'Eugenic Abortion': With Pre-Natal Testing, 9 in 10 Down Syndrome Babies Aborted

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'Eugenic

Abortion’: With Pre-Natal Testing, 9 in 10 Down Syndrome Babies Aborted

Monday, October 13, 2008

By Penny Starr, Senior Staff Writer

(CNSNews.com) – In

1972, a year before the Supreme Court’s Roe v. Wade decision

legalized abortion on demand nationwide, virtually all children with trisomy

21, or Down syndrome, were born. Less than a decade later, with the widespread

availability of pre-natal genetic testing, as many as 90 percent of women whose

babies were pre-natally diagnosed with the genetic condition chose to abort the

child.

The practice has been described by one physician as “eugenic

abortion.”

One survey of

499 primary care physicians treating women carrying these babies, however,

indicated that only 4 percent actively encourage women to bring Down syndrome

babies to term.

Down syndrome, which occurs in individuals who have three rather than two

copies of the 21st chromosome, causes distinct physical characteristics

such as low muscle tone and upward slanting eyes. It also causes mental

retardation, which can range from mild to severe.

With the advent and increasing use of pre-natal testing, according to studies

in the United States and United Kingdom, a diagnosis of Down syndrome has led

to as many as nine out of 10 women choosing to abort the child.

A 2000 anonymous survey of 499 primary care physicians in the United States,

published by town University, indicated that only 4 percent of physicians

who attend women whose babies are pre-natally diagnosed encourage them to

continue the pregnancy and allow the baby with Down syndrome to be born.

Thirteen percent of doctors attending pregnant mothers whose babies are

discovered to have Down syndrome, this survey said, “emphasize” the

negative aspects of Down syndrome and 10 percent said they “urge”

the mothers to terminate the life of the baby.

Sixty three percent reported they “tired to be as unbiased as possible

when delivering a pre-natal diagnosis” and 10 percent indicated they

“emphasize” the positive aspects of Down Syndrome.

A 1998 study by the Department of Newborn Medicine at Brigham and Women’s

Hospital at Harvard Medical School, published in Genetics of Medicine,

concluded that in 1972, 1 in 1,000 babies were born with the extra chromosome

that causes Down syndrome.

“There was no pre-natal detection between 1972 and 1974,” said the

report, which then measured how many women aborted their Down syndrome babies

between 1972 and 1994.

“Between 1972 and 1994 the percentage of infants with Down syndrome who

were liveborn decreased dramatically,” the report said. “In the

early 1980s, this decrease reflected the impact of amniocentesis among women 35

and older.

“By the late 1980s, pre-natal detection was common among women younger

than 35 years and detection was by several modalities including AFP screening,

sonography and amniocentesis. When the (Down syndrome) diagnosis was

established before 24 weeks of gestation, 86% to 87% of the parents chose

elective termination of the pregnancy,” it said.

Another 1998 study by Wayne State University published in the American Journal

of Genetics concluded that almost 90 percent of Down syndrome babies were

aborted between 1987 and 1997.

“In conclusion,” the report said, “our data confirm that most

patients referred to a tertiary care center are likely to choose termination of

pregnancy after the diagnosis of Down syndrome, even in the absence of severe

ultrasound abnormalities.”

The 2004 annual report of the Down Syndrome Cytogenetic Register at the Wolfson

Institute of Preventive Medicine in London found an even higher number of

abortions were done after a pre-natal Down syndrome diagnosis in Great

Britain. In 2003, 91 percent of cases with known outcomes resulted in

abortion. The same percentage was recorded in 2004.

ACOG Wants More Testing

Studies show pre-natal testing for Down syndrome has become increasingly common

over the last three decades, however, the American College of Obstetricians and

Gynecologists (ACOG) in January 2007 called for even more testing.

“All pregnant women, regardless of age, should be offered screening for

Down syndrome,” according to the new Practice Bulletin issued (Jan. 2,

2007) by the ACOG.

“ACOG also advises that all pregnant women, regardless of their age,

should have the option of diagnostic testing,” the Bulletin states.

“ACOG recognizes that a woman’s decision to have an amniocentesis

or CVS is based on many factors, such as a family or personal history of birth

defects, and the risk of pregnancy loss from an invasive procedure.”

But Dr. Will ston, president of Canadian Physicians for Life, reacted to

ACOG’s pre-natal testing endorsement as another step toward eugenics.

“The progress of eugenic abortion into the heart of our society is a

classic example of “mission creep,’ ” said in an

article posted on the group’s Web site in February 2007. “In

the 1960s, we were told that legal abortion would be a rare tragic act in cases

of exceptional hardship. In the ‘70s abortion began to be both

decried and accepted as birth control. In the ‘80s respected geneticists

pointed out that it was cheaper to hunt for and abort Down’s babies than

to raise them. By the ‘90s that observation had been widely put into

action. Now we are refining and extending our eugenic vision, with new

tests and abortion as our central tools.”

Today, women of all ages who seek pre-natal care with an obstetrician are

offered screenings that can estimate the mother’s risk of carrying a Down

syndrome baby.

These screenings include a blood test to find certain “markers”

associated with the genetic condition and sonograms, which doctors can use to

measure the fluid in the neck of the baby, or nuchal translucency, which also

can indicate that the developing baby has Down syndrome.

