Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 when i ask my doctor about this she just kind of laughs at me.so...how different is my life expectancy with half a liver and no transplant? i've even been very serious about it and she avoids the subject like she's protecting me or something.i'm mearly curious having accepted the fact that i was sick a longggg time ago.now your probably going to tell me everything that everyone " i " know is telling me. " we're all different,don't even think about dyin'.i'm not askin a friggin date.i'm asking how much has my life expectancy from my scirrosis has changed.does anybody understand my question? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Hi, We have had the same issue with Charlie's Dr. The answer has been- " I'm sorry about your prognosis " and " Let me just monitor you " . We have had one Dr. tell you a year ago that Charlie had 1 1/2 to 2 years. We are the type that want to have as much information as possible-good, bad or otherwise. I'm not sure why some Drs. are reluctant to say. A lot of our knowlege is been through our own research. Nona Subject: life expectancy? To: livercirrhosissupport Date: Wednesday, November 26, 2008, 1:52 PM when i ask my doctor about this she just kind of laughs at me.so...how different is my life expectancy with half a liver and no transplant? i've even been very serious about it and she avoids the subject like she's protecting me or something.i' m mearly curious having accepted the fact that i was sick a longggg time ago.now your probably going to tell me everything that everyone " i " know is telling me. " we're all different,don' t even think about dyin'.i'm not askin a friggin date.i'm asking how much has my life expectancy from my scirrosis has changed.does anybody understand my question? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Yes, Jerry, I understand your question and I understand why you want to know. The truth is, we don't really know. However, judging from what you have said and based upon what my husband's doctor told us, I would say maybe 3 years or less. That's not a medical opinion, just mine and I'm sure not a medical professional. I know a man who has been actively dying for over 2 months now. I mean, he's weaker every day, he's unresponsive, has lost over 200 pounds and yet, he's still alive. My own husband was told last Oct that he had at the mosts 6 months. That has been 13 months ago and he's still alive, and not just alive, but alert for the most part,, able to get up and walk around the house and talks to his Mom on the telephone almost every night. So, you see, it really is very hard to say. Our bodies are amazing machines and can keep puttering along even when we think it won't. I'm sorry I can't give you more specific information, but there's just so much we know as humans. Life is in the hands of the Giver of Life. Ultimately, only He knows when the end will come. I hope you can find some peace with your circumstances. You are in my prayers. Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 1:52:50 PM Subject: life expectancy? when i ask my doctor about this she just kind of laughs at me.so...how different is my life expectancy with half a liver and no transplant? i've even been very serious about it and she avoids the subject like she's protecting me or something.i' m mearly curious having accepted the fact that i was sick a longggg time ago.now your probably going to tell me everything that everyone " i " know is telling me. " we're all different,don' t even think about dyin'.i'm not askin a friggin date.i'm asking how much has my life expectancy from my scirrosis has changed.does anybody understand my question? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Hi, Jerry. I guess I kinda understand. You can live a long time with a severly damaged liver. It all depends how functional the liver stays. Kind of like driving a car to Fresno with a blown head gasket. You could stop every few miles and keep filling up the water in the radiator, but sooner or later those cylinders are going to freeze up. The person would just be better off to have a new engine or cylinder head put in , regardless of the $1000 price tag. We are like that I think. You can live with cirrhosis, but sooner or later you will decompensate, swell up, start bleedin, catch the flu, something. A transplant gives you a chance, just a chance to circumvent all of these complications. It could also kill you. Transplants are very risky in themselves. A lot of hepatologists would rather see you live with the liver you got as long as possible. Thats what my hepatologist is telling me. This doctor who avoids the subject, is it a hepatologist??? cause if it is anything but a transplant hepatologist, at a major hospital, I think that right there explains it all. You would be surprised how much a lot of regular doctors don't know very much about liver disease. My regular doctor admits to my face that she just doesn't know that much about it. She knows the basics, but when I see her and explain what they told me over at the university, she just nods, and goes " hmmmm... ok, hmmmmmm, ok, i see. " The only reason I keep seeing her is that she doesnt try to BS me and tell me lies. Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Wednesday, November 26, 2008 12:52:50 PM Subject: life expectancy? when i ask my doctor about this she just kind of laughs at me.so...how different is my life expectancy with half a liver and no transplant? i've even been very serious about it and she avoids the subject like she's protecting me or something.i' m mearly curious having accepted the fact that i was sick a longggg time ago.now your probably going to tell me everything that everyone " i " know is telling me. " we're all different,don' t even think about dyin'.i'm not askin a friggin date.i'm asking how much has my life expectancy from my scirrosis has changed.does anybody understand my question? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Hi Jerry, I understand the question. My hubby had maybe 3 months at the most to live. You know when they tell you to get your sh** in order, it is almost the end. Reality check there. But, he chose to try to get on a transplant list, and changed his life. He was a heavy drinker all his life. That is all he knew to do. But, he changed, and I am glad he did. Life ain't ove rif you don't drink anymore. You lose all your friends you thought you had, but you make new ones. It ain't over til fat lady sings. Only you can make that decision. NO ONE else can. Choose life. Sue Subject: life expectancy? To: livercirrhosissupport Date: Wednesday, November 26, 2008, 2:52 PM when i ask my doctor about this she just kind of laughs at me.so...how different is my life expectancy with half a liver and no transplant? i've even been very serious about it and she avoids the subject like she's protecting me or something.i' m mearly curious having accepted the fact that i was sick a longggg time ago.now your probably going to tell me everything that everyone " i " know is telling me. " we're all different,don' t even think about dyin'.i'm not askin a friggin date.i'm asking how much has my life expectancy from my scirrosis has changed.does anybody understand my question? Quote Link to comment Share on other sites More sharing options...
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