM, Bob Aragon <robwalkingeagle@ yahoo.com>wrote: > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup s.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Diane, My prayers and love are always with you and your family. You are such a wonderful person.....I feel like I have known you forever and wish I could be closer to help you! Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Oh, Diane, I'm so sorry. I'm praying for you. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Well, a big hug to you, Jan. I hope you will give instructions to someone in your family to let us know if you are hospitalized or something. We don't want to have you just disappear, at least I dont. The hardest thing about this group is the realization that you are more likely to lose your friends here because of this disease, or thier loved one dies and they just want to move on. Love, and happy thanksgiving, Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 10:56:09 AM Subject: Re: Why Bob - I agree with you. I expect death. I say I have up to three years if nothing happens to decrease that time. But, as time goes by, I don't subtract from that three years. A year for now, if I am still living, I will still be saying I have three years. ditto two years. At the present time, I am restricted as to what I can get done. For instance, I can do housework, or I can go to Bible studies and practice to play for church on Dec. 14th. Now, what do you think I have chosen. Worst problem is trying to get my grandson and Ed to get this house cleaned up before Ed's grandson and greatgrandson come to visit the 11th of Dec for about 2 weeks. They won't be sleeping in the house, but in the trailer in the back yard, and he has promised to cook some as he likes to do that. But this house isn't ready for an active four year old. It hasn't really been cleaned since I had my bypass in April. Things just get packed away in boxes or moved around and never get put a way. But, generally, I am not in the hospital at the present time, not feeling as if I might have to go into one soon, so life is pretty good. Jan H On Sat, Nov 22, 2008 at 11:14 AM, Bob Aragon <robwalkingeagle@ yahoo.com>wrote: > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup s.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Hugs, Diane. Love you. Hang in there, hun. Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 1:20:10 PM Subject: Re: Why My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wednesday, November 26, 2008 11:56:09 AM Subject: Re: Why Bob - I agree with you. I expect death. I say I have up to three years if nothing happens to decrease that time. But, as time goes by, I don't subtract from that three years. A year for now, if I am still living, I will still be saying I have three years. ditto two years. At the present time, I am restricted as to what I can get done. For instance, I can do housework, or I can go to Bible studies and practice to play for church on Dec. 14th. Now, what do you think I have chosen. Worst problem is trying to get my grandson and Ed to get this house cleaned up before Ed's grandson and greatgrandson come to visit the 11th of Dec for about 2 weeks. They won't be sleeping in the house, but in the trailer in the back yard, and he has promised to cook some as he likes to do that. But this house isn't ready for an active four year old. It hasn't really been cleaned since I had my bypass in April. Things just get packed away in boxes or moved around and never get put a way. But, generally, I am not in the hospital at the present time, not feeling as if I might have to go into one soon, so life is pretty good. Jan H On Sat, Nov 22, 2008 at 11:14 AM, Bob Aragon <robwalkingeagle@ yahoo.com>wrote: > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Thank you Lyncia. That's the most wonderful thing about this group, you get a whole new family that completely understands what you're going through! Luv ya! Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 4:18:41 PM Subject: Re: Why Diane, My prayers and love are always with you and your family. You are such a wonderful person.....I feel like I have known you forever and wish I could be closer to help you! Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Thank you Jill. I appreciate your concern and your prayers. We're just hangin on here and planning for our family to be here on Friday. Hope you have a good holiday. Hugs......... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 4:55:50 PM Subject: Re: Why Oh, Diane, I'm so sorry. I'm praying for you. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Thanks Bobby. I've had you and Sharon on my mind a lot today. I hope you both are doing fairly well and that you enjoy your Thanksgiving. Luv you both! Hugs.......... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 5:25:13 PM Subject: Re: Why Hugs, Diane. Love you. Hang in there, hun. Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: diane chandler <dianechandler@ att.net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wednesday, November 26, 2008 1:20:10 PM Subject: Re: Why My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wednesday, November 26, 2008 11:56:09 AM Subject: Re: Why Bob - I agree with you. I expect death. I say I have up to three years if nothing happens to decrease that time. But, as time goes by, I don't subtract from that three years. A year for now, if I am still living, I will still be saying I have three years. ditto two years. At the present time, I am restricted as to what I can get done. For instance, I can do housework, or I can go to Bible studies and practice to play for church on Dec. 14th. Now, what do you think I have chosen. Worst problem is trying to get my grandson and Ed to get this house cleaned up before Ed's grandson and greatgrandson come to visit the 11th of Dec for about 2 weeks. They won't be sleeping in the house, but in the trailer in the back yard, and he has promised to cook some as he likes to do that. But this house isn't ready for an active four year old. It hasn't really been cleaned since I had my bypass in April. Things just get packed away in boxes or moved around and never get put a way. But, generally, I am not in the hospital at the present time, not feeling as if I might have to go into one soon, so life is pretty good. Jan H On Sat, Nov 22, 2008 at 11:14 AM, Bob Aragon <robwalkingeagle@ yahoo.com>wrote: > I dont know why people do this. It is insensitive. It's not that we want > to die, but we cant live with our heads buried in the sand either. I have > adjusted my thinking to expect death, and thus have a better life as a > result. Not one day to waste. love bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Sent: Saturday, November 22, 2008 5:47:26 AM > Subject: Re: Why > > I think I know the complicated answer but it was on my heart to ask so I > did. Some one " poo pooed " liver disease this week and made a statement to > me, " people live forever with cirrhosis " . How many deaths have we seen this > past 4 months alone since I been on this site? And I am afraid something has > happened to Greg's wife. Why do we do transplants if people can live forever > with de-compensated liver disease? My husband was up all night with leg > cramps...he gets so very tired and irritable... I told him the other day it > seems like I am having to more and more guide him along. He is aware of this > and he feels bad. We have not gone thru what Chief and other like him have > gone thru..others here suffer much more daily then my husband. Everyone here > lives with a thunder cloud looming over head. Never really knowing when it > will burst wide open makes one a little un-nerved. I think the question > should be, do we live with liver disease or > exist with it? some people have no choice and the choice is not ours to > make. > > I mean no harm and i pray my words were proper i had to vent...some. ..for > my heart does hurt. Do you still care for me:) > > love in Christ sandra > > ____________ _________ _________ __ > From: sandra <sgonz48yahoo (DOT) com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Saturday, November 22, 2008 7:21:58 AM > Subject: Why > > why do some people die and other fair ok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Diane, Can you call for a telephone consult at all? Maybe they can offer home treatment tips to help? I'm not sure. What are the signs of dehydration? MaC diane chandler wrote: My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs.......... Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 His mouth and eyes are very dry. He's passing very little urine and his skin, which is always itchy, is scaly dry and just itches so badly he can barely stop himself from clawing at his arms. He's a bit dizzy and has extreme thrist, which cannot be satiated. I did speak with his doctor's office this afternoon. They say I am most like right and that they'll be happy to admit and rehydrate, but won't do it on an out-patient basis because he is just too sick for that. They're also afraid of letting him leave with an IV needle intact. If he choses to have IV hydration OP, he'll have to get a port. So, we're just sitting on hold for right now. He is a bit more confused but not consistently so. If he has to go into the hospital, I'll be sure to post from there to let everyone know. He has told me a couple of times lately that he doesn't think he'll still be with us at Christmas. But, I tell him, we're not the ones to make that deicision. We'll just have to wait and see what the Lord has in store for us. Thanks so much for your concern MaC. I really am doing well here. I have a strange peace about all of this in the past few days. Not sure what that means, but whatever it is, all will be okay. Hugs........... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 6:31:09 PM Subject: Re: Why Diane, Can you call for a telephone consult at all? Maybe they can offer home treatment tips to help? I'm not sure. What are the signs of dehydration? MaC diane chandler <dianechandler@ att.net> wrote: My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
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