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The inversion of sleep patterns is not at all unusual in people with liver

disease, or many other types of chronic illness.  It is so common, it is almost

considered the " norm " .  As to why this may happen, I'm not sure there is an

acceptable scientific explanation.  However, it is observed very frequently and

is one of the most common complaints of those who are chronically ill.  As for

liver disease, I can tell you that, for my husband at least, his biggest

complaints are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

________________________________

To: livercirrhosissupport

Sent: Sunday, November 23, 2008 10:01:53 PM

Subject: (unknown)

I'm about to change my name to " freezing insomniac " touched base on

this topic earlier anyone have a clue as to why my brain goes into

overload until " normal people " are getting up,I'm suddenly tired......I

was told not to take iron,that use to help me stay warm.

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When you figure out how to stay warm and sleep when you should, please let me

know.  The nights are long.  haha

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

Subject: (unknown)

To: livercirrhosissupport

Date: Sunday, November 23, 2008, 10:01 PM

I'm about to change my name to " freezing insomniac " touched base on

this topic earlier anyone have a clue as to why my brain goes into

overload until " normal people " are getting up,I'm suddenly tired......I

was told not to take iron,that use to help me stay warm.

Link to comment
Share on other sites

Diane,

 

I can related to your husband,  I hate the cold the most.

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

Subject: Re: (unknown)

To: livercirrhosissupport

Date: Monday, November 24, 2008, 8:49 AM

The inversion of sleep patterns is not at all unusual in people with liver

disease, or many other types of chronic illness.  It is so common, it is almost

considered the " norm " .  As to why this may happen, I'm not sure there is an

acceptable scientific explanation.  However, it is observed very frequently and

is one of the most common complaints of those who are chronically ill.  As for

liver disease, I can tell you that, for my husband at least, his biggest

complaints are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

____________ _________ _________ __

From: italybell69 <italybell69@ yahoo.com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Sunday, November 23, 2008 10:01:53 PM

Subject: (unknown)

I'm about to change my name to " freezing insomniac " touched base on

this topic earlier anyone have a clue as to why my brain goes into

overload until " normal people " are getting up,I'm suddenly tired......I

was told not to take iron,that use to help me stay warm.

Link to comment
Share on other sites

Yep, that's the one that's getting the best of him right now.  He stays covered

up all the time, usually with a couple of the fleece throws wrapped around him.

Diane

________________________________

To: livercirrhosissupport

Sent: Monday, November 24, 2008 1:57:45 PM

Subject: Re: (unknown)

Diane,

 

I can related to your husband,  I hate the cold the most.

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

From: diane chandler <dianechandler@ att.net>

Subject: Re: (unknown)

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Monday, November 24, 2008, 8:49 AM

The inversion of sleep patterns is not at all unusual in people with liver

disease, or many other types of chronic illness.  It is so common, it is almost

considered the " norm " .  As to why this may happen, I'm not sure there is an

acceptable scientific explanation.  However, it is observed very frequently and

is one of the most common complaints of those who are chronically ill.  As for

liver disease, I can tell you that, for my husband at least, his biggest

complaints are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

____________ _________ _________ __

From: italybell69 <italybell69@ yahoo.com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Sunday, November 23, 2008 10:01:53 PM

Subject: (unknown)

I'm about to change my name to " freezing insomniac " touched base on

this topic earlier anyone have a clue as to why my brain goes into

overload until " normal people " are getting up,I'm suddenly tired......I

was told not to take iron,that use to help me stay warm.

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Share on other sites

I put the electric blanket under the sheet.....hehe

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

From: diane chandler <dianechandler@ att.net>

Subject: Re: (unknown)

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Monday, November 24, 2008, 8:49 AM

The inversion of sleep patterns is not at all unusual in people with liver

disease, or many other types of chronic illness.  It is so common, it is almost

considered the " norm " .  As to why this may happen, I'm not sure there is an

acceptable scientific explanation.  However, it is observed very frequently and

is one of the most common complaints of those who are chronically ill.  As for

liver disease, I can tell you that, for my husband at least, his biggest

complaints are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

____________ _________ _________ __

From: italybell69 <italybell69@ yahoo.com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Sunday, November 23, 2008 10:01:53 PM

Subject: (unknown)

I'm about to change my name to " freezing insomniac " touched base on

this topic earlier anyone have a clue as to why my brain goes into

overload until " normal people " are getting up,I'm suddenly tired......I

was told not to take iron,that use to help me stay warm.

Link to comment
Share on other sites

Before my liver transplant, being cold was so awful for me too! I

was always wrapped up in an electric blanket, sometimes two.

Penny

>

> From: diane chandler <dianechandler@ att.net>

> Subject: Re: (unknown)

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Monday, November 24, 2008, 8:49 AM

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness.  It is so

common, it is almost considered the " norm " .  As to why this may

happen, I'm not sure there is an acceptable scientific explanation. 

