Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Diane, I am criyng for you. Please make him go to the ER. My heart is still breaking from my father passing this morning but it sounds like he needs professional help. Love you, Tina _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of diane chandler Sent: Wednesday, November 26, 2008 10:36 PM To: livercirrhosissupport Subject: Re: Why His mouth and eyes are very dry. He's passing very little urine and his skin, which is always itchy, is scaly dry and just itches so badly he can barely stop himself from clawing at his arms. He's a bit dizzy and has extreme thrist, which cannot be satiated. I did speak with his doctor's office this afternoon. They say I am most like right and that they'll be happy to admit and rehydrate, but won't do it on an out-patient basis because he is just too sick for that. They're also afraid of letting him leave with an IV needle intact. If he choses to have IV hydration OP, he'll have to get a port. So, we're just sitting on hold for right now. He is a bit more confused but not consistently so. If he has to go into the hospital, I'll be sure to post from there to let everyone know. He has told me a couple of times lately that he doesn't think he'll still be with us at Christmas. But, I tell him, we're not the ones to make that deicision. We'll just have to wait and see what the Lord has in store for us. Thanks so much for your concern MaC. I really am doing well here. I have a strange peace about all of this in the past few days. Not sure what that means, but whatever it is, all will be okay. Hugs........... Diane ________________________________ From: MaC <mac0184yahoo (DOT) <mailto:mac0184%40yahoo.com> com> To: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt Sent: Wednesday, November 26, 2008 6:31:09 PM Subject: Re: Why Diane, Can you call for a telephone consult at all? Maybe they can offer home treatment tips to help? I'm not sure. What are the signs of dehydration? MaC diane chandler <dianechandler@ att.net> wrote: My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Oh, Diane....I wish I could be there for you and just hold you. You are so brave. I have been so upset and depressed lately. Last night I talked to the Lord and realized I had let my faith go and not even prayed for myself. I pray for all of you as it is needed........but didn't pray for me. When I did the other night, I felt the weight lift off my shoulders......physically felt it. I know that you have that peace and that's why you feel the way you do. It's so hard for me when Ed talks about not being here in the future, but as you said....the time frame is out of our hands. Please picture me giving you a big hug....lay your head on my shoulders and rest awhile. I'm here for you . Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 God bless you Tina Love ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 10:40:25 PM Subject: RE: Why Diane, I am criyng for you. Please make him go to the ER. My heart is still breaking from my father passing this morning but it sounds like he needs professional help. Love you, Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of diane chandler Sent: Wednesday, November 26, 2008 10:36 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Why His mouth and eyes are very dry. He's passing very little urine and his skin, which is always itchy, is scaly dry and just itches so badly he can barely stop himself from clawing at his arms. He's a bit dizzy and has extreme thrist, which cannot be satiated. I did speak with his doctor's office this afternoon. They say I am most like right and that they'll be happy to admit and rehydrate, but won't do it on an out-patient basis because he is just too sick for that. They're also afraid of letting him leave with an IV needle intact. If he choses to have IV hydration OP, he'll have to get a port. So, we're just sitting on hold for right now. He is a bit more confused but not consistently so. If he has to go into the hospital, I'll be sure to post from there to let everyone know. He has told me a couple of times lately that he doesn't think he'll still be with us at Christmas. But, I tell him, we're not the ones to make that deicision. We'll just have to wait and see what the Lord has in store for us. Thanks so much for your concern MaC. I really am doing well here. I have a strange peace about all of this in the past few days. Not sure what that means, but whatever it is, all will be okay. Hugs........ ... Diane ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) <mailto:mac0184% 40yahoo.com> com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Wednesday, November 26, 2008 6:31:09 PM Subject: Re: Why Diane, Can you call for a telephone consult at all? Maybe they can offer home treatment tips to help? I'm not sure. What are the signs of dehydration? MaC diane chandler <dianechandler@ att.net> wrote: My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs......... .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Can he take spoonfulls of water? Maybe one every 15 minutes or so? MaC diane chandler wrote: His mouth and eyes are very dry. He's passing very little urine and his skin, which is always itchy, is scaly dry and just itches so badly he can barely stop himself from clawing at his arms. He's a bit dizzy and has extreme thrist, which cannot be satiated. I did speak with his doctor's office this afternoon. They say I am most like right and that they'll be happy to admit and rehydrate, but won't do it on an out-patient basis because he is just too sick for that. They're also afraid of letting him leave with an IV needle intact. If he choses to have IV hydration OP, he'll have to get a port. So, we're just sitting on hold for right now. He is a bit more confused but not consistently so. If he has to go into the hospital, I'll be sure to post from there to let everyone know. He has told me a couple of times lately that he doesn't think he'll still be with us at Christmas. But, I tell him, we're not the ones to make that deicision. We'll just have to wait and see what the Lord has in store for us. Thanks so much for your concern MaC. I really am doing well here. I have a strange peace about all of this in the past few days. Not sure what that means, but whatever it is, all will be okay. Hugs........... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 6:31:09 PM Subject: Re: Why Diane, Can you call for a telephone consult at all? Maybe they can offer home treatment tips to help? I'm not sure. What are the signs of dehydration? MaC diane chandler <dianechandler@ att.net> wrote: My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Tina, Thank you so much for thinking of me in the middle of your own pain and suffering. My husband has told me that he doesn't want to be in the hospital, that if it is his time, then he would rather be here at home. I have promised him I will let him do that, if I can at all. When I made that promise, I really did not think I could do it, and even up until the last few days, I had my doubts. Now, I know I can. The Lord has given me so much peace about it. I don't want my husband to die and I pray it is not his time. However, if it is, I am going to try to let him do it the way he wanted to. We have had so many talks about this and I know his heart. So, I will leave it in the hands of the Lord and I will be here with Terry and if tonight or tomorrow or the next day is the day, then I will be thankful for every moment until he crosses over and I will be thankful that the Lord gave me the strenght and peace I needed to let Terry make that crossing in the way he chose. I love you so much for caring. Please don't cry; the Lord is with me and I know He will comfort me and hold me up when the time comes. Please take care of yourself and your Mom. She will need you now more than ever. Take care of your husband and little Sera and treasure every moment with them. Please know that I am fine. It will not be easy, but I will be okay. We've been this close many times before and we've come through it. That may well happen again. If not, then I know it was God's will and that Terry was ready to go. Whether he is here or in heaven, I know he will always love me and I him. Death cannot seperate us from that love. It is more a part of us than our bodies. We will leave our bodies behind, but our love will travel with us to our home with Jesus. I love you sweetheart and I so much appreciate your concern and your compassion. I am okay, I promise. If things change in any way, I will be sure to let you all know what is going on. Please go ahead to bed and try to rest. Rest is important to your health and well-being. Please take care of yourself. That is what you can do for me, take care of yourself so the stress doesn't cause you to have a set-back, okay? Love and many warm hugs............. Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 9:40:25 PM Subject: RE: Why Diane, I am criyng for you. Please make him go to the ER. My heart is still breaking from my father passing this morning but it sounds like he needs professional help. Love you, Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of diane chandler Sent: Wednesday, November 26, 2008 10:36 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Why His mouth and eyes are very dry. He's passing very little urine and his skin, which is always itchy, is scaly dry and just itches so badly he can barely stop himself from clawing at his arms. He's a bit dizzy and has extreme thrist, which cannot be satiated. I did speak with his doctor's office this afternoon. They say I am most like right and that they'll be happy to admit and rehydrate, but won't do it on an out-patient basis because he is just too sick for that. They're also afraid of letting him leave with an IV needle intact. If he choses to have IV hydration OP, he'll have to get a port. So, we're just sitting on hold for right now. He is a bit more confused but not consistently so. If he has to go into the hospital, I'll be sure to post from there to let everyone know. He has told me a couple of times lately that he doesn't think he'll still be with us at Christmas. But, I tell him, we're not the ones to make that deicision. We'll just have to wait and see what the Lord has in store for us. Thanks so much for your concern MaC. I really am doing well here. I have a strange peace about all of this in the past few days. Not sure what that means, but whatever it is, all will be okay. Hugs........ ... Diane ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) <mailto:mac0184% 40yahoo.com> com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Wednesday, November 26, 2008 6:31:09 PM Subject: Re: Why Diane, Can you call for a telephone consult at all? Maybe they can offer home treatment tips to help? I'm not sure. What are the signs of dehydration? MaC diane chandler <dianechandler@ att.net> wrote: My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Thank you so much Jill. This means more to me than I can express in words. I am at peace and I am okay. It's not easy and won't be when the time comes, but I know my Lord is able to carry me through. I know I can depend on Him and on all of you to pray for me. I feel your prayers and your hugs. It makes so much difference. I cannot thank you enough. I love you sweetie and I know we are going to be okay. Love and warm hugs............ Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 9:52:19 PM Subject: Re: Why Oh, Diane....I wish I could be there for you and just hold you. You are so brave. I have been so upset and depressed lately. Last night I talked to the Lord and realized I had let my faith go and not even prayed for myself. I pray for all of you as it is needed...... ..but didn't pray for me. When I did the other night, I felt the weight lift off my shoulders... ...physically felt it. I know that you have that peace and that's why you feel the way you do. It's so hard for me when Ed talks about not being here in the future, but as you said....the time frame is out of our hands. Please picture me giving you a big hug....lay your head on my shoulders and rest awhile. I'm here for you . Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 I have been trying to give him a sip of water every few minutes. At first, it made him sick, but now he seems to be doing better with it. The last time, he actually took quite a big sip. I checked his sugar level to make sure he wasn't too high and that was part of the reason for the thirst, but it is actually a little bit low at 70. I'm trying now to encourage him to take a few bites of something. So far, no luck, but I will keep trying. and checking the levels so he doesn't get too low. He also ate a few ice chips a little while ago. It seems to me he might be trying just a bit harder now to get something in him. I attriute that to everyone's prayers at work! Thanks MaC for all your encouragement and your concern. ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 10:45:20 PM Subject: Re: Why Can he take spoonfulls of water? Maybe one every 15 minutes or so? MaC diane chandler <dianechandler@ att.net> wrote: His mouth and eyes are very dry. He's passing very little urine and his skin, which is always itchy, is scaly dry and just itches so badly he can barely stop himself from clawing at his arms. He's a bit dizzy and has extreme thrist, which cannot be satiated. I did speak with his doctor's office this afternoon. They say I am most like right and that they'll be happy to admit and rehydrate, but won't do it on an out-patient basis because he is just too sick for that. They're also afraid of letting him leave with an IV needle intact. If he choses to have IV hydration OP, he'll have to get a port. So, we're just sitting on hold for right now. He is a bit more confused but not consistently so. If he has to go into the hospital, I'll be sure to post from there to let everyone know. He has told me a couple of times lately that he doesn't think he'll still be with us at Christmas. But, I tell him, we're not the ones to make that deicision. We'll just have to wait and see what the Lord has in store for us. Thanks so much for your concern MaC. I really am doing well here. I have a strange peace about all of this in the past few days. Not sure what that means, but whatever it is, all will be okay. Hugs........ ... Diane ____________ _________ _________ __ From: MaC <mac0184yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wednesday, November 26, 2008 6:31:09 PM Subject: Re: Why Diane, Can you call for a telephone consult at all? Maybe they can offer home treatment tips to help? I'm not sure. What are the signs of dehydration? MaC diane chandler <dianechandler@ att.net> wrote: My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Diane, Excuse me for interrupting and I'm sorry if I'm out of place. I know you are strongly faithful, so am I. But I have to say this, no one dies from Cirrhosis. They die from complications of cirrhosis. You husband does not have to die from dehydration. If he goes into the hospital and receives care that may give him days or months, then that would also be God's will. If he wants to be at home when his time comes, then he can have that. But wouldn't it be smarter to plan for that, than just let it happen? Diane, I know you want what is best for him and I know you love him. Please don't get me wrong, I only write this out of pure concern and love. I understand the peace you feel and the love. But if the Lord wanted him to go to the ER, who would call the ambulance? MaC diane chandler wrote: Tina, Thank you so much for thinking of me in the middle of your own pain and suffering. My husband has told me that he doesn't want to be in the hospital, that if it is his time, then he would rather be here at home. I have promised him I will let him do that, if I can at all. When I made that promise, I really did not think I could do it, and even up until the last few days, I had my doubts. Now, I know I can. The Lord has given me so much peace about it. I don't want my husband to die and I pray it is not his time. However, if it is, I am going to try to let him do it the way he wanted to. We have had so many talks about this and I know his heart. So, I will leave it in the hands of the Lord and I will be here with Terry and if tonight or tomorrow or the next day is the day, then I will be thankful for every moment until he crosses over and I will be thankful that the Lord gave me the strenght and peace I needed to let Terry make that crossing in the way he chose. I love you so much for caring. Please don't cry; the Lord is with me and I know He will comfort me and hold me up when the time comes. Please take care of yourself and your Mom. She will need you now more than ever. Take care of your husband and little Sera and treasure every moment with them. Please know that I am fine. It will not be easy, but I will be okay. We've been this close many times before and we've come through it. That may well happen again. If not, then I know it was God's will and that Terry was ready to go. Whether he is here or in heaven, I know he will always love me and I him. Death cannot seperate us from that love. It is more a part of us than our bodies. We will leave our bodies behind, but our love will travel with us to our home with Jesus. I love you sweetheart and I so much appreciate your concern and your compassion. I am okay, I promise. If things change in any way, I will be sure to let you all know what is going on. Please go ahead to bed and try to rest. Rest is important to your health and well-being. Please take care of yourself. That is what you can do for me, take care of yourself so the stress doesn't cause you to have a set-back, okay? Love and many warm hugs............. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 I'm sorry your husband isn't feeling well. I hope he will get better so he won't have to go to the ER for Thanksgiving. I will be thinking and praying for him and you. Penny My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! > > Hugs........ .. > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 MaC, you're not interrupting or out of place. I know you only speak up because you care so deeply and because you have suffered so desperately yourself. I really do have peace about not calling 911 at this time. I just feel that either everything is going to be okay or that this is the time. I can't say I know for sure which it is, but I do believe I know for sure that it's the right thing not to call 911 right now. Terry is really against going back into the hospital. He is suffering quite a lot now and he has said several times lately that he will be happy when the suffering is over. I just feel that I would be selfish to prolong that. If I step aside and stay out of it and the Lord allows him to continue to live, then I know for sure it is God who is working here and not just my selfish desires. If I step in and call and he gets a bit better but continues to suffer, I will always feel guilty because I put my own needs above his. I watched my Mom die slowly of renal failure and I promised myself then that I would never put my own desires above those of my loved ones again in a similar circumstance. Momma never wanted dialysis, but we asked her to please give it a try, so she did. They put her dual lumen catheter in her right shoulder and she immediately got an infection in it because she had Alzheimer's and couldn't remember to leave it alone. In spite of large efforts by her doctors the infection could not be defeated and she died of sepsis due to the uncontrolled infection. During the last days of her life, she lay in a hospital bed with rigors due to fevers that were out of control and just miserable. After watching her go through that, I could never force Terry to do anything he had told me he didn't want to do. I realize many may not agree with me, but it is how I feel and how I believe Terry would want things to be. I don't hold anything against you or anyone else who just wants to help us. I appreciate it so much more than I can adequately express in words. It is an amazingly wonderful thing to be so loved and cared about by people whom we have never even met face to face. You all are such a blessing to us and I could never be upset with any of you over anything. I just have to do this the way I believe in my heart Terry would want me to do it. I luv ya MaC and I'm thankful for you. Hugs............ Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 11:28:10 PM Subject: Re: Why Diane, Excuse me for interrupting and I'm sorry if I'm out of place. I know you are strongly faithful, so am I. But I have to say this, no one dies from Cirrhosis. They die from complications of cirrhosis. You husband does not have to die from dehydration. If he goes into the hospital and receives care that may give him days or months, then that would also be God's will. If he wants to be at home when his time comes, then he can have that. But wouldn't it be smarter to plan for that, than just let it happen? Diane, I know you want what is best for him and I know you love him. Please don't get me wrong, I only write this out of pure concern and love. I understand the peace you feel and the love. But if the Lord wanted him to go to the ER, who would call the ambulance? MaC diane chandler <dianechandler@ att.net> wrote: Tina, Thank you so much for thinking of me in the middle of your own pain and suffering. My husband has told me that he doesn't want to be in the hospital, that if it is his time, then he would rather be here at home. I have promised him I will let him do that, if I can at all. When I made that promise, I really did not think I could do it, and even up until the last few days, I had my doubts. Now, I know I can. The Lord has given me so much peace about it. I don't want my husband to die and I pray it is not his time. However, if it is, I am going to try to let him do it the way he wanted to. We have had so many talks about this and I know his heart. So, I will leave it in the hands of the Lord and I will be here with Terry and if tonight or tomorrow or the next day is the day, then I will be thankful for every moment until he crosses over and I will be thankful that the Lord gave me the strenght and peace I needed to let Terry make that crossing in the way he chose. I love you so much for caring. Please don't cry; the Lord is with me and I know He will comfort me and hold me up when the time comes. Please take care of yourself and your Mom. She will need you now more than ever. Take care of your husband and little Sera and treasure every moment with them. Please know that I am fine. It will not be easy, but I will be okay. We've been this close many times before and we've come through it. That may well happen again. If not, then I know it was God's will and that Terry was ready to go. Whether he is here or in heaven, I know he will always love me and I him. Death cannot seperate us from that love. It is more a part of us than our bodies. We will leave our bodies behind, but our love will travel with us to our home with Jesus. I love you sweetheart and I so much appreciate your concern and your compassion. I am okay, I promise. If things change in any way, I will be sure to let you all know what is going on. Please go ahead to bed and try to rest. Rest is important to your health and well-being. Please take care of yourself. That is what you can do for me, take care of yourself so the stress doesn't cause you to have a set-back, okay? Love and many warm hugs........ ..... Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Thank you Penny. I so much appreciate your prayers and concern. Hugs........... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 11:30:10 PM Subject: Re: Why I'm sorry your husband isn't feeling well. I hope he will get better so he won't have to go to the ER for Thanksgiving. I will be thinking and praying for him and you. Penny My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! > > Hugs........ .. > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 And I know that God watches over you now. I pray for you and Terry. I pray for comfort and life. MaC diane chandler wrote: MaC, you're not interrupting or out of place. I know you only speak up because you care so deeply and because you have suffered so desperately yourself. I really do have peace about not calling 911 at this time. I just feel that either everything is going to be okay or that this is the time. I can't say I know for sure which it is, but I do believe I know for sure that it's the right thing not to call 911 right now. Terry is really against going back into the hospital. He is suffering quite a lot now and he has said several times lately that he will be happy when the suffering is over. I just feel that I would be selfish to prolong that. If I step aside and stay out of it and the Lord allows him to continue to live, then I know for sure it is God who is working here and not just my selfish desires. If I step in and call and he gets a bit better but continues to suffer, I will always feel guilty because I put my own needs above his. I watched my Mom die slowly of renal failure and I promised myself then that I would never put my own desires above those of my loved ones again in a similar circumstance. Momma never wanted dialysis, but we asked her to please give it a try, so she did. They put her dual lumen catheter in her right shoulder and she immediately got an infection in it because she had Alzheimer's and couldn't remember to leave it alone. In spite of large efforts by her doctors the infection could not be defeated and she died of sepsis due to the uncontrolled infection. During the last days of her life, she lay in a hospital bed with rigors due to fevers that were out of control and just miserable. After watching her go through that, I could never force Terry to do anything he had told me he didn't want to do. I realize many may not agree with me, but it is how I feel and how I believe Terry would want things to be. I don't hold anything against you or anyone else who just wants to help us. I appreciate it so much more than I can adequately express in words. It is an amazingly wonderful thing to be so loved and cared about by people whom we have never even met face to face. You all are such a blessing to us and I could never be upset with any of you over anything. I just have to do this the way I believe in my heart Terry would want me to do it. I luv ya MaC and I'm thankful for you. Hugs............ Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 You will have all of us around you in spirit. Never forget that........ Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Give him a supgar pll to raise his sugar levels and he willl feel better.......or use a sweet tart. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! My husband is doing really badly right now, seems to me to be dehydrated, but refuses to go to the ER cause it's too close to Thanksgiving and he doesn't want to be in hospital for holidays. I'm concerned, but I know I'm batting my head against the wall if I try to convince him of anything different. So, I'll just hang close and be prepared for whatever comes up. Praying for all of you guys and praying everyone has a Happy Thanksgiving! Hugs........ .. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Bob - my daughter and a friend have already posted updates when I have been hospitalized before. I am sure they will do so again if need be. Jan H On Wed, Nov 26, 2008 at 4:11 PM, Bob Aragon wrote: > Well, a big hug to you, Jan. I hope you will give instructions to > someone in your family to let us know if you are hospitalized or something. > We don't want to have you just disappear, at least I dont. The hardest thing > about this group is the realization that you are more likely to lose your > friends here because of this disease, or thier loved one dies and they just > want to move on. Love, and happy thanksgiving, Bobby > > long life, old age, everything good-Apache prayer > > ________________________________ > From: Jan Holman <janholman@... <janholman%40gmail.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Wednesday, November 26, 2008 10:56:09 AM > Subject: Re: Why > > Bob - I agree with you. I expect death. I say I have up to three years if > nothing happens to decrease that time. But, as time goes by, I don't > subtract from that three years. A year for now, if I am still living, I > will still be saying I have three years. ditto two years. At the present > time, I am restricted as to what I can get done. For instance, I can do > housework, or I can go to Bible studies and practice to play for church on > Dec. 14th. Now, what do you think I have chosen. Worst problem is trying > to get my grandson and Ed to get this house cleaned up before Ed's grandson > and greatgrandson come to visit the 11th of Dec for about 2 weeks. They > won't be sleeping in the house, but in the trailer in the back yard, and he > has promised to cook some as he likes to do that. But this house isn't > ready for an active four year old. It hasn't really been cleaned since I > had my bypass in April. Things just get packed away in boxes or moved > around and never get put a way. > > But, generally, I am not in the hospital at the present time, not feeling > as > if I might have to go into one soon, so life is pretty good. Jan H > > On Sat, Nov 22, 2008 at 11:14 AM, Bob Aragon <robwalkingeagle@ yahoo.com > >wrote: > > > I dont know why people do this. It is insensitive. It's not that we want > > to die, but we cant live with our heads