Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 I am so sorry for all that you are going through with your husband and so sorry that he is so sick. It's hard to say since we don't know very much about what's going on with your husband. Even then, liver disease is very unpredictable. The best advice I can give you is to learn as much as you can about your husband's condition. Ask questions of his doctor and be there for doctor's appointments. Know first hand what is going on. This is a great group and we will be here with you and for you as you face the days ahead. You can come here with questions, or just to vent your frustrations. I'll be praying for you guys. Let us know how things are going. Hugs.......... Diane C. from TN ________________________________ To: livercirrhosissupport Sent: Sunday, November 23, 2008 10:51:31 AM Subject: My husband My husband just got out of the hospital after 13 days. He has Hep. B and Cirrhosis. He just turned 40 and said that when his doctor told him he would die if he didn't quit drinking, he " didn't take him seriously. " No one kept me in the loop and he lied to me about it. I'm concerned about the swelling in his scrotum. They say it will go down, but I'm wondering how long he'll have to suffer with this. Any advice? Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Thank you for your thoughts. We're just going to have to get through this day by day. My husband is not one for doctors. They have done quite a bit of help and harm to him to date. He went through 2 back surgeries, the latter to get the nerve out from behind the screw head after a year of doctor denial that he could have made a mistake. He just lost hope because he felt so bad physically and now look at him! He's 100 times worse. He is losing weight so fast, it's scary. He claims that the told him that if he lived clean and healthy for a year, he would have a chance for a transplant. They assured him they would get him straightened out and that there was hope. I wonder if he's being honest with me, since I never saw or spoke to the docs and he rushed out of the hospital when the nurse said he was supposed to stay another night. I can not get the right answers to anything, because he does not want me to. Thanks for listening... Kim Subject: Re: My husband To: livercirrhosissupport Date: Sunday, November 23, 2008, 1:34 PM I am so sorry for all that you are going through with your husband and so sorry that he is so sick. It's hard to say since we don't know very much about what's going on with your husband. Even then, liver disease is very unpredictable. The best advice I can give you is to learn as much as you can about your husband's condition. Ask questions of his doctor and be there for doctor's appointments. Know first hand what is going on. This is a great group and we will be here with you and for you as you face the days ahead. You can come here with questions, or just to vent your frustrations. I'll be praying for you guys. Let us know how things are going. Hugs........ .. Diane C. from TN ____________ _________ _________ __ From: womendo2 <womendo2yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, November 23, 2008 10:51:31 AM Subject: My husband My husband just got out of the hospital after 13 days. He has Hep. B and Cirrhosis. He just turned 40 and said that when his doctor told him he would die if he didn't quit drinking, he " didn't take him seriously. " No one kept me in the loop and he lied to me about it. I'm concerned about the swelling in his scrotum. They say it will go down, but I'm wondering how long he'll have to suffer with this. Any advice? Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Kim, That really does leave you in a difficult place then. Since he doesn't want you to know, you may have trouble getting any of his doctors to reveal any of his information to you. If you think his mind is compromised, you might be able to get the court to declare you his guardian and then you could get access, but that would be a major move on your part. However, it may be necessary in order for you to find out anything. I'm not saying that you should or should not do that, I'm just offering an opinion here. There are no easy answers. Please know you are in my prayers. Diane ________________________________ To: livercirrhosissupport Sent: Sunday, November 23, 2008 5:20:31 PM Subject: Re: My husband Thank you for your thoughts. We're just going to have to get through this day by day. My husband is not one for doctors. They have done quite a bit of help and harm to him to date. He went through 2 back surgeries, the latter to get the nerve out from behind the screw head after a year of doctor denial that he could have made a mistake. He just lost hope because he felt so bad physically and now look at him! He's 100 times worse. He is losing weight so fast, it's scary. He claims that the told him that if he lived clean and healthy for a year, he would have a chance for a transplant. They assured him they would get him straightened out and that there was hope. I wonder if he's being honest with me, since I never saw or spoke to the docs and he rushed out of the hospital when the nurse said he was supposed to stay another night. I can not get the right answers to anything, because he does not want me to. Thanks for listening... Kim From: diane chandler <dianechandler@ att.net> Subject: Re: My husband To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, November 23, 2008, 1:34 PM I am so sorry for all that you are going through with your husband and so sorry that he is so sick. It's hard to say since we don't know very much about what's going on with your husband. Even then, liver disease is very unpredictable. The best advice I can give you is to learn as much as you can about your husband's condition. Ask questions of his doctor and be there for doctor's appointments. Know first hand what is going on. This is a great group and we will be here with you and for you as you face the days ahead. You can come here with questions, or just to vent your frustrations. I'll be praying for you guys. Let us know how things are going. Hugs........ .. Diane C. from TN ____________ _________ _________ __ From: womendo2 <womendo2yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, November 23, 2008 10:51:31 AM Subject: My husband My husband just got out of the hospital after 13 days. He has Hep. B and Cirrhosis. He just turned 40 and said that when his doctor told him he would die if he didn't quit drinking, he " didn't take him seriously. " No one kept me in the loop and he lied to me about it. I'm concerned about the swelling in his scrotum. They say it will go down, but I'm wondering how long he'll have to suffer with this. Any advice? Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Thank you. Kim From: diane chandler <dianechandler@ att.net> Subject: Re: My husband To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, November 23, 2008, 1:34 PM I am so sorry for all that you are going through with your husband and so sorry that he is so sick. It's hard to say since we don't know very much about what's going on with your husband. Even then, liver disease is very unpredictable. The best advice I can give you is to learn as much as you can about your husband's condition. Ask questions of his doctor and be there for doctor's appointments. Know first hand what is going on. This is a great group and we will be here with you and for you as you face the days ahead. You can come here with questions, or just to vent your frustrations. I'll be praying for you guys. Let us know how things are going. Hugs........ .. Diane C. from TN ____________ _________ _________ __ From: womendo2 <womendo2yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, November 23, 2008 10:51:31 AM Subject: My husband My husband just got out of the hospital after 13 days. He has Hep. B and Cirrhosis. He just turned 40 and said that when his doctor told him he would die if he didn't quit drinking, he " didn't take him seriously. " No one kept me in the loop and he lied to me about it. I'm concerned about the swelling in his scrotum. They say it will go down, but I'm wondering how long he'll have to suffer with this. Any advice? Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Dear Kim I am sorry to ask cause you might have explained already or may be it is none of my business...but why do you not have privilege to talk to his doctors and inquire about his disease and condition? I wanted to tell you my husband does not claim anything...we go to the doc he has obvious signs and symptoms and denies any thing and every thing one of his doc listen to him saying " oh every thing is alright no problems at all then the doc " then he will turn to me and i will tell the truth...i always give my husband the opportunity to deny. Its really funny...My husband does not want any information from me or very little as possible...he get some from the doctors... he can only receive little bits and pieces at a time...he is concerned about his health but in his own way. He accepts that he is sick but to dwell on it he feels will make him sicker...and to him knowing is to dwell. He got hep c probably before we met 30 yrs ago. I do not know for sure nobody does...He drank of course he was a " working man " and that was his privilege to have a cold one when he came home from working hard ....when we found out we had just buried our son, and saw our daughter go to prison for 6 yrs. I thught he was just very stressed...It was at my aunts funeral that we really started noticing how sick my husband was...he was very yellow..my husband had little to none blood oxygen and he started swelling...and he still denied all this. He had no energy to walk and kept saying he is fine...i can go on and on. the only doc he really sees is his gastro doc and i have to take him kicking and screaming and he likes him. he also sees the hep doc with the team. He will not go see the PCP. i choose my battles. all this does make me crazy cause it is not the way i would react... so i do what i do and he does what he does. love in Christ sandra ________________________________ To: livercirrhosissupport Sent: Sunday, November 23, 2008 9:42:53 PM Subject: Re: My husband Thank you. Kim From: diane chandler <dianechandler@ att.net> Subject: Re: My husband To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, November 23, 2008, 1:34 PM I am so sorry for all that you are going through with your husband and so sorry that he is so sick. It's hard to say since we don't know very much about what's going on with your husband. Even then, liver disease is very unpredictable. The best advice I can give you is to learn as much as you can about your husband's condition. Ask questions of his doctor and be there for doctor's appointments. Know first hand what is going on. This is a great group and we will be here with you and for you as you face the days ahead. You can come here with questions, or just to vent your frustrations. I'll be praying for you guys. Let us know how things are going. Hugs........ .. Diane C. from TN ____________ _________ _________ __ From: womendo2 <womendo2yahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, November 23, 2008 10:51:31 AM Subject: My husband My husband just got out of the hospital after 13 days. He has Hep. B and Cirrhosis. He just turned 40 and said that when his doctor told him he would die if he didn't quit drinking, he " didn't take him seriously. " No one kept me in the loop and he lied to me about it. I'm concerned about the swelling in his scrotum. They say it will go down, but I'm wondering how long he'll have to suffer with this. Any advice? Thank you. Quote Link to comment Share on other sites More sharing options...
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