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill.  As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

> ____________ _________ _________ __

> From: italybell69 <italybell69@ yahoo.com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

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Share on other sites

Since my transplant, I am so hot all the time. My body temp is

normal again and I just sweat. I'm still not used to having a normal

temp even after almost 11 months since my transplant.

Penny

> >

> > From: diane chandler <dianechandler@ att.net>

> > Subject: Re: (unknown)

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Date: Monday, November 24, 2008, 8:49 AM

> >

> > The inversion of sleep patterns is not at all unusual in people

> with liver disease, or many other types of chronic illness.  It is

so

> common, it is almost considered the " norm " .  As to why this may

> happen, I'm not sure there is an acceptable scientific

explanation. 

> However, it is observed very frequently and is one of the most

common

> complaints of those who are chronically ill.  As for liver disease,

I

> can tell you that, for my husband at least, his biggest complaints

> are: (1) I'm tired, (2) I can't sleep or I sleep all the time and

(3)

> I'm cold.

> >

> > ____________ _________ _________ __

> > From: italybell69 <italybell69@ yahoo.com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Sunday, November 23, 2008 10:01:53 PM

> > Subject: (unknown)

> >

> > I'm about to change my name to " freezing insomniac " touched base

on

> > this topic earlier anyone have a clue as to why my brain goes

into

> > overload until " normal people " are getting up,I'm suddenly

> tired......I

> > was told not to take iron,that use to help me stay warm.

> >

> >

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Share on other sites

Diane,

Just wondering if you're married to MY husband! Sounds just like

him! To tired to even think most days. When he does he gets a

headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

until he just collapses, then it's 4-6 hours and he's up for another

20...hours that is! And yes, he's cold all the time. Well, at least

his feet are cold all the time.

And his ankles & feet are swelling a lot. Not sure if that's the

cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

syndrome'. Not sure which is the main cause of swelling. It's

kinda' like the chicken & the road story. We still don't know which

causes most of his symptoms.

Sorry, hope I don't offend anyone here. I have a weird sense of

humor sometimes. And it comes through in my communication. My mother

always said Life requires a sense of humor, and in my life, a HUGE

sense of humor!

Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

everyone has a great night!

I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

My head hits the pillow and that's all it takes. I'll get some

zzzz's for him and for your hubby. :)

Have a great one!

Twila

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness.  It is so

common, it is almost considered the " norm " .  As to why this may

happen, I'm not sure there is an acceptable scientific explanation. 

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill.  As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

Hi Twila,

Yep, they do sound a lot alike!  We've got the same going on here, the diabetes

and the liver disease.  We know the liver is the culprit though becuase he had

had the diabetes for years before the cirrhosis and didn't have problems with

the tiredness, etc.  He also has so much edema in his legs, ankles and feet. 

Sometimes they just ooze water through the skin.  He's already on two different

types of diuretics and they're afraid to give him anymore.  They tried to

increase and it caused dehydration and a really bad episode of kidney failure

and encephalopathy.  Poor dear.

No sweetie, you didn't offend me!  We all have to deal with the horrid disease

the best way we can.  And, it is true, laughter is the best medicine.  We're

constantly laughing about the weirdest things.  Some people would think we're a

little crazy, but we don't care.  We figure they'd be a little crazy too if they

had to live this disease for a little while!

Hope you get some good rest!  Praying for you and your DH.

Hugs.....................

Diane

________________________________

To: livercirrhosissupport

Sent: Monday, November 24, 2008 11:50:25 PM

Subject: Re: (unknown)

Diane,

Just wondering if you're married to MY husband! Sounds just like

him! To tired to even think most days. When he does he gets a

headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

until he just collapses, then it's 4-6 hours and he's up for another

20...hours that is! And yes, he's cold all the time. Well, at least

his feet are cold all the time.

And his ankles & feet are swelling a lot. Not sure if that's the

cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

syndrome'. Not sure which is the main cause of swelling. It's

kinda' like the chicken & the road story. We still don't know which

causes most of his symptoms.

Sorry, hope I don't offend anyone here. I have a weird sense of

humor sometimes. And it comes through in my communication. My mother

always said Life requires a sense of humor, and in my life, a HUGE

sense of humor!

Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

everyone has a great night!

I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

My head hits the pillow and that's all it takes. I'll get some

zzzz's for him and for your hubby. :)

Have a great one!

Twila

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness.  It is so

common, it is almost considered the " norm " .  As to why this may

happen, I'm not sure there is an acceptable scientific explanation. 

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill.  As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

>

>

>

> ____________ _________ _________ __

> From: italybell69 <italybell69@ ...>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

Twila,

 

Don't apologize for your sense of humor!!  We NEED one for sure, this life is

tough some times and I cherish people with a sense of humor!!! 

Bless you!!!

 

Pamela

Subject: Re: (unknown)

To: livercirrhosissupport

Date: Monday, November 24, 2008, 8:50 PM

Diane,

Just wondering if you're married to MY husband! Sounds just like

him! To tired to even think most days. When he does he gets a

headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

until he just collapses, then it's 4-6 hours and he's up for another

20...hours that is! And yes, he's cold all the time. Well, at least

his feet are cold all the time.