buried in the sand either. I have > > adjusted my thinking to expect death, and thus have a better life as a > > result. Not one day to waste. love bobby > > > > long life, old age, everything good-Apache prayer > > > > ____________ _________ _________ __ > > From: sandra <sgonz48yahoo (DOT) com <sgonz48%40yahoo. com>> > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp > ort%40yahoogroup s.com> > > > Sent: Saturday, November 22, 2008 5:47:26 AM > > Subject: Re: Why > > > > I think I know the complicated answer but it was on my heart to ask so I > > did. Some one " poo pooed " liver disease this week and made a statement to > > me, " people live forever with cirrhosis " . How many deaths have we seen > this > > past 4 months alone since I been on this site? And I am afraid something > has > > happened to Greg's wife. Why do we do transplants if people can live > forever > > with de-compensated liver disease? My husband was up all night with leg > > cramps...he gets so very tired and irritable... I told him the other day > it > > seems like I am having to more and more guide him along. He is aware of > this > > and he feels bad. We have not gone thru what Chief and other like him > have > > gone thru..others here suffer much more daily then my husband. Everyone > here > > lives with a thunder cloud looming over head. Never really knowing when > it > > will burst wide open makes one a little un-nerved. I think the question > > should be, do we live with liver disease or > > exist with it? some people have no choice and the choice is not ours to > > make. > > > > I mean no harm and i pray my words were proper i had to vent...some. > ..for > > my heart does hurt. Do you still care for me:) > > > > love in Christ sandra > > > > ____________ _________ _________ __ > > From: sandra <sgonz48yahoo (DOT) com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Sent: Saturday, November 22, 2008 7:21:58 AM > > Subject: Why > > > > why do some people die and other fair ok? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Diane - has the doctor said anything about lacking electrolytes? I have ended up in the er at least twice because my electrolytes were low. If you google electrolytes, they should give you a whole list of the. If they are low, it doesn't matter how much water you drink, it just runs right through you. I take magnesium every day as one of the electrolytes which were recommended by the er doctors. Jan H On Wed, Nov 26, 2008 at 8:36 PM, diane chandler wrote: > His mouth and eyes are very dry. He's passing very little urine and his > skin, which is always itchy, is scaly dry and just itches so badly he can > barely stop himself from clawing at his arms. He's a bit dizzy and has > extreme thrist, which cannot be satiated. I did speak with his doctor's > office this afternoon. They say I am most like right and that they'll be > happy to admit and rehydrate, but won't do it on an out-patient basis > because he is just too sick for that. They're also afraid of letting him > leave with an IV needle intact. If he choses to have IV hydration OP, he'll > have to get a port. So, we're just sitting on hold for right now. He is a > bit more confused but not consistently so. If he has to go into the > hospital, I'll be sure to post from there to let everyone know. He has told > me a couple of times lately that he doesn't think he'll still be with us at > Christmas. But, I tell him, we're not the ones to make that > deicision. We'll just have to wait and see what the Lord has in store for > us. Thanks so much for your concern MaC. I really am doing well here. I > have a strange peace about all of this in the past few days. Not sure what > that means, but whatever it is, all will be okay. > > Hugs........... > Diane > > ________________________________ > From: MaC <mac0184@... <mac0184%40yahoo.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Wednesday, November 26, 2008 6:31:09 PM > Subject: Re: Why > > Diane, > Can you call for a telephone consult at all? Maybe they can offer home > treatment tips to help? I'm not sure. What are the signs of dehydration? > > MaC > > diane chandler <dianechandler@ att.net> wrote: My husband is doing really > badly right now, seems to me to be dehydrated, but refuses to go to the ER > cause it's too close to Thanksgiving and he doesn't want to be in hospital > for holidays. I'm concerned, but I know I'm batting my head against the wall > if I try to convince him of anything different. So, I'll just hang close and > be prepared for whatever comes up. Praying for all of you guys and praying > everyone has a Happy Thanksgiving! > > Hugs........ .. > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 This is gut wrenching, cause I sat in that chair 3 years ago. What a hard decision. You want him here for you, but he is suffering. He is nearing his time, either now or in days, weeks, who knows. I understand what MaC is saying, Diane, and I know what you are saying. Either way, you are doing the right thing. Follow your heart, and everything will be ok in the end. If it's not ok, then it isn't the end. Love, BObby Sent via BlackBerry from T-Mobile Re: Why Diane, Excuse me for interrupting and I'm sorry if I'm out of place. I know you are strongly faithful, so am I. But I have to say this, no one dies from Cirrhosis. They die from complications of cirrhosis. You husband does not have to die from dehydration. If he goes into the hospital and receives care that may give him days or months, then that would also be God's will. If he wants to be at home when his time comes, then he can have that. But wouldn't it be smarter to plan for that, than just let it happen? Diane, I know you want what is best for him and I know you love him. Please don't get me wrong, I only write this out of pure concern and love. I understand the peace you feel and the love. But if the Lord wanted him to go to the ER, who would call the ambulance? MaC diane