If the results of these screenings indicate there is a higher risk that an

unborn child might have Down syndrome, doctors offer the mother additional

diagnostic tests, including amniocentesis, which requires inserting a needle

into the womb to draw amniotic fluid so the chromosomes of fetal cells can be

examined.

Another test, Chorionic villus sampling, or CVS, collects fetal cells from the

placenta via the cervix. Both tests are almost 100 percent accurate in detecting

Down syndrome in an unborn child.

Because they are invasive, however, both tests can cause a miscarriage.

According to ACOG and the federal Centers for Disease Control and Prevention,

for example, between one in 400 and one in 200 women have a miscarraige after

amniocentesis. Other complications that can arise from amniocentesis include

injury to the developing baby and infection.

The risk of miscarriage after first-trimester amniocentesis may be three times

higher than the risk after second-trimester amniocentesis, according to the

results of the Canadian Early and Mid-Trimester Amniocentesis Trial Group,

which were published in The Lancet in 1998.

Results of a 2004 study published in Obstetrics and Gynecology suggested that

early amniocentesis may also increase the risk of the deformity called

clubfoot.

According to the Royal College of Obstetricians and Gynecologists (RCOG) in

London, the additional overall risk of miscarriage from amniocentesis is

approximately one percent. In other words, about one in every 100 women

who have amniocentesis under ultrasound guidance after 15 weeks will miscarry.

RCOG also claims that the additional overall risk of miscarriage from CVS is

approximately two percent. In other words, about two in every 100 women who

have CVS under ultrasound guidance after 10 weeks will miscarry.

Dr. B. Holmes, a geneticist at Massachusetts General Hospital who

participated in the 1998 study on pre-natal testing at Brigham and

Women’s Hospital, said that some patients refuse pre-natal screening.

“The (patients) who have strong religious or cultural leaning …

don’t take the test,” Holmes told CNSNews.com. “So they make

their choice very easily.”

But many, Holmes said, use the pre-natal diagnosis of Down syndrome as a reason

to end the pregnancy.

“Even though you encourage, ‘take your time, take your time,’

they usually display a real sense of urgency,” Holmes said.

Post-Test Resources

Some parents of children with Down syndrome told CNSNews.com that when

they got their diagnostic test results, they did not get the information they

needed about the condition and the resources that are available to them and

their children.

Lucy Talbot, the mother of a Down syndrome child, is president of Families

Exploring Down Syndrome, a support group of some 200 families in Michigan that

have children with the genetic condition.

Talbot said her group’s Changing Lives program, developed by the National

Down Syndrome Society, is designed to teach medical professionals how to give a

compassionate diagnosis and provide the resources and support that parents

need.

“(The doctor) says, ‘Your baby has these characteristics, we think

your baby has Down syndrome,’” Talbot said. “They say,

‘We’re going to do some blood work,’ and they walk out of the

room.”

“You’ve just changed a person’s life forever,” she

said.

Dr. Holmes said he offers detailed information about Down syndrome to parents,

as well as giving them the option of speaking with parents who have children

with the genetic condition.

But Skotko, a resident physician at Children’s Boston Hospital,

said Holmes is the exception, not the rule. Skotko cited the results of a

questionnaire sent out to 1,105 ACOG fellows and junior fellows in 2004.

Among the 60 percent that were returned, 80 percent said they felt qualified to

counsel patients about genetic issues and pregnancy, but 45 percent rated their

residency training regarding prenatal diagnosis as “barely

adequate” or “non-existent.”

Skotko, who has a sister with Down syndrome and serves on several boards of

Down syndrome advocacy groups, said pre-natal testing has put the fate of

unborn children in their parents’ hands.

“Current testing affords couples to learn, if they so desire, pre-natally

whether or not their fetus has Down syndrome,” Skotko said.

“I encourage all parents to think about and answer two essential

questions, which I think can be their guideposts through all pre-natal testing

that’s available during pregnancy. One, they need to answer for

themselves when does life begin and then answer the question, what forms of

human life are valuable?” he added.

“The first question will determine for them when life starts,” he

said, “so what testing done at certain times may determine for them

whether or not termination is allowable in their own moral compass.”

“And then once life begins, they then need to answer the other question,

what forms of human life are valuable?” said Skotko. “Some people

say, once life begins, all forms of human life are valuable--others say, once

life begins, only certain characteristics are valuable.”

New tests Could Increase Abortions

Now, a new pre-natal blood test that could check a baby’s DNA has been

developed by researcher Dr. Quake and his team at Stanford University.

Quake said a broader test is needed.

Carol Boys, chief executive of the Down’s (sic) Syndrome Association in

Great Britain, told the BBC that the less invasive blood test will make

pre-natal testing safer and more common.

“There is no question that these non-invasive tests will be introduced in

the next few years,” Boys said. “It’s therefore incredibly

important that potential parents are given accurate information on Down’s

(sic) syndrome before they make a choice about whether to terminate or

not.”

But Alison of the No Less Human group that is a part of the British

Society for the Protection of Unborn Children said in an article on

lifenews.com that the new test wasn’t a positive development.

“ " The new non-invasive test for Down's syndrome will inevitably mean

more pre-natal testing, leading to more abortions of babies with the condition.

Describing this as a 'breakthrough' is offensive to people who live with Down's

syndrome, and to all who recognize the equal right to life of disabled

people,” she said.

(Next story in this series: One woman who chose to give birth to her Down

syndrome son speaks out.

http://www.cnsnews.com/public/content/article.aspx?RsrcID=37421