And his ankles & feet are swelling a lot. Not sure if that's the

cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

syndrome'. Not sure which is the main cause of swelling. It's

kinda' like the chicken & the road story. We still don't know which

causes most of his symptoms.

Sorry, hope I don't offend anyone here. I have a weird sense of

humor sometimes. And it comes through in my communication. My mother

always said Life requires a sense of humor, and in my life, a HUGE

sense of humor!

Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

everyone has a great night!

I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

My head hits the pillow and that's all it takes. I'll get some

zzzz's for him and for your hubby. :)

Have a great one!

Twila

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness.  It is so

common, it is almost considered the " norm " .  As to why this may

happen, I'm not sure there is an acceptable scientific explanation. 

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill.  As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

>

>

>

> ____________ _________ _________ __

> From: italybell69 <italybell69@ ...>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

Yea!I I find myself laughing at the most un apprpopriate times,wich makes me

look crazy lol ;0) It is my mechanism for stress,today I found myself laughing

(out loud) in total dead silence at an A.A. meeting because I was off in thought

thinking about lactalose hehe.....Not only am I sick with ESLD but I have been

the caregiver to my 82 yr old father-in-law,whom has severe Alzheimers & is

incontinent has been for the last 4 yrs so cleaning poop and bodily fluids I

have found Hysterical in some way......God Bless!

From: tjingham <tjinghamgmail (DOT) com>

Subject: Re: (unknown)

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Monday, November 24, 2008, 8:50 PM

Diane,

Just wondering if you're married to MY husband! Sounds just like

him! To tired to even think most days. When he does he gets a

headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

until he just collapses, then it's 4-6 hours and he's up for another

20...hours that is! And yes, he's cold all the time. Well, at least

his feet are cold all the time.

And his ankles & feet are swelling a lot. Not sure if that's the

cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

syndrome'. Not sure which is the main cause of swelling. It's

kinda' like the chicken & the road story. We still don't know which

causes most of his symptoms.

Sorry, hope I don't offend anyone here. I have a weird sense of

humor sometimes. And it comes through in my communication. My mother

always said Life requires a sense of humor, and in my life, a HUGE

sense of humor!

Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

everyone has a great night!

I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

My head hits the pillow and that's all it takes. I'll get some

zzzz's for him and for your hubby. :)

Have a great one!

Twila

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness.  It is so

common, it is almost considered the " norm " .  As to why this may

happen, I'm not sure there is an acceptable scientific explanation. 

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill.  As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

>

>

>

> ____________ _________ _________ __

> From: italybell69 <italybell69@ ...>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

Sweetheart, if you can find humor in wiping behinds and cleaning poop, you are a

treasure indeed!  Dealing with life would be impossible for me if I could not

laugh about the inappropriate, that's when it's the funniet!!!  Luv you !

Hugs............

Diane

________________________________

To: livercirrhosissupport

Sent: Tuesday, November 25, 2008 3:04:57 PM

Subject: Re: (unknown)

Yea!I I find myself laughing at the most un apprpopriate times,wich makes me

look crazy lol ;0) It is my mechanism for stress,today I found myself laughing

(out loud) in total dead silence at an A.A. meeting because I was off in thought

thinking about lactalose hehe.....Not only am I sick with ESLD but I have been

the caregiver to my 82 yr old father-in-law, whom has severe Alzheimers & is

incontinent has been for the last 4 yrs so cleaning poop and bodily fluids I

have found Hysterical in some way......God Bless!

From: tjingham <tjinghamgmail (DOT) com>

Subject: Re: (unknown)

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Monday, November 24, 2008, 8:50 PM

Diane,

Just wondering if you're married to MY husband! Sounds just like

him! To tired to even think most days. When he does he gets a

headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

until he just collapses, then it's 4-6 hours and he's up for another

20...hours that is! And yes, he's cold all the time. Well, at least

his feet are cold all the time.

And his ankles & feet are swelling a lot. Not sure if that's the

cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

syndrome'. Not sure which is the main cause of swelling. It's

kinda' like the chicken & the road story. We still don't know which

causes most of his symptoms.

Sorry, hope I don't offend anyone here. I have a weird sense of

humor sometimes. And it comes through in my communication. My mother

always said Life requires a sense of humor, and in my life, a HUGE

sense of humor!

Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

everyone has a great night!

I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

My head hits the pillow and that's all it takes. I'll get some

zzzz's for him and for your hubby. :)

Have a great one!

Twila

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness.  It is so

common, it is almost considered the " norm " .  As to why this may

happen, I'm not sure there is an acceptable scientific explanation. 