chandler <dianechandler@ att.net> wrote: Tina, Thank you so much for thinking of me in the middle of your own pain and suffering. My husband has told me that he doesn't want to be in the hospital, that if it is his time, then he would rather be here at home. I have promised him I will let him do that, if I can at all. When I made that promise, I really did not think I could do it, and even up until the last few days, I had my doubts. Now, I know I can. The Lord has given me so much peace about it. I don't want my husband to die and I pray it is not his time. However, if it is, I am going to try to let him do it the way he wanted to. We have had so many talks about this and I know his heart. So, I will leave it in the hands of the Lord and I will be here with Terry and if tonight or tomorrow or the next day is the day, then I will be thankful for every moment until he crosses over and I will be thankful that the Lord gave me the strenght and peace I needed to let Terry make that crossing in the way he chose. I love you so much for caring. Please don't cry; the Lord is with me and I know He will comfort me and hold me up when the time comes. Please take care of yourself and your Mom. She will need you now more than ever. Take care of your husband and little Sera and treasure every moment with them. Please know that I am fine. It will not be easy, but I will be okay. We've been this close many times before and we've come through it. That may well happen again. If not, then I know it was God's will and that Terry was ready to go. Whether he is here or in heaven, I know he will always love me and I him. Death cannot seperate us from that love. It is more a part of us than our bodies. We will leave our bodies behind, but our love will travel with us to our home with Jesus. I love you sweetheart and I so much appreciate your concern and your compassion. I am okay, I promise. If things change in any way, I will be sure to let you all know what is going on. Please go ahead to bed and try to rest. Rest is important to your health and well-being. Please take care of yourself. That is what you can do for me, take care of yourself so the stress doesn't cause you to have a set-back, okay? Love and many warm hugs........ ..... Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 Just wanted to let you know that we have come through the night and things are looking much better this morning. Terry is stronger, more alert and did manage to get a couple of hours of really decent sleep last night. We were up and down throughout the night. He did begin to be able to drink more of the water and ate a little bit more around 4 a.m. He is awake now, but looking like he will be settling down for a long nap soon. His BP is better at 100/68 and his breathing is less labored and steady. He's talking, a lot! He's coherent and stable on his feet. Just so much better today! Thank you all for your prayers during the night. I have high hopes for our family gathering tomorrow night! Now, I've just got to get up and get moving and get all that cooking done! I love all you guys and I'm so thankful for each and every one of you. I am so amazed at the difference in Terry this morning! And, so thankful! Love and hugs........... Diane P.S. Have a great Thanksgiving! I know we are going to! ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 11:55:33 PM Subject: Re: Why And I know that God watches over you now. I pray for you and Terry. I pray for comfort and life. MaC diane chandler <dianechandler@ att.net> wrote: MaC, you're not interrupting or out of place. I know you only speak up because you care so deeply and because you have suffered so desperately yourself. I really do have peace about not calling 911 at this time. I just feel that either everything is going to be okay or that this is the time. I can't say I know for sure which it is, but I do believe I know for sure that it's the right thing not to call 911 right now. Terry is really against going back into the hospital. He is suffering quite a lot now and he has said several times lately that he will be happy when the suffering is over. I just feel that I would be selfish to prolong that. If I step aside and stay out of it and the Lord allows him to continue to live, then I know for sure it is God who is working here and not just my selfish desires. If I step in and call and he gets a bit better but continues to suffer, I will always feel guilty because I put my own needs above his. I watched my Mom die slowly of renal failure and I promised myself then that I would never put my own desires above those of my loved ones again in a similar circumstance. Momma never wanted dialysis, but we asked her to please give it a try, so she did. They put her dual lumen catheter in her right shoulder and she immediately got an infection in it because she had Alzheimer's and couldn't remember to leave it alone. In spite of large efforts by her doctors the infection could not be defeated and she died of sepsis due to the uncontrolled infection. During the last days of her life, she lay in a hospital bed with rigors due to fevers that were out of control and just miserable. After watching her go through that, I could never force Terry to do anything he had told me he didn't want to do. I realize many may not agree with me, but it is how I feel and how I believe Terry would want things to be. I don't hold anything against you or anyone else who just wants to help us. I appreciate it so much more than I can adequately express in words. It is an amazingly wonderful thing to be so loved and cared about by people whom we have never even met face to face. You all are such a blessing to us and I could never be upset with any of you over anything. I just have to do this the way I believe in my heart Terry would want me to do it. I luv ya MaC and I'm thankful for you. Hugs........ .... Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 Happy Thanksgiving sweetie, I'm so relieved & happy for you & your family. I'll continue to keep you in my prayers ! Don't overdue now, being rested & enjoying your family is the most important thing. Love you lady & GOD BLESS YOU ALL ! MaC, you're not interrupting or out of place. I know you only speak up because you care so deeply and because you have suffered so desperately yourself. I really do have peace about not calling 911 at this time. I just feel that either everything is going to be okay or that this is the time. I can't say I know for sure which it is, but I do believe I know for sure that it's the right thing not to call 911 right now. Terry is really against going back into the hospital. He is suffering quite a lot now and he has said several times lately that he will be happy when the suffering is over. I just feel that I would be selfish to prolong that. If I step aside and stay out of it and the Lord allows him to continue to live, then I know for sure it is God who is working here and not just my selfish desires. If I step in and call and he gets a bit better but continues to suffer, I will always feel > guilty because I put my own needs above his. I > watched my Mom die slowly of renal failure and I promised myself then that I would never put my own desires above those of my loved ones again in a similar circumstance. Momma never wanted dialysis, but we asked her to please give it a try, so she did. They put her dual lumen catheter in her right shoulder and she immediately got an infection in it because she had Alzheimer's and couldn't remember to leave it alone. In spite of large efforts by her doctors the infection could not be defeated and she died of sepsis due to the uncontrolled infection. During the last days of her life, she lay in a hospital bed with rigors due to fevers that were out of control and just miserable. After watching her go through that, I could never force Terry to do anything he had told me he didn't want to do. I realize many may not agree with me, but it is how I feel and how I believe Terry would want things to be. I don't hold anything against you or anyone > else who just wants to help us. I appreciate it so much more than I can adequately express in words. It is an amazingly wonderful thing to be so loved and cared about by people whom we have never even met face to face. You all are such a blessing to us and I could never be upset with any of you over anything. I just have to do this the way I believe in my heart Terry would want me to do it. I luv ya MaC and I'm thankful for you. > > Hugs........ .... > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 Thanks ! Happy Thanksgiving to you as well. I am just relaxing and enjoying being with him right now. Our family isn't coming till tomorrow so we're just going to enjoy the day together. Thank you so much for your prayers. Luv ya sweetie! Gentle hugs.......... Diane ________________________________ To: livercirrhosissupport Sent: Thursday, November 27, 2008 8:14:44 AM Subject: Re: Why Happy Thanksgiving sweetie, I'm so relieved & happy for you & your family. I'll continue to keep you in my prayers ! Don't overdue now, being rested & enjoying your family is the most important thing. Love you lady & GOD BLESS YOU ALL ! MaC, you're not interrupting or out of place. I know you only speak up because you care so deeply and because you have suffered so desperately yourself. I really do have peace about not calling 911 at this time. I just feel that either everything is going to be okay or that this is the time. I can't say I know for sure which it is, but I do believe I know for sure that it's the right thing not to call 911 right now. Terry is really against going back into the hospital. He is suffering quite a lot now and he has said several times lately that he will be happy when the suffering is over. I just feel that I would be selfish to prolong that. If I step aside and stay out of it and the Lord allows him to continue to live, then I know for sure it is God who is working here and not just my selfish desires. If I step in and call and he gets a bit better but continues to suffer, I will always feel > guilty because I put my own needs above his. I > watched my Mom die slowly of renal failure and I promised myself then that I would never put my own desires above those of my loved ones again in a similar circumstance. Momma never wanted dialysis, but we asked her to please give it a try, so she did. They put her dual lumen catheter in her right shoulder and she immediately got an infection in it because she had Alzheimer's and couldn't remember to leave it alone. In spite of large efforts by her doctors the infection could not be defeated and she died of sepsis due to the uncontrolled infection. During the last days of her life, she lay in a hospital bed with rigors due to fevers that were out of control and just miserable. After watching her go through that, I could never force Terry to do anything he had told me he didn't want to do. I realize many may not agree with me, but it is how I feel and how I believe Terry would want things to be. I don't hold anything against you or anyone > else who just wants to help us. I appreciate it so much more than I can adequately express in words. It is an amazingly wonderful thing to be so loved and cared about by people whom we have never even met face to face. You all are such a blessing to us and I could never be upset with any of you over anything. I just have to do this the way I believe in my heart Terry would want me to do it. I luv ya MaC and I'm thankful for you. > > Hugs........ .... > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 I'm sorry sweetie. I forgot. Have a nice thanksgiving. Love B. Sent via BlackBerry from T-Mobile Why > > > > why do some people die and other fair ok? > > > > Quote Link to comment Share on other sites More sharing options...
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