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill.  As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

>

>

>

> ____________ _________ _________ __

> From: italybell69 <italybell69@ ...>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

, I never thought of poop like I do now. I took care of my best friend who

died of ESLD in 06 and by the time whe went into the hospice, I had a tearful

meeting with the nursing staff and cna's cause poop was such an issue for me by

then. All the way up to her final hour, we had to discuss this. " Do we change

her at this point? What if she goes while being changed? A lot of people

actually do. Let's change her, if she goes, then, well, she'll be clean. " . In

the weeks after and as I attended my first 90 and 90 in AA people thought I was

NUTS. I HAD to talk about poop. I got furious if I found the slightest yellow

stain on Ardis' leg, and don't tell me that is seeping out of her skin! Some

people were fired and a nursing home investigated my the state because of poop.

Hey, she was content to die alone in her apartment, it was ME who called 911

for her and had her admitted to the hospital, and nursing home, and hospice. In

the end Ardis was paying with her medicare for a professional to do what I had

done for the entire preceding year- Poop duty. I felt like making sure she got

her money's worth. So I totally get your drift!

http://robertwalkingeagle.googlepages.com/home

Love, your fellow poopie pro,

Bobby aka rwe.

Sent via BlackBerry from T-Mobile

(unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

Yep, I'm right there with ya Bobby & !  We are poop pros!!!

 

God Bless us!!!

 

Pamela

From: tjingham <tjinghamgmail (DOT) com>

Subject: Re: (unknown)

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Monday, November 24, 2008, 8:50 PM

Diane,

Just wondering if you're married to MY husband! Sounds just like

him! To tired to even think most days. When he does he gets a

headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

until he just collapses, then it's 4-6 hours and he's up for another

20...hours that is! And yes, he's cold all the time. Well, at least

his feet are cold all the time.

And his ankles & feet are swelling a lot. Not sure if that's the

cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

syndrome'. Not sure which is the main cause of swelling. It's

kinda' like the chicken & the road story. We still don't know which

causes most of his symptoms.

Sorry, hope I don't offend anyone here. I have a weird sense of

humor sometimes. And it comes through in my communication. My mother

always said Life requires a sense of humor, and in my life, a HUGE

sense of humor!

Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

everyone has a great night!

I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

My head hits the pillow and that's all it takes. I'll get some

zzzz's for him and for your hubby. :)

Have a great one!

Twila

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness.  It is so

common, it is almost considered the " norm " .  As to why this may

happen, I'm not sure there is an acceptable scientific explanation. 

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill.  As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

>

>

>

>___________ _________ _________ ___

> From: italybell69 <italybell69@ ...>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

It is nice to know that someone elseknows what its like,it actually is nothing

after you get the hang of it,it's like a baby.My own mother always kind sat back

and said " how do you do THAT " (now,your talking about my parents whom have been

married for 42 years still cant find it in themselves to even so much as fart in

front of each other)he,he,he,I think that sad...but then Oh boy,last year mom

had to have butt surgery and guess where she stayed to recover:)now she has a

different oppinion......thank you for the A.A. advice,I guess back then I just

had a different oppinion about it,hell,I had a different oppinion about me.I'm

sorry about Ardie,I saw her pictures on the site,I'm sure you were a great

friend,but I was wondering why she deceided not to try for a transplant? God

Bless.

From: tjingham <tjinghamgmail (DOT) com>

Subject: Re: (unknown)

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Monday, November 24, 2008, 8:50 PM

Diane,

Just wondering if you're married to MY husband! Sounds just like

him! To tired to even think most days. When he does he gets a

headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

until he just collapses, then it's 4-6 hours and he's up for another

20...hours that is! And yes, he's cold all the time. Well, at least

his feet are cold all the time.

And his ankles & feet are swelling a lot. Not sure if that's the

cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

syndrome'. Not sure which is the main cause of swelling. It's

kinda' like the chicken & the road story. We still don't know which

causes most of his symptoms.

Sorry, hope I don't offend anyone here. I have a weird sense of

humor sometimes. And it comes through in my communication. My mother

always said Life requires a sense of humor, and in my life, a HUGE

sense of humor!

Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

everyone has a great night!

I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

My head hits the pillow and that's all it takes. I'll get some

zzzz's for him and for your hubby. :)

Have a great one!

Twila

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness.  It is so

common, it is almost considered the " norm " .  As to why this may

happen, I'm not sure there is an acceptable scientific explanation. 

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill.  As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

>

>

>

>___________ _________ _________ ___

> From: italybell69 <italybell69@ ...>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

, when she was first diagnosed she basically told me she was dying, and I

didn't have a computer, had never sent or received an email, and just had no

resource to find anything out. It wasn't until the summer of 06 that she was

repeatedly hospitalized that I got online and started looking things up, finding

her different doctors, and what I should do. I picked out a name from the Denver

phone book, Fishman, and read that he was from Johannesburg South

Africa, and decided to take her there. ( I now see him as my gastro

interologist) At the appointment, he spelled it out for us in plain english,he

said with his heavy sooth eefrican accent " my dear, you need a livah

trinsplent!, You caan't geet any sleep, your leegs ar swoolen leek a wooter

mellon, yoo wont leev long at thees rate. You need a freesh liveh. My sugestion

is to go to the univaahsutee across the street, and eesk for a treensplent

evaluation as soon as possible! You'll feel so

much beetah with a freesh livah! " So, the next time I took her to the hospital,

I got her to sign a medical power of attorney, and get witness to sign it, and

in the morning when the 9 doctors came in for morning rounds ( CU is a teaching

hospital) I slipped the head doctor a letter that read " please pass this

around, but don't let Ardis see it- I love her with all of my heart, but my wife

needs brain surgery. If we cant get some help, as soon as you discharge her, I

will bring her to the ER and we both know that because of her condition you will

be compelled to admit her again. I want a liver transplant evaluation for my

friend, we have been friends for 9 years and now I have power of attorney and I

am begging for your help. They finally got her a social worker, who made all the

arraignments, and one of those things was a transplant evaluation 7 days before

she died. They told me that if she could hang on she would be at the top of the

list, but

later they deemed her to not be a candidate because of social support.

Everything I do in AA and here is dedicated to Ardis. Love Bobby

long life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Tuesday, November 25, 2008 5:58:38 PM

Subject: Re: (unknown)

It is nice to know that someone elseknows what its like,it actually is nothing

after you get the hang of it,it's like a baby.My own mother always kind sat back

and said " how do you do THAT " (now,your talking about my parents whom have been

married for 42 years still cant find it in themselves to even so much as fart in

front of each other)he,he, he,I think that sad...but then Oh boy,last year mom

had to have butt surgery and guess where she stayed to recover:)now she has a

different oppinion.... ..thank you for the A.A. advice,I guess back then I just

had a different oppinion about it,hell,I had a different oppinion about me.I'm

sorry about Ardie,I saw her pictures on the site,I'm sure you were a great

friend,but I was wondering why she deceided not to try for a transplant? God

Bless.

From: tjingham <tjinghamgmail (DOT) com>

Subject: Re: (unknown)

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Monday, November 24, 2008, 8:50 PM

Diane,

Just wondering if you're married to MY husband! Sounds just like

him! To tired to even think most days. When he does he gets a

headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

until he just collapses, then it's 4-6 hours and he's up for another

20...hours that is! And yes, he's cold all the time. Well, at least

his feet are cold all the time.

And his ankles & feet are swelling a lot. Not sure if that's the

cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

syndrome'. Not sure which is the main cause of swelling. It's

kinda' like the chicken & the road story. We still don't know which

causes most of his symptoms.

Sorry, hope I don't offend anyone here. I have a weird sense of

humor sometimes. And it comes through in my communication. My mother

always said Life requires a sense of humor, and in my life, a HUGE

sense of humor!

Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

everyone has a great night!

I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

My head hits the pillow and that's all it takes. I'll get some

zzzz's for him and for your hubby. :)

Have a great one!

Twila

>

> The inversion of sleep patterns is not at all unusual in people

with liver disease, or many other types of chronic illness. It is so

common, it is almost considered the " norm " . As to why this may

happen, I'm not sure there is an acceptable scientific explanation.

However, it is observed very frequently and is one of the most common

complaints of those who are chronically ill. As for liver disease, I

can tell you that, for my husband at least, his biggest complaints

are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

I'm cold.

>

>

>

>

>___________ _________ _________ ___

> From: italybell69 <italybell69@ ...>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sunday, November 23, 2008 10:01:53 PM

> Subject: (unknown)

>

>

> I'm about to change my name to " freezing insomniac " touched base on

> this topic earlier anyone have a clue as to why my brain goes into

> overload until " normal people " are getting up,I'm suddenly

tired......I

> was told not to take iron,that use to help me stay warm.

>

>

>

>

Link to comment
Share on other sites

I had a thought which seems appropriate to mention here. Yesterday, out of

the blue, I thought " I should write a book entitled 'A funny thing happened

to me on the way to my death. " Jan H

On Tue, Nov 25, 2008 at 2:54 PM, diane chandler wrote:

> Sweetheart, if you can find humor in wiping behinds and cleaning poop,

> you are a treasure indeed! Dealing with life would be impossible for me if

> I could not laugh about the inappropriate, that's when it's the funniet!!!

> Luv you !

>

> Hugs............

> Diane

>

> ________________________________

> From: wendy miller <italybell69@... <italybell69%40yahoo.com>>

> To:

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> Sent: Tuesday, November 25, 2008 3:04:57 PM

> Subject: Re: (unknown)

>

> Yea!I I find myself laughing at the most un apprpopriate times,wich makes

> me look crazy lol ;0) It is my mechanism for stress,today I found myself

> laughing (out loud) in total dead silence at an A.A. meeting because I was

> off in thought thinking about lactalose hehe.....Not only am I sick with

> ESLD but I have been the caregiver to my 82 yr old father-in-law, whom has

> severe Alzheimers & is incontinent has been for the last 4 yrs so cleaning

> poop and bodily fluids I have found Hysterical in some way......God Bless!

>

>

>

> From: tjingham <tjinghamgmail (DOT) com>

> Subject: Re: (unknown)

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Monday, November 24, 2008, 8:50 PM

>

> Diane,

> Just wondering if you're married to MY husband! Sounds just like

> him! To tired to even think most days. When he does he gets a

> headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

> until he just collapses, then it's 4-6 hours and he's up for another

> 20...hours that is! And yes, he's cold all the time. Well, at least

> his feet are cold all the time.

>

> And his ankles & feet are swelling a lot. Not sure if that's the

> cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

> syndrome'. Not sure which is the main cause of swelling. It's

> kinda' like the chicken & the road story. We still don't know which

> causes most of his symptoms.

>

> Sorry, hope I don't offend anyone here. I have a weird sense of

> humor sometimes. And it comes through in my communication. My mother

> always said Life requires a sense of humor, and in my life, a HUGE

> sense of humor!

>

> Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

> everyone has a great night!

>

> I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

> My head hits the pillow and that's all it takes. I'll get some

> zzzz's for him and for your hubby. :)

>

> Have a great one!

> Twila

>

>

> >

> > The inversion of sleep patterns is not at all unusual in people

> with liver disease, or many other types of chronic illness. It is so

> common, it is almost considered the " norm " . As to why this may

> happen, I'm not sure there is an acceptable scientific explanation.

> However, it is observed very frequently and is one of the most common

> complaints of those who are chronically ill. As for liver disease, I

> can tell you that, for my husband at least, his biggest complaints

> are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

> I'm cold.

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: italybell69 <italybell69@ ...>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Sunday, November 23, 2008 10:01:53 PM

> > Subject: (unknown)

> >

> >

> > I'm about to change my name to " freezing insomniac " touched base on

> > this topic earlier anyone have a clue as to why my brain goes into

> > overload until " normal people " are getting up,I'm suddenly

> tired......I

> > was told not to take iron,that use to help me stay warm.

> >

> >

> >

> >

Link to comment
Share on other sites

Bless you. NIce to meet you. My name is Bobby.

Sent via BlackBerry from T-Mobile

(unknown)

hello

my husband has end stage liver. hospice is now coming out and they told

him 2 to 6 months. but after reading all the posting here. i have alot

of faith. but than again i read some and it changes. i believe its up

to god. but we both have faced it. and we have just been spending all

our time together. i quit my job to be by his side all the time. he

sleeps alot. thanks for all your support

Link to comment
Share on other sites

Hi Mitzi,

I just wanted to say that I completely understand where you're coming from.  It

is like a roller coaster ride, very high up one day and way low down the next. 

Sometimes the ups and downs even come several a day.  You are so right, we are

all in God's hands and that's a secure place to be.  He loves us and will care

for us and keep us, according to His will.  This is a great group of very

supportive people who will love you and help you in any way we can.  We are

always here for you.  You and your husband are in my prayers.  Hang on and post

here any time.  Someone will always be around.

Hugs..........

Diane

________________________________

To: livercirrhosissupport

Sent: Wednesday, November 26, 2008 11:59:10 PM

Subject: (unknown)

hello

my husband has end stage liver. hospice is now coming out and they told

him 2 to 6 months. but after reading all the posting here. i have alot

of faith. but than again i read some and it changes. i believe its up

to god. but we both have faced it. and we have just been spending all

our time together. i quit my job to be by his side all the time. he

sleeps alot. thanks for all your support

Link to comment
Share on other sites

I think that is a marvelous idea!  Put me down for a copy of the first printing!

Hugs.........

Diane

________________________________

To: livercirrhosissupport

Sent: Thursday, November 27, 2008 12:49:14 AM

Subject: Re: (unknown)

I had a thought which seems appropriate to mention here. Yesterday, out of

the blue, I thought " I should write a book entitled 'A funny thing happened

to me on the way to my death. " Jan H

On Tue, Nov 25, 2008 at 2:54 PM, diane chandler <dianechandler@ att.net>wrote:

> Sweetheart, if you can find humor in wiping behinds and cleaning poop,

> you are a treasure indeed! Dealing with life would be impossible for me if

> I could not laugh about the inappropriate, that's when it's the funniet!!!

> Luv you !

>

> Hugs........ ....

> Diane

>

> ____________ _________ _________ __

> From: wendy miller <italybell69@ yahoo.com <italybell69% 40yahoo.com> >

> To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp

ort%40yahoogroup s.com>

> Sent: Tuesday, November 25, 2008 3:04:57 PM

> Subject: Re: (unknown)

>

> Yea!I I find myself laughing at the most un apprpopriate times,wich makes

> me look crazy lol ;0) It is my mechanism for stress,today I found myself

> laughing (out loud) in total dead silence at an A.A. meeting because I was

> off in thought thinking about lactalose hehe.....Not only am I sick with

> ESLD but I have been the caregiver to my 82 yr old father-in-law, whom has

> severe Alzheimers & is incontinent has been for the last 4 yrs so cleaning

> poop and bodily fluids I have found Hysterical in some way......God Bless!

>

>

>

> From: tjingham <tjinghamgmail (DOT) com>

> Subject: Re: (unknown)

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Monday, November 24, 2008, 8:50 PM

>

> Diane,

> Just wondering if you're married to MY husband! Sounds just like

> him! To tired to even think most days. When he does he gets a

> headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

> until he just collapses, then it's 4-6 hours and he's up for another

> 20...hours that is! And yes, he's cold all the time. Well, at least

> his feet are cold all the time.

>

> And his ankles & feet are swelling a lot. Not sure if that's the

> cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

> syndrome'. Not sure which is the main cause of swelling. It's

> kinda' like the chicken & the road story. We still don't know which

> causes most of his symptoms.

>

> Sorry, hope I don't offend anyone here. I have a weird sense of

> humor sometimes. And it comes through in my communication. My mother

> always said Life requires a sense of humor, and in my life, a HUGE

> sense of humor!

>

> Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

> everyone has a great night!

>

> I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

> My head hits the pillow and that's all it takes. I'll get some

> zzzz's for him and for your hubby. :)

>

> Have a great one!

> Twila

>

>

> >

> > The inversion of sleep patterns is not at all unusual in people

> with liver disease, or many other types of chronic illness. It is so

> common, it is almost considered the " norm " . As to why this may

> happen, I'm not sure there is an acceptable scientific explanation.

> However, it is observed very frequently and is one of the most common

> complaints of those who are chronically ill. As for liver disease, I

> can tell you that, for my husband at least, his biggest complaints

> are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

> I'm cold.

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: italybell69 <italybell69@ ...>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Sunday, November 23, 2008 10:01:53 PM

> > Subject: (unknown)

> >

> >

> > I'm about to change my name to " freezing insomniac " touched base on

> > this topic earlier anyone have a clue as to why my brain goes into

> > overload until " normal people " are getting up,I'm suddenly

> tired......I

> > was told not to take iron,that use to help me stay warm.

> >

> >

> >

> >

Link to comment
Share on other sites

Ha! I think we all could be book writers,were real good at expressing on

paper!)!) I thought of a book title " You'll NEVER believe what happened last

night " your is cuter,God Bless,

>

> From: tjingham <tjinghamgmail (DOT) com>

> Subject: Re: (unknown)

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Monday, November 24, 2008, 8:50 PM

>

> Diane,

> Just wondering if you're married to MY husband! Sounds just like

> him! To tired to even think most days. When he does he gets a

> headache. LOL If he sleeps, it's a nap, usually 2 hours or less,

> until he just collapses, then it's 4-6 hours and he's up for another

> 20...hours that is! And yes, he's cold all the time. Well, at least

> his feet are cold all the time.

>

> And his ankles & feet are swelling a lot. Not sure if that's the

> cihrrosis or the type 2 diabetes. Same goes for the 'geez I'm tired

> syndrome'. Not sure which is the main cause of swelling. It's

> kinda' like the chicken & the road story. We still don't know which

> causes most of his symptoms.

>

> Sorry, hope I don't offend anyone here. I have a weird sense of

> humor sometimes. And it comes through in my communication. My mother

> always said Life requires a sense of humor, and in my life, a HUGE

> sense of humor!

>

> Anywho, I'm pooped and it's way past my 'pumpkin time'. Hope

> everyone has a great night!

>

> I'm off to lala land. Yes, I CAN sleep. It's not a problem for me.

> My head hits the pillow and that's all it takes. I'll get some

> zzzz's for him and for your hubby. :)

>

> Have a great one!

> Twila

>

>

> >

> > The inversion of sleep patterns is not at all unusual in people

> with liver disease, or many other types of chronic illness. It is so

> common, it is almost considered the " norm " . As to why this may

> happen, I'm not sure there is an acceptable scientific explanation.

> However, it is observed very frequently and is one of the most common

> complaints of those who are chronically ill. As for liver disease, I

> can tell you that, for my husband at least, his biggest complaints

> are: (1) I'm tired, (2) I can't sleep or I sleep all the time and (3)

> I'm cold.

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: italybell69 <italybell69@ ...>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Sunday, November 23, 2008 10:01:53 PM

> > Subject: (unknown)

> >

> >

> > I'm about to change my name to " freezing insomniac " touched base on

> > this topic earlier anyone have a clue as to why my brain goes into

> > overload until " normal people " are getting up,I'm suddenly

> tired......I

> > was told not to take iron,that use to help me stay warm.

> >

> >

> >

> >

Link to comment
Share on other sites

Yes, you did it right. Hello, I hope you had a good thanks giving. I hope

everyone did. is experiencing some problems, but these are normal for

Liver transplants. When I was first being evaluated for one, I was told " liver

transplants are not for sissies. " That was kind of intimidating, because I am

huge sissy when it comes to tubes down the throat, and needles, and such. Yeesh.

They did take her NG tube out though a couple of days ago, and Joe says that she

might, maybe get to eat solid food tonight. But I haven't checked the blog yet

this evening, only right before my dinner. Love you all, Bobby

long life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Thursday, November 27, 2008 7:59:19 PM

Subject: (unknown)

DIANE

CAN YOU TELL ME HOW I CAN CHAT WITH SOMEONE ON HERE, OR DO YOU JUST

TYPE MESSAGES. THANKS FOR YOUR CONCERN WITH MY HUSBAND. WE HAD A NICE

DINNER. HES SLEEPING NOW. HE DOES SLEEP ALOT AND HES ALWAYS COLD. THIS

IS REALLY A NICE SITE. YOU PEOPLE ARE SO CARING AND GOD BLESS ALL OF YOU

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Share on other sites

Hi Mitzi,

I believe they use Yahoo IM to chat.  Bobby can you pick this one up please?!  I

don't usually join the chats but Bobby does so often.  I know he can tell you

what you need to do.  Sorry I couldn't help you out!  I so happy that you had a

nice Thanksgiving.  Our family is coming to our house for dinner tonight, so I

still have the cooking ahead of me!

Hugs...........

Diane

________________________________

To: livercirrhosissupport

Sent: Thursday, November 27, 2008 8:59:19 PM

Subject: (unknown)

DIANE

CAN YOU TELL ME HOW I CAN CHAT WITH SOMEONE ON HERE, OR DO YOU JUST

TYPE MESSAGES. THANKS FOR YOUR CONCERN WITH MY HUSBAND. WE HAD A NICE

DINNER. HES SLEEPING NOW. HE DOES SLEEP ALOT AND HES ALWAYS COLD. THIS

IS REALLY A NICE SITE. YOU PEOPLE ARE SO CARING AND GOD BLESS ALL OF YOU

Link to comment
Share on other sites

  • 1 month later...

Thanks Celeste. Great to hear your kids are doing well too, we dont have any but are trying and I have wondered what affect it would have on a child and also whether I would be yelling at them every time they put food in their mouth. I guess everybody will feel different and I wont know until the time.Lets be thankful to our loving and tolerant partners.To: Soundsensitivity Sent: Monday, January 26, 2009 12:53:41 PMSubject: (unknown)

Hi Tracey, welcome :D

Yep, that's my biggest struggle -the person I love and trust the most

in this world, my soulmate, is who's eating and breathing and other

little things drive me the most crazy.

Adult chewing is just hideous but luckly the kids sounds don't bother

me really at all...unless they are trying to look over my shoulder

while chewing...I' ll have to tell them to eat somewhere else.

Btw, at 13 and 8, they are both doing great showing no signs of 4S :)

>

> Hi everybody

>

> My name is Tracey and Im a new member, also this is the first forum

type group I have ever joined.

>

> I am looking forward to talking to you all and getting some

understanding of what I experience. I am already relieved to see

there are others who suffer from this. I thought I was just the

world biggest most intolerant person.

>

> My sensitivity started, I think, around the time I was 12 or 13 and

my mothers boyfriend used to make me stay at the table and wait until

he had finished eating. I hated the man but at the same time felt

sorry for him and powerless. Over the years it has spread to more

people and situations although some days it doesnt bother me much at

all.

>

> It causes stress is my relationship as sometimes when my beloved

makes noises in my ear I instantly feel rage and hatred and give

himthe most unkind hateful looks.

>

> Ironically, I have to go now - dinner time. Hopefully one day I

will be able to say that with pleasure and enjoy a family dinner lik

e' normal' people.

>

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Share on other sites

Thanks Darlene.20 years is a long time. It is like going into battle every day when you go out in the world, I never really realised it til today, since I joined the group and starting abstracting my thoughts on my 'situation' a bit. I am envious of people who can just relax and enjoy situations without having to brace against 'attack'.Thanks again and I hope over time I might be able to contribute something useful too.TraceyTo: Soundsensitivity Sent: Sunday, January 25, 2009 9:16:40 PMSubject: (unknown)

Hi Tracey and welcome to the group. We all can relate to what you are

going through and understand the relief knowing you are not alone. It

took me over 20 years before I knew this was actually real! I hope

you can find things here that will help you cope a bit better! Best

wishes.

Darlene

>

> Hi everybody

>

> My name is Tracey and Im a new member, also this is the first forum

type group I have ever joined.

>

> I am looking forward to talking to you all and getting some

understanding of what I experience. I am already relieved to see

there are others who suffer from this. I thought I was just the world

biggest most intolerant person.

>

> My sensitivity started, I think, around the time I was 12 or 13 and

my mothers boyfriend used to make me stay at the table and wait until

he had finished eating. I hated the man but at the same time felt

sorry for him and powerless. Over the years it has spread to more

people and situations although some days it doesnt bother me much at all.

>

> It causes stress is my relationship as sometimes when my beloved

makes noises in my ear I instantly feel rage and hatred and give

himthe most unkind hateful looks.

>

> Ironically, I have to go now - dinner time. Hopefully one day I

will be able to say that with pleasure and enjoy a family dinner lik

e' normal' people.

>

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